Re: misc.

[Guest guest]

Thank You Gwynne,

It's been a tough weekend, each day is getting a little better. How

are you doing?

Hugs Irene

>

> Diane,

> I always carried Helios Companions whenever I went out,

> and always had to have spares. They only use continuous

> oxygen and go up to 15 liters. At home I was on liquid

> oxygen as well.

>

> Joyce,

> I'm worried about your blisters under the sterile bandage.

> What are you going to do? I'm so glad you got to eat out

> at a restaurant with your sweet husband.

>

> Irene,

> I'm glad you are back home. You have really been through

> it, and I hope everything starts to improve daily, one step

> at a time.

>

> ,

> It's great news that you had such a nice trip. Sounds like

> a lovely retreat. It's funny how much of a vacation revolves

> around eating, but it does!

>

> Wally,

> I'm astounded at the money your shindig raised. That is

> absolutely fantastic!!!!!

>

> and ,

> I can relate all too well to the questions and frustrations

> you are having. It IS a full-time job to have PF. You have

> both had so much to deal with at once, it has to be

> overwhelming. I hope you'll get lots of useful information

> from the board as well as from some better doctors than

> in the past. There are ways to improve your quality of life,

> none of which we usually find out about from doctors.

> Keep coming here where people understand what you're

> going through.

>

> dragonflymcs,

> It seems like your whole world pretty much blew up and

> washed away. I can only imagine how you have survived

> all that, or the conditions under which you're presently

> living. I hope you find some resources for help soon, and

> I'm sorry you have the need for the board, but keep coming

> here because it's a great bunch of caring and informative

> people.

>

> Hugs and blessings,

> Gwynnie 57 Single-lung Transplant 4-3-08 for IPF, at

> UTHSC San , TX

>