misc.

[Guest guest]

Diane,

I always carried Helios Companions whenever I went out,

and always had to have spares. They only use continuous

oxygen and go up to 15 liters. At home I was on liquid

oxygen as well.

Joyce,

I'm worried about your blisters under the sterile bandage.

What are you going to do? I'm so glad you got to eat out

at a restaurant with your sweet husband.

Irene,

I'm glad you are back home. You have really been through

it, and I hope everything starts to improve daily, one step

at a time.

,

It's great news that you had such a nice trip. Sounds like

a lovely retreat. It's funny how much of a vacation revolves

around eating, but it does!

Wally,

I'm astounded at the money your shindig raised. That is

absolutely fantastic!!!!!

and ,

I can relate all too well to the questions and frustrations

you are having. It IS a full-time job to have PF. You have

both had so much to deal with at once, it has to be

overwhelming. I hope you'll get lots of useful information

from the board as well as from some better doctors than

in the past. There are ways to improve your quality of life,

none of which we usually find out about from doctors.

Keep coming here where people understand what you're

going through.

dragonflymcs,

It seems like your whole world pretty much blew up and

washed away. I can only imagine how you have survived

all that, or the conditions under which you're presently

living. I hope you find some resources for help soon, and

I'm sorry you have the need for the board, but keep coming

here because it's a great bunch of caring and informative

people.

Hugs and blessings,

Gwynnie 57 Single-lung Transplant 4-3-08 for IPF, at

UTHSC San , TX