Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hi Dragonfly, Wow, you do have your hands full don't you? What started your journey if you don't mind the question? What kinds of chemicals have you been exposed to? At work? How well is the RADS controlled? What kinds of symptoms do you have from the MCS and what do they say about the severity of your ILD? I hope we can help and I know we will learn alot from you! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 I have tried everything. They will not come to me. I cannot get to them yet due to medical supplies I do not have. One DCF case worker came and then never case back. I reported it. It is complicated. She came the other day about 1 week ago and has not come back. Does not return my calls. Housing authority discriminated as did local agency for victims of the hurricanes. They will not do anything because of my MCS. Here My story: This is not the whole story. Too long full of lies, betrayals, deceit a lot of pain, we continue to endure. We have no access (ADA) due to disability. http://360.yahoo.com/dragonflymcs http://www.bubblegirl.net/mcs.phpdragonflymcs Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 I was exposed to toxic mold. Which is a natural occurring chemical. That damaged my immune system. Now my body can no longer elliminate toxins which are in almost everything we use. I have a few usefull links. Please share with others. People with lung problems should know about this. All I have are machines that are trying to keep us alive. One filters chemicals and has a hepa filter and the other sterilizes the air and removes chemicals. You should all have at least the second. It is called a BIO NET by Healthy way. It is a class 2 medical device. Chemicals are lung irritants. Do you have problem when you clean, or are around people with perfume etc. You should change all these products. Let me give you a few places to read. I am not an envrionmentalist, I have a condition that I have had to learn a lot about which led me to this. I have a lot of useful information for those with lung conditions about irritantes in there homes to avoid. About Mold Deadly Silent Killer: http://www.mold-help.org/ About my condition: http://www.mcs-america.org/index_files/MCS.htm http://www.mcs-global.org/ About Perfumes: http://allnaturalbeauty.us/chemicalsensitivities_jrussell.htm About Chemicals: http://www.familymanagement.com/childcare/facility/chemical.toxins.safety.html 9/11 http://www.chemicalsensitivityfoundation.org/chemical-sensitivity-research_bibliography.htm My story: Some of it. All would be exhauting. http://360.yahoo.com/dragonflymcs Hope this helps. I have more!!!! There are also several links on my page. dragonflymcs Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Hang in there May. You have been through so much. I'm still trying to get through posts from being gone. God Bless you!!!!! K Illinoisdragonflymcs wrote: I am ill as a result of the 2004 hurricanes. I contnue to be exposed. Trapped by disease. I cannot even go live outside. Would not be expected to make it for long outside. My immune system is damaged and severely impaired. My home is totaledand water continues to come in. my story is on a couple of sites. I lack the means to fix my situation. My whole story is long, very long. His is ongoing so i cannot discuss. I had just had surgery when the hurricanes came. i had 3 tumors (fybroid) removed. My home has alot of water intrusion. My insurance ould not pay. FEMA did not help. Three miserable years later my insurance filed bankruptcy. I have been lied to and about. Caseworkers will not come. Housing athorities denied us housing stating they could not accomodate me, my condition. everyone and evrything failed. That is basically it. I have searched high and low. No end in sight. Lies, deciet betrayals, ba attorneys, criminal I would say. Here we are almost 4 years later. I tried everything to get out. dragonflymcs Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 , Thank you !!!!!!!!!!!!!!!!!!!!!!!! XoXoXo Do you know this?? dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 I think I do!!! hugs and kisses right? K Illinoisdragonflymcs wrote: , Thank you !!!!!!!!!!!!!!!!!!!!!!!! XoXoXo Do you know this?? dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Yes Mam On the Button xxoooxxxoooo !!!!!!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Thanks girl!!!!! I'll take them. K dragonflymcs wrote: Yes Mam On the Button xxoooxxxoooo !!!!!!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Anyone with overlapping Syndromes? Hi, I have ILD and MCS anyone here with these? Also have fibro and RADS. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
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