13 Centers of Excellence

[Guest guest]

Mayleen

Here is the link to information about the medical centers that make up the "13 Centers of Excellence". They are 12 hospitals along with Duke University that have especially dedicated themselves to finding a treatment for IPF and various other types of pulmonary fibrosis.

https://www.ipfnet.org/

Given your restrictions I'm guessing being seen at one of these would be logistically difficult for you. But a second opinion (at least) on your ILD would be very helpful I'm sure.

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

To dragonfly> > > I've been waiting for you to post to us about the disease we have in common and how you are coping with whatever problems you may be having or already solved.> I'd like to hear to hear more about you Mayleen. I'm feeling overwhelmed with so many other things you post that I don't read all your posts any longer. I don't want to be

rude to you if you are needing us.> I know you are dealing with a lot because of your living conditions and other health problems for which I have no suggestions.> How are you dealing with a disease we CAN help with?> > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.> Don't fret about tomorrow, God is already there!>

[Guest guest]

Beth

Thank you for responding to Mayleen I was sure you would ,you are

very alert to all the mails and you have agreat way of holding out a

helping hand.Mayleen seems to need a lot of help and right guidance

at preent.

Geeta

> Mayleen

> Here is the link to information about the medical centers that

make up the " 13 Centers of Excellence " . They are 12 hospitals along

with Duke University that have especially dedicated themselves to

finding a treatment for IPF and various other types of pulmonary

fibrosis. 

>  https://www.ipfnet.org/

> Given your restrictions I'm guessing being seen at one of these

would be logistically difficult for you. But a second opinion (at

least) on your ILD would be very helpful I'm sure.Beth 

> Age 48 Fibrotic NSIP 06/06

>  

> Change everything. Love and Forgive    

>  

>  

>

>

>

> To dragonfly

> >

> >

> > I've been waiting for you to post to us about the disease we

have

> in common and how you are coping with whatever problems you may be

> having or already solved.

> > I'd like to hear to hear more about you Mayleen. I'm feeling

> overwhelmed with so many other things you post that I don't read

all

> your posts any longer.   I don't want to be rude to you if you are

> needing us.

> > I know you are dealing with a lot because of your living

> conditions and other health problems for which I have no

suggestions.

> > How are you dealing with a disease we CAN help with?

> >  

> >  Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.

> >  Don't fret about tomorrow, God is already there!

> >

>

[Guest guest]

Thank you all! All information you can give could help me put the puzzle together. It is greatly appreciated. I have to find that combo hospital where they are knowledgeable of both, since the one greatly interferes with the other. Thank you from the bottom of my heart !!!!!

I think it would be the Mayo Clinic, I would have to travel North about 6 hours or so.

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

To dragonfly> > > > > > I've been waiting for you to post to us about the disease we have > in common and how you are coping with whatever problems you may be > having or already solved.> > I'd like to hear to hear more about you Mayleen. I'm feeling > overwhelmed with so many other things you post that I don't read all > your posts any longer. I don't want to be rude to you if you are > needing us.> > I know you are dealing with a lot because of your living > conditions and other health

problems for which I have no suggestions.> > How are you dealing with a disease we CAN help with?> > > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.> > Don't fret about tomorrow, God is already there!> >>