Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Irene, Don did one at home and he was hooked up to many many wires and leads. It didn't hurt at all, (maybe on his hairy chest when they disconnected) but he was sure he wasn't going to sleep. However, he did and he didn't have Apnea. That was in 99 so they have probably improved the technique since then. K IllinoisIrene wrote: Hi All,Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow.What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it?How does it feel?Does it require an over night in hospital?ThanksIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Thanks Going to sleep for me it's easy....just the thought of what they might find.... Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 ---- Original Message ---- To: Breathe-Support Sent: Sun, 25 May 2008 10:18 pm Subject: Re: Sleep Apnea Study???? Irene, Don did one at home and he was hooked up to many many wires and leads. It didn't hurt at all, (maybe on his hairy chest when they disconnected) but he was sure he wasn't going to sleep. However, he did and he didn't have Apnea. That was in 99 so they have probably improved the technique since then. K Illinois Irene <Irn3183aim> wrote: Hi All, Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow. What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it? How does it feel? Does it require an over night in hospital? Thanks Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 I was overnite in the hospital with leads and posts connected like a ekg. It was quiet temp controlled bedroom. I was allowed to read follow normal bedtime procedures. had private bathroom. I read till about 10:00 and then asked for lights out. The room is sound monitored. I tossed and turned till about 2:00 when the nurse came in and started trying different cpap masks. I finally got to REM sleep about 4:00 and was woken and told I could go home. In about a week I got the dx of severe sleep apnea and a prescription for full face mask which I have been fighting since. Most adjust easily. There is nothing uncomfortable about the test. Have fun. Steve 60 from WA IPF 2006 Parkinsons 2008 Alzheimers 2008 Reply-To: Breathe-Support To: Breathe-Support Subject: Sleep Apnea Study????Date: Sun, 25 May 2008 23:00:57 -0400 Hi All,Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow.What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it?How does it feel?Does it require an over night in hospital?ThanksIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Irene.... a sleep study is just that.... a study while you sleep. There is absolutely nothing to hurt about it. Just wires and stuff so they can study breathing and if you stop breathing and how many times. I've done 2 studies. If they find you do have sleep apnea, be glad. Otherwise you do not know you stopped breathing! And if left unattended it CAN have fatal results. You sure don't want to stop breathing some night and not start again. A cpap machine/mask (many styles) will be ordered for you if you do have apnea. The mask fits over your nose or full face and if you stop breathing in the night the forced air from cpap creates a breath in you. Since I've had my cpap I breathe every so much better, sleep better and wake more refreshed. There is nothing to dread...not even the dx, Irene. Stopping breathing in the night is much worse! About a too narrow pharynx, I know nothing. Hope this helps a little. Sleep Apnea Study???? Hi All,Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow.What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it?How does it feel?Does it require an over night in hospital?ThanksIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Z....OK! YOU have the hubby "Mike". LOL...I put Mike w/ S and then wondered who Mike was when she said her hubby's name is Sherman. Guess I have it straight now. lol Hope you and yours have had a nice weekend. Re: Sleep Apnea Study???? Irene, I haven't had the sleep apnea study, but my husband Mike has gone through several over the past 10 years.It does not hurt. They stick a bunch of sticky ended wires on you and then tell you to sleep normally!!!You usualy have an evening appointment and sleep over night. They monitor your sleep pattern looking for the stoppage of breathingwhich is part of sleep apnea and usually comes with snoring. They show you your tape the next day or so and then tell you if you needa CPAP machine to help with the breathless events.. In fact he has a follow-up appointment ( after a year) in a week.Good luck with your.test.BTW..how are you? Are you feeling any better? Can you eat?It was good to speak with you last week. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley <!--[if !supportEmptyParas]--> <!--[endif]--> <!--[if !supportEmptyParas]--> <!--[endif]-->Irene wrote: Hi All,Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow.What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it?How does it feel?Does it require an over night in hospital?ThanksIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.24.1/1464 - Release Date: 5/24/2008 8:56 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Thanks Sher. It does help a lot. I'll let you know when I have the appointment. I made the decision this morning to have it done and I contacted my lung dr to set up the appointment. Irene ---- Original Message ---- To: Breathe-Support Sent: Mon, 26 May 2008 12:49 pm Subject: Re: Sleep Apnea Study???? Irene.... a sleep study is just that.... a study while you sleep. There is absolutely nothing to hurt about it. Just wires and stuff so they can study breathing and if you stop breathing and how many times. I've done 2 studies. If they find you do have sleep apnea, be glad. Otherwise you do not know you stopped breathing! And if left unattended it CAN have fatal results. You sure don't want to stop breathing some night and not start again. A cpap machine/mask (many styles) will be ordered for you if you do have apnea. The mask fits over your nose or full face and if you stop breathing in the night the forced air from cpap creates a breath in you. Since I've had my cpap I breathe every so much better, sleep better and wake more refreshed. There is nothing to dread...not even the dx, Irene. Stopping breathing in the night is much worse! About a too narrow pharynx, I know nothing. Hope this helps a little. Sleep Apnea Study???? Hi All, Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow. What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it? How does it feel? Does it require an over night in hospital? Thanks Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008  Irene... I think you will be glad to have the study. Knowledge is our best tool. I do know how tiresome one thing after another can get but when it comes to breathing we need to pay attention. One thing I forgot to mention....I was on O2...went on cpap....sats improved so I no longer qualified for O2! This may not happen with you but I know it was the cpap that made the difference. Nothing else changed. Wait and see what happens with the study. Sleep Apnea Study???? Hi All,Some questions I have about Sleep Apnea Study...I will have to do it in the near future. Also I learned my pharynx is too narrow.What is Sleep Apnea study and does it hurt? Has anyone here on the group has done it?How does it feel?Does it require an over night in hospital?ThanksIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 At my most recent visit to my pulmonary specialist at Beth Israel Deaconess Hospital in Boston, they referred me for a sleep study to see if I might have sleep apnea. I will be going to the sleep studies lab at Concord (NH) Hospital, but the date has not been set yet. As I understand it, the previous response was exactly right…the main thing they are looking for is your oxygen saturation levels as you sleep. Mine is the last bit of input they need for my file before the send all my info to the transplant team at Brigham and Women’s in Boston, to see if I can get listed. Steve…aka Knip IPF Dec07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 I just went for my sleep study in Sandusky, Ohio, within the last couple of weeks. The center was wonderful. Very knowledgeable and polite staff and well equipped. The rooms was comfortable and staged to look like a real bedroom. They explained everything the night I " checked in " , and hooked up about 100 probes to my head, legs, neck, chest and arms. They monitored me by video and the computer readings throughout approximatley 7 hours of sleep. The result was that I quit breathing approximately 7-10 times per hour. Also, during the REM sleep, which is " rapid eye movement " sleep and which is the best sleep, my oxygen levels dropped into the low 70s and the lowest reading was 68. I am able to maintain my 02 SATS in the 90s without supplemental oxygen, so long as I am not up moving around. So, they had me do the sleep study without my oxygen. This was the first night I have went without it since last February (2007) when I was diagnosed with IPF. I was also told that I have leg and arm movement/involvement throughout my sleep. This is the same thing as " Restless Leg Syndrome " , but restless leg syndrome happens when you are awake. The leg and arm involvement during sleep has another name, but I forget what it is called. The staff explained that there is medication for treatment of this too, and it will provide the patient with more quality sleep. I don't know if I will have to look into that or not. But, I did spend a second night at the sleep center to try the CPAP and BIPAP machine. It was a trial and error type of night. I was permitted to pick the mask that I thought would work best for me and the staff had to adjust the settings throughout the night while I slept to find the proper setting to accomplish keeping me breathing. I think it was finally set at somewhere between 7 and 10. I had a difficult time exhaling against the pressure of the forced air, so I think I will be prescribed the BIPAP , rather than the CPAP. I was told the insurance company would not pay for the BIPAP until they were given details of why the CPAP would not work...and proof that it had been tried. In any event, I am thankful my sleep apnea is being addressed and that proper treatment is just around the corner. I did sleep better than I can ever remember while using the CPAP and BIPAP machine. It was painless and actually a quite nice experience for me at the sleep center. God Bless, Tina IPF 04/07 PAH 11/07 Ohio > > At my most recent visit to my pulmonary specialist at Beth Israel Deaconess > Hospital in Boston, they referred me for a sleep study to see if I might > have sleep apnea. I will be going to the sleep studies lab at Concord (NH) > Hospital, but the date has not been set yet. As I understand it, the > previous response was exactly right.the main thing they are looking for is > your oxygen saturation levels as you sleep. Mine is the last bit of input > they need for my file before the send all my info to the transplant team at > Brigham and Women's in Boston, to see if I can get listed. > > > > Steve.aka Knip > > > > IPF Dec07 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Hi Tina, How are you? It is good to hear from you. You have been on my mind. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. I just went for my sleep study in Sandusky, Ohio, within the last couple of weeks. The center was wonderful. Very knowledgeable and polite staff and well equipped. The rooms was comfortable and staged to look like a real bedroom. They explained everything the night I "checked in", and hooked up about 100 probes to my head, legs, neck, chest and arms. They monitored me by video and the computer readings throughout approximatley 7 hours of sleep. The result was that I quit breathing approximately 7-10 times per hour. Also, during the REM sleep, which is "rapid eye movement" sleep and which is the best sleep, my oxygen levels dropped into the low 70s and the lowest reading was 68. I am able to maintain my 02 SATS in the 90s without supplemental oxygen, so long as I am not up moving around. So, they had me do the sleep study without my oxygen. This was the first night I have went without it since last February (2007) when I was diagnosed with IPF. I was also told that I have leg and arm movement/involvement throughout my sleep. This is the same thing as "Restless Leg Syndrome", but restless leg syndrome happens when you are awake. The leg and arm involvement during sleep has another name, but I forget what it is called. The staff explained that there is medication for treatment of this too, and it will provide the patient with more quality sleep. I don't know if I will have to look into that or not. But, I did spend a second night at the sleep center to try the CPAP and BIPAP machine. It was a trial and error type of night. I was permitted to pick the mask that I thought would work best for me and the staff had to adjust the settings throughout the night while I slept to find the proper setting to accomplish keeping me breathing. I think it was finally set at somewhere between 7 and 10. I had a difficult time exhaling against the pressure of the forced air, so I think I will be prescribed the BIPAP , rather than the CPAP. I was told the insurance company would not pay for the BIPAP until they were given details of why the CPAP would not work...and proof that it had been tried. In any event, I am thankful my sleep apnea is being addressed and that proper treatment is just around the corner. I did sleep better than I can ever remember while using the CPAP and BIPAP machine. It was painless and actually a quite nice experience for me at the sleep center. God Bless,TinaIPF 04/07 PAH 11/07Ohio >> At my most recent visit to my pulmonary specialist at Beth Israel Deaconess> Hospital in Boston, they referred me for a sleep study to see if I might> have sleep apnea. I will be going to the sleep studies lab at Concord (NH)> Hospital, but the date has not been set yet. As I understand it, the> previous response was exactly right.the main thing they are looking for is> your oxygen saturation levels as you sleep. Mine is the last bit of input> they need for my file before the send all my info to the transplant team at> Brigham and Women's in Boston, to see if I can get listed.> > > > Steve.aka Knip> > > > IPF Dec07> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 TINA, JOE AND JOANIE HERE...WE VISIT JOANIE'S FAMILY IN LORAIN COUNTY EVERY YEAR AND AS YOU KNOW SANDUSKY AREA IS ABOUT 1 HOUR AWAY. SINCE YOUR TEST WAS IN SANDUSKY, I ASSUME YOU LIVE WITHIN 1-2 HOURS OF MY FAMILY. PERHAPS IF YOU WOULD LIKE, WE COULD MEET THIS SUMMER....JOANIE -- Re: Sleep Apnea Study???? I just went for my sleep study in Sandusky, Ohio, within the last couple of weeks. The center was wonderful. Very knowledgeable and polite staff and well equipped. The rooms was comfortable and staged to look like a real bedroom. They explained everything the night I "checked in", and hooked up about 100 probes to my head, legs, neck, chest and arms. They monitored me by video and the computer readings throughout approximatley 7 hours of sleep. The result was that I quit breathing approximately 7-10 times per hour. Also, during the REM sleep, which is "rapid eye movement" sleep and which is the best sleep, my oxygen levels dropped into the low 70s and the lowest reading was 68. I am able to maintain my 02 SATS in the 90s without supplemental oxygen, so long as I am not up moving around. So, they had me do the sleep study without my oxygen. This was the first night I have went without it since last February (2007) when I was diagnosed with IPF. I was also told that I have leg and arm movement/involvement throughout my sleep. This is the same thing as "Restless Leg Syndrome", but restless leg syndrome happens when you are awake. The leg and arm involvement during sleep has another name, but I forget what it is called. The staff explained that there is medication for treatment of this too, and it will provide the patient with more quality sleep. I don't know if I will have to look into that or not. But, I did spend a second night at the sleep center to try the CPAP and BIPAP machine. It was a trial and error type of night. I was permitted to pick the mask that I thought would work best for me and the staff had to adjust the settings throughout the night while I slept to find the proper setting to accomplish keeping me breathing. I think it was finally set at somewhere between 7 and 10. I had a difficult time exhaling against the pressure of the forced air, so I think I will be prescribed the BIPAP , rather than the CPAP. I was told the insurance company would not pay for the BIPAP until they were given details of why the CPAP would not work...and proof that it had been tried. In any event, I am thankful my sleep apnea is being addressed and that proper treatment is just around the corner. I did sleep better than I can ever remember while using the CPAP and BIPAP machine. It was painless and actually a quite nice experience for me at the sleep center. God Bless,TinaIPF 04/07 PAH 11/07Ohio >> At my most recent visit to my pulmonary specialist at Beth Israel Deaconess> Hospital in Boston, they referred me for a sleep study to see if I might> have sleep apnea. I will be going to the sleep studies lab at Concord (NH)> Hospital, but the date has not been set yet. As I understand it, the> previous response was exactly right.the main thing they are looking for is> your oxygen saturation levels as you sleep. Mine is the last bit of input> they need for my file before the send all my info to the transplant team at> Brigham and Women's in Boston, to see if I can get listed.> > > > Steve.aka Knip> > > > IPF Dec07> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 thanks Steve. I'm just waiting for an appointment to be set up for me. With all the information, I got from the group, I think I'll be OK to do it and whatever the results are we will deal with them, when the time comes. Thanks Irene ---- Original Message ---- To: Breathe-Support Sent: Mon, 26 May 2008 8:37 pm Subject: Re: Sleep Apnea Study???? At my most recent visit to my pulmonary specialist at Beth Israel Deaconess Hospital in Boston, they referred me for a sleep study to see if I might have sleep apnea. I will be going to the sleep studies lab at Concord (NH) Hospital, but the date has not been set yet. As I understand it, the previous response was exactly right…the main thing they are looking for is your oxygen saturation levels as you sleep. Mine is the last bit of input they need for my file before the send all my info to the transplant team at Brigham and Women’s in Boston, to see if I can get listed. Steve…aka Knip IPF Dec07 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Tina....Reading about your sleep study... It takes awhile to adjust to the cpap. One night is not enough. I can talk with my mask/cpap on and I couldn't believe that could happen when I first started out. You WILL sleep better. For ME, my O2 levels improved to where I no longer qualified for O2. That was a couple of years back. I am once again on O2 w/exertion and always at night. I'm glad you had the study! I hope you feel some relief and the information you now have and know your sleep quality CAN be improved. Thanks so much for the little message from Kaleb...brought tears to my eyes. Take a picture of his party and send to me. Hey, isn't Jack interesting? (Don't tell him I said this though, heheeee) A warm MamaSher hug to you today. I'm soooo glad your study was productive. MamaSher, age 69.IPF 3-06,NSIP 4-08. OR.Don't fret about tomorrow, God is already there! Re: Sleep Apnea Study???? I just went for my sleep study in Sandusky, Ohio, within the last couple of weeks. The center was wonderful. Very knowledgeable and polite staff and well equipped. The rooms was comfortable and staged to look like a real bedroom. They explained everything the night I "checked in", and hooked up about 100 probes to my head, legs, neck, chest and arms. They monitored me by video and the computer readings throughout approximatley 7 hours of sleep. The result was that I quit breathing approximately 7-10 times per hour. Also, during the REM sleep, which is "rapid eye movement" sleep and which is the best sleep, my oxygen levels dropped into the low 70s and the lowest reading was 68. I am able to maintain my 02 SATS in the 90s without supplemental oxygen, so long as I am not up moving around. So, they had me do the sleep study without my oxygen. This was the first night I have went without it since last February (2007) when I was diagnosed with IPF. I was also told that I have leg and arm movement/involvement throughout my sleep. This is the same thing as "Restless Leg Syndrome", but restless leg syndrome happens when you are awake. The leg and arm involvement during sleep has another name, but I forget what it is called. The staff explained that there is medication for treatment of this too, and it will provide the patient with more quality sleep. I don't know if I will have to look into that or not. But, I did spend a second night at the sleep center to try the CPAP and BIPAP machine. It was a trial and error type of night. I was permitted to pick the mask that I thought would work best for me and the staff had to adjust the settings throughout the night while I slept to find the proper setting to accomplish keeping me breathing. I think it was finally set at somewhere between 7 and 10. I had a difficult time exhaling against the pressure of the forced air, so I think I will be prescribed the BIPAP , rather than the CPAP. I was told the insurance company would not pay for the BIPAP until they were given details of why the CPAP would not work...and proof that it had been tried. In any event, I am thankful my sleep apnea is being addressed and that proper treatment is just around the corner. I did sleep better than I can ever remember while using the CPAP and BIPAP machine. It was painless and actually a quite nice experience for me at the sleep center. God Bless,TinaIPF 04/07 PAH 11/07Ohio >> At my most recent visit to my pulmonary specialist at Beth Israel Deaconess> Hospital in Boston, they referred me for a sleep study to see if I might> have sleep apnea. I will be going to the sleep studies lab at Concord (NH)> Hospital, but the date has not been set yet. As I understand it, the> previous response was exactly right.the main thing they are looking for is> your oxygen saturation levels as you sleep. Mine is the last bit of input> they need for my file before the send all my info to the transplant team at> Brigham and Women's in Boston, to see if I can get listed.> > > > Steve.aka Knip> > > > IPF Dec07> Quote Link to comment Share on other sites More sharing options...
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