Re: Cannula

May 20, 2008

, Glad to hear you take the time to do something like that. It must be very rewarding. have a piece you created yourself!!

I started making bread after I got sick. It started because I can only eat organic. Food stamps do not cover much and the bread (good bread) unable to find organic. So I had 2 reasons. However I really like it. It gives me a vent. A dust mask takes care of the flour while dry. Use organic flour, organic yeast, organic whatever else, but it is still cheaper than buying it and gives me therapy. Being sedentary not good, so i get to do a little exercise especially with the french baguettes, you have to knead for a while. I was doing the kneading part at night so I would vent and sleep better. It's like the exercise where you ripe paper to vent except I knead doe.

Then we get that added benefit, fresh organic bread, ahhhhhhhhh !!!!!! I added an album you can see my bread and Babies !!

I see you wear the cannula under the mask, How heavy is the Helios ? Can you were it like that out? Attached to your waist? Tell me more !!!!!!!!

God Bless !!!!!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18

Cannula Bling

I decided that I was tired of wearing this boring cannula. It needed some decoration, so while at Walmart I bought some stick-on rhinestones, and various other "bling." Sunday I wore some blue rhinestones before each ear, and another flower on the hanging down part of the cannula. I also put some flowers on my Marathon liquid oxygen. No one commented!! They probably think I'm crazy.I'm thinking of making a decorated covering for my inside liquid oxygen also. I'm tired of looking at it sitting there reminding me all the time of my condition! Anyone else with more ideas on how to deal with this terrible disease? I'm am getting slowly better after pneumonia, but not fast enough for me.Sherry , Age 64NSIP '98, Bronchiectasis '99PBC '99 No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM

May 21, 2008

Mayleen,.I like the lacy mask...do you

have a site for it?

In regard to the Helios..it depends on what I'm doing. I wear it on my

waist if i need both hands

.. I sling it over my shoulder for a short walk into a store or I wear

it cross body for a longer walk.

It allows me to be sort of me so i don't care what anyone says I just

weart it!

I hate the puffy noises but I'm still out of the house.

My husband Mike is the bread baker...his sour dough bread is so

good...in fact too good.

We've decided that if he makes bread he has to make small rolls instead

of loaves

.. We were just devouring the entire loaf each time...much too much.

So, we freeze the extreas and bring them out 2 at a time.

I just know that the house smells so good while he's baking.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

dragonflymcs wrote:

, Glad to hear you take the

time to do something like that. It must be very rewarding. have a

piece you created yourself!!

I started making bread after I got

sick. It started because I can only eat organic. Food stamps do not

cover much and the bread (good bread) unable to find organic. So I

had 2 reasons. However I really like it. It gives me a vent. A dust

mask takes care of the flour while dry. Use organic flour, organic

yeast, organic whatever else, but it is still cheaper than buying it

and gives me therapy. Being sedentary not good, so i get to do a little

exercise especially with the french baguettes, you have to knead for a

while. I was doing the kneading part at night so I would vent and

sleep better. It's like the exercise where you ripe paper to vent

except I knead doe.

Then we get that added benefit,

fresh organic bread, ahhhhhhhhh !!!!!! I added an album you can see my

bread and Babies !!

I see you wear the cannula under the

mask, How heavy is the Helios ? Can you were it like that out?

Attached to your waist? Tell me more !!!!!!!!

God Bless !!!!!

dragonflymcs

Mayleen 02/07

ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18

-----

Original Message ----

From: Zion <ljz741verizon (DOT) net>

To: Breathe-Support

Sent: Wednesday, May 21, 2008 1:06:31 AM

Subject: Re: Cannula Bling Sherry

Mayleen, I don't actually hook the

Helios to the mask.

First I put the Helios on a belt around my waist.

Then I put the cannula on, then the mask, then my glasses!!!!

And then my apron to try to keep the messy clay off my clothes.

I'm basically a mud-person, clay, gardening just as much fun.They are

much

harder to do now , I do less, spend less time each session but I get to

be dirty!!!

It's a miracle I can function at all.

But I love the clay work too much not to do the process .

I cannot afford to get irritated..just so I don't start coughing. The

clay itself especially when wet isn't a big problem.

The dry and fired clay and the dust and then the glazes are the real

trouble.

I have to get new filters for the particulates and the vapors before

class restarts in September.

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted… I never smoked!

Potter,

reader,carousel lover and MomMom to Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

dragonflymcs wrote:

My Mom sent me so I could

upgrade my mask. So I had to soak this in baking soda for days to

off-gas any residues from it. Then I disinfected it in GSE for a

couple of days. I did not react to it today thank God!!! I have now a

North 7700 silicone, thank God I did not have a problem with it. So,

like I said people run. Someone asked me if I was going to Mars. this

is what it looks like:

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