Re: Caution re: Elisa Beth!!

[Guest guest]

, Yes that is what I mean. Mainstream is Ok, but there are natural ways to boost without pharmatcls. Foods they help. What you eat helps absorb more nutrition from somehing else you eat. I have a Great Book. I mentioned before. The Inflamation Cure by Meggs. My immune problems do not allow for meds for me, I am really trapped. So I have to go the other route. Food to Food nutrition. Sometimes your body cannot absorb certain nutrients because you lack something else. There is also a big difference in the way vitamins are made. If you do not know you would think they say Vit C and that what you are gettig. Not so. For example Vit E liquid says pure Vit E, read ingredients it says, acetate. that is not right. It makes it synthetic. yet the

bottle says Pure clear Vit E. I have Vit E it is yellow. Real Vit E. More readily absorbed by the body is buffered Vit C Powder form. I add it to a lquid or water. Without the preservatives or synthetics in it.

For instance this is copied and pasted:

Ascorbic acid (vitamin C's most common form) acidifies the urine, thereby dissolving phosphate stones and preventing their formation. Acidic urine will also dissolve magnesium ammonium phosphate stones, which would otherwise require surgical removal. These are the same struvite stones associated with urinary tract infections. Both the infection and the stone are easily cured with vitamin C in large doses. BOTH are virtually 100% preventable with daily consumption of much-greater-than-RDA amounts of ascorbic acid. Think grams, not milligrams! A gorilla gets about 4,000 mg of vitamin C a day in its natural diet. The US RDA for humans is only 60 mg. Someone is wrong, and I don't think it's the gorillas.

Always consult your Dr for any changes because they know of interactions with drugs.

Dr Meggs Book in Chapter 9 Starts taliking about foods and how they affect us. How our immnue systems respond to them. It really is a great book. I recommend it. You literally are what you eat. I know everyone has heard that term. I lived for 10 years in PR I walked 6 hours straight, up and down hills, ate only mostly natural foods from the earth, no synthetics for the most part. It was so good to be able to do so much. I could run up hills, down hills, walk up mountains, swim I never got tired. Had plenty of exercise.

God Bless !!!!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18

Re: More advice to the new folks...and Welcome!

Thanks so much, Babs!!! You have given me much needed information and inspiration. What was your original treatment plan? I am on prednisone only and see rheumatologist Friday after a month. Pulmo visit comes June 17th. The first guy moved practices within two weeks of me seeing him (never said PB, just scarring) cancelled all appts, and didn't even mention what to do next. So, I'm wondering what these long-time survivors with autoimmume diseases do that has seemed to help, knowing of course that everyone's system unique.

Thanks!!!

Barbara <babsyphrett@ yahoo.com> wrote:

Hi Y'all! My name is Babs, and I live in Driftwood, Texas. I wasdiagnosed with PF due to lupus/scleroderma in November of 1999. Yes,you read that correctly. I've lived with the knowledge of this diseasefor nearly 9 years now, and we don't know for certain when it actuallybegan. It is quite possible I've lived with it for 10 or 11 years..I just want to say Welcome! to this wonderful board, and offer yousome advice (adding on to what others have said) and to let you knowthat I keep each and every one of you in my prayers.When you're first diagnosed it is typical to panic, and to startthinking that you have no time left. Even if you have IPF this is notthe case. DO NOT immediately begin making plans to sell the house,move to a facility or to family, get rid of pets or any other rashdecision. Take time to evaluate your needs now and what may benecessary in the future. When I was first diagnosed my

hubby and Ipanicked because we were told I only had 2 to 4 years. We sold ourbeautiful lake front property so we could travel while I was stillable...and now I don't want to travel as much and would LOVE to havemy property to retire to or go fishing,etc.Make germs your enemy. Buy Purell or your favorite type of handdisinfectant. Use lysol wipes around your house. Buy masks to wear ifyou're going to be around children or even at the doctor or hospital.This is all especially true if you're on cytoxan or imuran or anyimmunosuppressant.Create new hobbies. It's the old adage that when one door closesanother one opens. USE your oxygen!!! It is important for your other organs and for yourenergy.Don't be afraid to seek counseling, cry on a friends shoulder or talkto your pastor/clergyman. This IS a horrid disease and it changes yourlife and that of your family, so it is OK to seek help.Keep

hanging around this board. What a great bunch of folks that livehere. Remember that we're all in this together and we CARE!Laugh. And keep laughing. It really is the best medicine!Hugs to you all, Babs in Driftwood, TexasAge 47 DX with PF due to lupus/scleroderma/ rheumatoid arthritisNovember of 1999