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I saw the dermatologist today. He is a University doctor and I was impressed. He took pictures of the "rash" that now covers about 70% of my torso, is on my arms and legs and even on my scalp. It itches and peels and looks gross.

He took two biopsies from my back and I have stitches which are a little hurty tonight. I do now have oral and topical medication. He put a rush on the biopsy, so I should know something soon.

He believes that it is a Lupus Rash, but I think it is a reaction to the increased dosage of Flolan. I have never had a rash with my Lupus because rash is not an issue with systemic Lupus, usually. His rationale is that my Rheumatologist stopped Cellcept without good cause and my body is getting an agressive assault from my immune system.

When I got home the Flolan nurse called to see how I was doing and I asked her. She said the rash was not uncommon to Flolan use. So, it could be either.

I just want it to go away. Enough already.

Just another exciting day spent in a wheelchair seeing yet another doc. Just wears us out.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

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