Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Sherry, Good Idea !!! Make light of it. I wear a mask to go out. Everyone runs from me like a hve a disease. Oh I do. Ha Ha but it is not contagious so why are they running??? Last masks I got it has a flower. Now they say that's a pretty mask, and then the others still run for their lives. Once this man said to his son, Watch get out of the way of the crazy lady!!! I told him that;s right you better move. People are just rude, cruel. They do not think of us or how we feel. However when someone does stop and ask me what is wrong I give them information they can use. On the run of course. This only happens when I do groceries other than that I cannot go anywhere really because my masks are in adequate. I need to upgrade to real crazy lady style. Like the kind here: Let's see what they say now!! I think I will wear a poster to go with it. Like a Tee shirt with a message. http://www.allergybegone.com/gasmasks.html God Bless!!!!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Cannula Bling I decided that I was tired of wearing this boring cannula. It needed some decoration, so while at Walmart I bought some stick-on rhinestones, and various other "bling." Sunday I wore some blue rhinestones before each ear, and another flower on the hanging down part of the cannula. I also put some flowers on my Marathon liquid oxygen. No one commented!! They probably think I'm crazy.I'm thinking of making a decorated covering for my inside liquid oxygen also. I'm tired of looking at it sitting there reminding me all the time of my condition! Anyone else with more ideas on how to deal with this terrible disease? I'm am getting slowly better after pneumonia, but not fast enough for me.Sherry , Age 64NSIP '98, Bronchiectasis '99PBC '99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Mayleen, I wear one of these mask to work on my pottery. It's rather interesting to put one on,( it's really hot underneath) adjust the cannula from the Helios that I put around my waist and then put my glasses on too. Working on the potters wheel has been a challenge at best. I've decided that hand building is less complicated at least I don't have to try to stay upright on the seat of the potters wheel .. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley dragonflymcs wrote: Sherry, Good Idea !!! Make light of it. I wear a mask to go out. Everyone runs from me like a hve a disease. Oh I do. Ha Ha but it is not contagious so why are they running??? Last masks I got it has a flower. Now they say that's a pretty mask, and then the others still run for their lives. Once this man said to his son, Watch get out of the way of the crazy lady!!! I told him that;s right you better move. People are just rude, cruel. They do not think of us or how we feel. However when someone does stop and ask me what is wrong I give them information they can use. On the run of course. This only happens when I do groceries other than that I cannot go anywhere really because my masks are in adequate. I need to upgrade to real crazy lady style. Like the kind here: Let's see what they say now!! I think I will wear a poster to go with it. Like a Tee shirt with a message. http://www.allergybegone.com/gasmasks.html God Bless!!!!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 ----- Original Message ---- From: sherryjohnson16 <sherryjohnson16> To: Breathe-Support Sent: Tuesday, May 20, 2008 8:31:08 AM Subject: Cannula Bling I decided that I was tired of wearing this boring cannula. It needed some decoration, so while at Walmart I bought some stick-on rhinestones, and various other "bling." Sunday I wore some blue rhinestones before each ear, and another flower on the hanging down part of the cannula. I also put some flowers on my Marathon liquid oxygen. No one commented!! They probably think I'm crazy. I'm thinking of making a decorated covering for my inside liquid oxygen also. I'm tired of looking at it sitting there reminding me all the time of my condition! Anyone else with more ideas on how to deal with this terrible disease? I'm am getting slowly better after pneumonia, but not fast enough for me. Sherry , Age 64 NSIP '98, Bronchiectasis '99 PBC '99 No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 My Mom sent me so I could upgrade my mask. So I had to soak this in baking soda for days to off-gas any residues from it. Then I disinfected it in GSE for a couple of days. I did not react to it today thank God!!! I have now a North 7700 silicone, thank God I did not have a problem with it. So, like I said people run. Someone asked me if I was going to Mars. this is what it looks like: More like this one My cartridges are larger because I need both particle filtration and multi-gas cartridges. I need to get the full face next. I know I have a problem with my eyes absorbing as well. At last I can breathe better. Even if I look like I am going to Mars. Tell me some more how you hook up the Helios to the masks. Can I go out hooked up like that or am I trapped in doors? I found a website with the tygon cannula. So, I guess they have those. I have the tygon tubing my sister just sent, but no cannula. Can I hook the tubing straight to the masks from the helios? Can you tell me more please? This one can be used with a compact par system which suuplies air you attach the system to your waist. However since I have a ILS as well is why I am having trouble understanding how to do all this. It is not the same to get air and oxygen right? God Bless !!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 Cannula Bling I decided that I was tired of wearing this boring cannula. It needed some decoration, so while at Walmart I bought some stick-on rhinestones, and various other "bling." Sunday I wore some blue rhinestones before each ear, and another flower on the hanging down part of the cannula. I also put some flowers on my Marathon liquid oxygen. No one commented!! They probably think I'm crazy.I'm thinking of making a decorated covering for my inside liquid oxygen also. I'm tired of looking at it sitting there reminding me all the time of my condition! Anyone else with more ideas on how to deal with this terrible disease? I'm am getting slowly better after pneumonia, but not fast enough for me.Sherry , Age 64NSIP '98, Bronchiectasis '99PBC '99 No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Mayleen, I don't actually hook the Helios to the mask. First I put the Helios on a belt around my waist. Then I put the cannula on, then the mask, then my glasses!!!! And then my apron to try to keep the messy clay off my clothes. I'm basically a mud-person, clay, gardening just as much fun.They are much harder to do now , I do less, spend less time each session but I get to be dirty!!! It's a miracle I can function at all. But I love the clay work too much not to do the process . I cannot afford to get irritated..just so I don't start coughing. The clay itself especially when wet isn't a big problem. The dry and fired clay and the dust and then the glazes are the real trouble. I have to get new filters for the particulates and the vapors before class restarts in September. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley dragonflymcs wrote: My Mom sent me so I could upgrade my mask. So I had to soak this in baking soda for days to off-gas any residues from it. Then I disinfected it in GSE for a couple of days. I did not react to it today thank God!!! I have now a North 7700 silicone, thank God I did not have a problem with it. So, like I said people run. Someone asked me if I was going to Mars. this is what it looks like: More like this one My cartridges are larger because I need both particle filtration and multi-gas cartridges. I need to get the full face next. I know I have a problem with my eyes absorbing as well. At last I can breathe better. Even if I look like I am going to Mars. Tell me some more how you hook up the Helios to the masks. Can I go out hooked up like that or am I trapped in doors? I found a website with the tygon cannula. So, I guess they have those. I have the tygon tubing my sister just sent, but no cannula. Can I hook the tubing straight to the masks from the helios? Can you tell me more please? This one can be used with a compact par system which suuplies air you attach the system to your waist. However since I have a ILS as well is why I am having trouble understanding how to do all this. It is not the same to get air and oxygen right? God Bless !!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 ----- Original Message ---- From: Zion <ljz741verizon (DOT) net> To: Breathe-Support Sent: Tuesday, May 20, 2008 3:09:23 PM Subject: Re: Cannula Bling Sherry Mayleen, I wear one of these mask to work on my pottery. It's rather interesting to put one on,( it's really hot underneath) adjust the cannula from the Helios that I put around my waist and then put my glasses on too. Working on the potters wheel has been a challenge at best. I've decided that hand building is less complicated at least I don't have to try to stay upright on the seat of the potters wheel .. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley dragonflymcs wrote: Sherry, Good Idea !!! Make light of it. I wear a mask to go out. Everyone runs from me like a hve a disease. Oh I do. Ha Ha but it is not contagious so why are they running??? Last masks I got it has a flower. Now they say that's a pretty mask, and then the others still run for their lives. Once this man said to his son, Watch get out of the way of the crazy lady!!! I told him that;s right you better move. People are just rude, cruel. They do not think of us or how we feel. However when someone does stop and ask me what is wrong I give them information they can use. On the run of course. This only happens when I do groceries other than that I cannot go anywhere really because my masks are in adequate. I need to upgrade to real crazy lady style. Like the kind here: Let's see what they say now!! I think I will wear a poster to go with it. Like a Tee shirt with a message. http://www.allergyb egone.com/ gasmasks. html God Bless!!!!!! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ AR +18 ----- Original Message ---- From: sherryjohnson16 <sherryjohnson16@ yahoo.com> To: Breathe-Support@ yahoogroups. com Sent: Tuesday, May 20, 2008 8:31:08 AM Subject: Cannula Bling I decided that I was tired of wearing this boring cannula. It needed some decoration, so while at Walmart I bought some stick-on rhinestones, and various other "bling." Sunday I wore some blue rhinestones before each ear, and another flower on the hanging down part of the cannula. I also put some flowers on my Marathon liquid oxygen. No one commented!! They probably think I'm crazy. I'm thinking of making a decorated covering for my inside liquid oxygen also. I'm tired of looking at it sitting there reminding me all the time of my condition! Anyone else with more ideas on how to deal with this terrible disease? I'm am getting slowly better after pneumonia, but not fast enough for me. Sherry , Age 64 NSIP '98, Bronchiectasis '99 PBC '99 No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1456 - Release Date: 5/20/2008 6:45 AM Quote Link to comment Share on other sites More sharing options...
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