Jane's In

[Guest guest]

Hi! Just posting that I am officially in the STEP Trial and I have

already had two doses of the sidenafil/placebo ???? I had to take one

at the Clinic and wait an hour. I had two very hard 6MW and did not do

as well as two weeks ago. Tamra (nurse) contributed it to having had 4

inhalations of albuterol during PFTs and then having the walk

afterwards. Today I had no PFTs and no ABGs. My allergies were really

acting up today in Atlanta. And when I got home, I got some

chlortrimeton, an old antihistamine. Dr. said that the old

antihistamimines are better than the new ones at drying up this sinus

crud. ( I have always wanted an answer and I hope it works)

Tamra said that I made it into the trial by one or two points. Both of

my 6 MW had to be compared and then they did some math formulas. They

also did math formulas with my DLCO which ended up to 34% compared to

another way to look at it two weeks ago 39%. The future PFTs and 6MW

won't be compared.

My ex-doctor at Emory saw me two weeks ago. He asked Tamra (nurse)

about my chart lying on the counter and she told him that I was in a

study. And he doesn't participate in studies! I wondered why he waved

at me two weeks ago. Maybe next Friday when I go back, I might speak to

him!

While & I were waiting for Tamra to make copies of my tests, etc.

we were invited to eat lunch with them. went down the hall and

fixed two plates and we ate it in the eam room. Now how is that!!!! I

guess since I was bringing them some new IPF booklets that Leanne mailed

to me this week, well, it helps I know.

Time for bed. I am so tired and excited. & I are going to

Nashville tomorrow afternoon for the Underwood concert at

Opryland and I am really looking forward to it! Woo-Whoo!

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl