My Skin Biopsy Report

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Hi All, (from Mrs. Job)

It has been so long, most of you have probably forgotten that I have been waiting for my skin biopsy. I am now covered from the top of my head to my ankles with sores. Not on my face, hands or feet???

And I am itching!!!!!!!!

It is not a reaction to Flolan (thank God) but a Lupus Rash, which is not good, but not life threatening. Unless I jump off a bridge to escape the itching.

Some of you remember that I was on Cellcept for 9 years and I credit it with saving me from dying. Well, my rhumatologist told me in December, when I was getting so short of breath, etc. that it was evidently not working. So I stopped taking it, but before I could even begin some new treatment, I became so ill with the pulmonary hypertension.

Anyway, the theory is that the autoimmune system is now reacting to the absence of Cellcept and just going crazy trying to kill me from the outside in! My pulmonologist is setting me up with a new Rheumatologist who will, I hope get me lined out.

In the meantime, I have to stay indoors as much as possible, stay away from windows or any indirect sunlight.....wear heavy suncreen day and night. Wear long sleeves, protective glasses, hat, etc when out. Good grief! What next.

But, I went out today, got my new glasses, which are mahvelous.....I look great, sores and all. I had to go shop for all my hypoallergenic blah, blah, blah sunscreen stuff....new make up, lotion....everything. Then rewarded my self by making my husband take me to eat Mexican.

Tomorrow, I will stay inside and act sick. Not today.

I make a joke of everything, but this IS miserable. I am having to sit on sores on my butt to type this. OUCH! TMI?????

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16