Re: Re: Elisa, Irene, Joyce

[Guest guest]

, Joyce, Irene, Jumping in !! You know I started with Clorox, I always used some, not a lot. Then suddenly I could not breathe easily around it, changed to something else, it was worst. Then paint, one day severe problem with Pop Corn, I had to leave the office. From there I just took a downward spiral. To today. I saw on the news this lady had a serious problem with it as well Pop Corn and couldn't breathe either. I thought it was just me. I used to use perfume all the time, now cannot be around it at all, one of the worse things for me, cleaners. I have no tolerance any more for any of it.

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Re: Newly Diagnosed

Elissa,

Target has a line of cleaning products, liquid hand soap, etc. that is environmentally healthy and the smell doesn't bother me. I especially like the furniture "polish" and bathroom cleaner. I can not tolerate smells like Windex, bleach, perfumes, etc. I was walking through the grocery one day and someone was grinding coffee. I had such a coughing fit, I was just about in the floor.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> >> > Hello Everyone!> > > > My name is Elissa (like no M). I have recenly been diagnosed > > with PF. I guess I am still in the shock and comprehend stage. I am > > 41 years old with a 9 year old son. I have been reading through the > > messages and gained strength from all of you. However, I must > > confess that I still am mourning the life I thought I would have and > > preparing for this new course. I guess that's the main reason I'm > > here. To find out what that course is

going to be and how to prepare > > for it. Awhile after I found out I have this disease, a friend the > > same age died unexpectedly. Today I went to her funeral and watched > > her nine year old play with mine. It put things in perspective a > > bit. I have to feel some appreciation that I get the time to prepare > > my family for the inevitable. On the other hand nobody knows how & g t; > much time they have and there is no truer statement than to live > > everyday as if it's your last. The funny thing is, I finally > > realized that about 7 months ago and decided to change my life. > > After years of trying to get ahead and building 2 businesses with my > > husband, I decided it's time to enjoy my son and family.. Almost > > immediately I got sick and never recovered. I kept telling everyone, > > this is the year I get my life back.

I hope this doesn't ring too > > much of negativity, but I just find it ironic. I do feel there will > > be many positive things to come from this situation. My family and > > friends have really shown their support and love. That is such an > > amazing feeling. But I must admit handling people has been a > > challenge for me. I am a realist and when people say, "Oh, you'll be > > fine." it is annoying to me. If anybody has any suggestions on how > > to convey the situation it would be helpful. Oh, and I don't have > > medical insurance. I've been paying cash to all these appointments, > > x-rays, tests and the CT scan. Honestly, I still paid less than > > many people pay in monthly insurance payments. My Doctor warned me > > that is about to change and am scrambling to obtain insurance. I've > > had Asthma since I was a child and

numerous bouts with pneumonia and > > bronchitis. I always joked with everyone that my lungs would kill > > me. Well I hope my ramblings are not inappropriate and I do feel > > better to get it off my chest. I was recently asked if I was angry > > about the situation. Definately not. I believe the Lord has a plan > > for me and I am scrambling to figure it out. I just want to get > > through this with dignity and grace. Be a good example of a life > > well lived. I know many of you are ju st that and I look forward to > > getting to know you better. I have many questions, but another > > time. Thanks for the space.> > > > Elissa> > Age 41, PF 5/08> >>

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