Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Thanks for your imput Babs. I like that idea. I think I will call the pcp - or maybe will ask at the appointment at the U of C. Something to keep in mind. Thanks a boat load. Barbara wrote: , I can give a "maybe" for why things are sticking in his throat.If he has auto-immune disease then his esophagus could beconstricting. Picture an hourglass. The middle part is where the foodgets stuck. I should know, I've had 5 "stretchings" to get mine backin a normal shape. I too lost a lot of weight because I could barelyswallow anything except fluids and things like jello or pudding. Ihave of course put it all back on and then some....Don should ask his GP to get him an appointment with agastroenterologist, just to check. I could be totally wrong here butit would be best to rule the stricture out.I can't help on the numbers as I don't pay attention to mine....I would also say that Don is depressed. I tend to sleep long hours toothough, and was told years ago by a rheumatologist not to worry aboutit because we heal while we sleep and with AI diseases we need theextra. I use that all the time as an excuse to loll around in bed! LOL!Hugs to you both!Babs in Texas>> > > MB and or anyone else who knows,> Can you tell me what your PFT #"S are? Brown the researchnurse talked to me today and she said that Don's PFT score was 38%. When she said that average was 80 to 120 I panicked. Doesn't thatsound terribly low? He is sleeping a majority of the time any more. He stays in bed, some days, all day. He sleeps 10 to 12 hours atnight. He doesn't have the strength to do much. Tonight he mowed for2 hours, until he ran a wire into the tire, and then came right in andwent to bed. > said that they are thinking that he has the auto immunecomponent to his fibrosis which means he will need to go up onprednisone again - at least for a period of time- and he said "No". Ido not know if 38 is a particularly low PFT score or not. > He is also having trouble swallowing. He can't eat much withoutit sticking in his throat. He has lost another 5 #'s. > I'm not sure what it all means. > Thanks guys.> ,_> HHe is also having problems swallowing. I think he has lostanother 5 #'s e is also having t\rouble swallowing. ._,___ > > > > K> Central Il> Hubby ipf- 2006> As for me and my house, we will serve the Lord> 14> K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Quote Link to comment Share on other sites More sharing options...
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