Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Hi All, I have a question....I know it will sound weird, that I've been wanting to ask for a long time now...and I know everyone reacts to pain, meds etc...differently With all the different diseases that we are faced with whether it's PF, NSIP, Lupus, Raynaud's Disease, RA etc....do your dr's compare you to other patients and tell you "Well other patients with the same disease as you don't experience what you are experiencing or don't have as much pain as you do...... and your symptoms don't correlate with the amount or extent of your disease.... 1- Does it make you feel bad about it? and just wanting to crawl into a hole? 2- Whether your dr's are having a bad day, on your appointment day, do they take the frustrations out on you, like it's your fault? 3- What about keeping your dr's updated on how you are doing? Does it frustrate them? or you just wait to see them and and update them, even though you know you are getting worse? Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
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