prednisone discussion

[Guest guest]

Hey everyone, Jan here, been awhile! Lot's of new names here...I've

been away from the board helping other PF patients, myself and

playing with " g " children! My numbers continue to drop...Dlco is at

5...but I am ok on 5L O2. It's been six years now....and they said

I'd be gone after 1 1/2 to 2 years....only God knows when our last

day is to be, so live and find fun and peace where you may.

Prednisone is definitely a drug we all love to hate. The only thing

that it did for me was help with some of the inflammation, however,

it did not help my PF. Having said that there are two members of the

support group I am in for PF, whose disease was seemingly caught in

its' early stages and the drug has helped them tremendously and they

have had no progression at all in over two years now.

The big thing I've found about Prednisone is that I never knew when I

was really sick with something new until I couldn't explain my

constant " low grade " temp and cough etc. anymore and I developed RA

while on it too. Any temperature over 99 degrees is major while

taking Pred.....even if my temperature registered at 99 I was

supposed to call my doctor because Pred inhibits it. I loved the

drug because it made me feel better and once or twice while on it I

got so much done around the house...most of the time though I had no

energy and didn't get anything done except gain weight. I did watch

salt intake while I was using Prednisone, fats, etc., most of the

time it helped, the last time I was on it watching my diet didn't

help at all. I've been off Pred for three years now, because I

refuse to take it anymore and I just finished losing the weight I

gained. I think with all the multiple dx's most of us have, our

doctors are the best judge for what is right for each of us then we

have to make up our mind if we agree It did affect my immune

system in a big way though.

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> I have a question for you Peggy.? Didn't you tell me that you are

not on prednisone?? I vaguely remember that there are a few that have

refused it.

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> K

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> Central Il

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> Hubby ipf- 2006

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> As for me and my house, we will serve the Lord

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> Central Il

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> Hubby ipf- 2006

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> As for me and my house, we will serve the Lord

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> 14

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