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Re: /PFT/MB

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, I can give a " maybe " for why things are sticking in his throat.

If he has auto-immune disease then his esophagus could be

constricting. Picture an hourglass. The middle part is where the food

gets stuck. I should know, I've had 5 " stretchings " to get mine back

in a normal shape. I too lost a lot of weight because I could barely

swallow anything except fluids and things like jello or pudding. I

have of course put it all back on and then some....

Don should ask his GP to get him an appointment with a

gastroenterologist, just to check. I could be totally wrong here but

it would be best to rule the stricture out.

I can't help on the numbers as I don't pay attention to mine....

I would also say that Don is depressed. I tend to sleep long hours too

though, and was told years ago by a rheumatologist not to worry about

it because we heal while we sleep and with AI diseases we need the

extra. I use that all the time as an excuse to loll around in bed! LOL!

Hugs to you both!

Babs in Texas

>

>

>

> MB and or anyone else who knows,

> Can you tell me what your PFT # " S are? Brown the research

nurse talked to me today and she said that Don's PFT score was 38%.

When she said that average was 80 to 120 I panicked. Doesn't that

sound terribly low? He is sleeping a majority of the time any more.

He stays in bed, some days, all day. He sleeps 10 to 12 hours at

night. He doesn't have the strength to do much. Tonight he mowed for

2 hours, until he ran a wire into the tire, and then came right in and

went to bed.

> said that they are thinking that he has the auto immune

component to his fibrosis which means he will need to go up on

prednisone again - at least for a period of time- and he said " No " . I

do not know if 38 is a particularly low PFT score or not.

> He is also having trouble swallowing. He can't eat much without

it sticking in his throat. He has lost another 5 #'s.

> I'm not sure what it all means.

> Thanks guys.

> ,_

> HHe is also having problems swallowing. I think he has lost

another 5 #'s e is also having t\rouble swallowing. ._,___

>

>

>

> K

> Central Il

> Hubby ipf- 2006

> As for me and my house, we will serve the Lord

> 14

>

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