Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Nancie, I know what you mean. I was never over 100 pounds even after my children were born. Every one thought I was dying. They never held back with their comments, even strangers. " Gee, you must be really sick, you're so skinny, " " Whats wrong with you? You're so skinny " I even had medical professionals make out of line comments. Wellll, not he shoe is on the other foot. Let's just say no one makes comments anymore. Guess, I'm not SKINNY. No, I haven't lost weight with this disease, I've gained , and gained, and gained. We're all different. We should just learn to be happy within ourselves, and thankful for everyday, fat or skinny. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 I haven't lost any weight with RP. I do have the chipmunk face with the as I tell everyone " my high pro glo " in the face. I have tried for years to GAIN weight (yeah I know oh poor me, I hear that all the time. But put the shoe on the other foot I used ( I've lost 2 inches in the past 6 months) to be 5 foot 8 inches and have never weighed more than 110 - 120. that is just as bad as being overweight. Nancie --- Lu1953@... wrote: > In a message dated 03/30/2000 8:23:59 AM Central > Standard Time, > veronicaharvey@... writes: > > << Hi Lu, here, I didn't know that weight > loss was an RP symptom > until i read an email from a rp member. But I have > also changed my diet and > work out 3 days a week to keep up my strength up. I > have lost a 15 pounds. > That question has been on my mind also. >> > lol well you are doing much better than > me......okay somebody > motivate me to get with it...lol > Lu > ===== " A real friend is one who walks in when the rest of the world walks out. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 sorry guys and gals.....I should have said that the weight loss occurs in the months (or years) before the diagnosis. Once prednisone is added to the equation, most people gain. -Connie Re: food alergies > In a message dated 03/30/2000 9:52:12 AM Central Standard Time, > jhache@... writes: > > << Weight loss is common in most (if not all) connective tissue diseases, > such as RA, Lupus, Sclerasderma...etc. I don't think that it is specific to > RP. ......just my two cents worth :-) > > -Connie > >> > well I definitely gained weight.. lol and I am trying desparately to lose > some before my son's wedding in May....Oops, I think its a loss cause......lol > Lu > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/1/_/32049/_/954450015/ > ------------------------------------------------------------------------ > > hi and welcome. maybe we can come up with answers that our doctors can't > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 Nancie, I also have v. veins now. In fact all of my veins are visable. Must be the pred. I read on the post the other day, that our skin thins and that's why. Might have been you that sent it, my memory is gone too! lol Maybe we'll just turn all purple instead of red. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 I was just the opposite when I was pregnant. With both of my kids I went from a size 3 to size 18! I gained over 80 pounds with each of them! Like I've said before I'm a vegetarian but both times I was pregnant I craved meat so I ate it, it grossed me out but I figured if I was craving it I needed it. I ate anything and everything, if it couldn't run away from me I ate it! You know I never got any stretch marks either. I just noticed the other day too that I now have varicous veins in my legs. I was a waitress for over twenty years NEVER got varicous veins during that time NOW I get them? Is this part of RP? Maybe the pred? Nancie --- RCColloran@... wrote: > Nancie, I know what you mean. I was never over 100 > pounds even after my > children were born. Every one thought I was dying. > They never held back with > their comments, even strangers. " Gee, you must be > really sick, you're so > skinny, " " Whats wrong with you? You're so skinny " > I even had medical > professionals make out of line comments. Wellll, > not he shoe is on the > other foot. Let's just say no one makes comments > anymore. Guess, I'm not > SKINNY. No, I haven't lost weight with this > disease, I've gained , and > gained, and gained. We're all different. We should > just learn to be happy > within ourselves, and thankful for everyday, fat or > skinny. > C > ===== " A real friend is one who walks in when the rest of the world walks out. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 I ws about 155 when i was diagnosed, after a yer and half of pred and coinciding chemo i went to 220. then off pred and chemo went to 109--at which the docs got mad. so i gained to about 150 now i am eating healthier and my weight isis slowlydroping now it is about 138 and i am loosing about 1-2 pounds a week (i'm not trying to lose weight intentioally) so I don't know if this answers your question. love denise Quote Link to comment Share on other sites More sharing options...
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