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Hi;

My son has the same age of your daughter and almost the same

weight and height 80 cm.

I can't answer so well your questions and is part of my doubts, because

also doesn't show much more difficulties, but yes, some

similarities. Also some of the RSS characteristics my husband's mother

has (low height, fifth finger curved, poor appetite), that's why I fell

so identified with you.

In the other hand, the genetics gave us a list of characteristics to be

follow in (around 25) and he has 80% of them, We don't have a

final diagnostic but I hope have it this month, also we have to do a

blood test and x-rays some months later.

Finally I have the same question and maybe we aren't going to have a

right answers because I can see that all the RSS characteristics are

serious or minor serious en each boy and I guess any test is 100% sure,

there aren't enough information about RSS.

Maybe characteristics become from my husband's mother or maybe my

husband's mother is RSS woman and too has RSS.

The most important is focus in the specific problems of each of our boys

and help them.

Betty

(unknown)

Hi ,

I was just wondering if anyone can tell me how RSS is diagnosed is it

through genetic's , neorology , blood work what ?

We are going crazy visiting all of these doctor's who think this is what

our

daughter has . Is there a test that is yes or no .

Maybe we just don't want to see it , at first we thought it was a

possibility , but she seem's to be doing so well , some minor

development

problem's , feeding , ect. Some of your letters show much more

difficulties

for your children , we have some similarities but not to your degree . I

hope I don't sound rude or insensative . We just want to get on with our

lives and enjoy watching her grow and develope . I myself am only 4 ft.

8

3/4 inches . so how much is just hereditary

We return to Toronto Sick Kids in September for an eeg an a SSPD then

back

to genetics (2nd app.)

Thanks for Your Input Marelou mother of Hanna 22 mnths 18lbs beautiful

red

hair thats kind of wild .

_________________________________________________________________

Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

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Hi everyone,

Thanks for your opinion. We see genetics again soon so maybe we will get

something more definite. I have an idea for those in regards to weight

problems I am a Nutritional Care Manager for the elderly in Canada and one

thing we do to boost calories is to add skim milk powder to regular milk

mashed potato's , oatmeal ect. when adding it to milk the extra calories

disapate after 24hrs. so make small quanities. Also check with your doctor

as you all know before trying something new. We also use this to increase

protien to help in skin healing added protien to the diet does assist in

healing of the skin whether it be from skin tear ulsers and or surgery , but

procede with caution some people require low protien depending on thier

medical condition . We are also giving our daughter a product made by Heinz

called fruit smoothie it is made with fruit and yogurt it has more calories

than just juice , we also have her still on the soya formula for now . We

add extra sugar to puddings hot ceral ect. Does anyone have problems with

low blood sugars in thier children , we find that Hanna some mornings has

the shakes really bad can barley hold bottle , but seems better after she

finishes. I began testing her blood sugar today and will monitor the next

few days , but if this is caused from something else I will stop poking her

, I'm sure she will forgive me , but she shows alot of symptones. Have

company coming thanks again.

Marelou (mom of sweet baby Hanna)

>From: " Real ez, Elvira Beatriz (Elvira Beatriz) "

>

>Reply-To: RSS-Support

>To: <RSS-Support >

>Subject: RE: (unknown)

>Date: Wed, 15 Aug 2001 18:28:55 -0500

>

>Hi;

>

>My son has the same age of your daughter and almost the same

>weight and height 80 cm.

>

>I can't answer so well your questions and is part of my doubts, because

> also doesn't show much more difficulties, but yes, some

>similarities. Also some of the RSS characteristics my husband's mother

>has (low height, fifth finger curved, poor appetite), that's why I fell

>so identified with you.

>

>In the other hand, the genetics gave us a list of characteristics to be

>follow in (around 25) and he has 80% of them, We don't have a

>final diagnostic but I hope have it this month, also we have to do a

>blood test and x-rays some months later.

>

>Finally I have the same question and maybe we aren't going to have a

>right answers because I can see that all the RSS characteristics are

>serious or minor serious en each boy and I guess any test is 100% sure,

>there aren't enough information about RSS.

>

>Maybe characteristics become from my husband's mother or maybe my

>husband's mother is RSS woman and too has RSS.

>

>The most important is focus in the specific problems of each of our boys

>and help them.

>

>Betty

>

> (unknown)

>

>Hi ,

>

>I was just wondering if anyone can tell me how RSS is diagnosed is it

>through genetic's , neorology , blood work what ?

>We are going crazy visiting all of these doctor's who think this is what

>our

>daughter has . Is there a test that is yes or no .

>Maybe we just don't want to see it , at first we thought it was a

>possibility , but she seem's to be doing so well , some minor

>development

>problem's , feeding , ect. Some of your letters show much more

>difficulties

>for your children , we have some similarities but not to your degree . I

>

>hope I don't sound rude or insensative . We just want to get on with our

>

>lives and enjoy watching her grow and develope . I myself am only 4 ft.

>8

>3/4 inches . so how much is just hereditary

>We return to Toronto Sick Kids in September for an eeg an a SSPD then

>back

>to genetics (2nd app.)

>Thanks for Your Input Marelou mother of Hanna 22 mnths 18lbs beautiful

>red

>hair thats kind of wild .

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

>

>

>

>

>

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Hi Deb ,

We are seeing neorology again in Sept. and have a follow up Sept. 25 , They

are in the process of ruling everything out from thier field . An

endriconologist has been mentioned but not set up as of yet. Our second

visit to genetics is Sept. 10 it is also for my older daughter who is

metally challenged she is 16 this fall and this is the only time any real

test have been considered. I thank you for the info and we'll let you know

what we find out next month Hope everything is well with your family .

Marelou (hanna's mom)

>

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Re: (unknown)

>Date: Wed, 15 Aug 2001 19:27:25 -0400

>

>Marelou

>Who is suggesting RSS to you?? I wish I was going to be at Sick Kids when

>you

>go. I was down there yesterday. It's really mostly a visual kind of

>diagnosis.

>For me, at Sick Kids, they ruled out every other kind of disorder or other

>medical problem, Adam had 2 chromosome testing done (that took a number of

>months to come back). Sick Kids has the ability to test your blood, your

>husband's and your daughter's to see if there is a chromosome change. It's

>called (oh help somebody--UPD#7--if I got the letters wrong, someone will

>correct me). But that is only in 10% of the RSS cases. My son does not have

>it

>(ie. that change in his chromosome, basically 10% of RSS kids have 2 #7

>chromosomes from their mother and none from the father). but like I said,

>Adam

>doesn't have that (we were part of the original study group that found that

>chromosome thing).

>

>But what I don't understand is why you haven't been referred to an

>endocrinologist. Write this down for when you go in Sept. Ask your

>neurologist

>why he hasn't referred you to endocrinology. Tell him you know of an RSS

>boy who

>lives in Toronto and he sees Dr. Denis Daneman. Ask to see him. He'll look

>over

>your daughter's file and be able to tell if it's RSS or not. Genetics can't

>tell

>with certainty.

>

>Good luck and please let me know if I can do anything else. I am relatively

>close to you and I would love to help any way I can. Even a telephone

>conversation isn't that expensive since we are in the same province.

>

>Any other questions? Please feel free to ask.

>

>Take care

>Debby

>

>Marelou Daley wrote:

>

> > Hi ,

> >

> > I was just wondering if anyone can tell me how RSS is diagnosed is it

> > through genetic's , neorology , blood work what ?

> > We are going crazy visiting all of these doctor's who think this is what

>our

> > daughter has . Is there a test that is yes or no .

> > Maybe we just don't want to see it , at first we thought it was a

> > possibility , but she seem's to be doing so well , some minor

>development

> > problem's , feeding , ect. Some of your letters show much more

>difficulties

> > for your children , we have some similarities but not to your degree . I

> > hope I don't sound rude or insensative . We just want to get on with our

> > lives and enjoy watching her grow and develope . I myself am only 4 ft.

>8

> > 3/4 inches . so how much is just hereditary

> > We return to Toronto Sick Kids in September for an eeg an a SSPD then

>back

> > to genetics (2nd app.)

> > Thanks for Your Input Marelou mother of Hanna 22 mnths 18lbs beautiful

>red

> > hair thats kind of wild .

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

> >

> >

> >

> >

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Hi Marelou,

Those are some good tips.

Also, if you can find it there is a product called gogurts. It is

very high in calories. When my son was younger, we added kayro corn

syrup or maple syrup to many of his foods, in addition to butter or

canola oil.

As for your daughter having the shakes. I think that maybe

hypoglycemia ( or the first signs of it). If you still give your

daughter a bottle, some people add cornstarch to the formula ( at

night only). This is slow to digest and helps reduce low blood sugar.

I hope this helps.

Ken M

:)

> Hi everyone,

>

> Thanks for your opinion. We see genetics again soon so maybe we will

get

> something more definite. I have an idea for those in regards to

weight

> problems I am a Nutritional Care Manager for the elderly in Canada

and one

> thing we do to boost calories is to add skim milk powder to regular

milk

> mashed potato's , oatmeal ect. when adding it to milk the extra

calories

> disapate after 24hrs. so make small quanities. Also check with your

doctor

> as you all know before trying something new. We also use this to

increase

> protien to help in skin healing added protien to the diet does

assist in

> healing of the skin whether it be from skin tear ulsers and or

surgery , but

> procede with caution some people require low protien depending on

thier

> medical condition . We are also giving our daughter a product made

by Heinz

> called fruit smoothie it is made with fruit and yogurt it has more

calories

> than just juice , we also have her still on the soya formula for now

.. We

> add extra sugar to puddings hot ceral ect. Does anyone have problems

with

> low blood sugars in thier children , we find that Hanna some

mornings has

> the shakes really bad can barley hold bottle , but seems better

after she

> finishes. I began testing her blood sugar today and will monitor the

next

> few days , but if this is caused from something else I will stop

poking her

> , I'm sure she will forgive me , but she shows alot of symptones.

Have

> company coming thanks again.

> Marelou (mom of sweet baby Hanna)

>

>

> >From: " Real ez, Elvira Beatriz (Elvira Beatriz) "

> ><erealmartinez@a...>

> >Reply-To: RSS-Support@y...

> >To: <RSS-Support@y...>

> >Subject: RE: (unknown)

> >Date: Wed, 15 Aug 2001 18:28:55 -0500

> >

> >Hi;

> >

> >My son has the same age of your daughter and almost the same

> >weight and height 80 cm.

> >

> >I can't answer so well your questions and is part of my doubts,

because

> > also doesn't show much more difficulties, but yes, some

> >similarities. Also some of the RSS characteristics my husband's

mother

> >has (low height, fifth finger curved, poor appetite), that's why I

fell

> >so identified with you.

> >

> >In the other hand, the genetics gave us a list of characteristics

to be

> >follow in (around 25) and he has 80% of them, We don't have a

> >final diagnostic but I hope have it this month, also we have to do

a

> >blood test and x-rays some months later.

> >

> >Finally I have the same question and maybe we aren't going to have

a

> >right answers because I can see that all the RSS characteristics

are

> >serious or minor serious en each boy and I guess any test is 100%

sure,

> >there aren't enough information about RSS.

> >

> >Maybe characteristics become from my husband's mother or

maybe my

> >husband's mother is RSS woman and too has RSS.

> >

> >The most important is focus in the specific problems of each of our

boys

> >and help them.

> >

> >Betty

> >

> > (unknown)

> >

> >Hi ,

> >

> >I was just wondering if anyone can tell me how RSS is diagnosed is

it

> >through genetic's , neorology , blood work what ?

> >We are going crazy visiting all of these doctor's who think this is

what

> >our

> >daughter has . Is there a test that is yes or no .

> >Maybe we just don't want to see it , at first we thought it was a

> >possibility , but she seem's to be doing so well , some minor

> >development

> >problem's , feeding , ect. Some of your letters show much more

> >difficulties

> >for your children , we have some similarities but not to your

degree . I

> >

> >hope I don't sound rude or insensative . We just want to get on

with our

> >

> >lives and enjoy watching her grow and develope . I myself am only 4

ft.

> >8

> >3/4 inches . so how much is just hereditary

> >We return to Toronto Sick Kids in September for an eeg an a SSPD

then

> >back

> >to genetics (2nd app.)

> >Thanks for Your Input Marelou mother of Hanna 22 mnths 18lbs

beautiful

> >red

> >hair thats kind of wild .

> >

> >_________________________________________________________________

> >Get your FREE download of MSN Explorer at

> >http://explorer.msn.com/intl.asp

> >

> >

> >

> >

> >

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Marelou,

Hi. I've got an RSS daughter who does not have too many of the

complications talked about. We've not needed any therapies for her, and she

is right on target academically (4th grader). She is just tiny and has the

RSS " look " , pinky, etc, etc.

We have not had genetics testing done yet. But I did want you to know that

the degrees to which RSS can affect the children can greatly vary. Our

" big " struggle has been with ear infections over and over, and complications

from that.

I noted that you are 4'8 3/4 " . I am 5'0 " . Like you, we wondered (and

incorrectly assumed) that my daughter's height was because of my height.

Like you said, we all try to enjoy our children, and watch them grow and

develop, and have lots of fun and share lots of love with our kids. And

when something RSS-related hits them, we hug them and get through that, too!

Cheryl V.

mom to , age 9, RSS, ghd for 3 yrs, Periactin

mom to , age 6, non-RSS

(unknown)

>Hi ,

>

>I was just wondering if anyone can tell me how RSS is diagnosed is it

>through genetic's , neorology , blood work what ?

>We are going crazy visiting all of these doctor's who think this is what

our

>daughter has . Is there a test that is yes or no .

>Maybe we just don't want to see it , at first we thought it was a

>possibility , but she seem's to be doing so well , some minor development

>problem's , feeding , ect. Some of your letters show much more difficulties

>for your children , we have some similarities but not to your degree . I

>hope I don't sound rude or insensative . We just want to get on with our

>lives and enjoy watching her grow and develope . I myself am only 4 ft. 8

>3/4 inches . so how much is just hereditary

>We return to Toronto Sick Kids in September for an eeg an a SSPD then back

>to genetics (2nd app.)

>Thanks for Your Input Marelou mother of Hanna 22 mnths 18lbs beautiful red

>hair thats kind of wild .

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

>

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  • 1 month later...
  • 2 weeks later...

Hey !

And you thought it was bad with just TWO moms watching you! LOL! You

didn't say who mom is, anyway.

She's been on this list for um, 1 yr? or since it was born, I forget. She's

local to me, and done by Fox also.

Anyway, I thought you looked about 24 in your pix!

Thanks,

www.vitalady.com

For info on PayPal, click this link:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

(unknown)

> I was trying to think of an original way to introduce

> myself to the group. Seems as though with my new life

> I don't ever have much time for anything, especially

> thinking up intros for myself :) I'm a 42 YO female &

> 22 months post op. I had a proximal RNY 11/99 in

> Fountain Valley CA by Dr. LePort. Excellent Doc! I

> started out at 250 lbs and am now at 141 and am 5'7 "

> tall. I wear a size 6 and my shoe size has even shrunk

> 1/2 a size. I've really had no problems to date

> physically, but mentally went through a bad time with

> bulemia that lasted several months. Thankfully I have

> not purged in about 6 months. Kind of funny, but my

> weight dropped when I stopped doing that. I was

> terribly afraid to gain any weight back and was

> stressed out, so up it came. Not proud of it either. I

> divorced (after 24 yrs of marriage, 3 grown daughters

> and 2 granddaughters)and moved to Texas. So I've not

> really had any post op follow up, but have started

> protein drinks (when time permits) and taking my

> vitamins (Yes MOTHER and I am taking them!) I

> do have an appt with a Doc here but couldn't get in

> until Nov. I feel good except for not really being

> able to sleep very well and my BP is pretty low so I

> get the dizzy spells and palp's and bones aching. But

> on the good side of things.. I've got a new WONDERFUL

> husband that my whole family can attest to, have

> become a Firefighter/Medic and am also a

> Police/Fire/EMS/Emergent Helicopter dispatcher. I can

> run and keep up with all the " boys " . Most people guess

> me in my very early 30's too. Wouldn't change

> anything! Still feel that I have about 15 lbs I'd

> like to lose though. Although hubby and family..except

> for my mom that has had the same surgery after me..

> feels that I should be putting at least 20 lbs back

> on. Well, now that I've written a journal and bored

> y'all to tears... that's my non original intro... I

> don't have a web site with before/after pics.. but if

> anybody is curious... you can email me and I'll send

> them to you... FFMedic2@...

>

>

> San Texas

>

>

>

> __________________________________________________

>

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Hey , sounds like you are doing great! What part

of Texas did you move to?

judy in austin

--- Vitalady wrote:

> Hey !

> And you thought it was bad with just TWO moms

> watching you! LOL! You

> didn't say who mom is, anyway.

>

> She's been on this list for um, 1 yr? or since it

> was born, I forget. She's

> local to me, and done by Fox also.

>

> Anyway, I thought you looked about 24 in your pix!

>

> Thanks,

>

>

> www.vitalady.com

>

> For info on PayPal, click this link:

>

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

>

>

> (unknown)

>

>

> > I was trying to think of an original way to

> introduce

> > myself to the group. Seems as though with my new

> life

> > I don't ever have much time for anything,

> especially

> > thinking up intros for myself :) I'm a 42 YO

> female &

> > 22 months post op. I had a proximal RNY 11/99 in

> > Fountain Valley CA by Dr. LePort. Excellent Doc! I

> > started out at 250 lbs and am now at 141 and am

> 5'7 "

> > tall. I wear a size 6 and my shoe size has even

> shrunk

> > 1/2 a size. I've really had no problems to date

> > physically, but mentally went through a bad time

> with

> > bulemia that lasted several months. Thankfully I

> have

> > not purged in about 6 months. Kind of funny, but

> my

> > weight dropped when I stopped doing that. I was

> > terribly afraid to gain any weight back and was

> > stressed out, so up it came. Not proud of it

> either. I

> > divorced (after 24 yrs of marriage, 3 grown

> daughters

> > and 2 granddaughters)and moved to Texas. So I've

> not

> > really had any post op follow up, but have started

> > protein drinks (when time permits) and taking my

> > vitamins (Yes MOTHER and I am taking

> them!) I

> > do have an appt with a Doc here but couldn't get

> in

> > until Nov. I feel good except for not really being

> > able to sleep very well and my BP is pretty low so

> I

> > get the dizzy spells and palp's and bones aching.

> But

> > on the good side of things.. I've got a new

> WONDERFUL

> > husband that my whole family can attest to, have

> > become a Firefighter/Medic and am also a

> > Police/Fire/EMS/Emergent Helicopter dispatcher. I

> can

> > run and keep up with all the " boys " . Most people

> guess

> > me in my very early 30's too. Wouldn't change

> > anything! Still feel that I have about 15 lbs I'd

> > like to lose though. Although hubby and

> family..except

> > for my mom that has had the same surgery after

> me..

> > feels that I should be putting at least 20 lbs

> back

> > on. Well, now that I've written a journal and

> bored

> > y'all to tears... that's my non original intro...

> I

> > don't have a web site with before/after pics.. but

> if

> > anybody is curious... you can email me and I'll

> send

> > them to you... FFMedic2@...

> >

> >

> > San Texas

> >

> >

> >

> > __________________________________________________

> >

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okay, Krissy, I'll tell you...go to the Dr.! It's not abnormal that you've

stopped losing after such a huge weight loss in a year+. Your body gave up a

lot of fat and may want to hold on for awhile. You've done great but why not

see the Doc? Also, I'm 17 months out from a VBG and I now see a nutritionist

1ce/month just so I don't play too many games with myself. That's been

extremely helpful.

Marcia

- 141 lbs.

VBG 4/26/00

Dr. Homan, White Plains, NY

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  • 9 months later...
Guest guest

Hi, there isn't any email attached to your message, but I'm particularly

interested since you cc'd an eosinophilic gastro group and my two boys have

also had eosinophilic gastritis.

Dena

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  • 11 months later...
Guest guest

You measure from shoe heel to shoe heel on the bar. The measurement from

heel to heel should be the same measurement as from shoulder to shoulder.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: (unknown)

>Date: Fri, 04 Jul 2003 05:17:21 -0000

>

>thank you kelly and holly for your info and positive encourgement. I

>measured Sadie bar and it is 12 " long and her shoulders are 8 " . I

>will email my doctor right away. now my difficulties make since. do

>you measure end to end on the bar?

>

>Thanks again

>

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

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  • 1 year later...

I'm so sorry that you are having to go through what so many of us have

to until we get a definitive diagnosis. For years I was bounced

between some specialists who were sure I had MS, others who knew I was

very sick but didn't know from what, and still others (usually the very

peripheral docs, like the ER residents, etc.) who were sure I was

suffering from stress or some kind of somatic disorder. For most of us,

this merry go round only stops when we get a positive biopsy -- but

that is NOT good news in and of itself, since it means the disease has

spread to another organ/system in the body.

You just hang in there and try to do what you still can instead of

giving up or in ahead of schedule. I do hope you get the answers you

need, and that those answers bring with them peace of mind.

Regards,

> Hi,

>  I haven't been a regular writer to the groups, but I do try to read

> the e - mails.

>  I was diagnosed last year with possible neurosarcoid condition after

> being rushed to the hospital with short term memory loss, difficulty

> in speaking, vision impairment, and numbness in my face. After knowing

> that I suffered from sarcoid in the past, the dr.s decided to do a

> spinal tap. They did not decide for certain on the condition, but

> treated me as if I had have neuro sarcoid and started me on

> prednisone, and now I am being weaned on it, 10mg alternate days.  I

> also am taking plaquinel for  pains in my hands as a result from an

> earlier bout with sarcoid.  I must admit that I haven't been feeling

> the greatest this past year.I still have the symptons that I described

> in addition to overall tiredness, and a lot of headaches. I don't work

> a whole day, because I get tired and when I come home, I can't do

> anything. I can sleep a whole night and get up more tired when I went

> to sleep and it doesn't matter if I get 5 or 10 hours of sleep.There

> are days when my feet feel as if they weigh tons. I also have some

> problems with my eyes, I see things witrh a small addition in the

> outline, hard to describe, but I drew a picture for my dr. so he can

> understand. I have come to the conclusion, that I take everyday as it

> comes. It can start out great and after a while it will be a downer or

> it starts out a downer. People ask me how I feel and I reply that I

> have some good days.

>    This is the thing, the result of the latest lp and conclusion of my

> dr is that they really don't know what i had. They think it could have

> been meningitis, due to the fact that that there are no signs of white

> blood cells in the fluids. I told him that I still have all the

> symptons that i had last year and he said that this is residue that

> perhaps will stay with me . I told him that what i read in the e-mails

> and on sarcoid sites that this is more common to neuro sarcoid and of

> course he demissed me.. The funny part in his summary letter, he wrote

> that the patient was discharged from the hjospital in good

> condition.which is far from the truth. In addition, written in the

> letter is the advice of the Head  of the Neurology deptartment.

>   What do I do?

>    Voiced Pomy

>

>   

>

>  

>

> FREE pop-up blocking with the new MSN Toolbar MSN Toolbar Get it now!

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  • 2 months later...

HI ,

I would sure like to talk to you when you are on line. My AOL screen name is sweetgemlady656.

I will put you on my buddy list that way when you are able we can chat.

Ramona

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  • 4 years later...

Hi ,You can get Claritin (or your drug of choice) compounded without the illegal fillers.Take care,Kim H.husband, , CD 1999, SCD 2002

On this note, I get these common allergeies with spring and in the past have just taken a blanket type allergy pill that I got at costco in the past. I believe it had illegal binders - does anyone have a scd compliant suggestion for general spring allergies?

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Some people have had luck with eating 1 TBS locally made honey per day. It is important that it is made locally so that the bees are making it from the local plants that your allergies are reacting to.

nne

~~Life is a grindstone. Whether it grinds you down or polishes you up, depends upon what you're made of.~~

To: BTVC-SCD From: aiazeen@...Date: Mon, 19 Jan 2009 14:16:24 -0800Subject: (unknown)

On this note, I get these common allergeies with spring and in the past have just taken a blanket type allergy pill that I got at costco in the past. I believe it had illegal binders - does anyone have a scd compliant suggestion for general spring allergies?

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  • 4 weeks later...

The bean water ends up with a lot of starch in it. That’s why

you’re soaking the beans that long. To get rid of starches you don’t want.

n

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

Guerin

Sent: Thursday, February 12, 2009 2:03 PM

To: BTVC-SCD

Subject: (unknown)

Once you are able to tolerate beans and cook

them SCD fashion, can you use the water you

cooked them in for anything? I just made some beans and cooked them with salt

pork. The

beans taste fantastic and the bean broth is just as good. I would like to use

it in something

for a base, perhaps a soup or a marinade, but I am not sure if that is legal.

Has anyone ever

used " bean broth " in anything like you would chicken or beef broth?

Thanks,

Guerin

UC/C

Remicade

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7:20 AM

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