colchicine

[Guest guest]

Colchicine is primarily used for gout. It is in the anti-inflammatory

category of medications, and has been tried in other areas beyond gout.

The normal prescription use of this is 1.25mg as soon as the gout is

diagnosed, and then 0.6mg every hour until the pain is relieved. It is

very GI irritating to many, and is not recommended for anyone with a

history of any GI problems or LIVER problems.

Many have found this medication to work well for them. Due to the

constant taking of hourly meds and potential side effects, indomycin aka

indocin is usually used instead. Hope this helps. Marty

[Guest guest]

Thank you for the info Marty.

__________________________________________________

[Guest guest]

Why would a Doc. put a Hep C patient on Colchicine if its bad for your

liver? Thanks, Marjorie

Re: Colchicine

> Colchicine is primarily used for gout. It is in the

anti-inflammatory

> category of medications, and has been tried in other areas beyond

gout.

> The normal prescription use of this is 1.25mg as soon as the gout is

> diagnosed, and then 0.6mg every hour until the pain is relieved. It

is

> very GI irritating to many, and is not recommended for anyone with a

> history of any GI problems or LIVER problems.

>

> Many have found this medication to work well for them. Due to the

> constant taking of hourly meds and potential side effects, indomycin

aka

> indocin is usually used instead. Hope this helps. Marty

>

>

>

>

[Guest guest]

Wow, what is it? Tells us more! No side effect that something I want to know about.

[Guest guest]

Hi Judy,

I have never heard of Colchicine...can you tell me more about it.

Thanks,

Terri

MD

colchicine

Is anyone in this group taking colchicine for hep c treatment??

I am on a study for non responders using this medication. There are no

side effects and it is supposed to slow down the progression of the

disease. I have been on this for one year.

I am a 1B with compensated cirrhosis.

hugs,

Judy

Love and compassion are the moral fabric of world peace. --The Dalai

Lama

~*~*~*~*~*~*~*~*~*@¿@*~*~*~*~*~*~*~*~*~

[Guest guest]

My sister just emailed me tons of information on Familial Mediteranian Fever

(FMF) and Cholchicine. Seems that FMF mimicks Fibromyalgia and other arthritic

disorders and that Colchicine could eliminate many of the symptoms, especially

reducing pain.

We live in southwest Virginia where many people have a genetic history link to

Melungeon's a mixed race of people dating to the early days of European

settlement in our country. Most likely sailors from Portugal or another Med.

country, perhaps even Turkey, became stranded and intermarried with American

Indians and probably Afro-Americans. When Virginia passed laws against mixed

racial marriages many of these people, thought to be Indians or Afro-Americans,

fled the area moving West into Kentucky, Tennessee, and beyond. My family is

from West Tennessee and we have traced our genealogical roots to Mulungeon

ancestory. Many of my family have various auto-immune disorders that might be

genetically inherited or be FMF. I've not read the documents throuroughly but

it is an interesting thought. Could Colchicine help? No one knows. The only

way to find out is to find a doctor who will prescribe it and see if it works.

That's not much different than trying various NSAIDs or pain relievers until you

find one that works best for you. Something doctors do all the time. Switching

meds until they find one that works for you.

Funny that the same moment I'm reading these documents a post on Colchicine is

sent to the group.

Ray

[Guest guest]

Dear Microword 77

I am VERY proud of you for going into the Tutorials to " give it the

old school try " . I am more proud of you for posting your answer not

knowing if it is correct or not. That is how we learn by doing,

experiencing and trying. If we make a mistake we have learned that

we do not know how to do something or understand something. We can

give up or forge ahead and 'master' what we need to learn.

I will place a Tutorial in the Math only Tutorial section of the

Tutorial - 1 Folder, which will explain this problem.

The answer to this IV Flow Rate Problem is: 333.33 minutes or 5.56

hrs (or practical rounding to 5 hours). See Tutorial for explanation.

As you follow along I want you to ask your self this question:

If 500 ml of sugar water (D5W) is one-half of a liter (picture a

liter of water, then half of that) is going to go into MY vein

(yours not mine!) would I want that much solution going into my vien

in ONLY 1.2 minutes??? Heck I can not even dring that much in 1.2

minutes!!

I want you to get a concept, a picture in your mind's eye.

I have taken the liberty of showing you (in the Tutorial) with

Conceptual Math using Conversion Math or what I call String

Conversion Math that I use for IV flow Rate problems (what a

calls DA) AND also I re-show the problem with Ratio/Proportion. If

you feel more comfortable with r/p then go the middle to see that

first. Do not attempt Conversion String Math (one fraction after

another) until you can 'see' what it is that you are looking for

with ratio/proportion and conceptual math.

Go to the Tutoril - 1 Folder in the Files section

Go to the Math ONLY Tutorials

Go to the IV Flow Rate - Time Problem document

Good luck and I will be here when you need me! I expect you will

have some questions. In my opinion this is the hardest math that

techs do and to study for. If you have NOT mastered all of the other

math maybe you might want to wait until you have before you tacklt

this.

Respectfully

Jeanetta Mastron CPhT BS Chem

F/O

>

> Colchicine is used for acute attacks of gout.

>

> My Answer to Question 2 is: 1.2 minutes or 30 X 20 divided 500

[Guest guest]

Okay...so what is gout?

This si a common disease state that PTCB may ask you about.

1. Define it

2. What are the signs and symptoms?

3. What are the causes? Risk Factors?

4. If left untreated what happens to the pt?

5. What drugs in what amounts and frequency are used to treat this

disease state?

When you can answer the above you will be able to see the big

picture of this math problem. You will connect with what is going on

with the patient.

Respectfully,

Jeanetta Mastron CPhT BS Chem

>

> >

> > Colchicine is used for acute attacks of gout.

> >

> > My Answer to Question 2 is: 1.2 minutes or 30 X 20 divided 500

[Guest guest]

Dawn

If Colchicine works well then the child is considered to have clinical FMF.

Pat on this list knows all about this as her son is seen at the NIH and is

considered to have Clinical FMF because he has wonderful results with the

medication and he does NOT have the genetic mutation...

Fran

Fran A Bulone

Mom to ph 6 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Yep! to everything Fran said and I wanted to add that some doctors also may use

colchicine (not to be confused with cimetidine) as a diagnostic tool for FMF. If

it helps to decrease the frequency and severity of symptoms, then the child

could be diagnosed with FMF because the colchicine will have that affect ONLY on

FMF,. It has no effect on any of the other fever disorders, genetic or

otherwise.

Pat, mom to PJ, 13yo, fmf

---------------------------------

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[Guest guest]

Hi Fran do you know how soon this medication will work

if it is going to help him. The episode he is having

now is different since this all started again back in

March. He only got one really big mouth sore last one

he has gotten 6 - 12 really big mouth sores. Was not

able to eat and could hardly talk. The fever came one

day after the one sore and lasted for four days.

Usually the fever comes first for three days than the

sores appear. He just started the Colchicine on May

11, 2006 can it work that fast or did we just get a

lucky break this time. I know that sound funny but

what he has been through we will take the only one

mouth sore anytime. Thanks Dawn Colley

--- Fran Bulone <fbulone@...> wrote:

> Dawn

> If Colchicine works well then the child is

> considered to have clinical FMF.

> Pat on this list knows all about this as her son is

> seen at the NIH and is

> considered to have Clinical FMF because he has

> wonderful results with the

> medication and he does NOT have the genetic

> mutation...

> Fran

> Fran A Bulone

> Mom to ph 6 yrs old

> Waxhaw, NC

>

> Owner & Moderator Group

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

is giving Colchicine a try also. He takes 0.6MG 2 x a day.

He has been on it since 4/8/06. Before Colchicine he was fevering

every 1 to 2 weeks and just not feeling well in between. I am happy

to say (knock on wood) he only had an elevated temp (100.5) for about

4 days, but felt well during it. 100.5 is nothing to him compared to

104! The doctors thought it was worth a try because he began to be

not a " classic " case. We almost didn't give it a try because of

the side effects, but decided we had to do something. My husbands

side comes from Sicily, so that could be the link. Hopefully this is

the miracle drug we were waiting for, but we have been disappointed

before. Maybe he's just having a good month. We will see! I don't

know if having fmf is worse than because they don't know for

sure if he will out-grow it or have complications from it. I will let

everyone know how it goes. Please keep your fingers crossed and say a

pray for .

Thank You

Dena

[Guest guest]

Hi Dena I will Pray that it works for both of our sons

they sure could use this Mircale Drug. What side

affects did your doctor tell you about. said if

was very safe for him to take for years. But when I

look it up on the net it said to keep away from kids

so I was shocked about that. How soon did it help

? Thanks Dawn Colley keep praying it will

work!

--- Dena <anardolillo3@...> wrote:

> is giving Colchicine a try also. He takes

> 0.6MG 2 x a day.

> He has been on it since 4/8/06. Before Colchicine

> he was fevering

> every 1 to 2 weeks and just not feeling well in

> between. I am happy

> to say (knock on wood) he only had an elevated temp

> (100.5) for about

> 4 days, but felt well during it. 100.5 is nothing

> to him compared to

> 104! The doctors thought it was worth a try because

> he began to be

> not a " classic " case. We almost didn't give

> it a try because of

> the side effects, but decided we had to do

> something. My husbands

> side comes from Sicily, so that could be the link.

> Hopefully this is

> the miracle drug we were waiting for, but we have

> been disappointed

> before. Maybe he's just having a good month. We

> will see! I don't

> know if having fmf is worse than because they

> don't know for

> sure if he will out-grow it or have complications

> from it. I will let

> everyone know how it goes. Please keep your fingers

> crossed and say a

> pray for .

>

> Thank You

> Dena

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi Dawn! For my son, the colchicine started to work almost immediately. It has

that affect on most kids as far as I know. I remember that you mentioned that

your son only takes one per day. He might need 2 doses for you to see a drastic

reduction but of course that is up to your doctor.

Pat

---------------------------------

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[Guest guest]

Hello Dena! If yor son has , that will most likely be outgrown. If he turns

out to have fmf, that is one of the genetic disorders and while he may

experience periods of remission, will never be outgrown.

Pat

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

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[Guest guest]

That is the drug that they use for fmf. but we have to wait on genic tests

before they will put fonz on it. Did they find pyrin in his urine? Its

supposed to be a safe drug if used only how dr. prescribes may be fran can tell

you

more. chicks

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[Guest guest]

My son, Evan/4 y.o., is on colchicine. His doctors believe he has Familial

Mediterranean Fever although his genetic testing was negative. We were

apprehensive about colchicine at first. After researching and discussing in

detail with our ped. rheum. we found there to be minimal side effects (diarrhea

until correct dosage is found) and no long term effects on the body. He is on

..3 mg in the am and .6mg in the pm. Evan is now going on 14 weeks without a

flare (he was getting one every 3 weeks like clockwork) and we have a clinical

diagnosis of FMF since the colchicine seems to be helping. Hope this helps.

Let us know what you decide.

Taryn

Mom to Evan, 4 y.o., FMF

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Pat. your the one I'm looking for. lol how is your teen handling all

this mess. Alfonso is 13 and still going strong. possible fmf . let me know

thank you chicks.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Hi Gillian! Colchicine ia a very old medicaition that traditionally had been

used to treat gout.

Doctors have been using it for years to help alleviate the symptoms for

patients having FMF, one of the genetic fever disorders.

In patients with FMF, the colchicine helps to reduce both the frequency and

severity of episodes. It also helps to slow progression of, or stop development

of a condition called amyloidosis. This condition developes primarily in FMF

patients and can be fatal if left untreated.

The " kicker " with colchicine is that it only works if the patient has FMF. It

will have no effect if the patient has any of the other fever disorders. Many

docs will try it on patients as a diagnostic tool. It it helps, then you have

your diagnosis of FMF without going through any genetic testing! Also, while it

helps MOST FMF patients, for some reason, it doesn't help a very small minority.

Colchicine does have it's side effects, the main one being diarrhea but this

usually subsides within a couple of weeks of starting therapy.

I hope I've answered most of your questions. If not, feel free to ask for

more!

Pat, mom to PJ, 14 year old, FMF, Virginia

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

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[Guest guest]

Hi Gillian and all,

We're early in this journey, but can someone please clarify for me:

Is conchicine used for ? My understanding is that it's used for

FMF (to prevent amyloidosis, thus protecting the kidneys) but not for

.

Thanks,

Patty

Leo, age 2.10 (periodic fevers for the past year)

Sam, age 7.6 (doing fine)

>Hello everyone,

>

>I noticed on the database that Sunny's child was taking Colchicine, and

>I'm wondering how it is working. Our doctor wants to put our son on it,

>and I'm really tempted. Kai has had three fevers in the last month, and

>I really would like to see if any medication would help him.

>

>Anyone out there using Colchicine? If so, what do you think of it?

>Thank you!

>

>Gillian

>mother of Kai 4 years old (Periodic fever since age 2)

>

>

--

R. Stokes, Ph.D.

Instructor, Women's Studies

Ohio University

[Guest guest]

Question to anyone who knows. I know they say the high temps will not hurt

small children and there bodies are made to handle it even kids without .

at what age are they not considered able to handle a high temp. when I took

alfonso to the ER once with a 103 temp they told me anything that high they

take very seriously. and that was low for one of his temps .. are these 105

and 106 temps frying him at this older age just a thought maybe someone has

input take care chicks

**************************************

See what's free

at http://www.aol.com.

[Guest guest]

thank you Pat. well alfonso is like my right arm never far from my side. he

worries a lot about things a child should not have to worry about. he's

afraid to be left alone anywhere. people are always saying that he is one of

the

greatest kids so kind to everyone. even the kids that others consider nerds

(not nice) but he doesn't care what anyone says he finds friendship in everyone

.. His heart is as big as his size 10 feet ha ha but then i get to see the

kid that no else does and it makes my heart brake. he is really fussy

about how he looks, he tries to look far beyond what others look like. I think

he wants to stand out in a crowd as a good looking boy not a sick one. Do you

know what I think I'm trying to say. any way I love him to death. How do

the other kids treat him at school? What do you do about the days missed? Do

you have a iep for him. Are the teachers kind to him? Do they understand?

One good thing about him having this is he is so close to me that I haven't had

to go threw what other teens mothers are experiencing, the I don't have to do

what you say thing. but anyway thank you so much chicks

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Hey Chicks! PJ is amazing! He has had this since he was 6 months old and 3

months is the longest he has ever gone without an episode, mild or severe.

He has never complained. He gets through it, picks himself up, dusts himself

off, and keep on going.Yes, he's always lived with the interruptions that the

episodes provide, our whole family does but heck, with the exceptions of births

and deaths, anything else can be rescheduled! A birthday is no less special if

you celebrate it a few days before or after the date, a vacation can continue

with adjustments, same for holidays!

It has almost been worth it, considering what he and his 3 big sisters have

learned. They have a sensitivity and strength and compassion for others that

alot of kids or even adults around them will never have.

Pat, mom to PJ, 14 year old, FMF, Virginia

---------------------------------

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on,

when.

[Guest guest]

My son was tested for TRAPS and it was negative. The

doctor took weekly blood draws for a month to test for

cyclic neutropenia, and that came back negative as

well. So our doctor figures that Kai has periodic

fever syndrome, but he found that Colchicine seems to

work really well with it.

It is reassuring to hear that the side effects aren't

too bad. How do you give the medicine to your son --

is it in pill form? Does he take it pretty well or is

it a fight?

Thanks!

Gillian

--- molson77@... wrote:

> My son, Evan/4 y.o., is on colchicine. His doctors

> believe he has Familial

> Mediterranean Fever although his genetic testing was

> negative. We were

> apprehensive about colchicine at first. After

> researching and discussing in

> detail with our ped. rheum. we found there to be

> minimal side effects (diarrhea

> until correct dosage is found) and no long term

> effects on the body. He is on

> .3 mg in the am and .6mg in the pm. Evan is now

> going on 14 weeks without a

> flare (he was getting one every 3 weeks like

> clockwork) and we have a clinical

> diagnosis of FMF since the colchicine seems to be

> helping. Hope this helps.

> Let us know what you decide.

>

> Taryn

> Mom to Evan, 4 y.o., FMF

>

>

>

> ************************************** See what's

> free at http://www.aol.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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[Guest guest]

Thank you Pat! You are a wealth of information!

It will be interesting to see if my son responds to

Colchicine. I figure that we need to try something

because his fevers seem to be occurring closer

together.

Gillian

--- Bombardier <petish44@...> wrote:

> Hi Gillian! Colchicine ia a very old medicaition

> that traditionally had been used to treat gout.

> Doctors have been using it for years to help

> alleviate the symptoms for patients having FMF, one

> of the genetic fever disorders.

> In patients with FMF, the colchicine helps to

> reduce both the frequency and severity of episodes.

> It also helps to slow progression of, or stop

> development of a condition called amyloidosis. This

> condition developes primarily in FMF patients and

> can be fatal if left untreated.

> The " kicker " with colchicine is that it only works

> if the patient has FMF. It will have no effect if

> the patient has any of the other fever disorders.

> Many docs will try it on patients as a diagnostic

> tool. It it helps, then you have your diagnosis of

> FMF without going through any genetic testing! Also,

> while it helps MOST FMF patients, for some reason,

> it doesn't help a very small minority.

> Colchicine does have it's side effects, the main

> one being diarrhea but this usually subsides within

> a couple of weeks of starting therapy.

>

> I hope I've answered most of your questions. If

> not, feel free to ask for more!

>

> Pat, mom to PJ, 14 year old, FMF, Virginia

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship

> answers from someone who knows.

> Answers - Check it out.

>

> [Non-text portions of this message have been

> removed]

>

>

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