people with RA

[Guest guest]

Hello everyone with RA, can i ask a question ? I am interested to find out

which joints your arthritis is in, and which joints are worst affected, and how

does that affect your life/mobility etc. Also, what other problems do you have

that are related ? For example i had a type of pleurisy or something for a

while. It was a kind of sharp pain my chest area. Of course there's the

digestive issues too which most of us seem to have.

Best,

Leonie

[Guest guest]

before I started the AP I had problems with my left hip and knee and the left

arm from the shoulder blade down to the elbow. the first time I noticed this I

thought I had a heart attack, but then they said no it's just my arthritis and

told me to take Celebrex. Just before starting AP I was almost bend over with

severe muscle weakness. My friends already notice how well I am walking.

Had to change to gluten-free food and that seems to help a lot.

Eva

leonie cent <leoniecent@...> wrote:

Hello everyone with RA, can i ask a question ? I am interested to find

out which joints your arthritis is in, and which joints are worst affected, and

how does that affect your life/mobility etc. Also, what other problems do you

have that are related ? For example i had a type of pleurisy or something for a

while. It was a kind of sharp pain my chest area. Of course there's the

digestive issues too which most of us seem to have.

Best,

Leonie

[Guest guest]

The one that bothers me the most on is my right hand - the joint and bones

at the base of my thumb. I think it has to do with being a teacher and

doing

tons of writing and typing. Some days it aches more than others. I forgot

to

mention in earlier posts that along with Celebrex and Minocin - I also take

a glucosamine, chondroitin supplement.

On 2/3/08, leonie cent <leoniecent@...> wrote:

>

> Hello everyone with RA, can i ask a question ? I am interested to find

> out which joints your arthritis is in, and which joints are worst affected,

> and how does that affect your life/mobility etc. Also, what other problems

> do you have that are related ? For example i had a type of pleurisy or

> something for a while. It was a kind of sharp pain my chest area. Of course

> there's the digestive issues too which most of us seem to have.

>

> Best,

> Leonie

>

>

[Guest guest]

thanks denise

Re: rheumatic people with RA

The one that bothers me the most on is my right hand - the joint and bones

at the base of my thumb. I think it has to do with being a teacher and

doing

tons of writing and typing. Some days it aches more than others. I forgot

to

mention in earlier posts that along with Celebrex and Minocin - I also take

a glucosamine, chondroitin supplement.

On 2/3/08, leonie cent <leoniecent@...> wrote:

>

> Hello everyone with RA, can i ask a question ? I am interested to find

> out which joints your arthritis is in, and which joints are worst affected,

> and how does that affect your life/mobility etc. Also, what other problems

> do you have that are related ? For example i had a type of pleurisy or

> something for a while. It was a kind of sharp pain my chest area. Of course

> there's the digestive issues too which most of us seem to have.

>

> Best,

> Leonie

>

>

[Guest guest]

You know, you made me remember that way back in the beginning

before the Minocin put me in remission, I had some aches in my chest too.

I remember being bothered by the seat belt going across my chest

....and the joints that hurt the most in the early years were

my knees, my shoulders, and my wrists. I remember a time when I

had to hold a gallon of milk against my chest to carry it -- I couldn't

use just my wrist. Good luck to you!

On 2/3/08, Applefeld-Hendin <nantucket715@...> wrote:

>

> The one that bothers me the most on is my right hand - the joint and bones

>

> at the base of my thumb. I think it has to do with being a teacher and

> doing

> tons of writing and typing. Some days it aches more than others. I

> forgot to

> mention in earlier posts that along with Celebrex and Minocin - I also

> take

> a glucosamine, chondroitin supplement.

>

>

>

> On 2/3/08, leonie cent <leoniecent@...> wrote:

> >

> > Hello everyone with RA, can i ask a question ? I am interested to find

> > out which joints your arthritis is in, and which joints are worst affected,

> > and how does that affect your life/mobility etc. Also, what other problems

> > do you have that are related ? For example i had a type of pleurisy or

> > something for a while. It was a kind of sharp pain my chest area. Of course

> > there's the digestive issues too which most of us seem to have.

> >

> > Best,

> > Leonie

> >

> >

[Guest guest]

When I started RA, my swelling was in both wrists, but predominantly my

right one. Then swelling happened all over & I had a hard time walking,

getting dressed, etc.

I went into remission for a while, & now, my pain & swelling is in my

left wrist - but the pressure keeps me from using the hand very much...

and I write left handed.

At least I have my right hand to open doors, carry things, etc. I don't

have the swelling all over right now.

Amy

leonie cent wrote:

>

> Hello everyone with RA, can i ask a question ? I am interested to find

> out which joints your arthritis is in, and which joints are worst

> affected, and how does that affect your life/mobility etc. Also, what

> other problems do you have that are related ? For example i had a type

> of pleurisy or something for a while. It was a kind of sharp pain my

> chest area. Of course there's the digestive issues too which most of

> us seem to have.

>

> Best,

> Leonie

>

>

[Guest guest]

thanks denise

Re: rheumatic people with RA

You know, you made me remember that way back in the beginning

before the Minocin put me in remission, I had some aches in my chest too.

I remember being bothered by the seat belt going across my chest

...and the joints that hurt the most in the early years were

my knees, my shoulders, and my wrists. I remember a time when I

had to hold a gallon of milk against my chest to carry it -- I couldn't

use just my wrist. Good luck to you!

On 2/3/08, Applefeld-Hendin <nantucket715@...> wrote:

>

> The one that bothers me the most on is my right hand - the joint and bones

>

> at the base of my thumb. I think it has to do with being a teacher and

> doing

> tons of writing and typing. Some days it aches more than others. I

> forgot to

> mention in earlier posts that along with Celebrex and Minocin - I also

> take

> a glucosamine, chondroitin supplement.

>

>

>

> On 2/3/08, leonie cent <leoniecent@...> wrote:

> >

> > Hello everyone with RA, can i ask a question ? I am interested to find

> > out which joints your arthritis is in, and which joints are worst

affected,

> > and how does that affect your life/mobility etc. Also, what other problems

> > do you have that are related ? For example i had a type of pleurisy or

> > something for a while. It was a kind of sharp pain my chest area. Of

course

> > there's the digestive issues too which most of us seem to have.

> >

> > Best,

> > Leonie

> >

> >

[Guest guest]

thanks amy

Re: rheumatic people with RA

When I started RA, my swelling was in both wrists, but predominantly my

right one. Then swelling happened all over & I had a hard time walking,

getting dressed, etc.

I went into remission for a while, & now, my pain & swelling is in my

left wrist - but the pressure keeps me from using the hand very much...

and I write left handed.

At least I have my right hand to open doors, carry things, etc. I don't

have the swelling all over right now.

Amy

leonie cent wrote:

>

> Hello everyone with RA, can i ask a question ? I am interested to find

> out which joints your arthritis is in, and which joints are worst

> affected, and how does that affect your life/mobility etc. Also, what

> other problems do you have that are related ? For example i had a type

> of pleurisy or something for a while. It was a kind of sharp pain my

> chest area. Of course there's the digestive issues too which most of

> us seem to have.

>

> Best,

> Leonie

>

>

[Guest guest]

I have had R.A. (diagnosed) for 31 years, but am sure I should have been

diagnosed much earlier. I started with pain mainly in the knees and then had

the butterfly rash across my cheeks. Then I was diag. with lupus and then RA

w/lupus tendencies. I have had it all--splenectomy to stop my immune system

(idiopathic thrombocytopenia), pleurisy, many joint replacements, etc., etc.

The first real relief I got was with I.V. Clindamycin. Antibiotics have

saved my life; however, I wish I had known about this treatment much earlier

Best wishes,

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

Hi, You're the only other person that I have heard of that had a splenectomy for

ITP. My husband Mike came down with it in 1991. They removed his spleen, tore

his pancreas. He developed pancreatitis and then developed 2 large pancreatic

psuedocysts which nearly burst and almost killed him. They had to surgically

implant drains in his pancreas and attached them to suction on the wall. They

had to feed him through a hickman catheter in his chest. They remained there

for months. He had two strokes two days post op because the idiot doc walked out

on the case and never anticoagulated him. He did finally survive this

catastrophic event, but it took years of rehabilitation. He had to learn from

scratch. He lost some memory, but can finally walk and talk again. If he stays

in the sun, he will develop the butterfly rash. He also complains about

rheumatic aches and pains. So far he has not developed full blown lupus, thank

God. His blood tests show he has anticardiolipin

antibodies and antiphospholipin antibodies. About ten years ago, a

rheumatologist discovered he also has a blood disorder called Protein " S "

deficiency. His life has been hell.

Soon he will be tested for R/A as the aches and pains are getting to him and

since Christmas he has developed three colds. He takes no meds for his

condition except a blood thinner. But after his testing, I'm hoping he goes on

A/P.

If that wasn't enough, I came down with Systemic Scleroderma in 2005 after

years of being sick and getting sicker. Now they find I also have

anticardiolipin antibodies in my blood. I went on A/P and reached remission 18

months later. However, my micoplasma count is still high and so I decided to go

on the Marshall Protocol. Started in October 2006 and I can't say I feel better.

I am herxing for two days after the Minocin dose, but that is what I am supposed

to be doing. Time will tell what the success rate is between us. Thank you

for bringing up the subject of ITP. I haven't seen it before on this site.

Anyone else out there with the same disorder who is in treatment or has had the

surgerical procedures. If so, how did it turn out for you? Thanks, Dolores &

Mike

kjdel1977@... wrote:

I have had R.A. (diagnosed) for 31 years, but am sure I should have

been

diagnosed much earlier. I started with pain mainly in the knees and then had

the butterfly rash across my cheeks. Then I was diag. with lupus and then RA

w/lupus tendencies. I have had it all--splenectomy to stop my immune system

(idiopathic thrombocytopenia), pleurisy, many joint replacements, etc., etc.

The first real relief I got was with I.V. Clindamycin. Antibiotics have

saved my life; however, I wish I had known about this treatment much earlier

Best wishes,

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

I am so sorry to hear about the health issues you and Mike have faced. In

my mind, the removal of my spleen was a big mistake. It has forever changed

my body's ability to fight infection. But, I was in my early twenties and was

ill enough to not fight my mom and the docs in their " so-called cure " for

ITP. Did they ever find out what caused Mike's ITP? You have said, I think,

that your scleroderma went into remission for a time. Right?? I feel my big

battle has always been with the Lyme. I had surgery a couple of weeks ago to

correct boutenniere deformity of another finger, and my biggest battle has

been the ensuing rash over approx. 1/3 of my body. I am now either allergic

to the antibiotic they gave (encept/anceft?) or the anesthetic after 22

surgeries.

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)