mood swings

[Guest guest]

<<> > My son seems to drift in and out of " doom and gloom " mode a lot.

When he is in his funk everything is bad, never has a nice thing to

say about anything, and generally seems pretty unhappy with life (and

he's not much fun to be around).>>

This is my nine year old when he is not tolerating a mystery food, when

he is about to get sick (just about the time I've written the ad

offering him for sale, he comes down with a 104 fever), but mostly I am

figuring out it has to do with the weather, specifically when the mold

is really high. He is at his WORST then. I am guessing he has yeast

problems? In any case, we go back strictly CF and no corn, limit

gluten, extra enzymes with every meal, lots of vitamins, and extra rest.

Everything eventually evens out, but I have no idea if it is due to the

above measures, or if the mold eases up long enough to let him recover.

I have heard that biotin helps with the mood swings, but we haven't

started it yet.

BTW, now that he's older, we are able to talk about these mood swings

more, and help him recognize that things aren't really bad, it's just

his body feeling " sick " that is making him think that, and when his body

feels better, so will his mood. That helps keep him from spiraling

downward. I always thought it must be horrifying to be a kid and

actually think " Nothing will ever be happy or fun again. "

Good luck.

M

P.S. Hi Robin S! ; )

[Guest guest]

I'm a 27 yrs old woman recently diagnosed with Asperger's. I can answer just

about any questions you may have or I'll at least try my best to. What don't

you understand? ---Nikki Lynn

( ) mood swings

Hi my daughter is 5 yrs old and she has not been official dx'ed but the

therepest are pretty sure that this is what she has.... I need help i

don't understand

[Guest guest]

I am not the original poster, but I do have a question for those that

have autism/aspergers - my son who is HFA does not acknowledge feeling

sadness. He will cry at a scene that is sad but describes his emotion

as anger. He does not seem very remorseful when he does things that

are wrong, but he feels anger at himself and he tries to get revenge

against himself (by banging his head). Do you experience 'sadness'?

>

> I'm a 27 yrs old woman recently diagnosed with Asperger's. I can

answer just

> about any questions you may have or I'll at least try my best to.

What don't

> you understand? ---Nikki Lynn

[Guest guest]

>

Do you experience 'sadness'?

>

>

>

>

Hi ,

My son with AS, 11 yrs old, experiences sadness in great amounts, the

emotion he has a hard time feeling is happiness; it breaks my heart. He

even expresses sadness for others, which I understand is not really

the " norm " for aspies, whatever " norm " is in our world. Sadness and

anger are his primary emotions, otherwise, he is emotionally " flat " .

No emotion in his face, and speaks very monotone.

Theresa

[Guest guest]

Thanks for responding - I would be much sadder if Ethan did not

experience or express happiness. That must be really tough for

you!

> >

> Do you experience 'sadness'?

> >

> >

> >

> >

> Hi ,

>

> My son with AS, 11 yrs old, experiences sadness in great amounts,

the

> emotion he has a hard time feeling is happiness; it breaks my

heart. He

> even expresses sadness for others, which I understand is not

really

> the " norm " for aspies, whatever " norm " is in our world. Sadness

and

> anger are his primary emotions, otherwise, he is

emotionally " flat " .

> No emotion in his face, and speaks very monotone.

>

> Theresa

>

[Guest guest]

Hi All - I haven't posted in awhile because I was delayed in starting

the AP. I started just about a month ago and no severe Herx yet, but

the mood swings are awful. At first I thought it wasn't related, but

now I'm beginning to wonder. I've gone from euphoria last week to the

darkest place this week. Anyone else have that happen? I have had an

increase in physical symptoms too, but not as bad as my moods.....my

family is about to get rid of me.

Thanks. S.

[Guest guest]

Hi ,

Yes, the mood swings are a natural part of the therapy. I highly recommend

the articles on the roadback.org site: " the emotional herx " and " when the road

back gets bumpy. " I've been on AP for 12 months and had a summer and winter of

blackness preceded by spaciness and euphoria. My labs are coming down, my

strength is returning, I have less and less physical pain- but still these weird

mood periods- luckily they go away again on their own. Try to give yourself as

much support as you can during those times- less stress, deep tissue massages,

healthy diet etc. sorry you are going through that- good luck--

**************

Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL

Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

They say (who says.I'm not sure) that you will have the herx where the myco

are. In other words maybe yours are in your brain or hormonal areas. A lot

of us are in or have been in menopause when AP is started and that might be

a reason. How much Minocin are you taking? You might want to back down on

the amount till the herx in this area is calmed down. Also are you on

Cortisone of any kind for pain? What other meds are you taking.

I had and still get sometimes depression from rheumatoid. That's one of the

symptoms.

Let me know what else id going on in your life and maybe we can figure this

out.

Hugs,

cooky

Hi All - I haven't posted in awhile because I was delayed in starting

the AP. I started just about a month ago and no severe Herx yet, but

the mood swings are awful. At first I thought it wasn't related, but

now I'm beginning to wonder. I've gone from euphoria last week to the

darkest place this week. Anyone else have that happen? I have had an

increase in physical symptoms too, but not as bad as my moods.....my

family is about to get rid of me.

[Guest guest]

Hi Cookee - Yes, my RA did start almost exactly when I went into

menopause, so maybe it is hormonal or brain. However,I've noticed my

first improvement from minocin is my bowels. I got collagenous

colitis about 5 years after I developed RA and the minocin is helping

that. I'm taking 100 mg. two times a day on MWF. My mood is better

today, but now I'm spacey. When I first started AP I felt like a fog

had been lifted even though my physical symptoms didn't improve and

actually worsened, but now I feel like my brain is not engaged pretty

much....sort of like I'm about 80 years old and having minor

dementia! Anyway, I'm doing okay and very hopeful about the future

today......not euphoric...just hopeful. Thanks for your support.

>

> They say (who says.I'm not sure) that you will have the herx where

the myco

> are. In other words maybe yours are in your brain or hormonal

areas. A lot

> of us are in or have been in menopause when AP is started and that

might be

> a reason. How much Minocin are you taking? You might want to back

down on

> the amount till the herx in this area is calmed down. Also are you

on

> Cortisone of any kind for pain? What other meds are you taking.

>

>

>

> I had and still get sometimes depression from rheumatoid. That's

one of the

> symptoms.

>

>

>

> Let me know what else id going on in your life and maybe we can

figure this

> out.

>

>

>

> Hugs,

>

>

>

> cooky

>

>

>

>

>

>

>

>

>

> Hi All - I haven't posted in awhile because I was delayed in

starting

> the AP. I started just about a month ago and no severe Herx yet,

but

> the mood swings are awful. At first I thought it wasn't related,

but

> now I'm beginning to wonder. I've gone from euphoria last week to

the

> darkest place this week. Anyone else have that happen? I have had

an

> increase in physical symptoms too, but not as bad as my

moods.....my

> family is about to get rid of me.

>

>

>

>

>

>

>

[Guest guest]

Hi EMULUV.....didn't catch your name, but thanks. Oh my, the mood

and spaciness is worse than the physical. I will definitely read

what you suggested. .

>

> Hi ,

>

> Yes, the mood swings are a natural part of the therapy. I highly

recommend

> the articles on the roadback.org site: " the emotional herx "

and " when the road

> back gets bumpy. " I've been on AP for 12 months and had a summer

and winter of

> blackness preceded by spaciness and euphoria. My labs are coming

down, my

> strength is returning, I have less and less physical pain- but

still these weird

> mood periods- luckily they go away again on their own. Try to give

yourself as

> much support as you can during those times- less stress, deep

tissue massages,

> healthy diet etc. sorry you are going through that- good luck--

>

>

> **************

>

> Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL

> Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

>

>

[Guest guest]

hi again,

They say (again :-)) that the place mycos infested first is the last to feel

better. not the first. Sorry to tell you that but look into the hormone

thing. I am on bioidenticals and would not give them up for all the gas in

the world (wellllll maybe I'd have to think about that! )

Oh, and for all of you on biodenticals. I just started pregnolone and I

can't believe what it has done for me emotionally.

cooky

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of cindy.slevin

Sent: Thursday, May 08, 2008 7:22 PM

rheumatic

Subject: rheumatic Re: mood swings

Hi Cookee - Yes, my RA did start almost exactly when I went into

menopause, so maybe it is hormonal or brain. However,I've noticed my

first improvement from minocin is my bowels. I got collagenous

colitis about 5 years after I developed RA and the minocin is helping

that. I'm taking 100 mg. two times a day on MWF. My mood is better

today, but now I'm spacey. When I first started AP I felt like a fog

had been lifted even though my physical symptoms didn't improve and

actually worsened, but now I feel like my brain is not engaged pretty

much....sort of like I'm about 80 years old and having minor

dementia! Anyway, I'm doing okay and very hopeful about the future

today......not euphoric...just hopeful. Thanks for your support.

>

> They say (who says.I'm not sure) that you will have the herx where

the myco

> are. In other words maybe yours are in your brain or hormonal

areas. A lot

> of us are in or have been in menopause when AP is started and that

might be

> a reason. How much Minocin are you taking? You might want to back

down on

> the amount till the herx in this area is calmed down. Also are you

on

> Cortisone of any kind for pain? What other meds are you taking.

>

>

>

> I had and still get sometimes depression from rheumatoid. That's

one of the

> symptoms.

>

>

>

> Let me know what else id going on in your life and maybe we can

figure this

> out.

>

>

>

> Hugs,

>

>

>

> cooky

>

>

>

>

>

>

>

>

>

> Hi All - I haven't posted in awhile because I was delayed in

starting

> the AP. I started just about a month ago and no severe Herx yet,

but

> the mood swings are awful. At first I thought it wasn't related,

but

> now I'm beginning to wonder. I've gone from euphoria last week to

the

> darkest place this week. Anyone else have that happen? I have had

an

> increase in physical symptoms too, but not as bad as my

moods.....my

> family is about to get rid of me.

>

>

>

>

>

>

>

[Guest guest]

Thanks. I will check into that. .

> >

> > They say (who says.I'm not sure) that you will have the herx

where

> the myco

> > are. In other words maybe yours are in your brain or hormonal

> areas. A lot

> > of us are in or have been in menopause when AP is started and

that

> might be

> > a reason. How much Minocin are you taking? You might want to

back

> down on

> > the amount till the herx in this area is calmed down. Also are

you

> on

> > Cortisone of any kind for pain? What other meds are you taking.

> >

> >

> >

> > I had and still get sometimes depression from rheumatoid. That's

> one of the

> > symptoms.

> >

> >

> >

> > Let me know what else id going on in your life and maybe we can

> figure this

> > out.

> >

> >

> >

> > Hugs,

> >

> >

> >

> > cooky

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi All - I haven't posted in awhile because I was delayed in

> starting

> > the AP. I started just about a month ago and no severe Herx yet,

> but

> > the mood swings are awful. At first I thought it wasn't related,

> but

> > now I'm beginning to wonder. I've gone from euphoria last week

to

> the

> > darkest place this week. Anyone else have that happen? I have

had

> an

> > increase in physical symptoms too, but not as bad as my

> moods.....my

> > family is about to get rid of me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Cooky- Did you have your pregnenolone levels checked or did you just try it

empirically? I wonder if I'm too young to benefit.

Emma

In a message dated 5/8/2008 10:49:22 P.M. Eastern Daylight Time,

cookee1@... writes:

hi again,

They say (again :-)) that the place mycos infested first is the last to feel

better. not the first. Sorry to tell you that but look into the hormone

thing. I am on bioidenticals and would not give them up for all the gas in

the world (wellllll maybe I'd have to think about that! )

Oh, and for all of you on biodenticals. I just started pregnolone and I

can't believe what it has done for me emotionally.

cooky

_____

From: _rheumatic@grourheuma_ (mailto:rheumatic )

[mailto:_rheumatic@grourheuma_ (mailto:rheumatic ) ] On

Behalf

Of cindy.slevin

Sent: Thursday, May 08, 2008 7:22 PM

_rheumatic@grourheuma_ (mailto:rheumatic )

Subject: rheumatic Re: mood swings

Hi Cookee - Yes, my RA did start almost exactly when I went into

menopause, so maybe it is hormonal or brain. However,I've noticed my

first improvement from minocin is my bowels. I got collagenous

colitis about 5 years after I developed RA and the minocin is helping

that. I'm taking 100 mg. two times a day on MWF. My mood is better

today, but now I'm spacey. When I first started AP I felt like a fog

had been lifted even though my physical symptoms didn't improve and

actually worsened, but now I feel like my brain is not engaged pretty

much....sort of like I'm about 80 years old and having minor

dementia! Anyway, I'm doing okay and very hopeful about the future

today......not euphoric...just hopeful. Thanks for your support.

>

> They say (who says.I'm not sure) that you will have the herx where

the myco

> are. In other words maybe yours are in your brain or hormonal

areas. A lot

> of us are in or have been in menopause when AP is started and that

might be

> a reason. How much Minocin are you taking? You might want to back

down on

> the amount till the herx in this area is calmed down. Also are you

on

> Cortisone of any kind for pain? What other meds are you taking.

>

>

>

> I had and still get sometimes depression from rheumatoid. That's

one of the

> symptoms.

>

>

>

> Let me know what else id going on in your life and maybe we can

figure this

> out.

>

>

>

> Hugs,

>

>

>

> cooky

>

>

>

>

>

>

>

>

>

> Hi All - I haven't posted in awhile because I was delayed in

starting

> the AP. I started just about a month ago and no severe Herx yet,

but

> the mood swings are awful. At first I thought it wasn't related,

but

> now I'm beginning to wonder. I've gone from euphoria last week to

the

> darkest place this week. Anyone else have that happen? I have had

an

> increase in physical symptoms too, but not as bad as my

moods.....my

> family is about to get rid of me.

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

I have a great compounding pharmacist. I did not get tested. She started me

at the lowest level.

How old are you??

I had a doc order these same meds (minus pregnolone and DHEA) for me right

after I had my hyster and five years after that I tried them again. I always

felt like I was 7 months pregnant and just kept gaining weight. Now after

bad hot flashes they work very well and I do not feel preggie and I have not

gained weight from them.

You might try some OTC stuff first. DonQui helps with the despondency. There

is Estroven. DHEA is in pill form OTC. Pregnolone is also in pill form OTC.

If they help continue with them. There is progesterone but I have been

reading a lot and the OTC is not good. If the OTC's help a little but don't

seem strong enough then talk to your doc about biodenticals. DO NOT take

hormones the drug companies put out unless you want lots of side effects.

There are there things you can take if you are too young for hormones. SAME

is one of the best and it also helps with joint pain. Let me know what you

decide.

Cooky

Cooky- Did you have your pregnenolone levels checked or did you just try it

empirically? I wonder if I'm too young to benefit.

___

[Guest guest]

I'm very interested in all the things you write about, Cooky ... as I

have similar experiences as you. Hormones have impacted my pain levels

significantly. One issue though with me, it appears my HPA axis is

permanantly screwed ... markers such as TSH show that adrenals, thyroid,

pituitary are not communicating with each other as they should. I think

the only thing that that can be done about this is to monitor hormone

levels.

Can you tell me what your pregnenolone regimen is? (e.g. frequency &

dose). I was having a hard time with this one. I don't recall, but are

you also on thyroid med?

Thanks,

Amy

C Stonkey wrote:

>

> hi again,

>

> They say (again :-)) that the place mycos infested first is the last

> to feel

> better. not the first. Sorry to tell you that but look into the hormone

> thing. I am on bioidenticals and would not give them up for all the gas in

> the world (wellllll maybe I'd have to think about that! )

>

> Oh, and for all of you on biodenticals. I just started pregnolone and I

> can't believe what it has done for me emotionally.

>

> cooky

>

> _____

>

> From: rheumatic <mailto:rheumatic%40>

> [mailto:rheumatic

> <mailto:rheumatic%40>] On Behalf

> Of cindy.slevin

> Sent: Thursday, May 08, 2008 7:22 PM

> rheumatic <mailto:rheumatic%40>

> Subject: rheumatic Re: mood swings

>

> Hi Cookee - Yes, my RA did start almost exactly when I went into

> menopause, so maybe it is hormonal or brain. However,I've noticed my

> first improvement from minocin is my bowels. I got collagenous

> colitis about 5 years after I developed RA and the minocin is helping

> that. I'm taking 100 mg. two times a day on MWF. My mood is better

> today, but now I'm spacey. When I first started AP I felt like a fog

> had been lifted even though my physical symptoms didn't improve and

> actually worsened, but now I feel like my brain is not engaged pretty

> much....sort of like I'm about 80 years old and having minor

> dementia! Anyway, I'm doing okay and very hopeful about the future

> today......not euphoric...just hopeful. Thanks for your support.

>

>

>

> >

> > They say (who says.I'm not sure) that you will have the herx where

> the myco

> > are. In other words maybe yours are in your brain or hormonal

> areas. A lot

> > of us are in or have been in menopause when AP is started and that

> might be

> > a reason. How much Minocin are you taking? You might want to back

> down on

> > the amount till the herx in this area is calmed down. Also are you

> on

> > Cortisone of any kind for pain? What other meds are you taking.

> >

> >

> >

> > I had and still get sometimes depression from rheumatoid. That's

> one of the

> > symptoms.

> >

> >

> >

> > Let me know what else id going on in your life and maybe we can

> figure this

> > out.

> >

> >

> >

> > Hugs,

> >

> >

> >

> > cooky

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi All - I haven't posted in awhile because I was delayed in

> starting

> > the AP. I started just about a month ago and no severe Herx yet,

> but

> > the mood swings are awful. At first I thought it wasn't related,

> but

> > now I'm beginning to wonder. I've gone from euphoria last week to

> the

> > darkest place this week. Anyone else have that happen? I have had

> an

> > increase in physical symptoms too, but not as bad as my

> moods.....my

> > family is about to get rid of me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

HI amy,

Do you take any adrenal support meds? Mine are by Future Formulations I use

to get it from my pharm and found it on the net less expensive? There is

also great book about adrenals. These meds helped me a few years back and I

still take them.

I use bio identical and it come in a syringe just like they use to give

shots. I use 10 mgm/ml which is one line every OTHER day. I notice on the

day I don't use it I am more tired. What kind of a hard time are you having

with this?

I have Armour thyroid 30 mgms/tablet. I am supposto take 90 mgm but after 60

I start having premature heart beats. I have mitrol valve prolapse which is

not really a big thing but scary.

I was on cymbalta after my pain from RA was mostly gone and it took away ALL

of my fibro pain. I am off it now and the fibro is back.

Hope this helps

cooky

I'm very interested in all the things you write about, Cooky ... as I

have similar experiences as you. Hormones have impacted my pain levels

significantly. One issue though with me, it appears my HPA axis is

permanantly screwed ... markers such as TSH show that adrenals, thyroid,

pituitary are not communicating with each other as they should. I think

the only thing that that can be done about this is to monitor hormone

levels.

Can you tell me what your pregnenolone regimen is? (e.g. frequency &

dose). I was having a hard time with this one. I don't recall, but are

you also on thyroid med?

Thanks,

Amy

..

<http://geo./serv?s=97359714/grpId=93429/grpspId=1705061610/msgId=4

8072/stime=1210527028/nc1=5191951/nc2=5191945/nc3=3848642>

[Guest guest]

I'm getting ready to test my adrenals again (via cortisol test). If the

next test comes back crappy (which is what I expect) then I will start

something... again. I've tried Cortef and an adrenal extract ... I

thought the benefit was limited or negligible.

The Armour Thyroid (4 grains) has been tremendous support to adrenals,

as has progesterone and testosterone. Like you, if I don't take prog

and test, I feel more tired in a few days. It appears I have enough

estrogen, don't need estrogen. I take a super-duper tiny dose of

something with estrogen in it, as it seems to make the progesterone work

better.

I have a hard time with pregnenolone & DHEA as both will make me swell &

give me an edema type reaction. The theory is that somehow I'm getting

an estrogen reaction from these... but just a theory. I can take 1 mg

drop of each maybe once per week - but that's it. Even though I test

very low in both of those.

I started hormones, because apparently I just don't make them on my own.

Except for estrogen ... I test in the middle for estrogen. Thanks for

the recommendation for adrenal support. I've done the syringe bio's

that you describe, and now my hormone are still bio's, but not in

syringe. I'm using Dr. Lee sources for progesterone. I use 7 mg of

prog daily except when on period.

Amy

C Stonkey wrote:

>

> HI amy,

>

> Do you take any adrenal support meds? Mine are by Future Formulations

> I use

> to get it from my pharm and found it on the net less expensive? There is

> also great book about adrenals. These meds helped me a few years back

> and I

> still take them.

>

> I use bio identical and it come in a syringe just like they use to give

> shots. I use 10 mgm/ml which is one line every OTHER day. I notice on the

> day I don't use it I am more tired. What kind of a hard time are you

> having

> with this?

>

> I have Armour thyroid 30 mgms/tablet. I am supposto take 90 mgm but

> after 60

> I start having premature heart beats. I have mitrol valve prolapse

> which is

> not really a big thing but scary.

>

> I was on cymbalta after my pain from RA was mostly gone and it took

> away ALL

> of my fibro pain. I am off it now and the fibro is back.

>

> Hope this helps

>

> cooky

>

> I'm very interested in all the things you write about, Cooky ... as I

> have similar experiences as you. Hormones have impacted my pain levels

> significantly. One issue though with me, it appears my HPA axis is

> permanantly screwed ... markers such as TSH show that adrenals, thyroid,

> pituitary are not communicating with each other as they should. I think

> the only thing that that can be done about this is to monitor hormone

> levels.

>

> Can you tell me what your pregnenolone regimen is? (e.g. frequency &

> dose). I was having a hard time with this one. I don't recall, but are

> you also on thyroid med?

> Thanks,

> Amy

>

> .

>

> <http://geo./serv?s=97359714/grpId=93429/grpspId=1705061610/msgId=4

> <http://geo./serv?s=97359714/grpId=93429/grpspId=1705061610/msgId=4>

> 8072/stime=1210527028/nc1=5191951/nc2=5191945/nc3=3848642>

>

>

>

[Guest guest]

My son has mood swings but not like that....his are more in the moment...not weeks ...he could be good all day and then melt down or get tired and get moody....he doesn't have cycles of it ...your son sound more bipolar but I am not a doctor.

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: valeriemorrison76 <valeriemorrison76@...>Subject: ( ) mood swings Date: Wednesday, December 31, 2008, 9:32 AM

Hi everyone. i was just wondering if antyone else's aspergers child has cyclic mood swings. My 7 year old son has very distinct cycles of about 3 weeks of having his obsessions etc but not too bad and then about 3 weeks of hell where he is very violent to me, has endless meltdowns, says he wants to die and will do nothing he is asked. Does anyone else have this?