RE: AP doctors on east coast & marshall protocol

[Guest guest]

Re the purple splotches...I got discolorations on my legs and back when using

minocin as well...but I believe it is simply what is associated with using

minocin...Ethel? Anyone...It has been a while since I was on minocin but I do

remember getting discoloration of my skin...I believe it was harmless...you old

timers out there? Anyone?

As far as seeing Dr. Whitman...yes, he is a drive...12 hrs for me...in

Ohio...but I do it yearly...he has saved my life on more than one occasion...I

like that he emails as well and has sent letters after I sent him labs and tests

done here...he is very thorough and up on the ABX therapy and other

therapies...sometimes you have to tweek it a bit...for each of us...hang in

there, Debb

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them.

I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within

a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Taking large doses of vitamin C while using Minocin may prevent the

discoloration. It occurs most often in people taking the larger doses of

the antibiotics.

Ethel

From the FAQ -

5. WHAT IS HYPERPIGMENTATION? Minocycline can cause discoloration of the

skin anywhere on the body. This is called hyperpigmentation. Large daily

doses of ascorbic acid (vitamin C) may prevent this phenomenon. (Bowles WH,

Baylor College of Dentistry, Texas A & M University System Protection against

minocycline pigment formation by ascorbic acid, J Esthet Dent, 10(4):182-6

1998)

Dr. A. Franco, a rheumatologist practicing in Riverside, California,

says that hyperpigmentation occurs in about 10% to 20% of patients taking

minocycline (Minocin) on a daily basis and over one year. Occasionally it

may appear earlier. It occurs less frequently with patients taking Minocin

on a three times per week basis. It may be necessary to switch to another

antibiotic. It is usually reversible after discontinuation of the

medication, but fades slowly and sometimes not completely.

Dr. Pnina Langevitz in Israel has done three double-blind studies on the use

of minocycline in rheumatoid arthritis with some patients on the medication

over 5 years. The following is from Langevitz et al - Minocycline in

Rheumatoid Arthritis; Isr. J. Med Sci 1996;32:327-330. 'We also observed

skin hyperpigmentation in about one third of our patients as a late

complication of the therapy. Minocycline related hyperpigmentation of the

skin is a well known complication of this agent and can be subdivided into

three categories. The first is characterized by dark black-blue macules

localized at sites of cutaneous inflammation. . . . . . . . . . . The second

type is a more diffuse hyperpigmentation, predominantly on the lower

extremeties and on areas exposed to sunlight. . . . . . . . The third form

of minocycline-induced hyperpigmentation is the 'muddy skin syndrome' Ð a

dark brown-gray discoloration of the skin generalized over the body, less

prominent in non exposed areas. The high incidence of skin hyperpigmentation

in our group of patients is probably due to the longer follow-up period than

that in other groups, and to sun exposure.' (Patients in this study were on

100 mg. of minocycline twice

s called hyperpigmentation -

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

Thanks Ethel, I knew there was something to be done for the pigmentation...You

are a regular font of information!! I was just thinking about you this

am...thinking about doing coffee enemas again...going to dig out the info..and

get the infrared light thingy out that my hubby built..going into winter and I

think it helps me tremendously during winter....You are amazing...thanks Ethel

for being here for all of us! Debbie

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

I feel Dr. Sinnott in Iowa would be a good one to talk to about the

discolorations sometimes when using minocin. He's been doing this over 30

years. I would hate to see anyone stop AT over this, if it isn't serious. I

also believe in reading Q and A about AT, it did mention something about

pigments of skin in a small amount of people on AT. sally

Re: rheumatic AP doctors on east coast & marshall protocol

Re the purple splotches...I got discolorations on my legs and back when using

minocin as well...but I believe it is simply what is associated with using

minocin...Ethel? Anyone...It has been a while since I was on minocin but I do

remember getting discoloration of my skin...I believe it was harmless...you old

timers out there? Anyone?

As far as seeing Dr. Whitman...yes, he is a drive...12 hrs for me...in

Ohio...but I do it yearly...he has saved my life on more than one occasion...I

like that he emails as well and has sent letters after I sent him labs and tests

done here...he is very thorough and up on the ABX therapy and other

therapies...sometimes you have to tweek it a bit...for each of us...hang in

there, Debb

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them. I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Hello .  I went to see Dr. Trentham first right after my NYU docs said I

was terminal with Scleroderma.  After I was on Mino--A/P for about 18 months

through year # 2,, I switched to Dr. Whitman in N. J. because of Debbies

recommendation and  has his office in N.J. That was much closer than going to

Boston which was every 6 months and then only once a year.  By that time, I was

seeing great  improvement and then suddenly I hit a plateau where I was not

continuing to advance.  So, I researched the Marshall Protocol and asked Dr.

Whitman if he could monitor me.  He said he would, but when it came to taking

the 40mg of Benicar, he balked.  ( I wanted to start with 20mg and Dr. W, said

even that is too much.)  He confierred with my cardioloist and they agreed that

I should only take 5 mg.  But then when I wrote to the Marshall Protocol, they

said that at 5 mg, I would not be considered as being a patient on the MP. 

So, I found another

doctor in NY who would.   I went on the MP without a hitch and started with

the 20 mg to build up what they call the Benicar Blockade.  I had no problems

with that.  I followed the Marshall protocol all the way thru to the very last

phase and went into remission several months later.  Total time on both

protocols was 5 yrs.  Still on Minocin. at half dose, three days a week  for

precaution and doing well. No longer on Benicar.  I now live in the caribbean

and have not found a doctor who even cares about Scleroderma.  At least not

yet, but am still searching.  I really don't need a doc right now as my PC will

give me scripts for Minocin, but would like to know if there is one out there

that I can count on should I ever get sick again.  In a pinch, I would fly back

to Boston and start all over agin with Dr. Trentham  You do know that Minocin

is not the only tetracycline based antibiotic.  There are others like doxy,

clindyamycin, Bactrim,

Azithromycin, etc.  I used them all while on the Marshall alone or in

cominations of three. I believe that between the Minocin and all the other

antibiotics I took that I did a great clean-out of the micoplasmas that were

destroying my body.  I take the preventative dose as my protection so that I

never get infected again, totally my own idea. I also thin that the Benicar was

a big boost in getting me into remission.  it all helped.  The dark spots on

your legs may be from hyperpigmentation... I had that for a while but my skin

lightened up again.  It is reversable. You do right to check it out to be

sure it is not an allergy. Thank goodness we grow new skin all the time. My

best to you, Dolores  .   

From: Painter <shelleypainter@...>

Subject: rheumatic AP doctors on east coast & marshall protocol

rheumatic

Date: Tuesday, September 7, 2010, 9:41 AM

 

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them. I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Hi this is Dolores again who can't stay out of a good discussion.  I had

hyperpigmentation in 2007.  I was into my second year on AP when I came to

Puerto Rico for a couple of months to scout around for a home.  Was planning on

making the move and needed to see if I liked it enough to uproot myself.  I had

the muddy brown/gray color at that time.  My doc was not concerned.  He said

once I lower the dose of the Minocin, that the condition would reverse itself. 

I too. had purple splotches on my legs like someone had beaten me.  I was also

taking Insulin injections at the time, so my thighs were all purple.  About

that time, I went on MP and eventually all the marks disappeared.  I now live

in the caribbean and have a natural normal looking tan.  I am of mediterrainian

descent, so I tan easily.  Most times I go out when the sun is not so high in

the sky and use an umbrella to hide from the sun when walking in it. That's

it.  No long speedh

this time.  Dolores  & Mike 

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

rheumatic

Date: Tuesday, September 7, 2010, 2:17 PM

 

I feel Dr. Sinnott in Iowa would be a good one to talk to about the

discolorations sometimes when using minocin. He's been doing this over 30 years.

I would hate to see anyone stop AT over this, if it isn't serious. I also

believe in reading Q and A about AT, it did mention something about pigments of

skin in a small amount of people on AT. sally

Re: rheumatic AP doctors on east coast & marshall protocol

Re the purple splotches...I got discolorations on my legs and back when using

minocin as well...but I believe it is simply what is associated with using

minocin...Ethel? Anyone...It has been a while since I was on minocin but I do

remember getting discoloration of my skin...I believe it was harmless...you old

timers out there? Anyone?

As far as seeing Dr. Whitman...yes, he is a drive...12 hrs for me...in

Ohio...but I do it yearly...he has saved my life on more than one occasion...I

like that he emails as well and has sent letters after I sent him labs and tests

done here...he is very thorough and up on the ABX therapy and other

therapies...sometimes you have to tweek it a bit...for each of us...hang in

there, Debb

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them. I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Debbie - thought you might be interested in this article.

http://www.associatedcontent.com/article/656937/compound_in_microwave_popcorn_ma\

y_cause.html?cat=5

" Bethesda, MD -- and his colleagues are reporting that a

chemical called diacetyl, which is commonly used as an artificial butter

flavoring (especially in microwave popcorn), is harmful to the lungs and

airways of laboratory mice, and may also be the causative agent of a

serious lung disease called obliterative bronchiolitis (OB). The study was

done at and reported by the National Institute of Environmental Health

Sciences, which is part of the National Institutes of Health, and in

collaboration with Duke University. It has also been published online in the

journal Toxicological Sciences. "

You might think of doing some detoxing along with those coffee enemas and

the infrared sauna. If only more people understood the importance of a

healthy diet and continual cleansing of the body to the healing process.

And we can't forget the importance of dealing with emotional baggage.

mentioned this a few weeks back.

Ethel

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

good news: right on my back porch, I have a 4 seat infared sauna.

not so good news: because of RA and hip, haven't been able to get in it for a

year now by myself. for sometime, i was in daily. love love loved it. and i

know the time will come when i can use it again. sally

Re: rheumatic AP doctors on east coast & marshall protocol

Debbie - thought you might be interested in this article.

http://www.associatedcontent.com/article/656937/compound_in_microwave_popcorn_ma\

y_cause.html?cat=5

" Bethesda, MD -- and his colleagues are reporting that a

chemical called diacetyl, which is commonly used as an artificial butter

flavoring (especially in microwave popcorn), is harmful to the lungs and

airways of laboratory mice, and may also be the causative agent of a

serious lung disease called obliterative bronchiolitis (OB). The study was

done at and reported by the National Institute of Environmental Health

Sciences, which is part of the National Institutes of Health, and in

collaboration with Duke University. It has also been published online in the

journal Toxicological Sciences. "

You might think of doing some detoxing along with those coffee enemas and

the infrared sauna. If only more people understood the importance of a

healthy diet and continual cleansing of the body to the healing process.

And we can't forget the importance of dealing with emotional baggage.

mentioned this a few weeks back.

Ethel

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

HI Ethel, thanks for the link...I knew about the microwave popcorn issue because

we have a plant here in town...( I never worked near there) but several

employees were dx with OB...they were on the lung transplant list because of the

severe OB...I read about them in our paper and immediately contacted the atty

for them...gave him the info re OB and photopheresis and never heard back ...so

I don't know if they went after photo or not...apparently, they all worked in a

flavoring plant...ughhhhh.....I worked in a vet hospital with tons of

animals...and was exposed to a large parrot for years ....with the dx of the OB

we had to find Bishop a home, no birds for me...because of the lung issue...my

thoughts still are...was the OB caused by our parrot, the mino or my RA? Dr. W

erred on the side of caution in taking me off the mino...ugh...but I am doing

ok...want to add on some more detox measures tho...Thanks Ethel for the

link...appreciate it....Emotional baggage, yikes...need to work on that as

well...thanks Ethel...you are the best!! Hope you are doing well, Hugs, Debbie

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

Hubby made me an infrared that I put in our small bathroom..works wonders for

me...I love it during winter...as I feel cold all the time...very simple, Ethel

send us the instructions via email and it was a snap for hubby to make...Maybe

Ethel will post the instructions again, it is movable and we move it from room

to room...I like it best in our small bathroom...Hope this helps, Debb

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

sounds like I need to get a hubby!! sally

Re: rheumatic AP doctors on east coast & marshall protocol

Hubby made me an infrared that I put in our small bathroom..works wonders for

me...I love it during winter...as I feel cold all the time...very simple, Ethel

send us the instructions via email and it was a snap for hubby to make...Maybe

Ethel will post the instructions again, it is movable and we move it from room

to room...I like it best in our small bathroom...Hope this helps, Debb

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

I bought a small infraread sauna (300 Dollars) and I love it, I am going to

start back using it again. It's been two months past surgery and healing. it

feels so good.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

rheumatic

Date: Tuesday, September 7, 2010, 4:12 PM

 

sounds like I need to get a hubby!! sally

Re: rheumatic AP doctors on east coast & marshall protocol

Hubby made me an infrared that I put in our small bathroom..works wonders for

me...I love it during winter...as I feel cold all the time...very simple, Ethel

send us the instructions via email and it was a snap for hubby to make...Maybe

Ethel will post the instructions again, it is movable and we move it from room

to room...I like it best in our small bathroom...Hope this helps, Debb

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

LOL it seemed quite simple to make, I am sure anyone with a saw and a

rudimentary knowledge of wood, could make you one...veryyyy simple....do you

have any handy neighbors or relatives?

rheumatic AP doctors on east coast & marshall protocol

>

>

>

> Hi Dolores,

>

> Thank you for your very encouraging words at a time when I really needed

> them. I

> know what it means when even the sheets on your bed hurt. And some talk

> about

> the aura around you. I was so inflamed that I could feel if someone was

> within a

> foot of me.

> Handling the " infection " first were words of gold to me. Again, many

> thanks.

> I placed a call for an appointment with Dr Whitman in NJ and had to

leave

> a

> message. It will be a drive as I am in Virginia. It seems that you are

no

> longer

> seeing him. Who are you seeing now, and are you on the Marshall

protocol?

> I am

> questioning new avenues since I developed an allergy to minocycline

which

> worked

> wonders for me. Now if I take it in half dose (50 mg), I get big purple

> splotches on my legs.

>

> Thanks to all you contribute to this website and continued good health,

>

>

>

[Guest guest]

Purple discoloration goes along with the SD, Debbie; but if others are

having it who do not have SD . . . I don't know.

Ellen

From: rheumatic [mailto:rheumatic ] On Behalf

Of DEBBIE GIBSON

Sent: Tuesday, September 07, 2010 9:52 AM

rheumatic

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

Re the purple splotches...I got discolorations on my legs and back when

using minocin as well...but I believe it is simply what is associated with

using minocin...Ethel? Anyone...It has been a while since I was on minocin

but I do remember getting discoloration of my skin...I believe it was

harmless...you old timers out there? Anyone?

As far as seeing Dr. Whitman...yes, he is a drive...12 hrs for me...in

Ohio...but I do it yearly...he has saved my life on more than one

occasion...I like that he emails as well and has sent letters after I sent

him labs and tests done here...he is very thorough and up on the ABX therapy

and other therapies...sometimes you have to tweek it a bit...for each of

us...hang in there, Debb

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed

them. I

know what it means when even the sheets on your bed hurt. And some talk

about

the aura around you. I was so inflamed that I could feel if someone was

within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I

am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Debbie,

Do you know if Dr. Whitman will dr over the phone or internet with blood reports

and any other test reports sent to him from labs in Texas?

thanks, kathy egenbacher

From: DEBBIE GIBSON

Sent: Tuesday, September 07, 2010 8:52 AM

rheumatic

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

Re the purple splotches...I got discolorations on my legs and back when using

minocin as well...but I believe it is simply what is associated with using

minocin...Ethel? Anyone...It has been a while since I was on minocin but I do

remember getting discoloration of my skin...I believe it was harmless...you old

timers out there? Anyone?

As far as seeing Dr. Whitman...yes, he is a drive...12 hrs for me...in

Ohio...but I do it yearly...he has saved my life on more than one occasion...I

like that he emails as well and has sent letters after I sent him labs and tests

done here...he is very thorough and up on the ABX therapy and other

therapies...sometimes you have to tweek it a bit...for each of us...hang in

there, Debb

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them. I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Hi Kathy, yes, Dr. Whitman has done that for many of his patients, BUT he would

need to see the patient prior to him doing that...that seems to be what all the

DRs have told me.

Debbie

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed them.

I

know what it means when even the sheets on your bed hurt. And some talk about

the aura around you. I was so inflamed that I could feel if someone was within

a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Purple discolorations and discolorations go along with minocin use...from all I

have read...don't know about the SD...but I do know that I had them with minocin

use.

Debbe

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed

them. I

know what it means when even the sheets on your bed hurt. And some talk

about

the aura around you. I was so inflamed that I could feel if someone was

within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I

am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

So, Debbie, you don't have the Raynaud's? It is really bad sometimes with

Patti.

From: rheumatic [mailto:rheumatic ] On Behalf

Of DEBBIE GIBSON

Sent: Wednesday, September 08, 2010 8:43 AM

rheumatic

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

Purple discolorations and discolorations go along with minocin use...from

all I have read...don't know about the SD...but I do know that I had them

with minocin use.

Debbe

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed

them. I

know what it means when even the sheets on your bed hurt. And some talk

about

the aura around you. I was so inflamed that I could feel if someone was

within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I

am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Hi all, Most of us with S/D that post on this site are on Minocin, so it is

hard to tell which came first.  And whether. the splotches, and skin

discoloration come from either S/D or the use of Minocin. Most likely both. 

The thing to do is to shield yourself from the direct sun, stay hydrated and

use creams to help eliminate that leathery look on the legs. All my symptoms

like that went away.  My skin is soft & supple now. It takes a long time. 

But eventually, the soft skin does come back.  Take care, Dolores 

From: Elllen McCool <ellenmccool@...>

Subject: RE: rheumatic AP doctors on east coast & marshall protocol

rheumatic

Date: Wednesday, September 8, 2010, 11:17 PM

 

So, Debbie, you don't have the Raynaud's? It is really bad sometimes with

Patti.

From: rheumatic [mailto:rheumatic ] On Behalf

Of DEBBIE GIBSON

Sent: Wednesday, September 08, 2010 8:43 AM

rheumatic

Subject: Re: rheumatic AP doctors on east coast & marshall protocol

Purple discolorations and discolorations go along with minocin use...from

all I have read...don't know about the SD...but I do know that I had them

with minocin use.

Debbe

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed

them. I

know what it means when even the sheets on your bed hurt. And some talk

about

the aura around you. I was so inflamed that I could feel if someone was

within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I

am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,

[Guest guest]

Yes, I do have Raynauds....and it gets really bad with cold...I think what the

one poster was referring to was purple splotches on her skin...more of the

minocin skin discoloration from taking mino...I got it as well on mino and it

all faded away when I went off.

rheumatic AP doctors on east coast & marshall protocol

Hi Dolores,

Thank you for your very encouraging words at a time when I really needed

them. I

know what it means when even the sheets on your bed hurt. And some talk

about

the aura around you. I was so inflamed that I could feel if someone was

within a

foot of me.

Handling the " infection " first were words of gold to me. Again, many thanks.

I placed a call for an appointment with Dr Whitman in NJ and had to leave a

message. It will be a drive as I am in Virginia. It seems that you are no

longer

seeing him. Who are you seeing now, and are you on the Marshall protocol? I

am

questioning new avenues since I developed an allergy to minocycline which

worked

wonders for me. Now if I take it in half dose (50 mg), I get big purple

splotches on my legs.

Thanks to all you contribute to this website and continued good health,