Re: Talked with Dr. Sinnott

[Guest guest]

Congratulations.  Zithromycin is another one of the abx's that I used while on

the Marshall Protocol. A/P stands for antibiotic protocol, so yes, as long as

you are taking these antibiotics you are still on the protocol  Towards the end

of my protocol, I used at least 3 different antibiotics in combos and I think

that is what final gave me the push to get to remission....I am happy for you. 

Now that you are back on antibiotics, stay there and don't get discouraged.  It

is a long journey and not all of it is pleasant.  You will have days that will

make you want to quit.  When that happens, get on the computer and tell us all

about it.  We will help you through the bumps.    Take care.  Glad you

found this group.....Hang in there!~~~~Dolores

From: maryo708 <maryo708@...>

Subject: rheumatic Talked with Dr. Sinnott

rheumatic

Date: Wednesday, September 8, 2010, 10:36 PM

 

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

What fantastic news ,,, So glad you decided to give it another shot.

As to you still saying you are on AP although not on mino or doxy or whatever,

join the club O ... I take 4 different antibiotics & none of them are mino

or doxy.

If you are using abx to control/get rid of your disease I consider you to be on

AP -- think my AP Dr would agree with me !!!

Good luck,

Maz

>

> Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

>

> You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

>

> Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

>

> But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

>

> Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

>

> O

>

[Guest guest]

, glad you persevered and were able to speak with Dr. S...yes, he is a

terrific physician...I like Zithromyacin as well...whenever I get an upper

respiratory, my physicians usually go to that..and I like that because my SD and

RA issues seem to abate...Dr. W did not want me on it long term tho fearing I

would build up an immunity....I was on minocin for 2+ years...Glad your

breathing has not been harmed by the Zmax...good...it is so different for

everyone...what works for one, may not work for another..etc...And yes, it is

still called the ABX therapy or AP even if its not minocin...because its still

an abx...

I hope you are able to get a pulse ox...I keep mine by my night stand and take

it with me...just a little finger thing that I can carry in my purse...but if I

feel my breathing is compromised, I can ck it...when I see that 97 or 98 I know

that is allergies or something else...because my body is getting oxygen just

fine..

Keep us all posted....Debbie

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

hi,

has anyone every paid Doc Sinnott for a phone consultation, or for him writing

prescriptions for us? I haven't, nor has he ever mentioned it. I've called

him 3 times, and don't know if proper to ask him about this. I love that he

gives his time, and expertism, so freely.......and sometimes wonder how many

people call him every day! Sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

Hi everybody. I didn't know that doctors could treat someone they have never

seen over the phone and send them a prescription.  Just wondered if this is

legal.  How does Dr. Sinnot make his money?  Or for that matter, if a doctor

treats over the phone, how do they bill Insurance?  I live in Puerto Rico.  If

a doctor gives a prescription for a pain med, it is only good at the pharmacy

for 24 hours. If the script is not filled in 24 hours, you need to go back to

the doctor for a new script. Is it the same in the states?

 

 Second question I need to ask.   Neither the doctor nor the pharmacy has

any control over medication.  It is up to the insurance company.  Doc ordered

eye drops for my mom.  she has end-stage  glaucoma.  The script calls for 1

drop in each. eye daily. Well, everybody knows that when you squeeze that

little rubber thing sometimes a drop or two may come out.  Or, sometimes my mom

will shut her eye just as the drop falls and runs down her cheek and then I have

to give her another drop.  Well, apparently the drops were counted and I ran

out of solution several days before the refill.  Would you believe that the

Insurance company would not allow the Pharmacy to refill the bottle.  So, my

mom has to go without her drops until the refill date.  I couldn't believe

it.  She never had an HMO before, so we never ran into this problem.  Do all

HMO's do this or is this just the one my Mom has.  Before when she was just on

Medicare, she could get

all the eye drops and medication she needed, with a prescription, of course. 

Now, even the drops are counted.  I would like to know if other HMO's  are so

restrictive.   Are HMO's allowed to refuse the patient medication because it

is no longer on their formulary.  I was taking certain diabetes &  

antihypertensive medications and now I cannot get it any more.  I can only get

what they allow.  Who is doing the ordering?  The doctor, or the HMO.  Do

the HMO's have a license to change medications on their own.  What is the

policy in the states.  This may just be how they run things in Puerto

Rico......  I am worried that I will no longer be able to get my Brand named

Minocin any more.  It is all I have taken for 5+ years.  Let me know how it is

in your different areas.   Dolores .

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Talked with Dr. Sinnott

rheumatic

Date: Saturday, September 11, 2010, 6:11 PM

 

hi,

has anyone every paid Doc Sinnott for a phone consultation, or for him writing

prescriptions for us? I haven't, nor has he ever mentioned it. I've called him 3

times, and don't know if proper to ask him about this. I love that he gives his

time, and expertism, so freely.......and sometimes wonder how many people call

him every day! Sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

I have taken my son to see Dr. Sinnot many times. Dr. Sinnot was

the one who helped me get off of the methotrexate and steroids.

He is now retired and God bless him he still wants to help folks. He

does a lot without charging. Not all doctors are in it for the money.

We also had a chiropractor here in St. Louis who saw for free (for

us). He didn't charge the insurance co-pay, though he did charge

insurance.

Thank heavens some doctors really want to heal people and the almighty

dollar is not their motivation.

God bless us all.

Diane

p.s. is having a terrible flare right now. Any prayers his way

are so much appreciated. And as always, I am praying for you all, as

well.

________________________________

From: rheumatic [mailto:rheumatic ] On

Behalf Of mike rosner

Sent: Saturday, September 11, 2010 9:55 PM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

Hi everybody. I didn't know that doctors could treat someone they have

never seen over the phone and send them a prescription. Just wondered

if this is legal. How does Dr. Sinnot make his money? Or for that

matter, if a doctor treats over the phone, how do they bill Insurance?

I live in Puerto Rico. If a doctor gives a prescription for a pain med,

it is only good at the pharmacy for 24 hours. If the script is not

filled in 24 hours, you need to go back to the doctor for a new script.

Is it the same in the states?

Second question I need to ask. Neither the doctor nor the pharmacy

has any control over medication. It is up to the insurance company.

Doc ordered eye drops for my mom. she has end-stage glaucoma. The

script calls for 1 drop in each. eye daily. Well, everybody knows that

when you squeeze that little rubber thing sometimes a drop or two may

come out. Or, sometimes my mom will shut her eye just as the drop falls

and runs down her cheek and then I have to give her another drop. Well,

apparently the drops were counted and I ran out of solution several days

before the refill. Would you believe that the Insurance company would

not allow the Pharmacy to refill the bottle. So, my mom has to go

without her drops until the refill date. I couldn't believe it. She

never had an HMO before, so we never ran into this problem. Do all

HMO's do this or is this just the one my Mom has. Before when she was

just on Medicare, she could get

all the eye drops and medication she needed, with a prescription, of

course. Now, even the drops are counted. I would like to know if other

HMO's are so restrictive. Are HMO's allowed to refuse the patient

medication because it is no longer on their formulary. I was taking

certain diabetes & antihypertensive medications and now I cannot get it

any more. I can only get what they allow. Who is doing the ordering?

The doctor, or the HMO. Do the HMO's have a license to change

medications on their own. What is the policy in the states. This may

just be how they run things in Puerto Rico...... I am worried that I

will no longer be able to get my Brand named Minocin any more. It is

all I have taken for 5+ years. Let me know how it is in your different

areas. Dolores .

From: mannasal@... <mailto:mannasal%40aim.com> <mannasal@...

<mailto:mannasal%40aim.com> >

Subject: Re: rheumatic Talked with Dr. Sinnott

rheumatic <mailto:rheumatic%40>

Date: Saturday, September 11, 2010, 6:11 PM

hi,

has anyone every paid Doc Sinnott for a phone consultation, or for him

writing prescriptions for us? I haven't, nor has he ever mentioned it.

I've called him 3 times, and don't know if proper to ask him about this.

I love that he gives his time, and expertism, so freely.......and

sometimes wonder how many people call him every day! Sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an

hour makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you,

thank you...to you and Sally both for the recommendations and all of you

for the encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon

and evening...and no side effects that I detect. My breathing, though

not perfect, has not been affected by this drug as yet. Wow, a relief to

think that this may be the answer...to my breathing problems (and not

one of the lung diseases) and to staying on Antibiotic Therapy. Can I

still call it the AP (protocol) if not on MIno? I'd still like to return

to Mino one day for the more specific targeting of mycoplasms. I have my

fingers crossed (not really, that would hurt) to see if this will

actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and

fears of this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you

all posted as to my 'new' progress. I am still pretty good, tho hips

feel like they got hit with sledgehammers...finger joint pain, some

swelling. I have decided to hold off for a week to see what happens and

then whether to get the PFT (pulmonary test). Get some cardio info then

as well, hopefully. Thanks, Debbie, for the info on the finger test

thingy. That would be nice.

O

[Guest guest]

Dr. Sinnott never asks for money for phone consultations but we just send him a

check to thank him for his kindness.

Sue – ’s Mom

From: rheumatic [mailto:rheumatic ] On Behalf Of

mannasal@...

Sent: Saturday, September 11, 2010 6:12 PM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

hi,

has anyone every paid Doc Sinnott for a phone consultation, or for him writing

prescriptions for us? I haven't, nor has he ever mentioned it. I've called him 3

times, and don't know if proper to ask him about this. I love that he gives his

time, and expertism, so freely.......and sometimes wonder how many people call

him every day! Sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

From: rheumatic [mailto:rheumatic ] On Behalf Of

mike rosner

Sent: Saturday, September 11, 2010 10:55 PM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

Hi everybody. I didn't know that doctors could treat someone they have never

seen over the phone and send them a prescription. Just wondered if this is

legal.YEAH DOLORES I WAS WONDERING THE SAME THING. How does Dr. Sinnot make his

money? Or for that matter, if a doctor treats over the phone, how do they bill

Insurance? I live in Puerto Rico. If a doctor gives a prescription for a pain

med, it is only good at the pharmacy for 24 hours. If the script is not filled

in 24 hours, you need to go back to the doctor for a new script. Is it the same

in the states?NOT THAT I KNOW OF

Second question I need to ask. Neither the doctor nor the pharmacy has any

control over medication. It is up to the insurance company. Doc ordered eye

drops for my mom. she has end-stage glaucoma. The script calls for 1 drop in

each. eye daily. Well, everybody knows that when you squeeze that little rubber

thing sometimes a drop or two may come out. Or, sometimes my mom will shut her

eye just as the drop falls and runs down her cheek and then I have to give her

another drop. Well, apparently the drops were counted and I ran out of solution

several days before the refill. Would you believe that the Insurance company

would not allow the Pharmacy to refill the bottle. So, my mom has to go without

her drops until the refill date. I couldn't believe it. She never had an HMO

before, so we never ran into this problem. Do all HMO's do this or is this just

the one my Mom has. Before when she was just on Medicare, she could get I

DON’T THINK THEY COUNT THE DROPS BUT THEY ONLY REFIL IN 30 DAYS TIME SO IF YOU

RUN OUT THEY WILL NOT REFILL.

all the eye drops and medication she needed, with a prescription, of course.

Now, even the drops are counted. I would like to know if other HMO's are so

restrictive. Are HMO's allowed to refuse the patient medication because it is

no longer on their formulary. YES THEY CAN REFUSE TO PAY FOR IT BUT IF YOU PAY

OUT OF POCKET YOU CAN STILL GET IT. I was taking certain diabetes &

antihypertensive medications and now I cannot get it any more. I can only get

what they allow.YEP Who is doing the ordering? The doctor, or the HMO. Do the

HMO's have a license to change medications on their own. THEY CAN SUBSTITUTE A

GENERIC IF IT COMES GENERIC. What is the policy in the states. This may just be

how they run things in Puerto Rico...... I am worried that I will no longer be

able to get my Brand named Minocin any more. THIS IS WHY A LOT OF US ORDER DRUGS

FROM CANADA. THEY ONLY PAY FOR GENERIC.YOU SHOULD GO TO A PHARMACY THERE AND

PRICE NAME BRAND MINOCIN. IT IS USUALLY CHEEPER OUT OF THE US. It is all I have

taken for 5+ years. Let me know how it is in your different areas. Dolores .

BEST OF LUCK…COOKY

[Guest guest]

HI all, re Dr. Sinnott...I know that DR. S sent me a script for minocin many

years ago...and we chatted several times via telephone...he did not ask for ins

info as he had not ever seen me..but I sent him a ck to help with costs...he is

a good, caring physician. Debb

Re: rheumatic Talked with Dr. Sinnott

Hi everybody. I didn't know that doctors could treat someone they have never

seen over the phone and send them a prescription. Just wondered if this is

legal.YEAH DOLORES I WAS WONDERING THE SAME THING. How does Dr. Sinnot make his

money? Or for that matter, if a doctor treats over the phone, how do they bill

Insurance? I live in Puerto Rico. If a doctor gives a prescription for a pain

med, it is only good at the pharmacy for 24 hours. If the script is not filled

in 24 hours, you need to go back to the doctor for a new script. Is it the same

in the states?NOT THAT I KNOW OF

Second question I need to ask. Neither the doctor nor the pharmacy has any

control over medication. It is up to the insurance company. Doc ordered eye

drops for my mom. she has end-stage glaucoma. The script calls for 1 drop in

each. eye daily. Well, everybody knows that when you squeeze that little rubber

thing sometimes a drop or two may come out. Or, sometimes my mom will shut her

eye just as the drop falls and runs down her cheek and then I have to give her

another drop. Well, apparently the drops were counted and I ran out of solution

several days before the refill. Would you believe that the Insurance company

would not allow the Pharmacy to refill the bottle. So, my mom has to go without

her drops until the refill date. I couldn't believe it. She never had an HMO

before, so we never ran into this problem. Do all HMO's do this or is this just

the one my Mom has. Before when she was just on Medicare, she could get I

DON’T THINK THEY COUNT THE DROPS BUT THEY ONLY REFIL IN 30 DAYS TIME SO IF YOU

RUN OUT THEY WILL NOT REFILL.

all the eye drops and medication she needed, with a prescription, of course.

Now, even the drops are counted. I would like to know if other HMO's are so

restrictive. Are HMO's allowed to refuse the patient medication because it is no

longer on their formulary. YES THEY CAN REFUSE TO PAY FOR IT BUT IF YOU PAY OUT

OF POCKET YOU CAN STILL GET IT. I was taking certain diabetes & antihypertensive

medications and now I cannot get it any more. I can only get what they allow.YEP

Who is doing the ordering? The doctor, or the HMO. Do the HMO's have a license

to change medications on their own. THEY CAN SUBSTITUTE A GENERIC IF IT COMES

GENERIC. What is the policy in the states. This may just be how they run things

in Puerto Rico...... I am worried that I will no longer be able to get my Brand

named Minocin any more. THIS IS WHY A LOT OF US ORDER DRUGS FROM CANADA. THEY

ONLY PAY FOR GENERIC.YOU SHOULD GO TO A PHARMACY THERE AND PRICE NAME BRAND

MINOCIN. IT IS USUALLY CHEEPER OUT OF THE US. It is all I have taken for 5+

years. Let me know how it is in your different areas. Dolores . BEST OF

LUCK…COOKY

[Guest guest]

Deb,

Did you see TROY today?? WOW…great game.

As for dr. Sennott I’m sure he is a great doc and humanitarian. I’m just

surprised he sends scripts to people he has not seen in his office. Most docs

would not.

Hugs,

cooky

HI all, re Dr. Sinnott...I know that DR. S sent me a script for minocin many

years ago...and we chatted several times via telephone...he did not ask for ins

info as he had not ever seen me..but I sent him a ck to help with costs...he is

a good, caring physician. Debb

[Guest guest]

yes, God Bless Dr. Sinnot....I actually hope to see him one day and be my doc.

sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an

hour makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you,

thank you...to you and Sally both for the recommendations and all of you

for the encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon

and evening...and no side effects that I detect. My breathing, though

not perfect, has not been affected by this drug as yet. Wow, a relief to

think that this may be the answer...to my breathing problems (and not

one of the lung diseases) and to staying on Antibiotic Therapy. Can I

still call it the AP (protocol) if not on MIno? I'd still like to return

to Mino one day for the more specific targeting of mycoplasms. I have my

fingers crossed (not really, that would hurt) to see if this will

actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and

fears of this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you

all posted as to my 'new' progress. I am still pretty good, tho hips

feel like they got hit with sledgehammers...finger joint pain, some

swelling. I have decided to hold off for a week to see what happens and

then whether to get the PFT (pulmonary test). Get some cardio info then

as well, hopefully. Thanks, Debbie, for the info on the finger test

thingy. That would be nice.

O

[Guest guest]

thank you Sue, that's a lovely idea.....no matter what I can afford to send, I'm

happy to send him money. sally

rheumatic Talked with Dr. Sinnott

Whew! What a difference a day makes...no make that what a difference an hour

makes! A half hour with Dr. Sinnott by phone.

You are right, Debbie. What a kind and caring person he is! Thank you, thank

you...to you and Sally both for the recommendations and all of you for the

encouragement.

Dr. Sinnott thought too (Debbie, Dolores, Maz) that allergies and a

supersensitivity had developed. So he ordered me a script for

Zithromycin...started right away..already taken 500 mg this afternoon and

evening...and no side effects that I detect. My breathing, though not perfect,

has not been affected by this drug as yet. Wow, a relief to think that this may

be the answer...to my breathing problems (and not one of the lung diseases) and

to staying on Antibiotic Therapy. Can I still call it the AP (protocol) if not

on MIno? I'd still like to return to Mino one day for the more specific

targeting of mycoplasms. I have my fingers crossed (not really, that would hurt)

to see if this will actually be effective like the Mino.

But for now I'm filled with gratitude and have forgotten my tears and fears of

this morning...mostly.

Meanwhile I'll be reading and listening and learning. And I'll keep you all

posted as to my 'new' progress. I am still pretty good, tho hips feel like they

got hit with sledgehammers...finger joint pain, some swelling. I have decided to

hold off for a week to see what happens and then whether to get the PFT

(pulmonary test). Get some cardio info then as well, hopefully. Thanks, Debbie,

for the info on the finger test thingy. That would be nice.

O

[Guest guest]

Cooky, Oh Yes, I did see my baby...I was screaming myself hoarse...scared the

---- out of my poor dogs! The game was awesome...and I called and ordered Direct

Tv so I don't miss any games...I just can't miss any of his games...LOL hubby

was not thrilled...but they have Sunday football pkg...after football season is

over...I will downgrade my pkg to just cable.. hehe

Yes, I was surprised he did that for me years ago...most, as you said, will

not...I frankly, don't think he should but am glad he does! :>)))))

Hugs back at you my Steeler friend!! I am soooo happy...did you see that

interception...Oh My Goodness...I was thrilled out of my mind!!

RE: rheumatic Talked with Dr. Sinnott

Deb,

Did you see TROY today?? WOW…great game.

As for dr. Sennott I’m sure he is a great doc and humanitarian. I’m just

surprised he sends scripts to people he has not seen in his office. Most docs

would not.

Hugs,

cooky

HI all, re Dr. Sinnott...I know that DR. S sent me a script for minocin many

years ago...and we chatted several times via telephone...he did not ask for ins

info as he had not ever seen me..but I sent him a ck to help with costs...he is

a good, caring physician. Debb

[Guest guest]

well, i keep learning from everyone. Is it important to be taking brand name

minocin? I take minocikline manufactured by Teva. Medicare pays most of it

(plus it's only about $30.00 month) where in cananda are you getting brand

minocin? is a prescription needed? thanks, sally

Re: rheumatic Talked with Dr. Sinnott

Hi everybody. I didn't know that doctors could treat someone they have never

seen over the phone and send them a prescription. Just wondered if this is

legal.YEAH DOLORES I WAS WONDERING THE SAME THING. How does Dr. Sinnot make his

money? Or for that matter, if a doctor treats over the phone, how do they bill

Insurance? I live in Puerto Rico. If a doctor gives a prescription for a pain

med, it is only good at the pharmacy for 24 hours. If the script is not filled

in 24 hours, you need to go back to the doctor for a new script. Is it the same

in the states?NOT THAT I KNOW OF

Second question I need to ask. Neither the doctor nor the pharmacy has any

control over medication. It is up to the insurance company. Doc ordered eye

drops for my mom. she has end-stage glaucoma. The script calls for 1 drop in

each. eye daily. Well, everybody knows that when you squeeze that little rubber

thing sometimes a drop or two may come out. Or, sometimes my mom will shut her

eye just as the drop falls and runs down her cheek and then I have to give her

another drop. Well, apparently the drops were counted and I ran out of solution

several days before the refill. Would you believe that the Insurance company

would not allow the Pharmacy to refill the bottle. So, my mom has to go without

her drops until the refill date. I couldn't believe it. She never had an HMO

before, so we never ran into this problem. Do all HMO's do this or is this just

the one my Mom has. Before when she was just on Medicare, she could get I

DON’T THINK THEY COUNT THE DROPS BUT THEY ONLY REFIL IN 30 DAYS TIME SO IF YOU

RUN OUT THEY WILL NOT REFILL.

all the eye drops and medication she needed, with a prescription, of course.

Now, even the drops are counted. I would like to know if other HMO's are so

restrictive. Are HMO's allowed to refuse the patient medication because it is no

longer on their formulary. YES THEY CAN REFUSE TO PAY FOR IT BUT IF YOU PAY OUT

OF POCKET YOU CAN STILL GET IT. I was taking certain diabetes & antihypertensive

medications and now I cannot get it any more. I can only get what they allow.YEP

Who is doing the ordering? The doctor, or the HMO. Do the HMO's have a license

to change medications on their own. THEY CAN SUBSTITUTE A GENERIC IF IT COMES

GENERIC. What is the policy in the states. This may just be how they run things

in Puerto Rico...... I am worried that I will no longer be able to get my Brand

named Minocin any more. THIS IS WHY A LOT OF US ORDER DRUGS FROM CANADA. THEY

ONLY PAY FOR GENERIC.YOU SHOULD GO TO A PHARMACY THERE AND PRICE NAME BRAND

MINOCIN. IT IS USUALLY CHEEPER OUT OF THE US. It is all I have taken for 5+

years. Let me know how it is in your different areas. Dolores . BEST OF

LUCK…COOKY

[Guest guest]

Hi Cooky,  thanks for answering all my questions.  I am upset and just wanted

to know if this only happens in Puerto Rico.  I am new here and things are so

different than they were in New York City. When Dr. Trentham would write on my

script, (BRAND NAME ONLY) Nobdy questioned it.  I got brand name only.  Once

the pharmacy made a mistake and sent me generic minocycline and when I called

them, the resent the brand name and didn't ask for the other back.  They said

it was against the law.  so, I kept it and sent it to someone who needed it

badly in another country.  I am on Medicare only and was told when I moved here

that I had to sign up with a plan in order to get my medications.....Just

getting used to a new place and running into new fences to climb.  Take care, &

thank you.  Dolores 

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Talked with Dr. Sinnott

rheumatic

Date: Sunday, September 12, 2010, 6:59 PM

 

well, i keep learning from everyone. Is it important to be taking brand name

minocin? I take minocikline manufactured by Teva. Medicare pays most of it (plus

it's only about $30.00 month) where in cananda are you getting brand minocin? is

a prescription needed? thanks, sally

Re: rheumatic Talked with Dr. Sinnott

Hi everybody. I didn't know that doctors could treat someone they have never

seen over the phone and send them a prescription. Just wondered if this is

legal.YEAH DOLORES I WAS WONDERING THE SAME THING. How does Dr. Sinnot make his

money? Or for that matter, if a doctor treats over the phone, how do they bill

Insurance? I live in Puerto Rico. If a doctor gives a prescription for a pain

med, it is only good at the pharmacy for 24 hours. If the script is not filled

in 24 hours, you need to go back to the doctor for a new script. Is it the same

in the states?NOT THAT I KNOW OF

Second question I need to ask. Neither the doctor nor the pharmacy has any

control over medication. It is up to the insurance company. Doc ordered eye

drops for my mom. she has end-stage glaucoma. The script calls for 1 drop in

each. eye daily. Well, everybody knows that when you squeeze that little rubber

thing sometimes a drop or two may come out. Or, sometimes my mom will shut her

eye just as the drop falls and runs down her cheek and then I have to give her

another drop. Well, apparently the drops were counted and I ran out of solution

several days before the refill. Would you believe that the Insurance company

would not allow the Pharmacy to refill the bottle. So, my mom has to go without

her drops until the refill date. I couldn't believe it. She never had an HMO

before, so we never ran into this problem. Do all HMO's do this or is this just

the one my Mom has. Before when she was just on Medicare, she could get I

DON’T THINK THEY COUNT THE DROPS

BUT THEY ONLY REFIL IN 30 DAYS TIME SO IF YOU RUN OUT THEY WILL NOT REFILL.

all the eye drops and medication she needed, with a prescription, of course.

Now, even the drops are counted. I would like to know if other HMO's are so

restrictive. Are HMO's allowed to refuse the patient medication because it is no

longer on their formulary. YES THEY CAN REFUSE TO PAY FOR IT BUT IF YOU PAY OUT

OF POCKET YOU CAN STILL GET IT. I was taking certain diabetes & antihypertensive

medications and now I cannot get it any more. I can only get what they allow.YEP

Who is doing the ordering? The doctor, or the HMO. Do the HMO's have a license

to change medications on their own. THEY CAN SUBSTITUTE A GENERIC IF IT COMES

GENERIC. What is the policy in the states. This may just be how they run things

in Puerto Rico...... I am worried that I will no longer be able to get my Brand

named Minocin any more. THIS IS WHY A LOT OF US ORDER DRUGS FROM CANADA. THEY

ONLY PAY FOR GENERIC.YOU SHOULD GO TO A PHARMACY THERE AND PRICE NAME BRAND

MINOCIN. IT IS

USUALLY CHEEPER OUT OF THE US. It is all I have taken for 5+ years. Let me know

how it is in your different areas. Dolores . BEST OF LUCK…COOKY

[Guest guest]

Hi Dolores,

Sorry I closed the puter early last night and have been off all day. I’m glad

to see others have answered your questions.

Things have changed since the gvnment has added prescription coverage to

medicare. If you have an HMO you probably have a presc plan built in but you

need to make sure. If you have medicare you need to look in your book and find a

company that either offers supplemental insurance with medicine coverage or one

with just medicine coverage. There is a separate charge for this thru the

government..it will come out of your check. We were given a specific time to

decide on a carrier and if we chose not to at that time there would be a

monitary penality when you do pick one.

These insurance plans for medicine have formulary’s. These are the drugs they

will pay for. There are tiers of costs. Minocin is not even listed. Generic is

but still pricy. I get my brand Minocin from Canada. The place I get mine is

www.buylowdrugs.com I pay around $150 for 100 caps. Yes I need a script. Here

is a list that Harold (one of our terrific members) has put together of the best

places

http://www.tmgp.com/minocin.htm

I hit my donut hole last month so I have to pay out of pocket from now on. Even

before the donut hole I had to watch everything any doc ordered for me. I was

told to take a sinus med early this year and never bothered to ask if it was

generic. Had hubby go to the pharm for me and when he brought it home it cost

something like $190 for my insurance and $60 for me. That was over $250 in one

swoop out of my limit.

This is how THAT works… A doc orders a drug it is generic You may pay $30 for

the prescription depending on your plan. Your ins co may have to pay $100 for

their share…Together it is $130 this is what is taken off your limit for the

year. Some brand name drugs may cost $300 or more for the ins co to pay this is

taken from your limit. I can’t remember what the limit is but something like

$3,000 a year. I never hit the donut hole before. Also you pay less if you order

by mail and get 3 months supply rather than getting it at the pharmacy. So what

if you are allergic or the generic doesn’t work and you got 3 months of

it…yeah they don’t take it back and you are out all that.

Someone else has answered your question about the donut hole. This is the reason

I was asking what happens to the people who reach the donut hole…pay thru that

and then the insurance starts to pay again. No ins that I know of pays for brand

at that point.

Hope I answered your questions. Insurance when your old or on disability stinks.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

mike rosner

Sent: Monday, September 13, 2010 12:54 AM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

Hi Cooky, thanks for answering all my questions. I am upset and just wanted to

know if this only happens in Puerto Rico. I am new here and things are so

different than they were in New York City. When Dr. Trentham would write on my

script, (BRAND NAME ONLY) Nobdy questioned it. I got brand name only. Once the

pharmacy made a mistake and sent me generic minocycline and when I called them,

the resent the brand name and didn't ask for the other back. They said it was

against the law. so, I kept it and sent it to someone who needed it badly in

another country. I am on Medicare only and was told when I moved here that I

had to sign up with a plan in order to get my medications.....Just getting used

to a new place and running into new fences to climb. Take care, & thank you.

Dolores

[Guest guest]

Hi Sally

Sorry this is late but I haven’t been on the puter since last nite.

Brand Minocin is recommended. There are some generics that work for some people.

Harold put out a list of generics that people have said work for them. I started

with brand and was given generic…all my pain and symptoms came back in a week.

You should read this Harold’s miocycline list

http://www.tmgp.com/minocin.htm

also rheumatic File - faq.htm at

rheumatic

http://rheumatic.org/support.htm

I get my brand minocin from buylowdrugs in Canada… yes you need a

prescription.

Hope this helps

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

mannasal@...

Sent: Sunday, September 12, 2010 7:00 PM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

well, i keep learning from everyone. Is it important to be taking brand name

minocin? I take minocikline manufactured by Teva. Medicare pays most of it (plus

it's only about $30.00 month) where in cananda are you getting brand minocin? is

a prescription needed? thanks, sally

[Guest guest]

Hi all, does anybody know why my son (10 years old) might not be

getting the same benefit from minocin as he was from the erythrocyn (is

that how you spell it?)

He has been flaring and even after going to see Doc Sinnot in late May

early June he still has not improved. He had serious swelling in his

knees, ankles, wrists, feet, etc.

Also, who was it that had the doctor's list. The one on the Arthritis

Trust website is obsolete as far as MO goes. We just went to a

naturopath today, hoping we can get him back to good shape.

Thanks, God bless.

Diane

________________________________

From: rheumatic [mailto:rheumatic ] On

Behalf Of Cooky Stonkey

Sent: Monday, September 13, 2010 4:58 PM

rheumatic

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi Sally

Sorry this is late but I haven't been on the puter since last nite.

Brand Minocin is recommended. There are some generics that work for some

people. Harold put out a list of generics that people have said work for

them. I started with brand and was given generic...all my pain and

symptoms came back in a week. You should read this Harold's miocycline

list

http://www.tmgp.com/minocin.htm

also rheumatic File - faq.htm at

rheumatic <mailto:rheumatic%40>

http://rheumatic.org/support.htm

I get my brand minocin from buylowdrugs in Canada... yes you need a

prescription.

Hope this helps

cooky

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ]

On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

Sent: Sunday, September 12, 2010 7:00 PM

rheumatic <mailto:rheumatic%40>

Subject: Re: rheumatic Talked with Dr. Sinnott

well, i keep learning from everyone. Is it important to be taking brand

name minocin? I take minocikline manufactured by Teva. Medicare pays

most of it (plus it's only about $30.00 month) where in cananda are you

getting brand minocin? is a prescription needed? thanks, sally

[Guest guest]

I have a list of AP docs. What state(s) are you interested in? El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Priest-Dailey, Diane M

Sent: Tuesday, September 14, 2010 7:22 AM

rheumatic

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi all, does anybody know why my son (10 years old) might not be

getting the same benefit from minocin as he was from the erythrocyn (is

that how you spell it?)

He has been flaring and even after going to see Doc Sinnot in late May

early June he still has not improved. He had serious swelling in his

knees, ankles, wrists, feet, etc.

Also, who was it that had the doctor's list. The one on the Arthritis

Trust website is obsolete as far as MO goes. We just went to a

naturopath today, hoping we can get him back to good shape.

Thanks, God bless.

Diane

________________________________

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ] On

Behalf Of Cooky Stonkey

Sent: Monday, September 13, 2010 4:58 PM

rheumatic <mailto:rheumatic%40>

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi Sally

Sorry this is late but I haven't been on the puter since last nite.

Brand Minocin is recommended. There are some generics that work for some

people. Harold put out a list of generics that people have said work for

them. I started with brand and was given generic...all my pain and

symptoms came back in a week. You should read this Harold's miocycline

list

http://www.tmgp.com/minocin.htm

also rheumatic File - faq.htm at

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

http://rheumatic.org/support.htm

I get my brand minocin from buylowdrugs in Canada... yes you need a

prescription.

Hope this helps

cooky

From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40> ]

On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

<mailto:mannasal%40aim.com>

Sent: Sunday, September 12, 2010 7:00 PM

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

Subject: Re: rheumatic Talked with Dr. Sinnott

well, i keep learning from everyone. Is it important to be taking brand

name minocin? I take minocikline manufactured by Teva. Medicare pays

most of it (plus it's only about $30.00 month) where in cananda are you

getting brand minocin? is a prescription needed? thanks, sally

[Guest guest]

Missouri, St. Louis area, so if there is someone in Illinois close to

St. Louis that would work too. Thanks. D

________________________________

From: rheumatic [mailto:rheumatic ] On

Behalf Of ehgooding

Sent: Tuesday, September 14, 2010 11:50 AM

rheumatic

Subject: RE: rheumatic Talked with Dr. Sinnott

I have a list of AP docs. What state(s) are you interested in? El

_____

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ]

On Behalf

Of Priest-Dailey, Diane M

Sent: Tuesday, September 14, 2010 7:22 AM

rheumatic <mailto:rheumatic%40>

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi all, does anybody know why my son (10 years old) might not be

getting the same benefit from minocin as he was from the erythrocyn (is

that how you spell it?)

He has been flaring and even after going to see Doc Sinnot in late May

early June he still has not improved. He had serious swelling in his

knees, ankles, wrists, feet, etc.

Also, who was it that had the doctor's list. The one on the Arthritis

Trust website is obsolete as far as MO goes. We just went to a

naturopath today, hoping we can get him back to good shape.

Thanks, God bless.

Diane

________________________________

From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40> ] On

Behalf Of Cooky Stonkey

Sent: Monday, September 13, 2010 4:58 PM

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi Sally

Sorry this is late but I haven't been on the puter since last nite.

Brand Minocin is recommended. There are some generics that work for some

people. Harold put out a list of generics that people have said work for

them. I started with brand and was given generic...all my pain and

symptoms came back in a week. You should read this Harold's miocycline

list

http://www.tmgp.com/minocin.htm

also rheumatic File - faq.htm at

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

<mailto:rheumatic%40>

http://rheumatic.org/support.htm

I get my brand minocin from buylowdrugs in Canada... yes you need a

prescription.

Hope this helps

cooky

From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

<mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

<mailto:rheumatic%40> ]

On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

<mailto:mannasal%40aim.com>

<mailto:mannasal%40aim.com>

Sent: Sunday, September 12, 2010 7:00 PM

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

<mailto:rheumatic%40>

Subject: Re: rheumatic Talked with Dr. Sinnott

well, i keep learning from everyone. Is it important to be taking brand

name minocin? I take minocikline manufactured by Teva. Medicare pays

most of it (plus it's only about $30.00 month) where in cananda are you

getting brand minocin? is a prescription needed? thanks, sally

[Guest guest]

Does anyone have a list for Kansas? & nbsp;

-- Sent from my Palm Pixi

On Sep 15, 2010 12:25 AM, Priest-Dailey, Diane M & lt;dmdailey@... & gt;

wrote:

& nbsp;

Missouri, St. Louis area, so if there is someone in Illinois close to

St. Louis that would work too. Thanks. D

________________________________

From: rheumatic [mailto:rheumatic ] On

Behalf Of ehgooding

Sent: Tuesday, September 14, 2010 11:50 AM

rheumatic

Subject: RE: rheumatic Talked with Dr. Sinnott

I have a list of AP docs. What state(s) are you interested in? El

_____

From: rheumatic & lt;mailto:rheumatic%40 & gt;

[mailto:rheumatic & lt;mailto:rheumatic%40 & gt; ]

On Behalf

Of Priest-Dailey, Diane M

Sent: Tuesday, September 14, 2010 7:22 AM

rheumatic & lt;mailto:rheumatic%40 & gt;

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi all, does anybody know why my son (10 years old) might not be

getting the same benefit from minocin as he was from the erythrocyn (is

that how you spell it?)

He has been flaring and even after going to see Doc Sinnot in late May

early June he still has not improved. He had serious swelling in his

knees, ankles, wrists, feet, etc.

Also, who was it that had the doctor's list. The one on the Arthritis

Trust website is obsolete as far as MO goes. We just went to a

naturopath today, hoping we can get him back to good shape.

Thanks, God bless.

Diane

________________________________

From: rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

[mailto:rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt; ] On

Behalf Of Cooky Stonkey

Sent: Monday, September 13, 2010 4:58 PM

rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

Subject: RE: rheumatic Talked with Dr. Sinnott

Hi Sally

Sorry this is late but I haven't been on the puter since last nite.

Brand Minocin is recommended. There are some generics that work for some

people. Harold put out a list of generics that people have said work for

them. I started with brand and was given generic...all my pain and

symptoms came back in a week. You should read this Harold's miocycline

list

http://www.tmgp.com/minocin.htm

also rheumatic File - faq.htm at

rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

http://rheumatic.org/support.htm

I get my brand minocin from buylowdrugs in Canada... yes you need a

prescription.

Hope this helps

cooky

From: rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

[mailto:rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt; ]

On Behalf Of mannasal@... & lt;mailto:mannasal%40aim.com & gt;

& lt;mailto:mannasal%40aim.com & gt;

& lt;mailto:mannasal%40aim.com & gt;

Sent: Sunday, September 12, 2010 7:00 PM

rheumatic & lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

& lt;mailto:rheumatic%40 & gt;

Subject: Re: rheumatic Talked with Dr. Sinnott

well, i keep learning from everyone. Is it important to be taking brand

name minocin? I take minocikline manufactured by Teva. Medicare pays

most of it (plus it's only about $30.00 month) where in cananda are you

getting brand minocin? is a prescription needed? thanks, sally

[Guest guest]

>

>

> Hello, my name is Antje. I developed RA (S-negative) 9 years ago and went in

> remission

> for more than 6 years. A specific diet, Chinese medicine, herbal supplements

> and lots

> of movement helped me to heal my body and I have not been taking any medicine

> for 6 years. This June both of my feet, my ankles and wrists inflamed again

> and I have been

> in much pain. My physician prescribed Prednisone and Plaquenil but I don¹t

> want to

> stay on these drugs. I have been taking my supplements but they don¹t seem to

> help

> as much as they did many years ago.

>

> I live in Virginia, 2 hours from Washington D.C. Does anybody know an AP doc

> in this area?

>

> Many thanks and all the best for you all,

> Antje

>

>

>

> I have a list of AP docs. What state(s) are you interested in? El

>

> _____

>

> From: rheumatic <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40> ] On

> Behalf

> Of Priest-Dailey, Diane M

> Sent: Tuesday, September 14, 2010 7:22 AM

> rheumatic <mailto:rheumatic%40>

> Subject: RE: rheumatic Talked with Dr. Sinnott

>

> Hi all, does anybody know why my son (10 years old) might not be

> getting the same benefit from minocin as he was from the erythrocyn (is

> that how you spell it?)

>

> He has been flaring and even after going to see Doc Sinnot in late May

> early June he still has not improved. He had serious swelling in his

> knees, ankles, wrists, feet, etc.

>

> Also, who was it that had the doctor's list. The one on the Arthritis

> Trust website is obsolete as far as MO goes. We just went to a

> naturopath today, hoping we can get him back to good shape.

>

> Thanks, God bless.

>

> Diane

>

> ________________________________

>

> From: rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40> ] On

> Behalf Of Cooky Stonkey

> Sent: Monday, September 13, 2010 4:58 PM

> rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> Subject: RE: rheumatic Talked with Dr. Sinnott

>

> Hi Sally

>

> Sorry this is late but I haven't been on the puter since last nite.

>

> Brand Minocin is recommended. There are some generics that work for some

> people. Harold put out a list of generics that people have said work for

> them. I started with brand and was given generic...all my pain and

> symptoms came back in a week. You should read this Harold's miocycline

> list

>

> http://www.tmgp.com/minocin.htm

>

> also rheumatic File - faq.htm at

>

> rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>

> http://rheumatic.org/support.htm

>

> I get my brand minocin from buylowdrugs in Canada... yes you need a

> prescription.

>

> Hope this helps

>

> cooky

>

> From: rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40> ]

> On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

> <mailto:mannasal%40aim.com>

> <mailto:mannasal%40aim.com>

> Sent: Sunday, September 12, 2010 7:00 PM

> rheumatic <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> Subject: Re: rheumatic Talked with Dr. Sinnott

>

> well, i keep learning from everyone. Is it important to be taking brand

> name minocin? I take minocikline manufactured by Teva. Medicare pays

> most of it (plus it's only about $30.00 month) where in cananda are you

> getting brand minocin? is a prescription needed? thanks, sally

>

>

[Guest guest]

Hi Antje,

Below are the MDs I have for VA and land. El

VIRGINIA

C. Gent, D.O. (Other – 1979)

11900 Hull Street Rd.

Midlothian, VA 23112

P: 804-744-3551

Philip W. Kempf, M.D. (rheumatologist, IV & oral) Ask for antibiotic therapy

Arthritis Clinic of N.VA

1635 N. Mason – Suite 220

Arlington, VA 22205

P: 703-525-3069

F: 703-525-3850

From Dottie – no CPT code for clindamycin. Hand write on claim:

NDC 00090902-18 – clindamycin

Cleocin - strength

IV – 90780

D5W – J7070

Hoffman M.D. (FP) - recommended

2500 Pocoshock Place

Richmond, VA 23235

P: 804-276-9305

Heyman MD

Dr. Norman Levine

39070 Mosby Highway

Aldie, VA 20105-0107

P: 703 260 3484.

Dr. Leila Zackrison (rheumatologist)

VA

MARYLAND

V. Beals, M.D. – FP 1969 - excellent

9101 Cherry Lane Park #205

Laurel MD 20708.

P: 202-332-0370

F: 202-986-3255

Molly B. Burgoyne, M.D. (local patients only) not on AMA list

Delmarva Orthopaedic Clinic

510 Idlewild Ave.

Easton, MD

P: 410-820-8226 or 410-822-8270

Dr. Menon and Dr. Wong, M.D. – promotes AP

Mirkin Medical Consultants

10901 Connecticut Ave,

Kensington, MD 20895-1645

P: 301-942-7900

F: 301-942-9837

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Antje Kohrs Waxman

Sent: Sunday, September 26, 2010 11:08 PM

rheumatic

Subject: Re: rheumatic Talked with Dr. Sinnott

>

>

> Hello, my name is Antje. I developed RA (S-negative) 9 years ago and went

in

> remission

> for more than 6 years. A specific diet, Chinese medicine, herbal

supplements

> and lots

> of movement helped me to heal my body and I have not been taking any

medicine

> for 6 years. This June both of my feet, my ankles and wrists inflamed

again

> and I have been

> in much pain. My physician prescribed Prednisone and Plaquenil but I don¹t

> want to

> stay on these drugs. I have been taking my supplements but they don¹t seem

to

> help

> as much as they did many years ago.

>

> I live in Virginia, 2 hours from Washington D.C. Does anybody know an AP

doc

> in this area?

>

> Many thanks and all the best for you all,

> Antje

>

>

>

> I have a list of AP docs. What state(s) are you interested in? El

>

> _____

>

> From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40> ] On

> Behalf

> Of Priest-Dailey, Diane M

> Sent: Tuesday, September 14, 2010 7:22 AM

> rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> Subject: RE: rheumatic Talked with Dr. Sinnott

>

> Hi all, does anybody know why my son (10 years old) might not be

> getting the same benefit from minocin as he was from the erythrocyn (is

> that how you spell it?)

>

> He has been flaring and even after going to see Doc Sinnot in late May

> early June he still has not improved. He had serious swelling in his

> knees, ankles, wrists, feet, etc.

>

> Also, who was it that had the doctor's list. The one on the Arthritis

> Trust website is obsolete as far as MO goes. We just went to a

> naturopath today, hoping we can get him back to good shape.

>

> Thanks, God bless.

>

> Diane

>

> ________________________________

>

> From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40> ] On

> Behalf Of Cooky Stonkey

> Sent: Monday, September 13, 2010 4:58 PM

> rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> Subject: RE: rheumatic Talked with Dr. Sinnott

>

> Hi Sally

>

> Sorry this is late but I haven't been on the puter since last nite.

>

> Brand Minocin is recommended. There are some generics that work for some

> people. Harold put out a list of generics that people have said work for

> them. I started with brand and was given generic...all my pain and

> symptoms came back in a week. You should read this Harold's miocycline

> list

>

> http://www.tmgp.com/minocin.htm

>

> also rheumatic File - faq.htm at

>

> rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>

> http://rheumatic.org/support.htm

>

> I get my brand minocin from buylowdrugs in Canada... yes you need a

> prescription.

>

> Hope this helps

>

> cooky

>

> From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40> ]

> On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

<mailto:mannasal%40aim.com>

> <mailto:mannasal%40aim.com>

> <mailto:mannasal%40aim.com>

> Sent: Sunday, September 12, 2010 7:00 PM

> rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

> Subject: Re: rheumatic Talked with Dr. Sinnott

>

> well, i keep learning from everyone. Is it important to be taking brand

> name minocin? I take minocikline manufactured by Teva. Medicare pays

> most of it (plus it's only about $30.00 month) where in cananda are you

> getting brand minocin? is a prescription needed? thanks, sally

>

>

[Guest guest]

>

> Thank you very much. I really appreciate it!!!

>

> Have a great day,

> Antje

>

>

>

> Hi Antje,

>

> Below are the MDs I have for VA and land. El

>

> VIRGINIA

>

> C. Gent, D.O. (Other – 1979)

>

> 11900 Hull Street Rd.

>

> Midlothian, VA 23112

>

> P: 804-744-3551

>

> Philip W. Kempf, M.D. (rheumatologist, IV & oral) Ask for antibiotic therapy

>

> Arthritis Clinic of N.VA

>

> 1635 N. Mason – Suite 220

>

> Arlington, VA 22205

>

> P: 703-525-3069

>

> F: 703-525-3850

>

> From Dottie – no CPT code for clindamycin. Hand write on claim:

>

> NDC 00090902-18 – clindamycin

>

> Cleocin - strength

>

> IV – 90780

>

> D5W – J7070

>

> Hoffman M.D. (FP) - recommended

>

> 2500 Pocoshock Place

>

> Richmond, VA 23235

>

> P: 804-276-9305

>

> Heyman MD

>

> Dr. Norman Levine

>

> 39070 Mosby Highway

>

> Aldie, VA 20105-0107

>

> P: 703 260 3484.

>

> Dr. Leila Zackrison (rheumatologist)

>

> VA

>

> MARYLAND

>

> V. Beals, M.D. – FP 1969 - excellent

>

> 9101 Cherry Lane Park #205

>

> Laurel MD 20708.

>

> P: 202-332-0370

>

> F: 202-986-3255

>

> Molly B. Burgoyne, M.D. (local patients only) not on AMA list

>

> Delmarva Orthopaedic Clinic

>

> 510 Idlewild Ave.

>

> Easton, MD

>

> P: 410-820-8226 or 410-822-8270

>

> Dr. Menon and Dr. Wong, M.D. – promotes AP

>

> Mirkin Medical Consultants

>

> 10901 Connecticut Ave,

>

> Kensington, MD 20895-1645

>

> P: 301-942-7900

>

> F: 301-942-9837

>

> _____

>

> From: rheumatic <mailto:rheumatic%40>

> [mailto:rheumatic <mailto:rheumatic%40> ] On

> Behalf

> Of Antje Kohrs Waxman

> Sent: Sunday, September 26, 2010 11:08 PM

> rheumatic <mailto:rheumatic%40>

> Subject: Re: rheumatic Talked with Dr. Sinnott

>

>> >

>> >

>> > Hello, my name is Antje. I developed RA (S-negative) 9 years ago and went

> in

>> > remission

>> > for more than 6 years. A specific diet, Chinese medicine, herbal

> supplements

>> > and lots

>> > of movement helped me to heal my body and I have not been taking any

> medicine

>> > for 6 years. This June both of my feet, my ankles and wrists inflamed

> again

>> > and I have been

>> > in much pain. My physician prescribed Prednisone and Plaquenil but I don¹t

>> > want to

>> > stay on these drugs. I have been taking my supplements but they don¹t seem

> to

>> > help

>> > as much as they did many years ago.

>> >

>> > I live in Virginia, 2 hours from Washington D.C. Does anybody know an AP

> doc

>> > in this area?

>> >

>> > Many thanks and all the best for you all,

>> > Antje

>> >

>> >

>> >

>> > I have a list of AP docs. What state(s) are you interested in? El

>> >

>> > _____

>> >

>> > From: rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > [mailto:rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40> ] On

>> > Behalf

>> > Of Priest-Dailey, Diane M

>> > Sent: Tuesday, September 14, 2010 7:22 AM

>> > rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > Subject: RE: rheumatic Talked with Dr. Sinnott

>> >

>> > Hi all, does anybody know why my son (10 years old) might not be

>> > getting the same benefit from minocin as he was from the erythrocyn (is

>> > that how you spell it?)

>> >

>> > He has been flaring and even after going to see Doc Sinnot in late May

>> > early June he still has not improved. He had serious swelling in his

>> > knees, ankles, wrists, feet, etc.

>> >

>> > Also, who was it that had the doctor's list. The one on the Arthritis

>> > Trust website is obsolete as far as MO goes. We just went to a

>> > naturopath today, hoping we can get him back to good shape.

>> >

>> > Thanks, God bless.

>> >

>> > Diane

>> >

>> > ________________________________

>> >

>> > From: rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > [mailto:rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40> ] On

>> > Behalf Of Cooky Stonkey

>> > Sent: Monday, September 13, 2010 4:58 PM

>> > rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > Subject: RE: rheumatic Talked with Dr. Sinnott

>> >

>> > Hi Sally

>> >

>> > Sorry this is late but I haven't been on the puter since last nite.

>> >

>> > Brand Minocin is recommended. There are some generics that work for some

>> > people. Harold put out a list of generics that people have said work for

>> > them. I started with brand and was given generic...all my pain and

>> > symptoms came back in a week. You should read this Harold's miocycline

>> > list

>> >

>> > http://www.tmgp.com/minocin.htm

>> >

>> > also rheumatic File - faq.htm at

>> >

>> > rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> >

>> > http://rheumatic.org/support.htm

>> >

>> > I get my brand minocin from buylowdrugs in Canada... yes you need a

>> > prescription.

>> >

>> > Hope this helps

>> >

>> > cooky

>> >

>> > From: rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > [mailto:rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > <mailto:rheumatic%40> ]

>> > On Behalf Of mannasal@... <mailto:mannasal%40aim.com>

>> <mailto:mannasal%40aim.com>

> <mailto:mannasal%40aim.com>

>> > <mailto:mannasal%40aim.com>

>> > <mailto:mannasal%40aim.com>

>> > Sent: Sunday, September 12, 2010 7:00 PM

>> > rheumatic <mailto:rheumatic%40>

>> <mailto:rheumatic%40>

> <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > <mailto:rheumatic%40>

>> > Subject: Re: rheumatic Talked with Dr. Sinnott

>> >

>> > well, i keep learning from everyone. Is it important to be taking brand

>> > name minocin? I take minocikline manufactured by Teva. Medicare pays

>> > most of it (plus it's only about $30.00 month) where in cananda are you

>> > getting brand minocin? is a prescription needed? thanks, sally

>> >

>> >

[Guest guest]

Oh Antje, this is heartbreaking, and no doubt for you (and all of us). And

getting on AP could be what you need now, and perhaps through the 9 years of RA.

Please join us to learn and be supported. Keep us posted. Sally

Re: rheumatic Talked with Dr. Sinnott

>

> well, i keep learning from everyone. Is it important to be taking brand

> name minocin? I take minocikline manufactured by Teva. Medicare pays

> most of it (plus it's only about $30.00 month) where in cananda are you

> getting brand minocin? is a prescription needed? thanks, sally

>

>