reiters syndrome

May 9, 2000

Hi ,

Eek.... I am looking for you now sweetie....you must be stressed off your

face!

Have you got your results back yet? Let alone your daughters and Jai's ..??

http://search.aol.com/dirsearch.adp?query=reiters+syndrome

There are alot of sites at the above link that might help you?? And you dont

need to use AOL to be able to access it - I dont

Sorry to hear this though sweetie... let us know how it goes.

Love Aisha.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Believe that there's a light at the end of the tunnel.

Believe that you may be that light for someone else.

- Kobi Yamada

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Aisha Elderwyn

ICQ 55461955

aisha@...

http://www.elderwyn.com/aisha

mailing list: AishaElderwyn-subscribeegroups

May 11, 2000

Thanks Aisha

am just catching up, then I will post the latest on Lani and I. Jai

is still much the same wee'ing 20-30 times per day on a god day. the

bad days we live in the toilet! (cause he goes around 50 times at

least) This is driving us both nuts. Have just pulled him out of his

preschool, and will have to drop out of uni (after all this *sigh*)

It is all TOO MUCH!!!

> Hi ,

>

> Eek.... I am looking for you now sweetie....you must be stressed

off your

> face!

>

> Have you got your results back yet? Let alone your daughters and

Jai's ..??

>

> http://search.aol.com/dirsearch.adp?query=reiters+syndrome

>

> There are alot of sites at the above link that might help you?? And

you dont

> need to use AOL to be able to access it - I dont

>

> Sorry to hear this though sweetie... let us know how it goes.

>

> Love Aisha.

>

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

> Believe that there's a light at the end of the tunnel.

> Believe that you may be that light for someone else.

> - Kobi Yamada

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

>

> Aisha Elderwyn

> ICQ 55461955

> aisha@e...

> http://www.elderwyn.com/aisha

> mailing list: AishaElderwyn-subscribeegroups

May 11, 2000

,

Jai needs to be tested for Diabetes Insipidus....

Please check out http://diabetesinsipidus.maxinter.net/

Diabetes Insipidus has NOTHING to do with sugar diabetes - it is all about the use of water in the body - please look at this website. Constant need to go to the toilet and drink lots is normal when you have DI....

Love Aisha.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aishaMailing list: AishaElderwyn-subscribeegroupsBeing Sick:

May 11, 2000

,

Here is a re-post of the Diabetes Insipidus info I sent out on the weekend - it may help Jai. For me it is a secondary to the neurosarcoid....

~~~~~~~~~~~~

Diabetes Insipidus (DI)

DI is defined as a condition in which urine is not concentrated (urine is dilute or water-like). Concentration of urine in normally functioning individuals is the consequence of secretion of antidiuretic hormone (ADH) by the posterior pituitary gland in the brain, and a corresponding reaction by receptors on the kidneys. ADH tells the kidneys how much water to keep in the body and how much water to eliminate as urine.

There are at least two separate types of DI. In Central Diabetes Insipidus (CDI, also known as Vasopressin-sensitive DI), the pituitary gland fails to produce ADH. In Nephrogenic Diabetes Insipidus (NDI, also known as "antidiuretic hormone" or Vasopressin-resistant DI), the pituitary gland may be secreting ADH, but the kidneys fail to react to it. The treatments for either of these root causes are entirely different. The basic symptoms for both disorders are however the same and generally include:

Persistent thirst, drinking large amounts of fluids, and urinating frequently Susceptibility to de-hydration and blood electrolyte imbalance(s) A variety of other symptoms which are age and type of DI dependent

Diabetes Insipidus is a rare disorder. As a result of its rarity, few doctors have experience treating patients, and may therefore not diagnose it correctly.

There is a not so fun test called a Water Depravation Test to find out over a 5 hour period if you have diabetes insipidus or not. And there is a medication you can take should you have DI.

This type of diabetes is not related to sugars, insulin or diet. It is a totally different condition. For more information please visit the Diabetes Insipidus Foundation.

http://diabetesinsipidus.maxinter.net/

Founded by n Arminger, the goal of the Diabetes Insipidus Foundation is improved treatment, and ultimately the prevention and cure of all forms of Diabetes Insipidus through research. The DI Foundation promotes a greater public understanding of the disease, and will serve patients and their families with informational material through the quarterly publication of the "Endless Water" newsletter, and through promoting Diabetes Insipidus as "a Different Diabetes" so that people will know there is another Diabetes.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aishaMailing list: AishaElderwyn-subscribeegroupsBeing Sick:

July 28, 2004

,

There was a study recently that found that most people with arthritis have

some degree of depression. It is an exquisitely depressing disease. When I

was really sick, I would say it's like cancer except you don't die.

There is not normally profound shortening of life with RS. The most serious

thing that can happen is heart valve damage, but that's not typical and can

be detected with echocardiogram and treated.

It sounds like your husband really needs a psychologist who specializes in

treating patients with chronic illnesses. Anti-depressants are critical for

people with chronic rheumatic disease, they help with mood and actually help

with nerve pain. A chronic pain center (pain management practice) might be

a good place to find a psychiatrist or psychologist experienced at helping

chronic illness issues.

It is important to have a compassionate rheumatologist. If I were in

Gainesville, FL, I would go to the University of Florida to see a

rheumatologist on the faculty there. There are two good websites for

rheumatologist info.: www.arthritis.org <http://www.arthritis.org> and

www.rheumatology.org <http://www.rheumatology.org>

I just checked on risg.org physician info section and I don't seen any

recommendations for Gainesville. University of Florida medical school

Health Sciences Center and the websites mentioned above should be useful.

Regards,

janet in sf

ReA (RS) since 1973; diagnosed 1997; HLA-B27+

August 4, 2004

Man, does your Husband sound like me, at 36 I had been

fighting AS for 10 years not knowing what was wrong,

Budweiser and any other Booze would calm the pain,I'm

60 as of yesterday and I never thoght I could live

this long with so much pain, well I guit drinking in

87 and go to a Pain Management Clinic in town WV

at WVU they are proactive in treating pain. If I were

your Husband I'd get on Enrel as soon as possible and

I'd move somewhere like town where pain is

Treated not Stigmatized by some stupid beliefs on Drug

use for Cronic Pain People. Sincerely,Reggie

--- rachscott02 <rachscott02@...> wrote:

November 4, 2008

Hello, My name is Brennen, and I just joined this site... I am baffled

as to what is happening with me... It started as a chylamidia

infection and from there my wrist, shoulder, feet, knee, hand, and now

my spine are inflamed and sore, sometimes the pain is unbareble... I

also have bouts of dizziness... This has been going on for over 3

months now and I haven't yet been clinically diagnosed... But

everything points to reiters syndrome... I have been researching

antibiotic therapy, it seems to be the only answer... Before the

initial infection I was extremely healthy athlete... and now I fear

the worst, Please Help!!!!

November 4, 2008

Hi Brennen,

I think the most important thing you need to do is get blood tests

in order to diagnose the problem and rule out any number of

autoimmune illnesses. Have you had ANA antibodies test and C-

Reactive?

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I

fear

> the worst, Please Help!!!!

>

November 4, 2008

Hi, Brennan:

Sorry about your Reiter's Syndrome, but this is Chlamydia-Reactive Arthritis and

if you are susceptible to Ankylosing Spondylitis it is starting to evolve into

this (which is really the result of many waves of Klebsiella-Reactive

Arthritis).

Very important to treat using proper antibiotics, but be certain to combine diet

therapy because if you evolve into AS you will need to maintain the antibiotic

option and not develop resistive colonies. Basically, eliminate all starches

while on the antibiotics--no flour products, potatoes, beans, etc. YouTube has

a lecture bit by Professor Ebringer on Diet and AS.

Good luck to You, and I hope this is only a transient episode, and not a

permanent part of your life,

From: sschitownhustler <sschitownhustler@...>

Subject: rheumatic reiters syndrome

rheumatic

Date: Tuesday, November 4, 2008, 8:58 AM

Hello, My name is Brennen, and I just joined this site... I am