reiters syndrome

[Guest guest]

Unfortunately, I don't live anywhere near you. I use Harry Speira in NYC, and he

is really wonderful, because he has seen with his own eyes how well I have

responded to the doxycycline and now minocycline.

He never told me it would be chronic. He just doesn't know, so I stopped asking

him about it. It's all pretty new, even to him, especially since I have shown

that you can get Reactive Arthritis from a very different kind of infection. We

really take it day by day. I think you are way ahead of the game, which is a

good thing, because you are getting the condition under control so much more

quickly than I did. I can't help but feel that you are so scared, but you should

really keep a positive attitude-if you stay on the antibiotics (and

acidophilus!), and really have reactive arthritis, which it sounds like you do

have it, you will be fine. I thought I was dying. Seriously. Now I walk

everyday, take care of my family, and am even thinking of going back to work.

That is big. :)

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Forgot 1 thing-I've had it for 4 years now.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Another thing you asked- my eyes were very blurry because I was suffering from

pink eye(conjunctivitis), which is a common symptom of reactive arthritis, too.

My eyes would be pasted shut in the morning, then red and it would last most of

the day or all day. Now that I'm on the antibiotic, that symptom is practically

gone.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Mona. U have been such a help. I'm seriously happy for u and your family. If

peolpe outside this group only knew how much this phyically hurts ... I would

like to talk with u more in the future ... For now though thank u

Sent via BlackBerry from T-Mobile

Re: rheumatic Re: reiters syndrome

Another thing you asked- my eyes were very blurry because I was suffering from

pink eye(conjunctivitis), which is a common symptom of reactive arthritis, too.

My eyes would be pasted shut in the morning, then red and it would last most of

the day or all day. Now that I'm on the antibiotic, that symptom is practically

gone.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

I really feel great that I could help you. Do you have any close family? I found

that my husband's support helped me survive. If you don't have that kind of

support, then you are very lucky to have the group.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

I have an excellnt support group(my family ) mona. A very caring girlfriend as

well. I'm 38 an before this there was nothing wrong with me in fact I've been an

athlete most of my life. My diet has been excellent for over 20 years I don't

smoke drink ....ect. So being sick doesn't sit well with me. A cure is ALL I'm

interested in

Sent via BlackBerry from T-Mobile

Re: rheumatic Re: reiters syndrome

I really feel great that I could help you. Do you have any close family? I found

that my husband's support helped me survive. If you don't have that kind of

support, then you are very lucky to have the group.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

mona i know we r total strangers .but if u could do that for me i would be so

greatful no one seems to know what reactive arthritis is here except for

rheumatologists and even then they dont treat with antibiotics... please let me

know what u find.    thank u mona ...  brennen

From: Mona Goldstein <spellers@...>

Subject: Re: rheumatic Re: reiters syndrome

rheumatic

Date: Tuesday, November 4, 2008, 9:07 PM

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Never take acidophilus with antibiotics.  Wait 2-3 hours after taking the

antibiotics to take your acidophlius.

From: Mona Goldstein <spellers@...>

Subject: Re: rheumatic Re: reiters syndrome

rheumatic

Date: Tuesday, November 4, 2008, 7:16 PM

Brennan-make sure that you take acidophilus with the antibiotics, if you

aren't already doing so. Otherwise, you will kill the normal flora in your

intestines, which could be extremely painful. It happened to me.

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Just curious-how come?

MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Hi Mona;

I guess we have not met yet.I hardly get to the board anymore as I

have recovered from SD and am sooooo busy that I just don't have time.

When you take antibiotics they kill off all the good bugs

as well as the bad ones.Therefore you take a good ENTERIC coated one .

If it is not enteric coated it will disolve in your stomack where the

acid will kill off 90%,it must disolve in the gut.I take 4 a day and

each has 50million good bugs. Lynne

> Just curious-how come?

> MG

> rheumatic Re: reiters syndrome

>

>

> >

> > Hello, My name is Brennen, and I just joined this site... I am

> baffled

> > as to what is happening with me... It started as a chylamidia

> > infection and from there my wrist, shoulder, feet, knee, hand, and

> now

> > my spine are inflamed and sore, sometimes the pain is unbareble...

> I

> > also have bouts of dizziness... This has been going on for over 3

> > months now and I haven't yet been clinically diagnosed... But

> > everything points to reiters syndrome... I have been researching

> > antibiotic therapy, it seems to be the only answer... Before the

> > initial infection I was extremely healthy athlete... and now I fear

> > the worst, Please Help!!!!

> >

> Also research Psoriatic Arthritis. Mine hit very suddenly and

> severely and effected my hips, shoulders, knees, spinal column and

> some fingers. The arthritis hit long before the skin Psoriasis was

> obvious. I got the inflammation under control with prednisone and

> then started 100mg twice per day Minocycline and weaned off

> Prednisone. I still am using the 200mg per day Minocycline and the

> nsaid Diclofenac once per day.

> This regimen keeps me free of static pain and I can play golf again.

> vinny

>

>

[Guest guest]

I have seen you write a few comments in the last few months that I have been a

member of the group. This group has helped me so much in getting on the right

antibiotic path.

About the acidophulus- the one I have from GNC is encapsulated. Does that mean

automatically that it is protecting it from my stomach, because I don't see

anything on the label that mentions it?What type and brand do you use?

MG

rheumatic Re: reiters syndrome

>

>

> >

> > Hello, My name is Brennen, and I just joined this site... I am

> baffled

> > as to what is happening with me... It started as a chylamidia

> > infection and from there my wrist, shoulder, feet, knee, hand, and

> now

> > my spine are inflamed and sore, sometimes the pain is unbareble...

> I

> > also have bouts of dizziness... This has been going on for over 3

> > months now and I haven't yet been clinically diagnosed... But

> > everything points to reiters syndrome... I have been researching

> > antibiotic therapy, it seems to be the only answer... Before the

> > initial infection I was extremely healthy athlete... and now I fear

> > the worst, Please Help!!!!

> >

> Also research Psoriatic Arthritis. Mine hit very suddenly and

> severely and effected my hips, shoulders, knees, spinal column and

> some fingers. The arthritis hit long before the skin Psoriasis was

> obvious. I got the inflammation under control with prednisone and

> then started 100mg twice per day Minocycline and weaned off

> Prednisone. I still am using the 200mg per day Minocycline and the

> nsaid Diclofenac once per day.

> This regimen keeps me free of static pain and I can play golf again.

> vinny

>

>

[Guest guest]

Mona,

GNC does make one that is enteric coated and it is a solid ablong

shape.It is called Super Acidophilus and has 10million CFU plus a

probiotic blend but only has 4 strains of micoflora.There is a small

sentence that says With patent pending Bio -tract delivery

technology....that means enteric coated.Lucky I still had some in the

fridge.The one I use the most is made in Oakville Ontario and has

50billion with 10 strains of micoflora.It is called Ultimate Flora and

below it is in French, Flore Supreme ,it is made by Renew Life.

> I have seen you write a few comments in the last few months that I

> have been a member of the group. This group has helped me so much in

> getting on the right antibiotic path.

> About the acidophulus- the one I have from GNC is encapsulated. Does

> that mean automatically that it is protecting it from my stomach,

> because I don't see anything on the label that mentions it?What type

> and brand do you use?

> MG

> rheumatic Re: reiters syndrome

> >

> >

> > >

> > > Hello, My name is Brennen, and I just joined this site... I am

> > baffled

> > > as to what is happening with me... It started as a chylamidia

> > > infection and from there my wrist, shoulder, feet, knee, hand, and

> > now

> > > my spine are inflamed and sore, sometimes the pain is unbareble...

> > I

> > > also have bouts of dizziness... This has been going on for over 3

> > > months now and I haven't yet been clinically diagnosed... But

> > > everything points to reiters syndrome... I have been researching

> > > antibiotic therapy, it seems to be the only answer... Before the

> > > initial infection I was extremely healthy athlete... and now I fear

> > > the worst, Please Help!!!!

> > >

> > Also research Psoriatic Arthritis. Mine hit very suddenly and

> > severely and effected my hips, shoulders, knees, spinal column and

> > some fingers. The arthritis hit long before the skin Psoriasis was

> > obvious. I got the inflammation under control with prednisone and

> > then started 100mg twice per day Minocycline and weaned off

> > Prednisone. I still am using the 200mg per day Minocycline and the

> > nsaid Diclofenac once per day.

> > This regimen keeps me free of static pain and I can play golf again.

> > vinny

> >

> >

[Guest guest]

But it is weird that the GNC one I use isn't enteric, because when the

antibiotic is affecting my stomach I can definitely feel it. For the most part,

I have been feeling fine. I'll finish the bottle and then move on to your

product via the internet. Thanks. MG

rheumatic Re: reiters syndrome

> >

> >

> > >

> > > Hello, My name is Brennen, and I just joined this site... I am

> > baffled

> > > as to what is happening with me... It started as a chylamidia

> > > infection and from there my wrist, shoulder, feet, knee, hand, and

> > now

> > > my spine are inflamed and sore, sometimes the pain is unbareble...

> > I

> > > also have bouts of dizziness... This has been going on for over 3

> > > months now and I haven't yet been clinically diagnosed... But

> > > everything points to reiters syndrome... I have been researching

> > > antibiotic therapy, it seems to be the only answer... Before the

> > > initial infection I was extremely healthy athlete... and now I fear

> > > the worst, Please Help!!!!

> > >

> > Also research Psoriatic Arthritis. Mine hit very suddenly and

> > severely and effected my hips, shoulders, knees, spinal column and

> > some fingers. The arthritis hit long before the skin Psoriasis was

> > obvious. I got the inflammation under control with prednisone and

> > then started 100mg twice per day Minocycline and weaned off

> > Prednisone. I still am using the 200mg per day Minocycline and the

> > nsaid Diclofenac once per day.

> > This regimen keeps me free of static pain and I can play golf again.

> > vinny

> >

> >

[Guest guest]

when it is contracted from a STD-the symptoms are more obvious, and more

deforming of feet, hands, etc-quite a big difference actually-that's all i

meant....

> From: sschitownhustler <sschitownhustler>

> Subject: rheumatic reiters syndrome

> rheumatic@grou ps.com

> Date: Tuesday, November 4, 2008, 8:58 AM

>

> Hello, My name is Brennen, and I just joined this site... I am baffled

>

> as to what is happening with me... It started as a chylamidia

>

> infection and from there my wrist, shoulder, feet, knee, hand, and now

>

> my spine are inflamed and sore, sometimes the pain is unbareble... I

>

> also have bouts of dizziness... This has been going on for over 3

>

> months now and I haven't yet been clinically diagnosed... But

>

> everything points to reiters syndrome... I have been researching

>

> antibiotic therapy, it seems to be the only answer... Before the

>

> initial infection I was extremely healthy athlete... and now I fear

>

> the worst, Please Help!!!!

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

if you have eye problems-make sure you go to an oprthomologist--uveitis is not

always felt, and after my episceritis(inflammation of the white of the eye and

the eyeball) cleared up, i felt fine, but the inner eye was inflamed, and if not

treated, can cause blindness!!  each time it flared, i had to go have the eye

examined to be sure....

Deb

From: Mona Goldstein <spellersoptonline (DOT) net>

Subject: Re: rheumatic Re: reiters syndrome

rheumatic@grou ps.com

Date: Tuesday, November 4, 2008, 9:07 PM

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Deb did u have reiters?

Sent via BlackBerry from T-Mobile

Re: rheumatic Re: reiters syndrome

rheumatic@grou ps.com

Date: Tuesday, November 4, 2008, 9:07 PM

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

yes-i may be in remission-my last two sed rate tests were normal, but have it

chronically for the last few years....read my earlier post-i was on methotrexate

after the steroids-

From: Mona Goldstein <spellers@optonline . net>

Subject: Re: rheumatic Re: reiters syndrome

rheumatic@grou ps.com

Date: Tuesday, November 4, 2008, 9:07 PM

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Deb. I'm sorry I didn't read your last to posts. How long did u have rieters

before u were treated?

Sent via BlackBerry from T-Mobile

Re: rheumatic Re: reiters syndrome

rheumatic@grou ps.com

Date: Tuesday, November 4, 2008, 9:07 PM

You are so on the right track. You will start feeling great soon. You just need

to find a good doctor. And you have to be careful, because doctors have almost

killed me a few times in my lifetime, and especially when you have " vague

symptoms " -those that don't follow typical symptoms, like heart attacks, they

will try their hardest to " diagnose you " , even if you don't have the symptoms of

the illness. They can't handle not knowing and it is hard for them to say " I

don't know what is wrong. " If you want me to call my rheumatologist to ask him

if he could recommend someone in Nevada I could do that. MG

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Hey, steve!

Great to hear from You.  Hope all is well there in SoFrance--seems like a

healthy place to be now...

I've got to write something on Reiter's because of the connection with HLA B27

disease...

TTFN

> From: sschitownhustler <sschitownhustler>

> Subject: rheumatic reiters syndrome

> rheumatic@grou ps.com

> Date: Tuesday, November 4, 2008, 8:58 AM

>

> Hello, My name is Brennen, and I just joined this site... I am baffled

>

> as to what is happening with me... It started as a chylamidia

>

> infection and from there my wrist, shoulder, feet, knee, hand, and now

>

> my spine are inflamed and sore, sometimes the pain is unbareble... I

>

> also have bouts of dizziness... This has been going on for over 3

>

> months now and I haven't yet been clinically diagnosed... But

>

> everything points to reiters syndrome... I have been researching

>

> antibiotic therapy, it seems to be the only answer... Before the

>

> initial infection I was extremely healthy athlete... and now I fear

>

> the worst, Please Help!!!!

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi john, I was thinking about writing my experience and putting it

online, (i'm a web developer now so easy peasy).. let me know if you

want to do something together,

s

On 10 Nov 2008, at 19:19, Merchant wrote:

>

> Hey, steve!

>

> Great to hear from You. Hope all is well there in SoFrance--seems

> like a healthy place to be now...

>

> I've got to write something on Reiter's because of the connection

> with HLA B27 disease...

>

> TTFN

>

>

>

>

> > From: sschitownhustler <sschitownhustler>

>

> > Subject: rheumatic reiters syndrome

>

> > rheumatic@grou ps.com

>

> > Date: Tuesday, November 4, 2008, 8:58 AM

>

> >

>

> > Hello, My name is Brennen, and I just joined this site... I am

> baffled

>

> >

>

> > as to what is happening with me... It started as a chylamidia

>

> >

>

> > infection and from there my wrist, shoulder, feet, knee, hand,

> and now

>

> >

>

> > my spine are inflamed and sore, sometimes the pain is unbareble... I

>

> >

>

> > also have bouts of dizziness... This has been going on for over 3

>

> >

>

> > months now and I haven't yet been clinically diagnosed... But

>

> >

>

> > everything points to reiters syndrome... I have been researching

>

> >

>

> > antibiotic therapy, it seems to be the only answer... Before the

>

> >

>

> > initial infection I was extremely healthy athlete... and now I fear

>

> >

>

> > the worst, Please Help!!!!

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Hey,Brennan. Hope you've been checking the group frequently, so that you get

this message.

I saw my rheumatologist today and asked him to recommend a rheumatologist for

you in Las Vegas. He unfortunately said that as far as he knows, and he hates to

generalize, there isn't anyone out by you who is

worthy of a good recommendation. He highly recommended you going to Los Angeles.

He said that the rheumatology department at UCLA is really good and you could

find someone there.

Good Luck!

Mona

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Hi mona. How r u feeling ? I've made an apmt with the riverside clinic in cal. I

go on the ninth. Can't wait to get there my symtoms r very strange had to quit

my job do to them. They come an go but r more pronounced in the evening the

organ pain was so intense one day I went to a dr. He gave me doxy so at least

I'm on an antibiotic now. Thank u for remembering me mona r u feeling ok?

Sent via BlackBerry from T-Mobile

Re: rheumatic Re: reiters syndrome

Hey,Brennan. Hope you've been checking the group frequently, so that you get

this message.

I saw my rheumatologist today and asked him to recommend a rheumatologist for

you in Las Vegas. He unfortunately said that as far as he knows, and he hates to

generalize, there isn't anyone out by you who is

worthy of a good recommendation. He highly recommended you going to Los Angeles.

He said that the rheumatology department at UCLA is really good and you could

find someone there.

Good Luck!

Mona

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Hi,Brennan. I have been doing really well lately, except on days before we get

cloudy or rainy weather. I actually was in disneyland last week and was on my

feet for 18 hours a day, so that was amazing for me. My rheumy can't believe how

well the antibiotics are working for me-much better than the TNF inhibitors that

I was on a few years ago.

Hope you respond well to the antibiotics. Good Luck.

Mona

rheumatic Re: reiters syndrome

>

> Hello, My name is Brennen, and I just joined this site... I am

baffled

> as to what is happening with me... It started as a chylamidia

> infection and from there my wrist, shoulder, feet, knee, hand, and

now

> my spine are inflamed and sore, sometimes the pain is unbareble...

I

> also have bouts of dizziness... This has been going on for over 3

> months now and I haven't yet been clinically diagnosed... But

> everything points to reiters syndrome... I have been researching

> antibiotic therapy, it seems to be the only answer... Before the

> initial infection I was extremely healthy athlete... and now I fear

> the worst, Please Help!!!!

>

Also research Psoriatic Arthritis. Mine hit very suddenly and

severely and effected my hips, shoulders, knees, spinal column and

some fingers. The arthritis hit long before the skin Psoriasis was

obvious. I got the inflammation under control with prednisone and

then started 100mg twice per day Minocycline and weaned off

Prednisone. I still am using the 200mg per day Minocycline and the

nsaid Diclofenac once per day.

This regimen keeps me free of static pain and I can play golf again.

vinny

[Guest guest]

Hey kathy its brennen we talkt awhile bac abt reiters did u have any arthritis

in the spine ? Were u ever dizzy ? Did u have eye problems?

Sent via BlackBerry from T-Mobile

rheumatic Re:reiters syndrome

HI, I also used to be very active , I blamed slowing down to aging (and having a

kid!) then the joint pain started and got so bad so quickly I was thinking id be

in a walker in a few years!!! all my tests at the rhuematologist were negative

so they said I had serio-negative rheumatoid arthritis... put me on bad drugs

that made me unable to work! then i swithced DRs and tested positive for titers

for chlamidia and Mycoplasma. started on minocycline and Im doing great now. I

still get some stiffness in my right hand occasionally, but I just did a three

hour horseback trail ride sunday! The new Dr said I have reactive arthritis

from an infection. But I am doing good on the mino , been on it a year now.

Kathy