Re: vitamin K and C with minocycline

[Guest guest]

Amy and All,

In regard to the discussion of Vit K and C etc. here is what I have

taken since about 1995 when I was just beginning to fight the battle.

Shopping at a local health food store, I purchase:

Solaray Vitamin K 100 mcg one a day - for pigmentation

PURE vitamin C ascorbic acid crystals - NOW brand - 1/2 tsp in water

along with grapefruit seed extract - 8 drops - every night. - for

pigmentation

Molybedrum 150 mcg this is purchased as Biotics Mo-zyme Forte one a

day - for curling hands

B6 NOW brand 100 mg one a day - for curling hands.

Hope this helps every one.

In a message dated 3/10/2011 8:20:29 A.M. Mountain Standard Time,

muttville@... writes:

Anyone know the recommended dose of vit. K and C to prevent

hyperpigmentation with minocycline? Also, I have noticed my eyes are dry. I am

6 months

into AP (100mg once a day, MWF). Anyone else notice dry eyes?

And while I thought I was clear of Raynaud's, this past weekend I was out

in the cold rain for 20 minutes and my fingers turned tomato red and

wouldn't function. A little disappointing to see I'm not over that symptom, but

still, it was extreme cold/wet conditions so I'm not too surprised.

Harald, thanks for keeping everyone posted on the best sources for

antibiotics. I'm glad you are here. (My grandmother was a Weiss)

Amy

>

> At 05:40 PM 3/7/2011, Kinga wrote:

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Guest guest]

Very very little.

In a message dated 3/11/2011 11:02:31 A.M. Mountain Standard Time,

barwig@... writes:

Have you had pigmentation problems on this program?

Kinga

Re: rheumatic vitamin K and C with minocycline

Amy and All,

In regard to the discussion of Vit K and C etc. here is what I have

taken since about 1995 when I was just beginning to fight the battle.

Shopping at a local health food store, I purchase:

Solaray Vitamin K 100 mcg one a day - for pigmentation

PURE vitamin C ascorbic acid crystals - NOW brand - 1/2 tsp in water

along with grapefruit seed extract - 8 drops - every night. - for

pigmentation

Molybedrum 150 mcg this is purchased as Biotics Mo-zyme Forte one a

day - for curling hands

B6 NOW brand 100 mg one a day - for curling hands.

Hope this helps every one.

In a message dated 3/10/2011 8:20:29 A.M. Mountain Standard Time,

_muttville@..._ (mailto:muttville@...) writes:

Anyone know the recommended dose of vit. K and C to prevent

hyperpigmentation with minocycline? Also, I have noticed my eyes are dry.

I am 6 months

into AP (100mg once a day, MWF). Anyone else notice dry eyes?

And while I thought I was clear of Raynaud's, this past weekend I was out

in the cold rain for 20 minutes and my fingers turned tomato red and

wouldn't function. A little disappointing to see I'm not over that

symptom, but

still, it was extreme cold/wet conditions so I'm not too surprised.

Harald, thanks for keeping everyone posted on the best sources for

antibiotics. I'm glad you are here. (My grandmother was a Weiss)

Amy

>

> At 05:40 PM 3/7/2011, Kinga wrote:

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

What you failed to add there, Dear Delores, is that neither you nor I

really care about our color with scleroderma. We wear our colors whatever they

may be because the alternative is not for us now.

In a message dated 3/11/2011 3:46:54 P.M. Mountain Standard Time,

martysfolks2004@... writes:

Yes Kinga, It comes and goes. I use an umbrella, take Vit C and embrace

the fact that I am alive and comfortable in the color of skin I have

learned to live with. My arms are dark, my trunk is white, my legs are not as

dark as my arms. I am multicolored. All I need now is to do my hair purple

and give them all a show! Dolores

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Have you had pigmentation problems on this program?

Kinga

Re: rheumatic vitamin K and C with minocycline

Amy and All,

In regard to the discussion of Vit K and C etc. here is what I have

taken since about 1995 when I was just beginning to fight the battle.

Shopping at a local health food store, I purchase:

Solaray Vitamin K 100 mcg one a day - for pigmentation

PURE vitamin C ascorbic acid crystals - NOW brand - 1/2 tsp in water

along with grapefruit seed extract - 8 drops - every night. - for

pigmentation

Molybedrum 150 mcg this is purchased as Biotics Mo-zyme Forte one a

day - for curling hands

B6 NOW brand 100 mg one a day - for curling hands.

Hope this helps every one.

In a message dated 3/10/2011 8:20:29 A.M. Mountain Standard Time,

muttville@... writes:

Anyone know the recommended dose of vit. K and C to prevent

hyperpigmentation with minocycline? Also, I have noticed my eyes are dry. I am

6 months

into AP (100mg once a day, MWF). Anyone else notice dry eyes?

And while I thought I was clear of Raynaud's, this past weekend I was out

in the cold rain for 20 minutes and my fingers turned tomato red and

wouldn't function. A little disappointing to see I'm not over that symptom,

but

still, it was extreme cold/wet conditions so I'm not too surprised.

Harald, thanks for keeping everyone posted on the best sources for

antibiotics. I'm glad you are here. (My grandmother was a Weiss)

Amy

>

> At 05:40 PM 3/7/2011, Kinga wrote:

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Guest guest]

Sleep well tonight, Delores, after your man has cooked that meal. And

heal. Know you are loved. You offended No one. We HAVE to have some humor

because we look at something coming a bit closer to us than others see it.

Love,

In a message dated 3/11/2011 4:31:42 P.M. Mountain Standard Time,

martysfolks2004@... writes:

That is so true! You & I know that scleroderma is teminal and we deal

with that aspect. All other complaints seem minor to us because we just

wanted to remain alive. I didn't mean to make light of it. I know R/A people

have it tough too just dealing with inflammation & pain. I also have R/A

MCTD. I don't concern myself with the last two because they precribe an

antibiotic for that as well. My main concern is not to go off remission from

scleroderma, which I just did the past few months. Also my stress level

rose sharply from Sept on through now. My mom passed on Oct 21. I had mixed

feelings about that. It was a relief not to have to take care of her

anymore. She was 96, incontinent, very disagreeable and attacked Mike several

times biting him till he was purple. She had alzheimers. And yet I felt

the loss. During that time, I neglected myself and ran out of Minocin.

Settling her estate and getting back to my health meant

seeing different doctors and then the fight to get back my minocin with

the new insurance plan was terrible Christmas came and I indulged the kids

and overdid it. Breathed a sigh of relief when they all left, had eye

surgery which has not gone well. Blood tests and my feelings revealed that I

was no longer in remission and back to square one. It had taken me 5 years

to get into remission. The color of my skin is the least of my problems.

So, I make light of it. I have learned to live in whatever color I turn.

Vit c did help with the bluish black macules and the muddy grey look. I use

an umbrella on sunny and rainy days. Since I wear mostly pants, my legs

are not too bad, my trunk and covered body is still white, but I hate

sleeves, so my arms are dark with white spots. If I were younger, it might

bother

me more, but I am old and don't care. I hope I didn't insult anyone with

the purple hair comment. I was chuckling to myself

because the kids today do their hair, purple, pink and all colors in

between and wonder what I would look like if I painted my grey head a wild

color. I was just having a little fun with myself and meant no insult to

anyone.I had a rough night last night and needed to make myself laugh a bit.

Sick humor, I suppose. I humbly apologize if I insulted anyone. Trying to

lighten up a bit. Mike is busy cooking some veggies, meat and yams which I

just found out are not nightshades. He knows I have had a rough day and is

making dinner. What a sweetheart. I am still here because for the last 6

years, he has cared for me and supported my way. God Bless him and all of

you. Dolores

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Yes Kinga,  It comes and goes.  I use an umbrella,  take Vit C and embrace

the fact that I am alive and comfortable in the color of skin I have learned to

live with. My arms are dark, my trunk is white, my legs are not as dark as my

arms.  I am multicolored.  All I need now is to do my hair purple and give

them all a show!  Dolores 

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Guest guest]

That is so true!  You & I know that scleroderma is teminal and we deal with

that aspect.  All other complaints seem minor to us because we just wanted to

remain alive.  I didn't mean to make light of it.  I know R/A people have it

tough too just dealing with inflammation & pain.  I also have R/A MCTD.  I

don't concern myself with the last two because they precribe an antibiotic for

that as well.  My main concern is not to go off remission from scleroderma,

which I just did the past few months.  Also my stress level rose sharply from

Sept on through now.  My mom passed on Oct 21.  I had mixed feelings about

that.  It was a relief not to have to take care of her anymore.  She was 96,

incontinent, very disagreeable and attacked Mike several times biting him till

he was purple.  She had alzheimers. And yet I felt the loss.  During that

time, I neglected myself and ran out of Minocin.  Settling her estate and

getting back to my health meant

seeing different doctors and then the fight to get back my minocin with the new

insurance plan was terrible  Christmas came and I indulged the kids and overdid

it.  Breathed a sigh of relief when they all left, had eye surgery which has

not gone well.  Blood tests and my feelings revealed that I was no longer in

remission and back to square one.  It had taken me 5 years to get into

remission.  The color of my skin is the least of my problems.  So, I make

light of it.  I have learned to live in whatever color I turn.  Vit c did help

with the bluish black macules and the muddy grey look.  I use an umbrella on

sunny and rainy days.  Since I wear mostly pants, my legs are not too bad, my

trunk and covered body is still white, but I hate sleeves, so my arms are dark

with white spots. If I were younger, it might bother me more, but I am old and

don't care.  I hope I didn't insult anyone with the purple hair comment.  I

was chuckling to myself

because the kids today do their hair, purple, pink and all colors in between

and wonder what I would look like if I painted my grey head a wild color.  I

was just having a little fun with myself and meant no insult to anyone.I had a

rough night last night and needed to make myself laugh a bit.  Sick humor, I

suppose.  I humbly apologize if I insulted anyone.  Trying to lighten up a

bit.  Mike is busy cooking some veggies, meat and yams which I just found out

are not nightshades.  He knows I have had a rough day and is making dinner. 

What a sweetheart.  I am still here because for the last 6 years, he has cared

for me and supported my way.  God Bless him and all of you.  Dolores   

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Guest guest]

So far I am not on Abx, trying to find a doctor, and in Canada that means not

using our great and wonderful national healthcare program. The few that I found

do most of the testing that is not covered, so while the ABx itself may be

covered by my private insurance, the road to get the Rx will be a long one,

because the workups they do, while I am sure worthwhile, are expensive.

I am however prone to pigmentation just from sun, as I am 1/2 Jewish and 1/2

central european (lighter skin on my dad's side), so I have fair skin, with a

tendency to spot and freckle.

I try to never tan my face, even though my body skin tans nicely. I have had

some pigmentation problems on BCP's in the past. I am hoping that using the C

and K (I take D +K now anyway) will solve the problem.

Kinga

Re: rheumatic vitamin K and C with minocycline

Amy and All,

In regard to the discussion of Vit K and C etc. here is what I have

taken since about 1995 when I was just beginning to fight the battle.

Shopping at a local health food store, I purchase:

Solaray Vitamin K 100 mcg one a day - for pigmentation

PURE vitamin C ascorbic acid crystals - NOW brand - 1/2 tsp in water

along with grapefruit seed extract - 8 drops - every night. - for

pigmentation

Molybedrum 150 mcg this is purchased as Biotics Mo-zyme Forte one a

day - for curling hands

B6 NOW brand 100 mg one a day - for curling hands.

Hope this helps every one.

In a message dated 3/10/2011 8:20:29 A.M. Mountain Standard Time,

_muttville@..._ (mailto:muttville@...) writes:

Anyone know the recommended dose of vit. K and C to prevent

hyperpigmentation with minocycline? Also, I have noticed my eyes are dry.

I am 6 months

into AP (100mg once a day, MWF). Anyone else notice dry eyes?

And while I thought I was clear of Raynaud's, this past weekend I was out

in the cold rain for 20 minutes and my fingers turned tomato red and

wouldn't function. A little disappointing to see I'm not over that

symptom, but

still, it was extreme cold/wet conditions so I'm not too surprised.

Harald, thanks for keeping everyone posted on the best sources for

antibiotics. I'm glad you are here. (My grandmother was a Weiss)

Amy

>

> At 05:40 PM 3/7/2011, Kinga wrote:

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.

[Guest guest]

Kinga, I am in Billings, Montana. Don't know where you are in Canada but you

can get a doctor here to prescribe the antibiotics if you are just north of us

and then get them filled in Canada! Of course, chances are you are far, far

away. I began my treatment by flying to Iowa for RX because at that time, i

could not get treated here.

Re: rheumatic vitamin K and C with minocycline

So far I am not on Abx, trying to find a doctor, and in Canada that means not

using our great and wonderful national healthcare program. The few that I found

do most of the testing that is not covered, so while the ABx itself may be

covered by my private insurance, the road to get the Rx will be a long one,

because the workups they do, while I am sure worthwhile, are expensive.

I am however prone to pigmentation just from sun, as I am 1/2 Jewish and 1/2

central european (lighter skin on my dad's side), so I have fair skin, with a

tendency to spot and freckle.

I try to never tan my face, even though my body skin tans nicely. I have had

some pigmentation problems on BCP's in the past. I am hoping that using the C

and K (I take D +K now anyway) will solve the problem.

Kinga

Re: rheumatic vitamin K and C with minocycline

Amy and All,

In regard to the discussion of Vit K and C etc. here is what I have

taken since about 1995 when I was just beginning to fight the battle.

Shopping at a local health food store, I purchase:

Solaray Vitamin K 100 mcg one a day - for pigmentation

PURE vitamin C ascorbic acid crystals - NOW brand - 1/2 tsp in water

along with grapefruit seed extract - 8 drops - every night. - for

pigmentation

Molybedrum 150 mcg this is purchased as Biotics Mo-zyme Forte one a

day - for curling hands

B6 NOW brand 100 mg one a day - for curling hands.

Hope this helps every one.

In a message dated 3/10/2011 8:20:29 A.M. Mountain Standard Time,

_muttville@..._ (mailto:muttville@...) writes:

Anyone know the recommended dose of vit. K and C to prevent

hyperpigmentation with minocycline? Also, I have noticed my eyes are dry.

I am 6 months

into AP (100mg once a day, MWF). Anyone else notice dry eyes?

And while I thought I was clear of Raynaud's, this past weekend I was out

in the cold rain for 20 minutes and my fingers turned tomato red and

wouldn't function. A little disappointing to see I'm not over that

symptom, but

still, it was extreme cold/wet conditions so I'm not too surprised.

Harald, thanks for keeping everyone posted on the best sources for

antibiotics. I'm glad you are here. (My grandmother was a Weiss)

Amy

>

> At 05:40 PM 3/7/2011, Kinga wrote:

> >

> >

> >I am trying to do all my research so that when I do find a doctor

> >willing to prescribe AP, I have the answers.

> >

> >I do have a tendency for brown spots on my skin when I am in the sun

> >even w/o any antibiotics, so I am thinking of trying Doxycycline

> >instead. What is chemical name of brand name Doxycycline.