Re: Re: AP is WORKING!!!!!!!

[Guest guest]

On 3/30/11 7:34 PM, mousetit123 wrote:

>

>

> ...am I missing something?

>

It is about " the standard of care " and it is about the drug companies,

IMHO. My doctor is at the Cleveland Clinic - he gives me the Doxy for

my roseaca - he is a nervous wreck - I see Dr A - I don't think he has

ever had a patient with a high CPK - he gets worried - I'm happy - I

have a buldging disc and my shoulders are shot - that creates great

problems - then again I have almost no sense of taste - probably from

the methotrexate - and 1/2 my face is tingly - probably trigeminal

Carole

>

>

>

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--

Carole S. Stein

President, OnlinePetMemorials.com, Inc.

http://www.rainbowbridgeforpets.com

Proud owner of wood Double Dose RTD

[Guest guest]

Amy,

Minocyline is listed as a disease-modifying anti-rheumatic

(DMARD) drug in " Guidelines for the Management of Rheumatoid

Arthritis, 2002 Update, " of the American College of Rheumatology.

These guidelines can be downloaded an no charge from

<http://onlinelibrary.wiley.com/doi/10.1002/art.10148/pdf>http://onlinelibrary.w\

iley.com/doi/10.1002/art.10148/pdf

I suggest that you download and print out this 20-page document. Once

this hefty document is open on your computer, do a word search on

" minocycline " .

Minocycline was also included as a DMARD by the American College of

Rheumatology in Guidelines published in 2008. Sorry, I don't have a copy.

The following are excerpts from the excellent article " The Use of

Minocycline in the Treatment of Rheumatoid Arthritis " by Beth A.

Malley, RN, CCRC.

" While minocycline is an approved antibiotic, it's not Food and Drug

Administration (FDA) approved for use with RA. Physicians

specializing in rheumatology are within their scope of practice when

prescribing minocycline to treat RA, although it's not a common

practice (Sheil 2008). Minocycline is effective in about 60% of those

who use it for RA, although without FDA approval or official

guidelines, some physicians remain skeptical, waiting for more

evidence related to dosage and long-term use of minocycline (Eustice

2006). As research continues and treatment guidelines change to

include the use of minocycline as an acceptable treatment for mild

RA, physicians may be more comfortable with prescribing this

antibiotic to treat mild rheumatoid arthritis (Eustice 2006).

Since the generic form of minocycline is available, it may never

become FDA-approved for treating RA. This often happens when a

medication becomes available in a generic form, because the testing

and sale of the drug does not become " commercially viable " for

companies to pursue (The Road Back Foundation 2008). "

For the full article, please see

<http://www.encognitive.com/files/The%20Use%20of%20Minocycline%20in%20the%20Trea\

tment%20of%20Rheumatoid%20Arthritis.pdf>http://www.encognitive.com/files/The%20U\

se%20of%20Minocycline%20in%20the%20Treatment%20of%20Rheumatoid%20Arthritis.pdf

(make sure to enter the entire URL)

Sincerely, Harald

At 06:05 AM 3/31/2011, you wrote:

>

>As far as docs shying away from AP, I have been told that it is

>their fear of the American Medical Association (AMA)... .

>

>Thanks, Amy

>

[Guest guest]

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

Well said, Cooky!  Dolores

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic Re: AP is WORKING!!!!!!!

rheumatic

Date: Thursday, March 31, 2011, 11:09 PM

 

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

This is true, but most docs, when pushed against the wall, will only give a 6

months trial period knowing that 6 months is not enough time to do the job

completely and you spend most of that 6 months actually feeling worse because

of the herxing going on.    So, then they can say when the 6 months period

is up that they tried, but it just didn't work.  It took me 5 years with S/D

before I went into remission.  They know it will work if we keep on with A/P,

but what Cooky, said is true.  Besides, they can't make money off of well

people, so they use toxic drugs to keep you sick till you die from the

complications and call it a terminal illness.  Or just keep you sick till you

catch something that you can't fight off because your immune system has been

wiped out and die of pneumonia or something like that.  It is a cruel world and

greed runs it. Dolores

>

>As far as docs shying away from AP, I have been told that it is

>their fear of the American Medical Association (AMA)... .

>

>Thanks, Amy

>

[Guest guest]

Hi Friends,

Had consulltation with hip surgeon yesterday and am on list for 2-3 months down

the road for surgery. On leaving, secretary said they just had cancellation for

April 13th and do I want it! So......that's my plan for surgery, with lots to

do in the next 2 weeks. Since I live alone, I'll go to nursing facility

afterwards (here in my home town) The hospital for surgery is 60 miles from

here.

I'm nervous and excited......and got a true feeling that I'm on the road to

wellness!

Question/concern I have for any feedback:

I haven't been out for long time, and on drive to and from hospital, I got

EXTREMELY car sick (this is not normal for me) Even now talking about it, I

feel sick again. Now, I have to make this trip to hosp. 3 more times before

surgery....and I don't know what to do? Could it be the antibiotics? I thought

having RA was bad....but this is really bad and the feeling stayed with me for

most of the time yesterday and after getting home.

Any thoughts? Sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

Car sickness hmmm!  Talk to doc about taking some dramamine.  Or have driver

stop often.  Don't eat anything heavy prior to the trip.  Best to talk with

doc about everythng so you don't take anything that will make you worse.  There

are patches you can put behind your ear rather than swallow them, but the meds

still get into your blood stream.  Do the research and talk with doc about it

before the trip.  Dolores & Mike

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Re: AP is WORKING!!!!!!!

rheumatic

Date: Friday, April 1, 2011, 1:31 PM

 

Hi Friends,

Had consulltation with hip surgeon yesterday and am on list for 2-3 months down

the road for surgery. On leaving, secretary said they just had cancellation for

April 13th and do I want it! So......that's my plan for surgery, with lots to do

in the next 2 weeks. Since I live alone, I'll go to nursing facility afterwards

(here in my home town) The hospital for surgery is 60 miles from here.

I'm nervous and excited......and got a true feeling that I'm on the road to

wellness!

Question/concern I have for any feedback:

I haven't been out for long time, and on drive to and from hospital, I got

EXTREMELY car sick (this is not normal for me) Even now talking about it, I feel

sick again. Now, I have to make this trip to hosp. 3 more times before

surgery....and I don't know what to do? Could it be the antibiotics? I thought

having RA was bad....but this is really bad and the feeling stayed with me for

most of the time yesterday and after getting home.

Any thoughts? Sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

Sally,

are they taking you by ambulance or are you going by car? If you go by ambulance

ask them to let you sit up, sometimes laying down can make you sick to your

stomach.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Re: AP is WORKING!!!!!!!

rheumatic

Date: Friday, April 1, 2011, 12:31 PM

 

Hi Friends,

Had consulltation with hip surgeon yesterday and am on list for 2-3 months down

the road for surgery. On leaving, secretary said they just had cancellation for

April 13th and do I want it! So......that's my plan for surgery, with lots to

do in the next 2 weeks. Since I live alone, I'll go to nursing facility

afterwards (here in my home town) The hospital for surgery is 60 miles from

here.

I'm nervous and excited......and got a true feeling that I'm on the road to

wellness!

Question/concern I have for any feedback:

I haven't been out for long time, and on drive to and from hospital, I got

EXTREMELY car sick (this is not normal for me) Even now talking about it, I

feel sick again. Now, I have to make this trip to hosp. 3 more times before

surgery....and I don't know what to do? Could it be the antibiotics? I thought

having RA was bad....but this is really bad and the feeling stayed with me for

most of the time yesterday and after getting home.

Any thoughts? Sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

Eva,

I'm going by car. In Jan, and in Feb I had local doc apt where a van picked me

up. Only l mile to apts, but I noticed then on how car sick I felt and was

surprised and wondered what was going on. Then, going longer distance yesterday

by car, it was really bad. I have call in to my doc. Sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

Sally

 if you go by car, yes, I think you need something to be okay when traveling.

Hope everything goes well. Let me know how you are doing after you get home.

Take care, love you.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Re: AP is WORKING!!!!!!!

rheumatic

Date: Friday, April 1, 2011, 12:31 PM

Hi Friends,

Had consulltation with hip surgeon yesterday and am on list for 2-3 months down

the road for surgery. On leaving, secretary said they just had cancellation for

April 13th and do I want it! So......that's my plan for surgery, with lots to do

in the next 2 weeks. Since I live alone, I'll go to nursing facility afterwards

(here in my home town) The hospital for surgery is 60 miles from here.

I'm nervous and excited......and got a true feeling that I'm on the road to

wellness!

Question/concern I have for any feedback:

I haven't been out for long time, and on drive to and from hospital, I got

EXTREMELY car sick (this is not normal for me) Even now talking about it, I feel

sick again. Now, I have to make this trip to hosp. 3 more times before

surgery....and I don't know what to do? Could it be the antibiotics? I thought

having RA was bad....but this is really bad and the feeling stayed with me for

most of the time yesterday and after getting home.

Any thoughts? Sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

thanks Eva! sally

RE: rheumatic Re: AP is WORKING!!!!!!!

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

I agree, we shouldn't be too loud to individual docs, but we need to put

pressure on the medical boards, and perhaps in countries like UK or Canada

(Canada is a joke though, a fully funded healthcare puppet of the USA), where

the gov't pays, the gov't may be interested in saving money. Even if gov'ts dont

pay for drugs all the time they do pay for all those X-rays, rheumys' time, and

sometimes Remicade infusions which are expensive. I am also on LDN, and in

Scotland they are having some success lobbying the gov't to pay for clinical

trials. The prob with a clinical trial in the Abx therapy is the very long term

nature, as it is unethical to do placebo for years and years as patients

detiriorate. However there is long standing research data that could push a

gov't who pays for health care to have their FDA approve this use of Minocin or

Doxy.

Given that it is brand name Minocin that works best, the company that makes it

could do a clinical against a generic and likely prove that the brand name works

better, they will sell more brand name Minocin, but I bet the same company sells

biologics and methotrexate which (esp biologics) are much more lucrative.

Still, if they did a clinical on kids with Erythromicin, if they have rheumatic

disease, or even on adults with the intent of prescribing to kids (if they

aren't allowed to do clinicals on kids), the protocol would be better known, and

the pediatric rheumys could educate the others.

It's terrible how few docs are willing to think outside the box.

Kinga

RE: rheumatic Re: AP is WORKING!!!!!!!

rheumatic

Date: Thursday, March 31, 2011, 11:09 PM

That's great news. I agree I wish everyone with joint, etc problems would

get on AP. As for your doc..it's called the good ol boys club. If he does

this treatment on his patients he will be black balled just like Doc Brown

was! He will also cause a lot of rheumys to lose patients (oh no) and then

they would also be mad at him. There is nothing any of us can do. As a

matter of fact the more we push the worse it can be because they will

contact the medical board and get a ban on antibiotics for people not having

specific reasons for antibiotics. They are already saying over use of

antibiotics are causing problems, when it is really people who do not finish

their antibiotics or have bad immune systems and are not responding to the

antibiotics (in my opinion).

So just enjoy your start of remission and whisper the treatment to others

(just joking).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of mousetit123

So glad to hear it! See my posting. I now use Vibramycin (the generics did

not work in the long run) one month, then minocycline (generic) the next

month. I only take 100mg on Mon, Tues, Thurs & Friday. I am 100% " normal " as

far as flexibility of all my fingers, no pains in any joints, and good

energy level. I am not ready to go off the antibiotics. In a couple more

months I will drop back to 100 mg just mon-wed-fri. And do that for at least

six months. My Dr. lets me decide how much and how often to take the

drugs...he honestly cannot believe how well I am doing, and still will not

recommend this treatment to his other patients. (BIG PHARMA has stolen his

soul!! At least he let me use the treatment...he was sure I would fail, and

that would be the end of that. HA HA HA!!! Now he is stuck with me. Plus,

all the blood tests keep coming back with liver and kidney functions all

perfectly normal and healthy, and blood levels all really good. Even the RA

level has dropped significantly. And yet, he will not recommend this

treatment....am I missing something?

---

[Guest guest]

I guess the only thing to do is to find a new doc after 6 months and lie and say

you are just starting.

Kinga

Re: rheumatic Re: AP is WORKING!!!!!!!

This is true, but most docs, when pushed against the wall, will only give a 6

months trial period knowing that 6 months is not enough time to do the job

completely and you spend most of that 6 months actually feeling worse because of

the herxing going on. So, then they can say when the 6 months period is up

that they tried, but it just didn't work. It took me 5 years with S/D before I

went into remission. They know it will work if we keep on with A/P, but what

Cooky, said is true. Besides, they can't make money off of well people, so they

use toxic drugs to keep you sick till you die from the complications and call it

a terminal illness. Or just keep you sick till you catch something that you

can't fight off because your immune system has been wiped out and die of

pneumonia or something like that. It is a cruel world and greed runs it.

Dolores

>

>As far as docs shying away from AP, I have been told that it is

>their fear of the American Medical Association (AMA)... .

>

>Thanks, Amy

>

[Guest guest]

Well, that would mean that every six months you would be doing another search

and if reaching remission takes several years, that alone could be exhausting. 

What I did with my first doc who was a dermatologist and gave me the first idea

that I probably had Scleroderma was take the 6 month script and use my time to

find an A/P specialist who happened to be recommended to me by The Roadback.org

people on line.  He was a specialist well know rheumatologist and Professor at

Harvard who followed Dr. Browns protocol and headed the MIRA studies

(Minocycline In Rheumatoid Arthritis).  We flew to Boston three weeks later and

I had my A/P Doc.  I now live in P.R. and have saved all my records from when

my ANA was 1:640 and my RF was in the 80's to when I went into remission 5

years later and both numbers were at 0.  The docs I go to now have nothing to

say when they see the proof on paper and lab slips. They write the

scripts. Besides, I quit fighting

with Rheumatologists a long time ago and find I have better rapport with

infectious disease docs.  After all, Dr. Brown proved that S/D is a disease of

infectious origin and I have proof that I have the antibiodies in my body from

mycoplama and was also infected virally with Epstein Barr and Cytomegalo. It is

a disease that affects the immune system, but I refuse to call it an autoimmune

disease that needs the immune system to be shut down.  That does not even make

sense. One needs an intact immune system to protect itself.   My main problem

was not with the docs.  It was with the insurance company who did not want

to pay for brand name which is the only one that the Boston doc said I should

take.  They told me that Triax had stopped manufacturing it.  So, I called

Triax directly and found that it was a lie.  They were manufacturing and asked

me for my Pharmacy phone #.  Within 24 hours I had my medication. It is a

fight, but worth it to go

directly and not have to start with a new rheumatologist every six months and

then some of them flatly refuse.  That is how I found an infectious disease doc

and that makes more sense.  Why bother with a rheumatologist when all they want

to do is suppress your immune system.  That is what they are taught and will

lose their capability to doctor if caught.  Catch 22 situation.  One

Rheumatologist I originally went to believed me, but couln't help me.  He did

steer me to the Infectious disease doc and that was the best thing he did for

me.  Dolores  

 

>

>As far as docs shying away from AP, I have been told that it is

>their fear of the American Medical Association (AMA)... .

>

>Thanks, Amy

>