Re: Pulmonary Hypertension: Pressure Reduced While on Antibiotic Protocol

[Guest guest]

A BIG Congrats and I hope you keep progressing down to 0! Thank God for AP.

cooky

Subject: rheumatic Pulmonary Hypertension: Pressure Reduced While on

Antibiotic Protocol

Hello everyone,

In January of this year, I had reported that since starting the Antibiotic

Protocol in August of 2010, my ANA had gone down from an all-time high of

1:1280 to 1:160. This post is located here:

rheumatic/message/54642?var=1

<rheumatic/message/54642?var=1 & l=1>

& l=1

I promised at the time that I would return to report the results of my March

2011 echocardiogram when they came in to see if my pulmonary hypertension

pressure has also gone down.

For the past three years, I have been dismayed to watch it go up from 29, to

34, to 41 in June 2010. I have been seeing a pulmonary hypertension

specialist who is aware I am on AP but does not specifically endorse it. I

am pleased to report that since being on AP for nine months, this month's

echocardiogram shows a reduced pressure of 33!

My PH specialist is thrilled and told me " Keep doing what you are doing. " I

would strongly suggest that if you have scleroderma and are staring down the

abyss of pulmonary hypertension that you consider AP if you haven't already!

[Guest guest]

Hello, so happy to hear that you are improving!! I've been diagnosed with SD and

have been on the AP protocol since 2003. I was doing well until just recently

when I was dx with pulmonary hypertension. I see Dr. Franco and he wants me to

take Bosenten - I think its also called Tracleer. So even though I do firmly

believe that the AP help me improve from the worst symptoms I first had, it did

not keep the ph away so I have mixed feelings. I've been on only oral clindy

for a few years because Dr. Franco thinks the Minocin caused a problem with

vasculitis. I don't understand my numbers but I recently had an angiogram and

part of the results state that I have a mean pulmonary artery systolic pressure

of 41 mmHg. Are you taking anything besides antibiotics for your ph? If anyone

who is reading this post has any advice or info that would be helpful I would

appreciate hearing from you. Thanks!

>

> Hello everyone,

>

> In January of this year, I had reported that since starting the Antibiotic

Protocol in August of 2010, my ANA had gone down from an all-time high of 1:1280

to 1:160. This post is located here:

rheumatic/message/54642?var=1 & l=1

>

> I promised at the time that I would return to report the results of my March

2011 echocardiogram when they came in to see if my pulmonary hypertension

pressure has also gone down.

>

> For the past three years, I have been dismayed to watch it go up from 29, to

34, to 41 in June 2010. I have been seeing a pulmonary hypertension specialist

who is aware I am on AP but does not specifically endorse it. I am pleased to

report that since being on AP for nine months, this month's echocardiogram shows

a reduced pressure of 33!

>

> My PH specialist is thrilled and told me " Keep doing what you are doing. " I

would strongly suggest that if you have scleroderma and are staring down the

abyss of pulmonary hypertension that you consider AP if you haven't already!

>

[Guest guest]

No, the only other thing is low dose naltrexone, which is supposed to be good

for autoimmune issues, but it hasn't reduced my pressure. I'm a little

surprised they wanted to medicate you with a pressure as low as 41. Is an

angiogram similar to a right heart catheterization or is it more like an

echocardiogram? The reason I ask is that even when my pressure was 41, my doctor

said we are just going to watch it for now and not medicate.

> >

> > Hello everyone,

> >

> > In January of this year, I had reported that since starting the Antibiotic

Protocol in August of 2010, my ANA had gone down from an all-time high of 1:1280

to 1:160. This post is located here:

rheumatic/message/54642?var=1 & l=1

> >

> > I promised at the time that I would return to report the results of my March

2011 echocardiogram when they came in to see if my pulmonary hypertension

pressure has also gone down.

> >

> > For the past three years, I have been dismayed to watch it go up from 29, to

34, to 41 in June 2010. I have been seeing a pulmonary hypertension specialist

who is aware I am on AP but does not specifically endorse it. I am pleased to

report that since being on AP for nine months, this month's echocardiogram shows

a reduced pressure of 33!

> >

> > My PH specialist is thrilled and told me " Keep doing what you are doing. " I

would strongly suggest that if you have scleroderma and are staring down the

abyss of pulmonary hypertension that you consider AP if you haven't already!

> >

>

[Guest guest]

Yes, its the same as a right heart catherization. I really feel like I need to

get a second opinion which is what I'm going to do. I wish you many blessings

and may you continue to improve.

> > >

> > > Hello everyone,

> > >

> > > In January of this year, I had reported that since starting the Antibiotic

Protocol in August of 2010, my ANA had gone down from an all-time high of 1:1280

to 1:160. This post is located here:

rheumatic/message/54642?var=1 & l=1

> > >

> > > I promised at the time that I would return to report the results of my

March 2011 echocardiogram when they came in to see if my pulmonary hypertension

pressure has also gone down.

> > >

> > > For the past three years, I have been dismayed to watch it go up from 29,

to 34, to 41 in June 2010. I have been seeing a pulmonary hypertension

specialist who is aware I am on AP but does not specifically endorse it. I am

pleased to report that since being on AP for nine months, this month's

echocardiogram shows a reduced pressure of 33!

> > >

> > > My PH specialist is thrilled and told me " Keep doing what you are doing. "

I would strongly suggest that if you have scleroderma and are staring down the

abyss of pulmonary hypertension that you consider AP if you haven't already!

> > >

> >

>