Re: : Question about L-Lysine

[Guest guest]

Hi ,

My name is Anne and I've been a silent part of rheumatic group for nearly

three years. I have RA and I am not improving, I was on AP for almost three

years and achieved almost total remission. However, after severe stress

that entered my life over two years ago RA hit me with such force that

nothing seems to help anymore. I am much worse than before my remission.

In desperation I tried Methotrexate and Plaquenil with no improvement, only

side effects. I have not gathered enough courage to try Enbrel or Humira

yet. A few weeks ago some members of this group were exchanging information

about L-Lysine. I was wondering if it helped anyone?

[Guest guest]

I'm sorry to hear that you are doing so poorly.  I'm in a similar situation.

 I've been on AP two years, did pretty well last year until I had a big family

stress situation and I've been flaring pretty badly ever since.  

About the L-Lysine. I took it for several months and felt no difference.  I

stopped taking it.

I wish I had better things to say, but unfortunately, I do not.

Beth

From: Wisniewski <gwisniewski@...>

Subject: Re: rheumatic: Question about L-Lysine

rheumatic

Date: Sunday, January 2, 2011, 7:59 PM

Hi ,

My name is Anne and I've been a silent part of rheumatic group for nearly

three years.  I have RA and I am not improving, I was on AP for almost three

years and achieved almost total remission.  However, after severe stress

that entered my life over two years ago RA hit me with such force that

nothing seems to help anymore.  I am much worse than before my remission.

In desperation I tried Methotrexate and Plaquenil with no improvement, only

side effects.  I have not gathered enough courage to try Enbrel or Humira

yet.  A few weeks ago some members of this group were exchanging information

about L-Lysine.  I was wondering if it helped anyone? 

[Guest guest]

Anne hi.

Do you live in Pittsburgh? There are Wisniewski's here.

Sorry to say I am in the same boat after being on AP since 1997. Last March

I put in a new kitchen with my hubby flared. Since then I have had more

joints effected than I started with in March. I have been doing cleanses and

have started back on IV's.

I am sending you a note Ethel sent a while back. I hope this helps. It is

for a plateau but maybe you can get some ideas from it.

Hugs,

cooky

The following is from the FAQ on www.rheumatic.org. Additional comment is

mine and is in red.

Ethel

" 13. I HAVE BEEN ON 100 MG. OF MINOCYCLINE MONDAY, WEDNESDAY AND FRIDAY FOR

SIX MONTHS AND HAVE SEEN NO RESPONSE. CAN I STILL EXPECT IMPROVEMENT?

Yes, however you should have some indication by this time that the

antibiotic is working for you. Your doctor needs to do a little detective

work at this point. (I've known cases including mine where it took a lot

longer than six months to see any sign of improvement. For me, it was well

over a year before I saw any sign that the therapy may be working. In fact,

for most of that time I got progressively worse. Years ago there was a woman

on this group that didn't see improvement for nearly 5 years! Was that woman

ever glad she hadn't decided to give up.) Here are some things to check:

a. Laboratory tests should be run again. Often improvement in these tests

will precede improvement of symptoms.

b. If you are on a generic minocycline, change manufacturers or switch to

the brand name. Patients have discovered that not all generic minocycline or

doxycycline is equivalent. Many physicians prescribe the brand name to avoid

this risk.

c. Try a different antibiotic. All patients may not respond to minocycline

or doxycline. Some physicians add Zithromax. If you are taking the

minocycline Monday, Wednesday and Friday, the dose for the Zithromax is 250

mg. twice daily Tuesday and Thursday.

(Adding an anti-fungal may be necessary. There have been reports of success

using the combination Minocin, Flagyl and Nystatin. The liver should be

monitored closely when using anti-fungals.)

d. Try one antibiotic in the morning and a different one at night, or

sequence them taking one for six weeks and then switching to another for six

weeks.

e. If your disease is severe, long standing or very resistant, and you are

only on oral antibiotics, you will need to add intravenous therapy.

f. Look for other sources of infection in the sinuses, allergies, root

canals (www.altcorp.com), intestinal tract, etc. that may be impeding your

progress and must be addressed for optimum benefit from this therapy. The

first area to check is the intestinal tract for candida overgrowth and leaky

gut. There are special labs that perform these tests:

Immuno-Science Lab in Beverly Hills, CA - candida

www.immuno-sci-lab.com or 1-800-950-4686

AAL Reference Laboratories, Inc. in Santa Ana, CA - candida

www.antibodyassay.com or 1-800-522-2611

Genova Diagnostics, Ashville, NC - candida and the lactulose mannitol test

for leaky gut

www.gdx.net - 1-800-522-47

g. Were you tested for strep? If the results were positive, treatment should

be prescribed. (See Section 12.) The strep organism can be very difficult to

eradicate, so even after the titer returns to normal, the patient should be

monitored for some time for recurrence. The goal of the therapy is to remove

antigen wherever it may be found in the body in order to achieve optimum

benefit from this therapy.

h. Are you deficient in antibody? Perhaps intravenous immunoglobulin is

necessary.

i. Did your doctor have the mycoplasma test run? It should be run for the

entire panel and not just for M. pneumoniae. The first test may be negative

if the immune system is too weak to mount an antibody attack to the

organism. Therefore, it is important to repeat the test within 3 to 6

months. If it is still negative, the medication should be changed. The

tetracycline antibiotic still works in some instances of a negative reading.

If the cause is viral the antibiotic therapy may fail. Additionally, the

cause could be streptococcus infection compounded with a mycoplasma

infection or vice versa.

Laboratories performing this special mycoplasma testing are listed on this

web site in the section titled 'Information for You and Your Doctor'.

j. Are there hormonal imbalances that need correcting?

k. Chronic neurotoxins may be another reason for lack of response to this

therapy. These toxins are low molecular weight, fat soluble toxins,

sequestered in the adipose tissues of the body. Rather than being eliminated

normally, they are reabsorbed and continue to be accumulated and circulated

in the body. They impact the nervous system, the endocrine system and the

immune system. (Patients report improvement in brain fog and ability to

concentrate when these toxins are removed.) There is a vision test available

on the net that can be taken to determine if neurotoxins are present. For

more information visit Dr. Ritchie Shoemaker's site -

www.chronicneurotoxins.com. Dr. Shoemaker has written a book on this subject

titled 'Desperation Medicine'. [Note: Not all neurotoxins respond to the

therapy developed by Dr. Shoemaker. Neurotoxins unresponsive to Dr.

Shoemaker's protocol may be helped by the protocol of Dr. Kane.

www.detoxxbook.com or www.bodybio.com

l. E. Berg, director of Hemex Laboratories in Phoenix, AZ has

discovered that a number of infections, including mycoplasmas, can trigger

the blood clotting system to become active, preventing oxygen and

antibiotics from reaching and destroying the pathogen. This is called

hypercoagulation. The Hemex Lab ISAC panel can be run to determine if this

is a problem. If this test is positive, appropriate blood thinning agents

may be prescribed. For more information go to www.hemes.com or call

1-800-999-2568. Check with your physician for non-prescription agents that

may be appropriate.

m. Consider testing for Lyme Disease which mimics so many rheumatic

diseases. Refer to Sections 1 and 18 for more information on Lyme Disease.

If a patient has been experiencing improvement on this therapy and then

notices that progress has stopped or he/she even seems to be regressing, the

information in this section will aid their doctor in determining what is

impeding that progress.

Dr. Lida Matman (now deceased), was considered the authority on stealth

pathogens, and she said there are times when a patient may plateau on a

therapy and the cause may be that there is an underlying organism that needs

a different antibiotic to eradicate, and once eradicated you can go back on

the first antibiotic and it will begin working for you again.

[Guest guest]

I took L-lysine with red marine algae for 2-3 months. I gradually increase the

dose of L-lysine to 6 g a day (12*500 mg). It did help me with pain. I stopped

taking both red algae and L-lysine because of a severe constipation. somebody

from this group told me the constipation was caused by red marine algae. I

saw in an article that daily 8 g dose has helped some people with severe

rheumatide pain.      

 

- On Sun, 1/2/11, Beth Fletcher <kbf23@...> wrote:

From: Beth Fletcher <kbf23@...>

Subject: Re: rheumatic: Question about L-Lysine

rheumatic

Date: Sunday, January 2, 2011, 7:24 PM

 

I'm sorry to hear that you are doing so poorly.  I'm in a similar situation.

 I've been on AP two years, did pretty well last year until I had a big family

stress situation and I've been flaring pretty badly ever since.  

About the L-Lysine. I took it for several months and felt no difference.  I

stopped taking it.

I wish I had better things to say, but unfortunately, I do not.

Beth

From: Wisniewski <gwisniewski@...>

Subject: Re: rheumatic: Question about L-Lysine

rheumatic

Date: Sunday, January 2, 2011, 7:59 PM

Hi ,

My name is Anne and I've been a silent part of rheumatic group for nearly

three years.  I have RA and I am not improving, I was on AP for almost three

years and achieved almost total remission.  However, after severe stress

that entered my life over two years ago RA hit me with such force that

nothing seems to help anymore.  I am much worse than before my remission.

In desperation I tried Methotrexate and Plaquenil with no improvement, only

side effects.  I have not gathered enough courage to try Enbrel or Humira

yet.  A few weeks ago some members of this group were exchanging information

about L-Lysine.  I was wondering if it helped anyone? 

[Guest guest]

Hello,

I am extremely saddened that you went into remission, and now worse. I'm RA 4

years, and been on AP 6 months (too early for any results) I've been homebound

most of the 4 years. Briefly when I was on methotrexate and prednisone, I was

able to get out some and have a little life back. Stopped the drug 3 years ago.

I often think of going with drugs just to get a life....and yet wonder if they

would work.

I pray for all of us here. Don't be silent. You need us, we need you. Sally

Re: rheumatic: Question about L-Lysine

Hi ,

My name is Anne and I've been a silent part of rheumatic group for nearly

three years. I have RA and I am not improving, I was on AP for almost three

years and achieved almost total remission. However, after severe stress

that entered my life over two years ago RA hit me with such force that

nothing seems to help anymore. I am much worse than before my remission.

In desperation I tried Methotrexate and Plaquenil with no improvement, only

side effects. I have not gathered enough courage to try Enbrel or Humira

yet. A few weeks ago some members of this group were exchanging information

about L-Lysine. I was wondering if it helped anyone?

[Guest guest]

Have you tried low dose naltrexone? There is a group for RA and ldn.