Re: Minocin Question for Dolores

[Guest guest]

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

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[Guest guest]

Just re-read my post and it said I have been on minocycline for 100 months.

I had to laugh at that one, don't know how that happened. I have been on

minocycline for 11 months.

Gail

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[Guest guest]

My doctor also in Boston, who is the head of Rheumatology at Beth Israel

Deaconess Hospital  and has his office on the Harvard Campus, was the first doc

to put me on Minocin.  He specified that I only should take the Name Brand

Minocin and wrote no substitutions on the prescription.  I took 100mg twice a

day for 18 months.  From the first month on, I started noticing that all my

symptoms were falling by the wayside. By the 18th month, I was in remission,

meaning that I had no more symptoms and blood work and inflammation were gone. 

I was able to move every which way, my Raynaud's had disappeared.  I had

calcinosis which disappeared.  My skin was smooth and soft as a baby's butt.  I

felt great.  Continued to take the Minocin (Brand only) and in Sept of '07, I

went on the Marshall Protocol.  At this point most people asked why, if I was

doing so well. 

 

The reason I went from A/P to M/P is because I read that the high dose of

Minocin while decreasing the inflammation was too high to kill off the

micoplasmas and that a lower pulsed dose would wipe out all the bacteria.  I

have been on M/P for about a year and a half.  I was told I would get sicker

before I would get better.  They were right.  None of myold symptoms came back,

but I developed some new ones.  Mostly tired, sleep problems and general aches &

pains.  The worst was the on and off again bouts of diarrhea.  That is now

starting to recede.  Since MP requires one to be out of the sun and wear No

infrared dark glasses when outside, my sleep disturbance actually worked in my

favor.  I slept most of the daylight and went out food shopping at stuff after

dark.  Easier done in the winter.  I am now preparing to start Phase 3 and am

putting it off till next month.  I have moved to Florida because in addition to

Scleroderma, I have or had

pulmonary fibrosis.  Breathing in cold air as in NY was very painful last

winter.  First I moved to Southern Texas and then to Northern Fl.  The intense

cold was gone and so were the horrible chest pains when breathing in cold air. 

I now have a new Infectious Disease doctor who is intent on finding every

microbe I may have left and attacking that.  Am still following the Marshall

Protocol, There is more leeway with the 3rd phase.  And room for modification. 

I can't answer whether the generic or brand name is better, since I have only

ever taken the brand.  Hope this answers your questions.  Feel free to ask

anytime.  The best to you. Dolores & Mike

From: ONYX8257@... <ONYX8257@...>

Subject: Re: rheumatic Minocin Question for Dolores

rheumatic

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

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[Guest guest]

Dolores,

are you getting your Minocin here in the States? I thought you couldn't get it

anymore. I want the real stuff to get well. I only get Minocyclin.

Eva

From: ONYX8257aol (DOT) com <ONYX8257aol (DOT) com>

Subject: Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

62%26bcd= De

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[Guest guest]

I ordered loads of it when I was in Texas and still have enough for at least

another year.  I get the brand name minocin only.  Always have!  Dr. Trentham

used to give me enough to last a year and with refills to boot.  So, I have

plenty which hopefully will get me through Phase 2 of the M/P.  My new doc

hasn't given me any scripts yet as we are still in the investigative stage. 

Once he knows what organisms we are fighting, then I expect he will moderate my

medications to suit.  BTW, How are you doing?  Give our best to Burl... I cut

back on some of my Benicar and am feeling a bit better.  We shall see if this

lasts.  Take care  All our best, Dolores & Mike

From: ONYX8257aol (DOT) com <ONYX8257aol (DOT) com>

Subject: Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

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[Guest guest]

I'm not Dolores, and you can buy the real thing here in the States, though I

just cannot afford what it costs here. A month ago I checked again locally with

Wal-Mart Pharmacy, as I feel badly about purchasing it out of the U.S., but a 3-

months supply for me (72 capsules) they priced at $1,197.00! I can get 100

capsules out of Canada from Buy Low Drugs for under $200. I'm a single elderly

woman, and even that's a struggle for me. So Wal-Mart simply prices themselves

out of a sale with me!

Laretta

Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

62%26bcd= De

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[Guest guest]

Hi,

I'm new to this group and have been reading the posts about Minocin. I'm

wondering why the meds cost so much. I live in Australia and our Government

subsidises certain medications and caps the cost of them at around $35 and if

you are on the pension and get a concession you only pay $5.30. I was on Humira

for several months and the most I paid for each prescription was $5.30. I can't

believe that in the States you have to pay so much for your medications. Doesn't

the government help you at all?

from

Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

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[Guest guest]

 

Hi, This is Dolores again.  After reading the posts, I realized that I didn't

fully answer the question re: the cost and ease of getting the Minocin. I am

also elderly and on Social Security.  I get my meds thru a mail order service

based in Texas.  Been on that thru medicare part D. since they started part D. 

So, I only pay a co-pay of $1.00-$2.00 for generic and it was $3.50 for brand

name, but it has just gone up to $6.00.  In order to qualify for this your bank

account must be nil and your income must be below the poverty level.  If you

have money and assests, you will be billed accordingly.  We had lost all of our

assests back in 1992 when my husband had 2 strokes, an amputation, torn

pancreas, surgery gone amuk, etc. Our medical bills took away our complete

savings, our home, our car and anything else we had and my husband went on

disability.  Except for our old Winnebago, we would have been left homeless. 

For 6 years, we concentrated

on his recovery from the strokes and it paid off. You would not know today that

he was a victim of strokes, etc.  We were just getting back on our feet when I

got sick.  Sometimes, there is no way of climbing out of poverty, so we made the

best of it and still manage to enjoy life. I hope this answered your question. 

I am now 72 yrs. old and do not think I can go back to work, ever.  The best to

you, Dolores

From: ONYX8257aol (DOT) com <ONYX8257aol (DOT) com>

Subject: Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

62%26bcd= De

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[Guest guest]

Dolores,

Reading your last e-mail gave me such chills. I feel so horrible for you guys.

You've been through so much. Yet, you both keep on going and going and going,

and you do it together You guys are amazing. Keep it up! Our system really

stinks!

Mona

Re: rheumatic Minocin Question for Dolores

rheumatic@grou ps.com

Date: Wednesday, January 14, 2009, 9:52 PM

Hi Dolores, I have read many of your posts, and if I remember correctly, you

either attained remission in 18 months, or have been in remission from SD for

18 months. I thought what better person to ask what you thought about minocin

vs. minocycline, and which did the trick for you. I have been on minocycline

for 100 months. My doctor, in Boston, tells me minocin is not necessary, and

gave me the scrips for minocycline. Of course I would feel a whole lot more

comfortable with the minocin. I wondered what you thought.

Thanks

Gail

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

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[Guest guest]

,

In the Sates, our government has primarily been helping the

pharmaceutical companies and other large businesses at the expense of

consumers. Hopefully the new Obama administration will work to change

that. But enough said, since our Group is not supposed to be political.

Sincerely, Harald

At 04:51 PM 1/15/2009, you wrote:

>Hi,

>I'm new to this group and have been reading the posts about Minocin.

>I'm wondering why the meds cost so much. I live in Australia and our

>Government subsidises certain medications and caps the cost of them

>at around $35 and if you are on the pension and get a concession you

>only pay $5.30. I was on Humira for several months and the most I

>paid for each prescription was $5.30. I can't believe that in the

>States you have to pay so much for your medications. Doesn't the

>government help you at all?

>from

>

[Guest guest]

Hi ,  The Big Pharm is in it for the profits not for the people! 

Dolores

>Hi,

>I'm new to this group and have been reading the posts about Minocin.

>I'm wondering why the meds cost so much. I live in Australia and our

>Government subsidises certain medications and caps the cost of them

>at around $35 and if you are on the pension and get a concession you

>only pay $5.30. I was on Humira for several months and the most I

>paid for each prescription was $5.30. I can't believe that in the

>States you have to pay so much for your medications. Doesn't the

>government help you at all?

>from

>