Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 what was your first days like Kate. What did you experience? On Thu, Jul 15, 2010 at 9:42 AM, Celia <DustBunniesAndBooks@...>wrote: > > > For anyone who has taken LDN (low dose naltrexone), could you please > describe your first night? > > I just took my first dose last night and did not have a good > experience. About 3.5 hours after I took it, I woke and felt weak, > very spacey, a bit like I couldn't quite catch my breath, and my blood > pressure over the next 2.5 hours fluctuated up and down from 137/89 at > its highest (when I first got up and felt weird) to 101/74 at its > lowest. (Our cuff tends to read the numbers a tad higher than a > doctor's office.) > > I did take my adrenal support supplement yesterday at lunch > time....don't know if that matters. > > I have appointment with my doctor later, but I'd love to know what > others experienced (especially before I go to the doctor). Thanks! > --Celia <>< > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I, too, am starting LDN soon. Doctor says it is more effective than the hydrocortizone I was taking with less side effects. The two side effects to warned me about is the vivid dreaming I may experience and do not drink any alcohol when taking this drug. Should I expect anything else? Donna rheumatic XP: First Night of LDN question For anyone who has taken LDN (low dose naltrexone), could you please describe your first night? I just took my first dose last night and did not have a good experience. About 3.5 hours after I took it, I woke and felt weak, very spacey, a bit like I couldn't quite catch my breath, and my blood pressure over the next 2.5 hours fluctuated up and down from 137/89 at its highest (when I first got up and felt weird) to 101/74 at its lowest. (Our cuff tends to read the numbers a tad higher than a doctor's office.) I did take my adrenal support supplement yesterday at lunch time....don't know if that matters. I have appointment with my doctor later, but I'd love to know what others experienced (especially before I go to the doctor). Thanks! --Celia <>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Thanks for the note on drinking. I didn't know this. Do you know why one can't drink? Celi , I have been taking ldn for about 6 wks now and thank God no side effects. It had been working very well for me. Hope it works out for you. Sent on the Sprint® Now Network from my BlackBerry® Re: rheumatic XP: First Night of LDN question I, too, am starting LDN soon. Doctor says it is more effective than the hydrocortizone I was taking with less side effects. The two side effects to warned me about is the vivid dreaming I may experience and do not drink any alcohol when taking this drug. Should I expect anything else? Donna rheumatic XP: First Night of LDN question For anyone who has taken LDN (low dose naltrexone), could you please describe your first night? I just took my first dose last night and did not have a good experience. About 3.5 hours after I took it, I woke and felt weak, very spacey, a bit like I couldn't quite catch my breath, and my blood pressure over the next 2.5 hours fluctuated up and down from 137/89 at its highest (when I first got up and felt weird) to 101/74 at its lowest. (Our cuff tends to read the numbers a tad higher than a doctor's office.) I did take my adrenal support supplement yesterday at lunch time....don't know if that matters. I have appointment with my doctor later, but I'd love to know what others experienced (especially before I go to the doctor). Thanks! --Celia <>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I found this on a blog. My doctor just said it could set my progress backward. This was posted by Skip in the LDN group a couple of days ago ----------- This is exactly the point. Its interesting how things get filitered but here is the story: Last year the day before I went to Scotland for the conference, I got a call from a lady that: 1. doesn't usually drink much ie a couple glasses of wine a week. 2. started on ldn, stopped alcohol. 3 2 months later, at 4.5mg, had a glass of wine and had projectile vomiting. don't care what the " books " say, I am just reporting what I heard, directly from the lady. 4. went to scotland and sat around a table of the " big wigs " who were all drinking. I stepped back waiting for the show to begin. Nothing happened. 5. I am a licensed professional, what i say actually matters from a legal perspective, what I say matter from a moral point of view, don't drink. you might get really sick. for those of you who drink, that's YOUR call, but lets say that you tell some one that its ok, when its not, and that person gets sick, No sweat off your butt, but the person affected is not happy and YOU created that problem. so you want to drink fine, its your butt, but just because you think you Know something, doesn't mean its true. True for what I say, yes, but if you follow my advice you won't get sick. Dr.Skip rheumatic XP: First Night of LDN question For anyone who has taken LDN (low dose naltrexone), could you please describe your first night? I just took my first dose last night and did not have a good experience. About 3.5 hours after I took it, I woke and felt weak, very spacey, a bit like I couldn't quite catch my breath, and my blood pressure over the next 2.5 hours fluctuated up and down from 137/89 at its highest (when I first got up and felt weird) to 101/74 at its lowest. (Our cuff tends to read the numbers a tad higher than a doctor's office.) I did take my adrenal support supplement yesterday at lunch time....don't know if that matters. I have appointment with my doctor later, but I'd love to know what others experienced (especially before I go to the doctor). Thanks! --Celia <>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Donna, Thanks again and appreciate info I would otherwise not have known. Ldn is working so well for me I don't want to chance any set backs. Kathy Sent on the Sprint® Now Network from my BlackBerry® Re: rheumatic XP: First Night of LDN question I found this on a blog. My doctor just said it could set my progress backward. This was posted by Skip in the LDN group a couple of days ago ----------- This is exactly the point. Its interesting how things get filitered but here is the story: Last year the day before I went to Scotland for the conference, I got a call from a lady that: 1. doesn't usually drink much ie a couple glasses of wine a week. 2. started on ldn, stopped alcohol. 3 2 months later, at 4.5mg, had a glass of wine and had projectile vomiting. don't care what the " books " say, I am just reporting what I heard, directly from the lady. 4. went to scotland and sat around a table of the " big wigs " who were all drinking. I stepped back waiting for the show to begin. Nothing happened. 5. I am a licensed professional, what i say actually matters from a legal perspective, what I say matter from a moral point of view, don't drink. you might get really sick. for those of you who drink, that's YOUR call, but lets say that you tell some one that its ok, when its not, and that person gets sick, No sweat off your butt, but the person affected is not happy and YOU created that problem. so you want to drink fine, its your butt, but just because you think you Know something, doesn't mean its true. True for what I say, yes, but if you follow my advice you won't get sick. Dr.Skip rheumatic XP: First Night of LDN question For anyone who has taken LDN (low dose naltrexone), could you please describe your first night? I just took my first dose last night and did not have a good experience. About 3.5 hours after I took it, I woke and felt weak, very spacey, a bit like I couldn't quite catch my breath, and my blood pressure over the next 2.5 hours fluctuated up and down from 137/89 at its highest (when I first got up and felt weird) to 101/74 at its lowest. (Our cuff tends to read the numbers a tad higher than a doctor's office.) I did take my adrenal support supplement yesterday at lunch time....don't know if that matters. I have appointment with my doctor later, but I'd love to know what others experienced (especially before I go to the doctor). Thanks! --Celia <>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hello Group, in order to avoid the LDN side effects like insomnia, I dissolved the 4.5 mg LDN in 5 ml distilled water and started by taking one drop the first night, then increased to two drops the next night and so on....until I reached the number of drops in the LDN solution that I prepared from the 4.5 mg pill. keep the solution refrigerated. if you see no side effects, you can increase by more than one drop best wishes Ana ________________________________ From: lindsey munroe <lindsey.munroe@...> rheumatic Sent: Thu, July 15, 2010 6:51:58 AM Subject: Re: rheumatic XP: First Night of LDN question what was your first days like Kate. What did you experience? On Thu, Jul 15, 2010 at 9:42 AM, Celia <DustBunniesAndBooks@...>wrote: > > > For anyone who has taken LDN (low dose naltrexone), could you please > describe your first night? > > I just took my first dose last night and did not have a good > experience. About 3.5 hours after I took it, I woke and felt weak, > very spacey, a bit like I couldn't quite catch my breath, and my blood > pressure over the next 2.5 hours fluctuated up and down from 137/89 at > its highest (when I first got up and felt weird) to 101/74 at its > lowest. (Our cuff tends to read the numbers a tad higher than a > doctor's office.) > > I did take my adrenal support supplement yesterday at lunch > time....don't know if that matters. > > I have appointment with my doctor later, but I'd love to know what > others experienced (especially before I go to the doctor). Thanks! > --Celia <>< > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 I have been drinking on LDN for 2 1/2 years and I have never had a bad reaction. Nor did my doctor ever tell me not to drink. > > Thanks for the note on drinking. I didn't know this. Do you know why one can't drink? Celi , I have been taking ldn for about 6 wks now and thank God no side effects. It had been working very well for me. Hope it works out for you. > Sent on the Sprint® Now Network from my BlackBerry® > > Re: rheumatic XP: First Night of LDN question > > I, too, am starting LDN soon. Doctor says it is more effective than the hydrocortizone I was taking with less side effects. The two side effects to warned me about is the vivid dreaming I may experience and do not drink any alcohol when taking this drug. Should I expect anything else? > > Donna > rheumatic XP: First Night of LDN question > > > > > > > For anyone who has taken LDN (low dose naltrexone), could you please > describe your first night? > > I just took my first dose last night and did not have a good > experience. About 3.5 hours after I took it, I woke and felt weak, > very spacey, a bit like I couldn't quite catch my breath, and my blood > pressure over the next 2.5 hours fluctuated up and down from 137/89 at > its highest (when I first got up and felt weird) to 101/74 at its > lowest. (Our cuff tends to read the numbers a tad higher than a > doctor's office.) > > I did take my adrenal support supplement yesterday at lunch > time....don't know if that matters. > > I have appointment with my doctor later, but I'd love to know what > others experienced (especially before I go to the doctor). Thanks! > --Celia <>< > > > > > Quote Link to comment Share on other sites More sharing options...
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