Re: My Doctor cant figure me out

[Guest guest]

I have not known a single person with scleroderma or MCTD who did not have TMJ.

Once well, mine disappeared but that was a long journey. I hope you are with a

physician who is very well versed in alternative medidine and autoimmune

diseases and not with one who is doing this to please you. There are so many

tests that someone who specializes in this will know to do. I am sure there are

many but I don't know of them who also have not had an STD. These, in

themselves, can create havoc with us. Just throwing these out and I can

remember how frustrating it was not having a definitive diagnosis. Once I had

mine, I then had to decide what to do about it.

rheumatic My Doctor cant figure me out

Hi Folks,

I am a long time reader here for many years. Have been on Minocin for about 5

years. Never had a positive RA diagnosis... but found that minocin really helped

my tight mussels and joint pain. Possibly Fibromyagia.

For the past 4 months, I have new issues. Jaw pain, pressure in my ears, nausea,

and slightly swollen salivary glands.

Started taking two 100mg of minocin a day, one in the morning and one in the

evening. ITs the only thing stopping me from being bed ridden.

My doctor has done Ct scans on my neck and sinuses... nothing.

Nothing in the blood from the normal tests..

Getting very anxious and tired of the nausea and low energy.

Pregnasone has not helped... and a stronger antibiotic has not helped either.

My doctor seems to be at a loss.... Guess I Need House!

ANy suggestions as to avenues to explore are welcome.

Ed

[Guest guest]

Hi Ed;

I sympathyse with you.I was in full remission from SD but could

never get off the mino without it coming back.My doc was at a loss also

but had that funny feeling I had Lyme.Sure enough and now I am on high

dose of several antibiotics.Check out www.lymenet.org to see if it might

be your problem also.

Lynne

>

>

> Hi Folks,

> I am a long time reader here for many years. Have been on Minocin for

> about 5 years. Never had a positive RA diagnosis... but found that

> minocin really helped my tight mussels and joint pain. Possibly

> Fibromyagia.

>

> For the past 4 months, I have new issues. Jaw pain, pressure in my

> ears, nausea, and slightly swollen salivary glands.

>

> Started taking two 100mg of minocin a day, one in the morning and one

> in the evening. ITs the only thing stopping me from being bed ridden.

>

> My doctor has done Ct scans on my neck and sinuses... nothing.

> Nothing in the blood from the normal tests..

>

> Getting very anxious and tired of the nausea and low energy.

>

> Pregnasone has not helped... and a stronger antibiotic has not helped

> either.

>

> My doctor seems to be at a loss.... Guess I Need House!

>

> ANy suggestions as to avenues to explore are welcome.

>

> Ed

>

>

[Guest guest]

Hi Ed

 

Before my symptoms of scleroderma showed up, I had jaw pain and swollen glands

for a long time. Don't get scared. I am not suggesting you may have SD. 

soheila   

From: Lynne and Santos <lynneandsantos@...>

Subject: Re: rheumatic My Doctor cant figure me out

rheumatic

Date: Tuesday, March 30, 2010, 5:28 PM

 

Hi Ed;

I sympathyse with you.I was in full remission from SD but could

never get off the mino without it coming back.My doc was at a loss also

but had that funny feeling I had Lyme.Sure enough and now I am on high

dose of several antibiotics. Check out www.lymenet. org to see if it might

be your problem also.

Lynne

>

>

> Hi Folks,

> I am a long time reader here for many years. Have been on Minocin for

> about 5 years. Never had a positive RA diagnosis... but found that

> minocin really helped my tight mussels and joint pain. Possibly

> Fibromyagia.

>

> For the past 4 months, I have new issues. Jaw pain, pressure in my

> ears, nausea, and slightly swollen salivary glands.

>

> Started taking two 100mg of minocin a day, one in the morning and one

> in the evening. ITs the only thing stopping me from being bed ridden.

>

> My doctor has done Ct scans on my neck and sinuses... nothing.

> Nothing in the blood from the normal tests..

>

> Getting very anxious and tired of the nausea and low energy.

>

> Pregnasone has not helped... and a stronger antibiotic has not helped

> either.

>

> My doctor seems to be at a loss.... Guess I Need House!

>

> ANy suggestions as to avenues to explore are welcome.

>

> Ed

>

>

[Guest guest]

Hey Lynne and Ed,

I had the same thought: LYME'S!

Minocin really helped my Lyme's and RA. I took 100 mg once a day for almost

three years. When I went off Minocin, I did the Schardt Protocol (Biaxin

and Fluconase) for several months. I also take Teasel drops (3 drops 3x's a

day) plus Borrelia drops (10 drops 3x's a day) to help my body fight the

Lyme's. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Lynne and Santos

Sent: Tuesday, March 30, 2010 8:28 PM

rheumatic

Subject: Re: rheumatic My Doctor cant figure me out

Hi Ed;

I sympathyse with you.I was in full remission from SD but could

never get off the mino without it coming back.My doc was at a loss also

but had that funny feeling I had Lyme.Sure enough and now I am on high

dose of several antibiotics.Check out www.lymenet.org to see if it might

be your problem also.

Lynne

>

>

> Hi Folks,

> I am a long time reader here for many years. Have been on Minocin for

> about 5 years. Never had a positive RA diagnosis... but found that

> minocin really helped my tight mussels and joint pain. Possibly

> Fibromyagia.

>

> For the past 4 months, I have new issues. Jaw pain, pressure in my

> ears, nausea, and slightly swollen salivary glands.

>

> Started taking two 100mg of minocin a day, one in the morning and one

> in the evening. ITs the only thing stopping me from being bed ridden.

>

> My doctor has done Ct scans on my neck and sinuses... nothing.

> Nothing in the blood from the normal tests..

>

> Getting very anxious and tired of the nausea and low energy.

>

> Pregnasone has not helped... and a stronger antibiotic has not helped

> either.

>

> My doctor seems to be at a loss.... Guess I Need House!

>

> ANy suggestions as to avenues to explore are welcome.

>

> Ed

>

>

[Guest guest]

hi el

are you off abx now and just taking the teasel and borrelia drops? how

long have you been on those? do they make a difference/

monique

Hey Lynne and Ed,

I had the same thought: LYME'S!

Minocin really helped my Lyme's and RA. I took 100 mg once a day for almost

three years. When I went off Minocin, I did the Schardt Protocol (Biaxin

and Fluconase) for several months. I also take Teasel drops (3 drops 3x's a

day) plus Borrelia drops (10 drops 3x's a day) to help my body fight the

Lyme's. El