Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Hi Phil, That is what I did. I was put on Plaquenil which did ease up the inflammatory part and I felt better. I was on that for a month and then went to see an A/P Rheumi who told me, that he would rather I not take the Plaquenil. He said, he would leave it up to me. I saw concern in his face, so I stopped the plaquenil, which I didn't want to do as it gave me instant relief from pain, but, my intuition told me to followed the A/P only. I was put on Minocin 100mg 2x's a day and the first month I noticed that I didn't need the plaquenil. My symptoms started to subside rather quickly with Raynaud's being the first to go. I was glad because it worried me that Plaquenil may cause eye problems. The last thing I neede was another problems.  This is 5 years later. My blood work is all back to normal, ANA -0, RF-0 and I am in remission. I continue to take 100mg Minocin MWF for precaution and prevent reinfection and to make sure those micoplasmas do not start growing again. My disease is Systemic Scleroderma. The deadliest of all. It was affecting my lungs pretty badly and I was not expected to live too long because of that.  Minocin saved my life. It stopped the progression of fibrosis in my lungs and even began reversing the damage. Minocin also reversed the fibrosis in the rest of my body which was getting very tight. All of me is much softer and the pain is gone. I funtion well on 55% lung capacity. I don't dance as long or run as fast as I used to. But then that is also to be expected when you are 73. So, I consider myself blessed to have found the Antibiotic Protocol. Dolores From: pcalvert.rm <pcalvert@...> Subject: rheumatic Re: taking mino with plaquenil? rheumatic Date: Tuesday, March 2, 2010, 11:50 AM  Hi , The doctor is wrong; you can take both together. In fact, it is apparently a good combination, as a number of people are taking both and doing quite well. Plaquenil (hydroxychloroquine ) is not a drug I'd want to be on for a long period of time, but I'd rather be on that than a drug like methotrexate or Arava (leflunomide) . Phil > > does anyone here take minocycline and plaquenil? my mother is being told > by rheumy she can't take both. is it ok to take plaquenil until mino > kicks in and then wean off plaquenil? > > thanks > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Hi Bonnie, I'm curious about the plaquenil. Exactly what does it do for the RA? I've never taken it and as I said, am curious just for the knowledge. thanks, Judy rheumatic Re: taking mino with plaquenil? Hi . I am one of the other Road Back members who regularly uses both plaquenil and minocycline, and have for several years now. It is a perfectly fine combination of medicine. My plaquenil dose has been cut way back over the years to a maintenance level (only take 200 mg on Sat and Sun) -- and I take one mino on MWF. My symptoms are well under control -- and I am living a completely normal life. My husband is an ophthalmologist, and in his 25 years of practice he has never had a case of eye complications from plaquenil,and he sees a lot of RA patients. Yes, it does happen, but it really is not common, it is pretty rare. I hope your mother is able to stay on both medicines. Good luck. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Will plaquenil help deformed joints? Our Dr. wants to put our son on enbrel for that but isn't plaquenil safer? From: rheumatic [mailto:rheumatic ] On Behalf Of lind Gittings Sent: Saturday, March 13, 2010 5:33 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Bonnie I was glad to see your email and that you are able to thrive on a maintenance dose of plaquenil. In February I doubled my plaquenil dose to 400 mg daily for one month to try to alleviate the pain and gradual deformities of joints that happened when I stopped the minocycline (which I restarted last September). Unfortunately I seem to have had a reaction to this dose in the form of severe eczema all over my front from my neck to my navel. On Friday my dr said to stop taking plaq and I'm to see a specialist next week to try to find out whether it's the plaq or something else I'm reacting to. I've never had eczema in my life, though I am asthmatic. I'm dreading the thought that I will have to stop it permanently and possibly substitute with methotrexate which has side effects I don't want. So the idea that I may be able to take it only twice a week with safety gives me hope. I just hope I haven't set up a permanent " allergy " to it that happens with foods and drugs sometimes. the combination of mino and plaq worked so well for the years I've used it and I hope it will again. Ros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 Thank Phil, I will be speaking with Dr. on Tuesday as well as ask him about it. We just need to try and get his joints back they are really bad right now. Sue - 's Mom From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Sunday, March 14, 2010 2:18 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi , Yes, based on what I've read I'd say that Plaquenil is safer. Especially since your son has Lyme Disease. Enbrel is a strong immunosuppressant, and giving that type of drug to a person with Lyme is not a very good idea. Quote: " Never give steroids or any other immunosuppressant to any patient who may even remotely be suffering from Lyme, or serious, permanent damage may result, especially if given for anything greater than a short course. " See: http://www.lymenet.org/BurrGuide200810.pdf Phil > > Will plaquenil help deformed joints? Our Dr. wants to put our son on enbrel > for that but isn't plaquenil safer? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 Hi Phil, He also takes prilosec for his stomach and probiotics. Sometimes he takes MSM, serrapeptasse, vit e and omega 6 but it is hard to get him take them all the time. He also is deficient in Vitamin D so he takes that as well. He was first diagnosed with JRA, then scleroderma, then morphea/mctd and most recently chronic lyme. We are just so very confused. He only had one band that was positive (31) and 2 indeterminate (41 & 58) so I don't know if I am on the right path or not. sue From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Sunday, March 14, 2010 2:56 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, You're welcome. I meant to ask you a question and forgot. Besides minocycline and azithromycin, what other medications is taking? Phil > > Thank Phil, > > > > I will be speaking with Dr. on Tuesday as well as ask him about it. We > just need to try and get his joints back they are really bad right now. > > > > Sue - 's Mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 Hi, Sue---I've had high sero-postive RA for almost 9 years; I discovered the AP, and started on it, 3-4 months after I got sick; after a year, my blood test numbers (most hundreds of times normal) were cut in half. Then I did something ultra-foolish; I listened to someone who told me long-term antibiotic use would shorten my life and damage me, so I stopped the protocol (being administered by the extraordinary Dr. Franco in Riverside, CA.) The disease came roaring back; my hand tendons and ligaments started to melt. Eight months later, I started back on 200mg timed-release Minocin per day and 100mg Plaquenil per day, along with supplements and diet change. Three years ago I started infusing clyndamycin @ 1200mg/day, one week a month. At the end of 2009, my blood tests indicating long- term inflammation were almost normal; I've stopped taking prednisone (now only 1gm per day of ibuprofen and a bit of medical cannabis for minor pain) and I feel like I'm rushing toward remission. I also started taking LDN in January 2009, and have felt a remarkable lift. I highly recommend you read the Scammel and Brown book; it says everything you need to hear. Trust the people who are the veterans of this list; they are wonderful, honest, loving, strong humans. The tragic reality is that the overwhelming majority of rheumatologists in this country are highly resistant to input that doesn't come from a big drug company, and are financially dependent, some to an astounding degree, on the drug companies who sell those $4K-month shots of Enbrel. Open your eyes. Find M.D.s that are also gifted healers; that let you lead; that are open to your research input. It's your life; nobody is jumping in the grave with you when you go; take the reins. Nobody---ever---cares like you do about your life and the life of your family. Keep up the good fight; you're doing an amazing job. Keep asking for help and demanding excellence.... http://roadback.org/ http://www.low dose naltrexone.org/ On Mar 14, 2010, at 12:34 PM, Mazik wrote: > Hi Phil, > > He also takes prilosec for his stomach and probiotics. Sometimes he > takes > MSM, serrapeptasse, vit e and omega 6 but it is hard to get him take > them > all the time. He also is deficient in Vitamin D so he takes that as > well. He > was first diagnosed with JRA, then scleroderma, then morphea/mctd > and most > recently chronic lyme. We are just so very confused. He only had one > band > that was positive (31) and 2 indeterminate (41 & 58) so I don't know > if I am > on the right path or not. > > sue > > From: rheumatic [mailto:rheumatic ] > On Behalf > Of pcalvert.rm > Sent: Sunday, March 14, 2010 2:56 PM > rheumatic > Subject: rheumatic Re: taking mino with plaquenil? > > Hi Sue, > > You're welcome. I meant to ask you a question and forgot. Besides > minocycline and azithromycin, what other medications is taking? > > Phil > > > > > > Thank Phil, > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > about it. > We > > just need to try and get his joints back they are really bad right > now. > > > > > > > > Sue - 's Mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 He only takes it once in a while - should he take them all the time and because he has so many problems with his stomach, we were worried and the Dr. said to have him take Tylenol instead - will that do the same thing? From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Sunday, March 14, 2010 4:25 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, Is there some reason why your son is not taking an NSAID such as Motrin (ibuprofen) or Aleve (naproxen sodium)? The anti-inflammatory action of an NSAID enhances the effectiveness of the antibiotics, and might have prevented some or all of the joint damage. Phil > > Hi Phil, > > > > He also takes prilosec for his stomach and probiotics. Sometimes he takes > MSM, serrapeptasse, vit e and omega 6 but it is hard to get him take them > all the time. He also is deficient in Vitamin D so he takes that as well. He > was first diagnosed with JRA, then scleroderma, then morphea/mctd and most > recently chronic lyme. We are just so very confused. He only had one band > that was positive (31) and 2 indeterminate (41 & 58) so I don't know if I am > on the right path or not. > > > > sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 , This is for my now 14 year old son so I am so scared that we are not doing the right thing. He has been on AP and nothing else since last May. I have read both books and that is why, however, his poor little hands are so deformed that I just do not know what to do anymore. One Dr. wants methotrexate, one wants enbrel, I just want my son to have normal hands and fingers. I am concerned that as he is still growing, his joints will not be repaired through ap. Sue -- 's Mom rheumatic Re: taking mino with plaquenil? > > Hi Sue, > > You're welcome. I meant to ask you a question and forgot. Besides > minocycline and azithromycin, what other medications is taking? > > Phil > > > > > > Thank Phil, > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > about it. > We > > just need to try and get his joints back they are really bad right > now. > > > > > > > > Sue - 's Mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 I understand your deep concern; no drug I know of will repair deformed or damaged joints, I'm sorry to say, but I firmly believe that the AP will work. Nine months is a relatively short time for the AP to work, especially for a serious case of JRA. Please call the office of Dr. Franco or Dr. Trentham and get another take on this...it's ugly, but also be crystal clear about the downsides of Enbrel and methotrexate--- buried deep in the small print lies the truth---these drugs will, almost certainly, eventually irreparably harm the immune system over the long term. They are both known as " black box " drugs. Hope this helps; I feel your pain and worry....please take care.... On Mar 14, 2010, at 1:56 PM, Mazik wrote: > , > > This is for my now 14 year old son so I am so scared that we are not > doing > the right thing. He has been on AP and nothing else since last May. > I have > read both books and that is why, however, his poor little hands are so > deformed that I just do not know what to do anymore. One Dr. wants > methotrexate, one wants enbrel, I just want my son to have normal > hands and > fingers. I am concerned that as he is still growing, his joints will > not be > repaired through ap. > > Sue -- 's Mom > > rheumatic Re: taking mino with plaquenil? > > > > Hi Sue, > > > > You're welcome. I meant to ask you a question and forgot. Besides > > minocycline and azithromycin, what other medications is taking? > > > > Phil > > > > > > > > > > Thank Phil, > > > > > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > > about it. > > We > > > just need to try and get his joints back they are really bad right > > now. > > > > > > > > > > > > Sue - 's Mom > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2010 Report Share Posted March 14, 2010 Hello Sue, what is wrong with his stomach? h-pylori? abdominal discomfort? you need to know the cause of his stomach pain because it may also be the source of his other problems. EMAILING FOR THE GREATER GOOD Join me rheumatic From: pcalvert@... Date: Mon, 15 Mar 2010 04:23:47 +0000 Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, Yes, NSAIDs are taken every day. If he has stomach problems, some of the drugs are available as suppositories. I am specifically thinking of diclofenac, though there may be others. Even though the suppositories may help, taking a medication to protect his stomach would probably still be a good idea. Another consideration is that not all of the NSAIDs are equally hard on the stomach, and not all people react the same. For example, I cannot take uncoated aspirin or naproxen sodium because they really bother my stomach. On the other hand, I can tolerate ibuprofen and enteric-coated aspirin quite well. As for Tylenol, no, it won't do the same thing. Although it can help with pain and fever, Tylenol (acetaminophen or paracetamol) is not an effective anti-inflammatory agent. Phil > > He only takes it once in a while - should he take them all the time and > because he has so many problems with his stomach, we were worried and the > Dr. said to have him take Tylenol instead - will that do the same thing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 He has had terrible problems with pain and diarrhea. He had a colonoscopy and endoscopy a few weeks ago and it showed reflux and quite a bit of eosyphilliac (spelling??) in the lining which the Dr. attributed to a milk allergy but it can also be from an autoimmune disease so we are not sure at this point. rheumatic Re: taking mino with plaquenil? Hi Sue, Yes, NSAIDs are taken every day. If he has stomach problems, some of the drugs are available as suppositories. I am specifically thinking of diclofenac, though there may be others. Even though the suppositories may help, taking a medication to protect his stomach would probably still be a good idea. Another consideration is that not all of the NSAIDs are equally hard on the stomach, and not all people react the same. For example, I cannot take uncoated aspirin or naproxen sodium because they really bother my stomach. On the other hand, I can tolerate ibuprofen and enteric-coated aspirin quite well. As for Tylenol, no, it won't do the same thing. Although it can help with pain and fever, Tylenol (acetaminophen or paracetamol) is not an effective anti-inflammatory agent. Phil > > He only takes it once in a while - should he take them all the time and > because he has so many problems with his stomach, we were worried and the > Dr. said to have him take Tylenol instead - will that do the same thing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 ask your doctor if he has ruled out h. pylory if he has not, breath or stool tests are reliable tools, also GENOA lab has a stool kit send out at the doctor's request. it can give you valuable info on your son's gut: infections or lack of good bacteria, pancreatic activity, stool ph etc you need to know what his stomach/intestinal problem is and get it treated if your doc does not cooperate try the ACAM list for a doctor who knows more than the regular doctors know http://www.acamnet.org/site/apps/kb/cs/contactsearch.asp?c=ltJWJ4MPIwE & b=5457441\ & raw good luck, EMAILING FOR THE GREATER GOOD Join me rheumatic From: smazik@... Date: Mon, 15 Mar 2010 11:27:28 -0400 Subject: RE: rheumatic Re: taking mino with plaquenil? He has had terrible problems with pain and diarrhea. He had a colonoscopy and endoscopy a few weeks ago and it showed reflux and quite a bit of eosyphilliac (spelling??) in the lining which the Dr. attributed to a milk allergy but it can also be from an autoimmune disease so we are not sure at this point. rheumatic Re: taking mino with plaquenil? Hi Sue, Yes, NSAIDs are taken every day. If he has stomach problems, some of the drugs are available as suppositories. I am specifically thinking of diclofenac, though there may be others. Even though the suppositories may help, taking a medication to protect his stomach would probably still be a good idea. Another consideration is that not all of the NSAIDs are equally hard on the stomach, and not all people react the same. For example, I cannot take uncoated aspirin or naproxen sodium because they really bother my stomach. On the other hand, I can tolerate ibuprofen and enteric-coated aspirin quite well. As for Tylenol, no, it won't do the same thing. Although it can help with pain and fever, Tylenol (acetaminophen or paracetamol) is not an effective anti-inflammatory agent. Phil > > He only takes it once in a while - should he take them all the time and > because he has so many problems with his stomach, we were worried and the > Dr. said to have him take Tylenol instead - will that do the same thing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 In his colon From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Monday, March 15, 2010 7:16 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, Where did they find the eosinophilic inflammation? Phil > > He has had terrible problems with pain and diarrhea. He had a colonoscopy > and endoscopy a few weeks ago and it showed reflux and quite a bit of > eosyphilliac (spelling??) in the lining which the Dr. attributed to a milk > allergy but it can also be from an autoimmune disease so we are not sure at > this point. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 Phil, Yes I am thank goodness. That is where I learned all about AP. From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Monday, March 15, 2010 5:06 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, Are you familiar with The Road Back Foundation? If not, I recommend that you visit their web site: http://www.roadback.org/ In the menu on the upper left, there is a link to the bulletin board. Click on it and sign up for the bulletin board. I think you'll be able to get some additional help on there because that board is very active and there are quite a few people on there who have Lyme Disease. Phil > > He has had terrible problems with pain and diarrhea. He had a colonoscopy > and endoscopy a few weeks ago and it showed reflux and quite a bit of > eosyphilliac (spelling??) in the lining which the Dr. attributed to a milk > allergy but it can also be from an autoimmune disease so we are not sure at > this point. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 eosinophills are high in asthma, allergies and infections with worms EMAILING FOR THE GREATER GOOD Join me rheumatic From: smazik@... Date: Mon, 15 Mar 2010 21:19:46 -0400 Subject: RE: rheumatic Re: taking mino with plaquenil? In his colon From: rheumatic [mailto:rheumatic ] On Behalf Of pcalvert.rm Sent: Monday, March 15, 2010 7:16 PM rheumatic Subject: rheumatic Re: taking mino with plaquenil? Hi Sue, Where did they find the eosinophilic inflammation? Phil > > He has had terrible problems with pain and diarrhea. He had a colonoscopy > and endoscopy a few weeks ago and it showed reflux and quite a bit of > eosyphilliac (spelling??) in the lining which the Dr. attributed to a milk > allergy but it can also be from an autoimmune disease so we are not sure at > this point. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2010 Report Share Posted March 31, 2010 Hello Sue, has your son ever been diagnosed with rheumatic fever following a strep throat infection? if yes is your answer, what are his ASO and anti-DNase B test values? Ana ________________________________ From: Mazik <smazik@...> rheumatic Sent: Sun, March 14, 2010 1:56:16 PM Subject: RE: rheumatic Re: taking mino with plaquenil?  , This is for my now 14 year old son so I am so scared that we are not doing the right thing. He has been on AP and nothing else since last May. I have read both books and that is why, however, his poor little hands are so deformed that I just do not know what to do anymore. One Dr. wants methotrexate, one wants enbrel, I just want my son to have normal hands and fingers. I am concerned that as he is still growing, his joints will not be repaired through ap. Sue -- 's Mom rheumatic Re: taking mino with plaquenil? > > Hi Sue, > > You're welcome. I meant to ask you a question and forgot. Besides > minocycline and azithromycin, what other medications is taking? > > Phil > > > > > > Thank Phil, > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > about it. > We > > just need to try and get his joints back they are really bad right > now. > > > > > > > > Sue - 's Mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2010 Report Share Posted March 31, 2010 He was never diagnosed with rheumatic fever but his DNase B is 680+ and I don’t have any results for ASO – what is that? Thank you so much for helping me. He also has mycoplasma pneumonie that is off the chart! From: rheumatic [mailto:rheumatic ] On Behalf Of Ana Andrescu Sent: Wednesday, March 31, 2010 11:16 PM rheumatic Subject: Re: rheumatic Re: taking mino with plaquenil? Hello Sue, has your son ever been diagnosed with rheumatic fever following a strep throat infection? if yes is your answer, what are his ASO and anti-DNase B test values? Ana ________________________________ From: Mazik <smazik@... <mailto:smazik%40aimmort.com> > rheumatic <mailto:rheumatic%40> Sent: Sun, March 14, 2010 1:56:16 PM Subject: RE: rheumatic Re: taking mino with plaquenil? , This is for my now 14 year old son so I am so scared that we are not doing the right thing. He has been on AP and nothing else since last May. I have read both books and that is why, however, his poor little hands are so deformed that I just do not know what to do anymore. One Dr. wants methotrexate, one wants enbrel, I just want my son to have normal hands and fingers. I am concerned that as he is still growing, his joints will not be repaired through ap. Sue -- 's Mom rheumatic Re: taking mino with plaquenil? > > Hi Sue, > > You're welcome. I meant to ask you a question and forgot. Besides > minocycline and azithromycin, what other medications is taking? > > Phil > > > > > > Thank Phil, > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > about it. > We > > just need to try and get his joints back they are really bad right > now. > > > > > > > > Sue - 's Mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2010 Report Share Posted March 31, 2010 if is anti-DNase B is this high, it means that he was infected with strep group A that can trigger rheumatic fever ASO or anti streptolysin o is another measure of strep presence I attach MAYO clinic write up on rheumatic fever: http://www.mayoclinic.com/health/rheumatic-fever/DS00250/DSECTION=treatments-and\ -drugs Ana ________________________________ From: Mazik <smazik@...> rheumatic Sent: Wed, March 31, 2010 8:40:43 PM Subject: RE: rheumatic Re: taking mino with plaquenil?  He was never diagnosed with rheumatic fever but his DNase B is 680+ and I don’t have any results for ASO – what is that? Thank you so much for helping me. He also has mycoplasma pneumonie that is off the chart! From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf Of Ana Andrescu Sent: Wednesday, March 31, 2010 11:16 PM rheumatic@grou ps.com Subject: Re: rheumatic Re: taking mino with plaquenil? Hello Sue, has your son ever been diagnosed with rheumatic fever following a strep throat infection? if yes is your answer, what are his ASO and anti-DNase B test values? Ana ____________ _________ _________ __ From: Mazik <smazikaimmort (DOT) com <mailto:smazik% 40aimmort. com> > rheumatic@grou ps.com <mailto:rheumatic% 40groups. com> Sent: Sun, March 14, 2010 1:56:16 PM Subject: RE: rheumatic Re: taking mino with plaquenil? , This is for my now 14 year old son so I am so scared that we are not doing the right thing. He has been on AP and nothing else since last May. I have read both books and that is why, however, his poor little hands are so deformed that I just do not know what to do anymore. One Dr. wants methotrexate, one wants enbrel, I just want my son to have normal hands and fingers. I am concerned that as he is still growing, his joints will not be repaired through ap. Sue -- 's Mom rheumatic Re: taking mino with plaquenil? > > Hi Sue, > > You're welcome. I meant to ask you a question and forgot. Besides > minocycline and azithromycin, what other medications is taking? > > Phil > > > > > > Thank Phil, > > > > > > > > I will be speaking with Dr. on Tuesday as well as ask him > about it. > We > > just need to try and get his joints back they are really bad right > now. > > > > > > > > Sue - 's Mom > > > > Quote Link to comment Share on other sites More sharing options...
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