Re: infectious disease dr's

[Guest guest]

When I was newly in treatment, I saw about 4-5 Rheumatologists.  Most won't

even look at me or consider prescribing antibiotics.  I had to fly to Boston

to get on antibiotics to start with.  Once diagnosed with an infectious

disease meaning they found the micoplasma antibodies in my system, any doctor

could prescribe antibiotics.  Not most of them are interested why.  Most are

just covering themselves and continue as ever.  Only one or two took an

interest in finding out why.  At first, I would try to bring as much material

as I could on the subject, but they would just pale at the site of paper.  One

cardiologist said that was akin to telling her to go get a job in Italy when she

didn't speak Italian.  I thought that was odd.  I had one excellent family

physician who did take an interest and I would be with her today if

I hadn't moved.  Once moved, it was difficult to find another doc who was

remotely interested.  One Rheumatologist I

saw, referred me to the Infectious disease doc and I was in great hands for

another year.  Now, all I see is a PC doc who gives me the prescriptions for

antibiotics that I need.  I learned to hoard them when they were easily

available,  so I am set for another year.  I know what to do and how to take

them. I am in full remission.  My blood work and xrays are all normal and all

symptoms of Scleroderma, MCTD and R/A are gone. I only take a maintenance dose,

MWF 100mg minocin.  You are smart not take take drugs while pregnant. 

Pregnancy itself protects you from rejecting your infant, so taking prednisone

or some other immune suppressant is not necessary.  But after the baby is born,

your symptoms will come back full blown.  Do your research now and be ready. 

The baby is protected by nature.  Take care, Dolores

From: careybride246 <careylargent@...>

Subject: rheumatic infectious disease dr's

rheumatic

Date: Monday, March 29, 2010, 1:10 PM

 

Hi, I have had RA for about a year (6 months after 1st child was born) I have

yet to go on any " big gun " drugs (currently on plaquenil and a very low dose of

prednisone (2.5 mg) as I am currently pregnant again and just want to get by. I

won't be embarking on any new treatment during my pregnancy but would like to

get things lined up for post partum. I am wondering, how many of you actually do

have an infectious disease dr that is managing your care or how many have seen

one? Did they replace your rhuemie? How might I go about finding one? Are there

ones that specialize in this type of treatment?

I would love to hear your experiences!

[Guest guest]

Hi,

Question? has anyone in our RA family had vision problems with plaquenil. I

have been on the drug for two weeks and my vision is becoming fuzzy , I have

been on minocin since December praise God.

Thanks, Kathy Egenbacher

From: mike rosner .

Sent: Monday, March 29, 2010 12:49 PM

rheumatic

Subject: Re: rheumatic infectious disease dr's

When I was newly in treatment, I saw about 4-5 Rheumatologists. Most won't even

look at me or consider prescribing antibiotics. I had to fly to Boston to get

on antibiotics to start with. Once diagnosed with an infectious disease meaning

they found the micoplasma antibodies in my system, any doctor could prescribe

antibiotics. Not most of them are interested why. Most are just covering

themselves and continue as ever. Only one or two took an interest in finding

out why. At first, I would try to bring as much material as I could on the

subject, but they would just pale at the site of paper. One cardiologist said

that was akin to telling her to go get a job in Italy when she didn't speak

Italian. I thought that was odd. I had one excellent family physician who did

take an interest and I would be with her today if I hadn't moved. Once moved,

it was difficult to find another doc who was remotely interested. One

Rheumatologist I

saw, referred me to the Infectious disease doc and I was in great hands for

another year. Now, all I see is a PC doc who gives me the prescriptions for

antibiotics that I need. I learned to hoard them when they were easily

available, so I am set for another year. I know what to do and how to take

them. I am in full remission. My blood work and xrays are all normal and all

symptoms of Scleroderma, MCTD and R/A are gone. I only take a maintenance dose,

MWF 100mg minocin. You are smart not take take drugs while pregnant. Pregnancy

itself protects you from rejecting your infant, so taking prednisone or some

other immune suppressant is not necessary. But after the baby is born, your

symptoms will come back full blown. Do your research now and be ready. The

baby is protected by nature. Take care, Dolores

From: careybride246 <careylargent@...>

Subject: rheumatic infectious disease dr's

rheumatic

Date: Monday, March 29, 2010, 1:10 PM

Hi, I have had RA for about a year (6 months after 1st child was born) I have

yet to go on any " big gun " drugs (currently on plaquenil and a very low dose of

prednisone (2.5 mg) as I am currently pregnant again and just want to get by. I

won't be embarking on any new treatment during my pregnancy but would like to

get things lined up for post partum. I am wondering, how many of you actually do

have an infectious disease dr that is managing your care or how many have seen

one? Did they replace your rhuemie? How might I go about finding one? Are there

ones that specialize in this type of treatment?

I would love to hear your experiences!

[Guest guest]

Kathy,

No I haven't had any eye problems. I got an eye exam in Dec and everything

was fine. How are you doing on Minocin? Is your RA severe? What has been

your treatment history?

On Mon, Mar 29, 2010 at 10:07 PM, Kathy Egenbacher <

egenbacher@...> wrote:

>

>

> Hi,

> Question? has anyone in our RA family had vision problems with plaquenil. I

> have been on the drug for two weeks and my vision is becoming fuzzy , I have

> been on minocin since December praise God.

> Thanks, Kathy Egenbacher

>

> From: mike rosner .

> Sent: Monday, March 29, 2010 12:49 PM

> rheumatic <rheumatic%40>

> Subject: Re: rheumatic infectious disease dr's

>

>

> When I was newly in treatment, I saw about 4-5 Rheumatologists. Most won't

> even look at me or consider prescribing antibiotics. I had to fly to Boston

> to get on antibiotics to start with. Once diagnosed with an infectious

> disease meaning they found the micoplasma antibodies in my system, any

> doctor could prescribe antibiotics. Not most of them are interested why.

> Most are just covering themselves and continue as ever. Only one or two took

> an interest in finding out why. At first, I would try to bring as much

> material as I could on the subject, but they would just pale at the site of

> paper. One cardiologist said that was akin to telling her to go get a job in

> Italy when she didn't speak Italian. I thought that was odd. I had one

> excellent family physician who did take an interest and I would be with her

> today if I hadn't moved. Once moved, it was difficult to find another doc

> who was remotely interested. One Rheumatologist I

> saw, referred me to the Infectious disease doc and I was in great hands for

> another year. Now, all I see is a PC doc who gives me the prescriptions for

> antibiotics that I need. I learned to hoard them when they were easily

> available, so I am set for another year. I know what to do and how to take

> them. I am in full remission. My blood work and xrays are all normal and all

> symptoms of Scleroderma, MCTD and R/A are gone. I only take a maintenance

> dose, MWF 100mg minocin. You are smart not take take drugs while pregnant.

> Pregnancy itself protects you from rejecting your infant, so taking

> prednisone or some other immune suppressant is not necessary. But after the

> baby is born, your symptoms will come back full blown. Do your research now

> and be ready. The baby is protected by nature. Take care, Dolores

>

>

>

> From: careybride246 <careylargent@... <careylargent%40gmail.com>>

> Subject: rheumatic infectious disease dr's

> rheumatic <rheumatic%40>

> Date: Monday, March 29, 2010, 1:10 PM

>

> Hi, I have had RA for about a year (6 months after 1st child was born) I

> have yet to go on any " big gun " drugs (currently on plaquenil and a very low

> dose of prednisone (2.5 mg) as I am currently pregnant again and just want

> to get by. I won't be embarking on any new treatment during my pregnancy but

> would like to get things lined up for post partum. I am wondering, how many

> of you actually do have an infectious disease dr that is managing your care

> or how many have seen one? Did they replace your rhuemie? How might I go

> about finding one? Are there ones that specialize in this type of treatment?

>

>

> I would love to hear your experiences!

>

>

[Guest guest]

I have been on plaquenil for a year with no problems. I got a baseline retinal

eye examine before I started taking it, and get my retina checked every six

months.

From: Kathy Egenbacher

Sent: Monday, March 29, 2010 8:07 PM

rheumatic

Subject: Re: rheumatic infectious disease dr's

Hi,

Question? has anyone in our RA family had vision problems with plaquenil. I have

been on the drug for two weeks and my vision is becoming fuzzy , I have been on

minocin since December praise God.

Thanks, Kathy Egenbacher

[Guest guest]

Yes, Eye problems could happen.  It is one of the side effects.  Most people

do not develop eye problems, at least not so soon.  Your fuzzy vision could be

from another cause.  I suggest you get examined by an eye doctor just to be

sure you are not causing damage to your eyes.  Dolores

From: Katz <mpkatz@...>

Subject: Re: rheumatic infectious disease dr's

rheumatic

Date: Monday, March 29, 2010, 10:43 PM

 

I have been on plaquenil for a year with no problems. I got a baseline retinal

eye examine before I started taking it, and get my retina checked every six

months.

From: Kathy Egenbacher

Sent: Monday, March 29, 2010 8:07 PM

rheumatic@grou ps.com

Subject: Re: rheumatic infectious disease dr's

Hi,

Question? has anyone in our RA family had vision problems with plaquenil. I have

been on the drug for two weeks and my vision is becoming fuzzy , I have been on

minocin since December praise God.

Thanks, Kathy Egenbacher