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To Shari, Rene and other new members,

I do appologise and hope my story has not added to your anxiety about

having RP. The fact that you have been Dx early means you most

proberly will not suffer the worst that can happen. My Rp was severe

and not the usual story. With early dx and good management life

should rock on for you. Please forgive me if I have added to your

stress. Of my team of 6 doctors not one has ever seen a case of RP.

Because the population here is smaller than the USA there are so few

here with RP the doctors have no experience with it. So you are in a

much better position than I am in this regard.

Having Rp is a pain in the neck, or butt or where ever but life can

still be good and mine is.

Ros

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