Re: Re: AP hasn't worked for me, Long story

[Guest guest]

Thanks .

Yes I did have postive tests for mycoplasma and chlamydia pneumonia (not the std

type chlamydia) but apparently you can get it even if someone coughed on you and

your immune system was weak which mine was when i got ill because i was very

angry and depressed at the time, very stressed, not well mentally. And then that

took its tole on me physically and never the same since.

 

I did test positive for herpes too, not the std kind again, but a cousin of it.

But the doctors have been clueless and pushing plaquenil on me only. I dont even

know where this herpes came from. I know I am battling sjogrens, peripheral

neuropathy, and vestibular illness. I dont know what all this other stuff means

and how it applies to the main diagnosis & all my symptons.

 

I havent had new tests recently, because different labs come up with differnet

results and even if i compared apples with apples, its my symptoms I care about

and those are miserable still.

From: mmc2315 <m.chelap@...>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic

Date: Wednesday, August 13, 2008, 8:24 AM

Hi Vicki, I'm sorry you are not feeling well and are so discouraged.

I just reread parts of Overcoming Arthritis by Brownstein and also parts of the

Infection

Connection by Poehlmann. Although I'm new to arthritis and AP, it seems to me

that

sometimes a lot of things have to come together for a patient in order to get

things

moving in the right direction, and it is so individual.

For someone it might be getting hormones balanced. Or doing a round of IVs. Or

injections. Or adding a different antibiotic to address infections like strep,

or taking

antivirals to knock back herpes.

Have you ever been tested for mycoplasma antibodies? Are there any lab results

where

you can see improvement over time? I've read that sometimes labs improve before

symptoms, and sometimes it's the other way around.

I wish I could help,

[Guest guest]

michelle i dont now if i teste for strep i dont recall that but i wouldnt need

to have symptoms now to have it? as far as the herpes i dont have a single sign,

not cold soar either. i forgot about niacin being anti viral, i can start that i

meant to a while back. But your husband takes nicimacide? how much? I had read

niacin can be drying thats why i didnt take it. Since i am already so dried out

all over and its so bad.

From: mmc2315 <m.chelap@...>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic

Date: Wednesday, August 13, 2008, 9:32 PM

Vicki, what about strep? Were you tested for strep? It's a cheap test, available

from

TARCI.

It wouldn't respond to tetracyclines, it would need something in the penicillin

family.

An untreated concurrent strep infection is something that can definitely hold up

progress,

well, so I've read.

Also, someone told me herpes can hold up progress too. If your MD would be

willing to

call Dr. Coker-Vann at TARCI, she might be able to help.

I'm not exactly sure what to do for herpes. My husband gets cold sores, and we

are about

to read a book called " Wipe Out Herpes with BHT " available at www.ceri.com He

currently

takes Niacinamide to suppress the virus.

Brownstein says thyroid, adrenals and sex hormones need to be optimal too. It's

also very

difficult to find a competent practitioner in that area as well. My husband and

I have used

Mark for in-home tests and consultations. www.drmarkrhodes. com

Keep overturning rocks, Vicki! You'll get there!

[Guest guest]

Vicki,

a silly question: what toothpast do you use? I found out that I can not use a

regular toothpast or I get mouth sores like herpes, I also have Sjorgens and

after I hanged to a natural gel toothpast I never had another sore..

Eva

Vicki <genuinelysweet2002@...> wrote:

Thanks .

Yes I did have postive tests for mycoplasma and chlamydia pneumonia (not the std

type chlamydia) but apparently you can get it even if someone coughed on you and

your immune system was weak which mine was when i got ill because i was very

angry and depressed at the time, very stressed, not well mentally. And then that

took its tole on me physically and never the same since.

I did test positive for herpes too, not the std kind again, but a cousin of it.

But the doctors have been clueless and pushing plaquenil on me only. I dont even

know where this herpes came from. I know I am battling sjogrens, peripheral

neuropathy, and vestibular illness. I dont know what all this other stuff means

and how it applies to the main diagnosis & all my symptons.

I havent had new tests recently, because different labs come up with differnet

results and even if i compared apples with apples, its my symptoms I care about

and those are miserable still.

From: mmc2315 <m.chelap@...>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic

Date: Wednesday, August 13, 2008, 8:24 AM

Hi Vicki, I'm sorry you are not feeling well and are so discouraged.

I just reread parts of Overcoming Arthritis by Brownstein and also parts of the

Infection

Connection by Poehlmann. Although I'm new to arthritis and AP, it seems to me

that

sometimes a lot of things have to come together for a patient in order to get

things

moving in the right direction, and it is so individual.

For someone it might be getting hormones balanced. Or doing a round of IVs. Or

injections. Or adding a different antibiotic to address infections like strep,

or taking

antivirals to knock back herpes.

Have you ever been tested for mycoplasma antibodies? Are there any lab results

where

you can see improvement over time? I've read that sometimes labs improve before

symptoms, and sometimes it's the other way around.

I wish I could help,

[Guest guest]

i dont have mouth sores eve and this has not been my complaint. i use whatever

toothpaste is around, various.

From: mmc2315 <m.chelapsbcglobal (DOT) net>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic@grou ps.com

Date: Wednesday, August 13, 2008, 8:24 AM

Hi Vicki, I'm sorry you are not feeling well and are so discouraged.

I just reread parts of Overcoming Arthritis by Brownstein and also parts of the

Infection

Connection by Poehlmann. Although I'm new to arthritis and AP, it seems to me

that

sometimes a lot of things have to come together for a patient in order to get

things

moving in the right direction, and it is so individual.

For someone it might be getting hormones balanced. Or doing a round of IVs. Or

injections. Or adding a different antibiotic to address infections like strep,

or taking

antivirals to knock back herpes.

Have you ever been tested for mycoplasma antibodies? Are there any lab results

where

you can see improvement over time? I've read that sometimes labs improve before

symptoms, and sometimes it's the other way around.

I wish I could help,

[Guest guest]

Hi, Vicki!

If you suffer from dry mouth (can't remember if you said you did), there is

a product called Biotene toothpaste and mouthwash which is a big help. It

is designed for people with dry mouth or mouth sensitivities. My dd used it

for her constant canker sores, and I have used it for the dry mouth my

medications give me. It is readily available. I believe it is a probiotic.

As for the meds, I really understand how frustrating it is to know (or

suspect) there is a medicine out there which will help you, but with so

little research and so few knowledgeable AP/MP practitioners, it seems we

must each find our own way. I was surprised I felt improvement as quickly

as I did (after a couple of months of herxing) because my doc thought it

would take at least a year given how long I had been sick.

Blessings!

Terri

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Vicki

Sent: Thursday, August 14, 2008 11:27 AM

rheumatic

Subject: Re: rheumatic Re: AP hasn't worked for me, Long story

i dont have mouth sores eve and this has not been my complaint. i use

whatever toothpaste is around, various.

From: mmc2315 <m.chelapsbcglobal (DOT) net>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic@grou ps.com

Date: Wednesday, August 13, 2008, 8:24 AM

Hi Vicki, I'm sorry you are not feeling well and are so discouraged.

I just reread parts of Overcoming Arthritis by Brownstein and also parts of

the Infection

Connection by Poehlmann. Although I'm new to arthritis and AP, it seems to

me that

sometimes a lot of things have to come together for a patient in order to

get things

moving in the right direction, and it is so individual.

For someone it might be getting hormones balanced. Or doing a round of IVs.

Or

injections. Or adding a different antibiotic to address infections like

strep, or taking

antivirals to knock back herpes.

Have you ever been tested for mycoplasma antibodies? Are there any lab

results where

you can see improvement over time? I've read that sometimes labs improve

before

symptoms, and sometimes it's the other way around.

I wish I could help,

[Guest guest]

I keep hearing about biotene but it doenst do anything other than whenn one

brushes their teeth it doest dry out the mouth further like regular toothpaste

that has sulfates in it. And the toothpaste doenst contain any probiotics in it.

I think there is a lot of misinformation out there....

From: mmc2315 <m.chelap@sbcglobal . net>

Subject: rheumatic Re: AP hasn't worked for me, Long story

rheumatic@grou ps.com

Date: Wednesday, August 13, 2008, 8:24 AM

Hi Vicki, I'm sorry you are not feeling well and are so discouraged.

I just reread parts of Overcoming Arthritis by Brownstein and also parts of

the Infection

Connection by Poehlmann. Although I'm new to arthritis and AP, it seems to

me that

sometimes a lot of things have to come together for a patient in order to

get things

moving in the right direction, and it is so individual.

For someone it might be getting hormones balanced. Or doing a round of IVs.

Or

injections. Or adding a different antibiotic to address infections like

strep, or taking

antivirals to knock back herpes.

Have you ever been tested for mycoplasma antibodies? Are there any lab

results where

you can see improvement over time? I've read that sometimes labs improve

before

symptoms, and sometimes it's the other way around.

I wish I could help,