Re: Update on todays US test

[Guest guest]

Sending prayers Debbie. Stay strong and hopeful.

Sue

---- DEBBIE GIBSON <Debbullwinkle@...> wrote:

> Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Debbie

The very best onc/gyn is on the west coast of Florida

It is a sub speciality that has it's own organization

If you go to acor.org

Join the ovarian cancer list you will find the best docs and acwealth of

information.

Good luck

Carole

Sent from my iPhone

Typos may happen

Carole@...

Rainbowbridgeforpets.com

On Sep 21, 2010, at 8:02 PM, " DEBBIE GIBSON " <Debbullwinkle@...> wrote:

> Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Found it

Dr Orr

Http://www.flaoncgyn.com

Ft myers flirida

Sent from my iPhone

Typos may happen

Carole@...

Rainbowbridgeforpets.com

On Sep 21, 2010, at 8:02 PM, " DEBBIE GIBSON " <Debbullwinkle@...> wrote:

> Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Deb, You sound really upbeat and that is a good thing. You just think

positive and we will keep praying. We all know they can do amazing things

for cancer in this day. If you can get well from OB.girl.you can do

anything!!!

Love you bunches

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of DEBBIE GIBSON

Sent: Tuesday, September 21, 2010 8:02 PM

support group

Cc: socjog

Subject: rheumatic Update on todays US test

Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that

happen before...she took 2 biopsies..BUT she said that my ovary has

something on it that should not be there...AND she is treating it as cancer

until proven otherwise. She did an estradiol test, I am thinking measuring

estrogen...and then did the CA 125 to ck for cancer. She said she is sending

me to an ONC/GYN...she also said that at my age, 56, I should not be making

the amount of estrogen I am making..and that when they see that, they know

that cancer is somewhere..so...I do have another US scheduled tomorrow with

my friend, she is an US tech for a hospital...my DR preferred there...I just

wanted to get my 2 opinions as DR W has taught me done...I should know

more...when the labs come back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hi Debbie,

Well well, you have hyperplasia simplex too; I had that and then just to

confuse

us all my body, post menopause, decided in its wisdom to prepare the uterus for

childbirth every month as well, my oestrogen levels were through the roof & my

Obgyn was tearing his hair out.  None of this should be happening, he checked

with his other colleagues & they had never heard of it either, it was the

dramatic increase in oestrogen they were most curious about .. this went on

over a period of 18 months BUT finally my gyneocologist sat me down & said ''

Marilyn, let me ask you a question -- when does simplex become complex?'  wow

did those words hit home, that was when I agreed to having a hyster.  When

the

biopsies came back he was happy to report that I didn't have one abnormal cell

anywhere.  Just wanted you to know cancer is not the only reason we have this

happen ,,

Good luck,

Maz

________________________________

From: DEBBIE GIBSON <Debbullwinkle@...>

support group <rheumatic >

Cc: socjog <socjog@...>

Sent: Wed, 22 September, 2010 10:02:23 AM

Subject: rheumatic Update on todays US test

 

Hey all...saw a GYN today, she did an US and said that the endometrial lining is

veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hey Debbie, you are in my prayers! And, maybe, the dr is wrong. It won't be the

first time!

Carol E from NY

Sent from my iPhone

On Sep 21, 2010, at 8:02 PM, DEBBIE GIBSON <Debbullwinkle@...> wrote:

> Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Hi Debbie, You are definitely in my prayers.  I wish you well.  Let us know

what the second opinion reveals and when the C125 results come back. Could you

please what the US stands for in the US test.  Thank you,  My best to you,

Dolores 

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: rheumatic Update on todays US test

" support group " <rheumatic >

Cc: " socjog " <socjog@...>

Date: Tuesday, September 21, 2010, 8:02 PM

 

Hey all...saw a GYN today, she did an US and said that the endometrial lining is

veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Dittos to this. Just adding doctors are often wrong. (As we know to well)

Sue

---- Marilyn M <maz.aust@...> wrote:

> Hi Debbie,

>

> Well well, you have hyperplasia simplex too; I had that and then just to

confuse

> us all my body, post menopause, decided in its wisdom to prepare the uterus

for

> childbirth every month as well, my oestrogen levels were through the roof & my

> Obgyn was tearing his hair out.  None of this should be happening, he

checked

> with his other colleagues & they had never heard of it either, it was the

> dramatic increase in oestrogen they were most curious about .. this went on

> over a period of 18 months BUT finally my gyneocologist sat me down & said ''

> Marilyn, let me ask you a question -- when does simplex become complex?'  wow

> did those words hit home, that was when I agreed to having a hyster.  When

the

> biopsies came back he was happy to report that I didn't have one abnormal cell

> anywhere.  Just wanted you to know cancer is not the only reason we have this

> happen ,,

>

>

> Good luck,

> Maz

>

>

> ________________________________

> From: DEBBIE GIBSON <Debbullwinkle@...>

> support group <rheumatic >

> Cc: socjog <socjog@...>

> Sent: Wed, 22 September, 2010 10:02:23 AM

> Subject: rheumatic Update on todays US test

>

>  

> Hey all...saw a GYN today, she did an US and said that the endometrial lining

is

> veryyy thickened...which might not be a big deal, have had that happen

> before...she took 2 biopsies..BUT she said that my ovary has something on it

> that should not be there...AND she is treating it as cancer until proven

> otherwise. She did an estradiol test, I am thinking measuring estrogen...and

> then did the CA 125 to ck for cancer. She said she is sending me to an

> ONC/GYN...she also said that at my age, 56, I should not be making the amount

of

> estrogen I am making..and that when they see that, they know that cancer is

> somewhere..so...I do have another US scheduled tomorrow with my friend, she is

> an US tech for a hospital...my DR preferred there...I just wanted to get my 2

> opinions as DR W has taught me done...I should know more...when the labs come

> back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Hi Delores, so sorry US is Ultra Sound...Thanks hon for the prayers, always

appreciate them!

Debbie

rheumatic Update on todays US test

" support group " <rheumatic >

Cc: " socjog " <socjog@...>

Date: Tuesday, September 21, 2010, 8:02 PM

Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hey Carol,

Thanks for the prayers...and yes, I do hope she is wrong...she is veryyy

experienced, and has seen quite a bit in all her years practicing, I should know

more today, another US...at the hospital...how are you doing Carol? Have you

seen Dr W lately?

Debbie

Re: rheumatic Update on todays US test

Hey Debbie, you are in my prayers! And, maybe, the dr is wrong. It won't be

the first time!

Carol E from NY

Sent from my iPhone

On Sep 21, 2010, at 8:02 PM, DEBBIE GIBSON <Debbullwinkle@...> wrote:

> Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> Thanks everyone for your prayers and thoughts,

> Debbie

>

>

[Guest guest]

Debbie, my prayers are with you too. You are so right not to jump the gun,

but to wait for tests--even get some repeated if you question them--get

second opinions and be as informed as you can. As we have all learned, the

practice of medicine and even tests are not always 100% accurate.

rheumatic Update on todays US test

Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that

happen before...she took 2 biopsies..BUT she said that my ovary has

something on it that should not be there...AND she is treating it as cancer

until proven otherwise. She did an estradiol test, I am thinking measuring

estrogen...and then did the CA 125 to ck for cancer. She said she is sending

me to an ONC/GYN...she also said that at my age, 56, I should not be making

the amount of estrogen I am making..and that when they see that, they know

that cancer is somewhere..so...I do have another US scheduled tomorrow with

my friend, she is an US tech for a hospital...my DR preferred there...I just

wanted to get my 2 opinions as DR W has taught me done...I should know

more...when the labs come back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hi Deb, thatnks for the explanation of US,  I should have been able to put that

together.  Must still have a bit of brain fog left.  I think you are a soldier

and and trouper.  I know you will be able to fight off anything they diagnose

you with and like the others say, the docs don't always know.  Your test will

tell and she is wise to start you on a cancer regimen right away with ordering

the correct labs.  Keep us posted.  You are a strong person always supporting

others and dear heart, we will rally around you with our support.  Take care,

Dolores

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: rheumatic Update on todays US test

" support group " <rheumatic >

Cc: " socjog " <socjog@...>

Date: Tuesday, September 21, 2010, 8:02 PM

Hey all...saw a GYN today, she did an US and said that the endometrial lining is

veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

, I am so sorry that you were unable to get the tests you needed via the ER

route...grrr....Did you tell them that you had SOB? If you did and they did not

give you a PFT, I think they are seriously negligent...I really do, IMO....

Since they released you tho after cardiac tests, it sounds like the preliminary

ones were all ok then? So that is good, or am I just reading into that? I hope

so....good news is always welcome on the BB...Do keep us posted...

Re my issues, I am not really researching yet, altho several of the BB menbers

have sent me veryyy good info and DRs for O. Cancer...I have filed those away

.....waiting on the biopsy report and the labs...I still think that it is

reasonable to go ahead and take the medication to thin the lining...if the

lining biopsies are all benign...thin the lining...then do a repeat Ultra sound

to see if the cyst, follicle has gone away...if it does not, then ok, Houston,

we have a problem...if it does...than we just have to see what is causing the

increase in estrogen...why is my body producing so much and now at my age? My Dr

on Tues told me that polyphenols in tea can increase estrogen...well, I have

been drinking a half bottle or the entire bottle of Kombucha Wonder Drink for

months now...A, I really like the way it tastes and its low in sugar, all

organic..and B, I just felt better drinking it..Kombucha Wonder Drink is a

fermented tea drink...with the " mother " in it...I have always been a bit

confused about the term " mother " ...but there that is...It does say that the tea

has antioxidants = polyphenols in it...but hey, I thought antioxidents are good

for you...I know I have been doing an extraordinary amount of juicing for the

past 6 mo or so...we bought a Blendtec and I make spinach, veggie, fruit

smoothies...most every day...Also I eat a Fage yogurt daily...so....

Anyway, keep us posted o and thanks for your kind words and support. Another

thing I had thought about for you if the hosp did not do any type of PFT, do you

have a local lung DR there, that has the capability to do a PFT in his office?

Many of them here in town do...and if you speak with him, explain the ins

situation...sometimes they will take a much smaller cash payment rather than

deal with ins companies..just a thought...Hope this helps. Debb

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

Thanks Delores for your kind, supportive words...I appreciate hearing from

everyone so much. I have a plan but it is making me crazy waiting for

results...my thought is to, after we get the biopsie reports, my plan is to go

ahead and take the medication to thin the lining..I don't like taking anything

like hormones but in this case, since I have a lot of estrogen, I do need the

progesterone to balance it out and have the period, thin the

lining..Then...after that...I will be reultrasounded to determine if the

follicle cyst is still on my ovary. At 56, I should not have one there...if it

goes away...ok...if not...well, then I have to deal with that...as most likely,

then it is not good...so..right now the plan is, wait for the biopsy reports on

the uterine lining, if its benign...then I fill the script, thin the

lining...that should, in a healthy person, make the cyst, follicle go away...if

it does not..well, then...I have to see the ONC/GYN and deal with

that...whew....always a battle...for so many of us....thanks everyone for your

support. I have kept several of the emails because they gave me good info on

this and on specialists that deal with this sort of issue..Thanks Delores,

Thanks everyone, hugs, Debb

rheumatic Update on todays US test

" support group " <rheumatic >

Cc: " socjog " <socjog@...>

Date: Tuesday, September 21, 2010, 8:02 PM

Hey all...saw a GYN today, she did an US and said that the endometrial lining

is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hi Debbie,  I know you are very knowledgable and will do the right thing. 

Just want to let you know that I and my mother are both cancer survivors and

cancer is not the scariest thing that it once was.  Mine was small and I had it

surgically removed. I had nothing else done. That was in 1981.  Never came

back.  My mom was diagnosed with breast cancer about 8 years ago and she had

hers sugically removed and had radiation therapy only.  No chemo.  She went on

Tamoxifen for 5 years and is cancer free at 96. Know that you are in our hearts

and prayers and will be here for each other no matter what things we get

thrown at us.  What doesn't kill us will make us stronger. Take care,

Dolores   

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: rheumatic Update on todays US test

" support group " <rheumatic >

Cc: " socjog " <socjog@...>

Date: Tuesday, September 21, 2010, 8:02 PM

Hey all...saw a GYN today, she did an US and said that the endometrial lining is

veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

Thanks everyone for your prayers and thoughts,

Debbie

[Guest guest]

Hi, Debbie. Thanks for being so supportive. I feel foolish having done

everything to get to the right place and then letting down my guard. I assumed

that since I told them (at hosp) that I had been having SOB for several months,

increasing in severity, then pains in my heart and, what I believed to be, my

carotid artery, that I would get a full diagnostic...echocardiogram and PFT at

the minimum.

So I will start over...and see what kind of help I can get once qualified for a

medical discount with the local county facilities. I began this process about 10

days ago. May be able to get tests in a month. The only test the hospital did

was the enzyme test to see if I had had a heart attack...which I was pretty sure

I had not. What my research pointed to was an aneurism bursting on the ventricle

wall and that can only be detected by echo or CT or MRI, or other more invasive

heart testing. Another thought here lately (Dolores?) is the attack of the heart

muscle by mycoplasms as I was off the Mino for several weeks before finding Dr.

Sinnott and tolerating the Azithromycin.

Right now the SOB is better and tolerable from what it was. But, yes, they

ignored that basically. And Tuesday (at hosp) was the day I had felt and sounded

(breathing-wise) the best. So when they listened to my chest (listening for

rasping, popping alveoli, etc which is not associative with the dryness of OB)

they did not deem it necessary to do the congestion tests to detect

blockages...and does not tell what lung capacity is being utilized...all this

you prbly already know.

So I think I can maintain this plateau for now...with eating and medicine that

will not bring on an allergic reaction...until I can get the PFT done. I so

appreciate your concern and your good advice!

Re: Kombucha. I sought help for my daughter and her digestive problems that

progressed for many years until we tracked down the problem...systemic yeast

infection (different from a vaginal yeast infection). It is also very

destructive to the system...but with a radical change in diet and use of

anti-fungals, we came out the " other side " . It was scary at several points. One

of the things we learned NOT to ingest (while on the diet) was anything that

would promote yeasts(and fungi)in the body. Mushrooms and Kombucha were among

them..and also include most things fermented. For antioxidents which are

important I use grapeseed extract. And you are right to avoid sugars, as that is

what esp. feeds yeasts. I am not suggesting that you have a yeast

infection...just that avoiding these foods may avoid complication with your

already heavy mucousy discharge.

Your veggie smoothies sound great! and my daughter is a Fage fan! So good for

you with the healthy foods.

Your cyst sounds somewhat familiar...My hysterectomy stemmed from an enlarged

cyst (they called it a benign tumor), that blocked the right ovarian tube. It

had grown over a long time (3-6 years determined after removal)and was the size

of a grapefruit. My periods had become farther and farther apart...the lining

grew thick in the interim...and followed by heavy flows...for several weeks...I

had a total hyst. because the " dr. " wanted to (or needed a boat payment imo).

Many problems from this...on natural HRT now. So...is this similar? may not be a

cancerous growth if there is a growth or cyst?...one of the things noted later

by a good dr. was that if cancerous it would not have taken so long to

grow...that over such a long term, if cancer, I would not have been here...so if

you've had this more than several months, maybe not for you either? I have asked

my HRT group about excess estrogen and thick lining...so may get more info...one

of the group is very knowledgable.

In any case I hope this helps...and take it for what it's worth...just my

experiences...I do not diminish your concerns, just want to share if it helps.

Warm wishes for good health and peace of mind.

> >

> > > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > > Thanks everyone for your prayers and thoughts,

> > > Debbie

> > >

> > >

[Guest guest]

Hello o,

thanks for all the info. I was down to 1mg prednisone for a few weeks, and felt

pretty bad. For a week now, am at 2.5mg and takes some of the edge off....but

certainly not giving me any kind of life. It's my hip that is going that is

pretty bad, along with general RA conditions. I'm on AP 3 months now, and will

take your advise about waiting until 6 months AP, then start back down on

prednisone. 2.5mg isn't real bad....but I've been on this stuff now for almost

4 years! i'm sure it is effecting my body.. Wonder how you are doing? Sally

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

Sally,

I think you should have a x-ray done of your hips and see what issues you have

with them, don't wait till you break a hip and then have to have surgery. I did

that this summer and it is so painful, more then just the surgery.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Re: Update on todays US test

rheumatic

Date: Wednesday, September 29, 2010, 7:42 PM

 

Hello o,

thanks for all the info. I was down to 1mg prednisone for a few weeks, and felt

pretty bad. For a week now, am at 2.5mg and takes some of the edge off....but

certainly not giving me any kind of life. It's my hip that is going that is

pretty bad, along with general RA conditions. I'm on AP 3 months now, and will

take your advise about waiting until 6 months AP, then start back down on

prednisone. 2.5mg isn't real bad....but I've been on this stuff now for almost

4 years! i'm sure it is effecting my body.. Wonder how you are doing? Sally

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

I tried 1mg. pred last week too!! Like you I'm back up to 2.5 now, ugh.... I've

been on for almost five years, I guess getting off those last few mg. are the

hardest.

Good luck.

Sue

---- mannasal@... wrote:

>

> Hello o,

> thanks for all the info. I was down to 1mg prednisone for a few weeks, and

felt pretty bad. For a week now, am at 2.5mg and takes some of the edge

off....but certainly not giving me any kind of life. It's my hip that is going

that is pretty bad, along with general RA conditions. I'm on AP 3 months now,

and will take your advise about waiting until 6 months AP, then start back down

on prednisone. 2.5mg isn't real bad....but I've been on this stuff now for

almost 4 years! i'm sure it is effecting my body.. Wonder how you are doing?

Sally

>

>

>

>

>

>

> rheumatic Re: Update on todays US test

>

>

>

>

> Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

>

> A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

>

> Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

>

> Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

>

> I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

>

> Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

>

> Best to all,

>

> o

>

>

> >

> > > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > > Thanks everyone for your prayers and thoughts,

> > > Debbie

> > >

> > >

[Guest guest]

did have xray by GP. said both hips need replaced (using walker but very

difficult getting around the house) have apt. with surgeon Nov 2nd at

university of Iowa Hospital. he specializes in hip replacement using anterior

(much less invasive than side or back) doesn't go through muscle, quicker

recovery, etc. you have to meet several criteria to be candidate. right now

the way i am doing with the RA, I can't even imagine going out of the house, let

alone going for surgery, etc. i have PT now coming 2 time week.

this whole thing is frightening and continues to destroy the body, until the

disease slows down and goes into remission. What a lovely goal! sally

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

Sally,

the doctor that did my hip replacement told me if you have RA you might as well

go for the whole thing because a partial is no good. Naturally I had broken my

hip real bad so I would had a whole hip replacement anyway.LOL. I hope

everything works out for you. if you have the hip replaced before you break it

then it is easier to do and heal. I was out of the hospital within a week, out

of the rehab in 11 days and driving my car within7 weeks. You should have seen

me, 2008 and part of 2009 I had to use a wheelchair, did physical therapy twice

and graduated to a rollator and then did the stunt in the store hurting myself.

oh well I do a lot better now, walking almost upright now. I can walk about 2

blocks now. big improvement.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Re: Update on todays US test

rheumatic

Date: Wednesday, September 29, 2010, 7:42 PM

Hello o,

thanks for all the info. I was down to 1mg prednisone for a few weeks, and felt

pretty bad. For a week now, am at 2.5mg and takes some of the edge off....but

certainly not giving me any kind of life. It's my hip that is going that is

pretty bad, along with general RA conditions. I'm on AP 3 months now, and will

take your advise about waiting until 6 months AP, then start back down on

prednisone. 2.5mg isn't real bad....but I've been on this stuff now for almost 4

years! i'm sure it is effecting my body.. Wonder how you are doing? Sally

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

thanks Eva for your hip info. Walking 2 blocks sounds like a marathon to me!

I'm going to see surgeon who does hip replacement going in front. less invasive

and quicker recovery. it's frightening to think of surgery, and recovery, when

I'm having such a hard time witht he RA. I know there is a light at the end of

the tunnell....but when? I was 56 when RA slammed me. now 60. 4 yrs of being

mostly homebound and 4 yrs of my life over. Sometimes I wonder how long I can

take this, physically, mentally and financally......so I have to keep reminding

myself " one day at a time...one step at a time " .......sally

rheumatic Re: Update on todays US test

Hi, Debbie. One of the bitter pills of this disease is the spinoff problems. I

am so sorry that you have to go through this latest test and possible battle. I

believe that most in this group are fighters otherwise we wouldnt be here. So I

know you will continue to research and fight. (Of course, I really did know Troy

Who).

A note as to my cardio tests at the hospital...as many doctors as I have dealt

with I still havent learned that I must be proactive at all times...I was

admitted to emergency...run through a series of preliminary tests...and was

waiting for results and further (echocardiogram, pulmonary function) tests. The

nurse came back and said " well, the dr. wants to release you, you are not having

a heart attack " . !!! Of course I knew that before I ever went to them. I wanted

to get a picture of what was going on inside my heart...bleeding, aneurism...but

too late.

Just another reminder that we are our own best advocates. I will

persevere...somehow get some testing run.

Sally: I am also on steroids. I take hydrocortisone along with my ABX (thought

to be a more natural, easier to absorb corticosteroid than the synthetic version

- prednisone). There is a very strong caution, once on for some time, you must

not get off too quickly or suffer severe consequences re: your body's need for

cortisol - the pituitary-adrenal function. The sudden deficiency can cause:

flu-like symptoms, cravings for sweets/salt, brain-fog, loss of appetite,

nausea, allergies, and inability to deal with stress.

I have looked for and thought I had saved a posting from this group re: slow

withdrawal off prednisone...maybe someone has it out there? But I believe the

person who wrote it recommended a one-year process of reduction and letting the

body redevelop its ability to reconstitute the adrenal function.

Dr. Brown also mentioned the comparative ease in getting off steroids once the

antibiotic therapy had begun to improve the body...so maybe you could increase

slightly for now (if you do relate some of the feelings you are having to the

steroid deficit - much of this will likely be Herx, so be cautious), then taper

again after the 6-month initial ABX use period?

Best to all,

o

>

> > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

> > Thanks everyone for your prayers and thoughts,

> > Debbie

> >

> >

[Guest guest]

Just thought I would jump in here & tell you the good news my close GF needed a

hip replacement & yes the surgeon was the pioneer of going in from the front --

she was 68 yrs old & a ballroom dance teacher, very active & fit -- anyway she

had the op on the Wednesday, was walking on it within 2 hrs of recovery & home

on Friday -- what a quick recovery !!!

Good luck,

Maz

>

> >

>

> > > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

>

> > > Thanks everyone for your prayers and thoughts,

>

> > > Debbie

>

> > >

>

> > >

[Guest guest]

thank you Maz...very good. I hope I qualify for the front surgery, and can

physically even have the surgery. sally

rheumatic Re: Update on todays US test

Just thought I would jump in here & tell you the good news my close GF needed a

hip replacement & yes the surgeon was the pioneer of going in from the front --

she was 68 yrs old & a ballroom dance teacher, very active & fit -- anyway she

had the op on the Wednesday, was walking on it within 2 hrs of recovery & home

on Friday -- what a quick recovery !!!

Good luck,

Maz

>

> >

>

> > > Hey all...saw a GYN today, she did an US and said that the endometrial

lining is veryyy thickened...which might not be a big deal, have had that happen

before...she took 2 biopsies..BUT she said that my ovary has something on it

that should not be there...AND she is treating it as cancer until proven

otherwise. She did an estradiol test, I am thinking measuring estrogen...and

then did the CA 125 to ck for cancer. She said she is sending me to an

ONC/GYN...she also said that at my age, 56, I should not be making the amount of

estrogen I am making..and that when they see that, they know that cancer is

somewhere..so...I do have another US scheduled tomorrow with my friend, she is

an US tech for a hospital...my DR preferred there...I just wanted to get my 2

opinions as DR W has taught me done...I should know more...when the labs come

back and the biopsies...ugh...

>

> > > Thanks everyone for your prayers and thoughts,

>

> > > Debbie

>

> > >

>

> > >