Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 It sounds like you answered your own question. I am by no means an expert but from my own experience and from what yours sounds like I would push through it. It takes time. We did not get sick in a day, week, month or year. Stay in touch with your Doc and if it it persists then consider a plan B. I used to take Prednisone as well. 10mg daily. I weened off as I began LDN. I experienced for over a month very persistent joint pain and Neuropathy issues that have now disappeared entirely. Just my experience. On Mon, Oct 11, 2010 at 10:46 AM, Beth Fletcher <kbf23@...> wrote: > > > I have been on AP for almost two years. For nearly the last year, I had > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and > since he's nearly impossible to get in to see, I decided I felt so good (and > my numbers were normal (sed rate) and very close to normal (c-reactive > protein) last time I saw him six months ago) I wanted to stop the pred and > see how it went. Well, I was good for about two and a half weeks. Then my > left knee started swelling up huge. It swells up and then goes down and > then back up. My other joints feel okay--not as good as on prednisone, but > not as bad as they felt a year ago either. > Would you guys recommend I go back on the pred or try to push through it? > Obviously, I am one of those people that if AP is going to help, it's going > to take a while. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Beth, My understanding is that you are supposed to wean off prednison rather than go off it cold turkey. Perhaps members of this group who have experience with this drug can comment more specific. take care, Ute > ._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Dr. Sentef says that 5 mg is such a low dose, that I could go on and off as I wanted. Is this not the case? I have not started back on it and won't if I can find some other form of relief. From: Uté <nowyoga@...> Subject: Re: rheumatic prednisone--need your guidance again rheumatic Date: Monday, October 11, 2010, 11:50 AM Beth, My understanding is that you are supposed to wean off prednison rather than go off it cold turkey. Perhaps members of this group who have experience with this drug can comment more specific. take care, Ute > ._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 I am so glad AP worked for you! Now the prednisone issue. I've been on this drug for almost 5 years. I started at 20mg and I am down to 2.5mg, you have to taper down gradually and give your body time to get used to the smaller dose, then go down another 1/2 mg. It is a very long process. I am trying to get off too but I can't seem to get below 2.5 so if I must take it at least it's a small dose as I've read on Roadback that under 5mg is not to dangerous. Sue ---- Beth Fletcher <kbf23@...> wrote: > I have been on AP for almost two years. For nearly the last year, I had taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and since he's nearly impossible to get in to see, I decided I felt so good (and my numbers were normal (sed rate) and very close to normal (c-reactive protein) last time I saw him six months ago) I wanted to stop the pred and see how it went.  Well, I was good for about two and a half weeks.  Then my left knee started swelling up huge.  It swells up and then goes down and then back up.  My other joints feel okay--not as good as on prednisone, but not as bad as they felt a year ago either. > Would you guys recommend I go back on the pred or try to push through it?  Obviously, I am one of those people that if AP is going to help, it's going to take a while. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 That's the thing....I'm not sure AP did/is working for me. I can't tell if it did or if the 5 mg of pred were enough to mask my pain. I'm so confused. I've been researching methotrexate today--a drug I swore I'd never take. > I have been on AP for almost two years. For nearly the last year, I had taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and since he's nearly impossible to get in to see, I decided I felt so good (and my numbers were normal (sed rate) and very close to normal (c-reactive protein) last time I saw him six months ago) I wanted to stop the pred and see how it went. Well, I was good for about two and a half weeks. Then my left knee started swelling up huge. It swells up and then goes down and then back up. My other joints feel okay--not as good as on prednisone, but not as bad as they felt a year ago either. > Would you guys recommend I go back on the pred or try to push through it? Obviously, I am one of those people that if AP is going to help, it's going to take a while. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Beth, Most of us go thru the prednisone thing one way or other. You mentioned your sed rate(how high was it to begin with and what was it when you went off pred?) was normal but not your CRP(how high was it to begin with?) . Do you have heart issues? If no heart problems then it is high from inflammation. Depending on how high your numbers were when you started I would say the Mino is working but you still had inflammation and need to be on it till the inflammation is down completely then drop to 2 ½ mgms then cut that down to 1/4 of a pill. Did you have an RA factor done? Results? cooky From: rheumatic [mailto:rheumatic ] On Behalf Of Beth Fletcher Sent: Monday, October 11, 2010 10:47 AM rheumatic Subject: rheumatic prednisone--need your guidance again I have been on AP for almost two years. For nearly the last year, I had taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and since he's nearly impossible to get in to see, I decided I felt so good (and my numbers were normal (sed rate) and very close to normal (c-reactive protein) last time I saw him six months ago) I wanted to stop the pred and see how it went. Well, I was good for about two and a half weeks. Then my left knee started swelling up huge. It swells up and then goes down and then back up. My other joints feel okay--not as good as on prednisone, but not as bad as they felt a year ago either. Would you guys recommend I go back on the pred or try to push through it? Obviously, I am one of those people that if AP is going to help, it's going to take a while. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Beth, to determine if, or if it is not working, what is the quality of your life? I'm just a few months on AP, homebound, 2 mg pred (I could use a lot more to help with pain and get around easier) but not going to do it. Keep with AP. I also researched mtrexate, and after researching......I will not take the stuff? is that a mistake, since I don't have a life, and have missed out on life for 4 years, to not take it?? I still feel it would be worse to take it, especially for the long run. This is not easy for any of us. Sally Re: rheumatic prednisone--need your guidance again That's the thing....I'm not sure AP did/is working for me. I can't tell if it did or if the 5 mg of pred were enough to mask my pain. I'm so confused. I've been researching methotrexate today--a drug I swore I'd never take. > I have been on AP for almost two years. For nearly the last year, I had taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and since he's nearly impossible to get in to see, I decided I felt so good (and my numbers were normal (sed rate) and very close to normal (c-reactive protein) last time I saw him six months ago) I wanted to stop the pred and see how it went. Well, I was good for about two and a half weeks. Then my left knee started swelling up huge. It swells up and then goes down and then back up. My other joints feel okay--not as good as on prednisone, but not as bad as they felt a year ago either. > Would you guys recommend I go back on the pred or try to push through it? Obviously, I am one of those people that if AP is going to help, it's going to take a while. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 My experience with prednisone......It gave me diabetes......one of the well known side effects.....I am on AP for just over one year.......in remission for about 5 months.......if I had to do it all over again, I would NEVER take prednisone or any of the other toxic chemical soups......(they gave me kidney and liver damage)......BUT everyone is different.....wishing all the best......frank > > > I have been on AP for almost two years. For nearly the last year, I had > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and > since he's nearly impossible to get in to see, I decided I felt so good (and > my numbers were normal (sed rate) and very close to normal (c-reactive > protein) last time I saw him six months ago) I wanted to stop the pred and > see how it went. Well, I was good for about two and a half weeks. Then my > left knee started swelling up huge. It swells up and then goes down and > then back up. My other joints feel okay--not as good as on prednisone, but > not as bad as they felt a year ago either. > Would you guys recommend I go back on the pred or try to push through it? > Obviously, I am one of those people that if AP is going to help, it's going > to take a while. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 I am now pre diabetic - thank you prednisone - For me, it did nothing but make me sicker - I am in to AP, I will never take those drugs again - and I understand the consequences. Carole On 10/11/10 5:17 PM, frank feczko wrote: > > My experience with prednisone......It gave me diabetes......one of > the well known side effects.....I am on AP for just over one > year.......in remission for about 5 months.......if I had to do it all > over again, I would NEVER take prednisone or any of the other toxic > chemical soups......(they gave me kidney and liver damage)......BUT > everyone is different.....wishing all the best......frank > > > > > > > > > I have been on AP for almost two years. For nearly the last year, I had > > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. > Sentef and > > since he's nearly impossible > to get in to see, I decided I felt so good (and > > my numbers were normal (sed rate) and very close to normal (c-reactive > > protein) last time I saw him six months ago) I wanted to stop the > pred and > > see how it went. Well, I was good for about two and a half weeks. > Then my > > left knee started swelling up huge. It swells up and then goes down and > > then back up. My other joints feel okay--not as good as on > prednisone, but > > not as bad as they felt a year ago either. > > Would you guys recommend I go back on the pred or try to push > through it? > > Obviously, I am one of those people that if AP is going to help, > it's going > > to take a while. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 I'm no expert but I don't think 5 mg. of prednisone alone would take care of RA pain. I have to take MTX, Enbrel and Prednisone to get the pain tolerable...sometimes I even feel " normal " although I know I'm a walking time bomb with all these horrible meds. Anyway I think the ap must be working because 5 mg. wouldn't do the trick alone. IMHO. Sue ---- Beth Fletcher <kbf23@...> wrote: > That's the thing....I'm not sure AP did/is working for me.  I can't tell if it did or if the 5 mg of pred were enough to mask my pain.  I'm so confused.  I've been researching methotrexate today--a drug I swore I'd never take. > > > > I have been on AP for almost two years. For nearly the last year, I had taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and since he's nearly impossible to get in to see, I decided I felt so good (and my numbers were normal (sed rate) and very close to normal (c-reactive protein) last time I saw him six months ago) I wanted to stop the pred and see how it went.  Well, I was good for about two and a half weeks.  Then my left knee started swelling up huge.  It swells up and then goes down and then back up.  My other joints feel okay--not as good as on prednisone, but not as bad as they felt a year ago either. > > Would you guys recommend I go back on the pred or try to push through it?  Obviously, I am one of those people that if AP is going to help, it's going to take a while. > > > > > >     > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Hi , What other " toxic chemical soups " have you taken? On Mon, Oct 11, 2010 at 5:17 PM, frank feczko <ffrescaa@...> wrote: > > > My experience with prednisone......It gave me diabetes......one of the > well known side effects.....I am on AP for just over one year.......in > remission for about 5 months.......if I had to do it all over again, I would > NEVER take prednisone or any of the other toxic chemical soups......(they > gave me kidney and liver damage)......BUT everyone is different.....wishing > all the best......frank > > > > > > > > > I have been on AP for almost two years. For nearly the last year, I had > > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and > > since he's nearly impossible > to get in to see, I decided I felt so good (and > > my numbers were normal (sed rate) and very close to normal (c-reactive > > protein) last time I saw him six months ago) I wanted to stop the pred > and > > see how it went. Well, I was good for about two and a half weeks. Then > my > > left knee started swelling up huge. It swells up and then goes down and > > then back up. My other joints feel okay--not as good as on prednisone, > but > > not as bad as they felt a year ago either. > > Would you guys recommend I go back on the pred or try to push through it? > > Obviously, I am one of those people that if AP is going to help, it's > going > > to take a while. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Hi Lindsey, Over the years I took; enbrel, methotrexate, prednisone, plaquenil, humira, orencia, remicade, gold injections, lodine, and maybe a few others. Prednisone gave me diabetes; methotrexate screwed up my liver; not sure what caused my kidneys to get screwed up.....but they are still a problem, I will see nephrologist tomorrow. Gold injections literally killed me....I came to with the doc telling me, " I thought we lost you....you were a zombie. " I asked him what he meant by zombie, he answered, " you were a gonner. " So to sum up.....I got diabetes, liver and kidney damage, almost died from gold, ( oh yeah, had severe convulsions from remicade).....and got NO relief > > > > > > > I have been on AP for almost two years. For nearly the last year, I had > > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and > > since he's nearly impossible > to get in to see, I decided I felt so good (and > > my numbers were normal (sed rate) and very close to normal (c-reactive > > protein) last time I saw him six months ago) I wanted to stop the pred > and > > see how it went. Well, I was good for about two and a half weeks. Then > my > > left knee started swelling up huge. It swells up and then goes down and > > then back up. My other joints feel okay--not as good as on prednisone, > but > > not as bad as they felt a year ago either. > > Would you guys recommend I go back on the pred or try to push through it? > > Obviously, I am one of those people that if AP is going to help, it's > going > > to take a while. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 , are you getting any relief from AP? My what a terrible time you've had. I'm worried about my liver too, rheumy called today and said liver enzymes high and WBC very, very low. ---- frank feczko <ffrescaa@...> wrote: >    Hi Lindsey, >         Over the years I took; enbrel, methotrexate, prednisone, plaquenil, humira, orencia, remicade, gold injections, lodine, and maybe a few others.  Prednisone gave me diabetes;  methotrexate screwed up my liver; not sure what caused my kidneys to get screwed up.....but they are still a problem, I will see nephrologist tomorrow.  Gold injections literally killed me....I came to with the doc telling me, " I thought we lost you....you were a zombie. "  I asked him what he meant by zombie, he answered, " you were a gonner. "          So to sum up.....I got diabetes, liver and kidney damage, almost died from gold, ( oh yeah, > had severe convulsions from remicade).....and got NO relief  > > > > > > > > > > > > > I have been on AP for almost two years. > For nearly the last year, I had > > > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef and > > > since he's nearly impossible > > to get in to see, I decided I felt so good (and > > > my numbers were normal (sed rate) and very close to normal (c-reactive > > > protein) last time I saw him six months ago) I wanted to stop the pred > > and > > > see how it went. Well, I was good for about two and a half weeks. Then > > my > > > left knee started swelling up huge. It swells up and then goes down and > > > then back up. My other joints feel okay--not as good as on prednisone, > > but > > > not as bad as they felt a year ago either. > > > Would you guys recommend I go back on the pred or try to push through it? > > > Obviously, I am one of those people that if AP is going to help, it's > > going > > > to take a > while. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 , thank you for sharing. Do you have RA? Are you taking LDN? I am so happy to read you have been in remission for 5 years!!! that gives me hope. I pray that I will have the same experience with AP! I am on Enbril now with Plaquenil. I used to take Orincia before insurance quit me. I take LDN 4.5mg and AP MInocin (just started). I got very sick on Metho and weened off the 5mg Prednisone. I am too afraid now to go off Enbril now with Plaquenil. Did you learn some good information from your nephrologist appointment? On Tue, Oct 12, 2010 at 9:32 PM, <semrick@...> wrote: > > > > , are you getting any relief from AP? My what a terrible time you've > had. I'm worried about my liver too, rheumy called today and said liver > enzymes high and WBC very, very low. > > ---- frank feczko <ffrescaa@... <ffrescaa%40>> wrote: > > Hi Lindsey, > > Over the years I took; enbrel, methotrexate, prednisone, > plaquenil, humira, orencia, remicade, gold injections, lodine, and maybe a > few others. Prednisone gave me diabetes; methotrexate screwed up my liver; > not sure what caused my kidneys to get screwed up.....but they are still a > problem, I will see nephrologist tomorrow. Gold injections literally killed > me....I came to with the doc telling me, " I thought we lost you....you were > a zombie. " I asked him what he meant by zombie, he answered, " you were a > gonner. " So to sum up.....I got diabetes, liver and kidney > damage, almost died from gold, ( oh yeah, > > had severe convulsions from remicade).....and got NO relief > > > > > > > > > > > > > > > > > > > > I have been on AP for almost two years. > > For nearly the last year, I had > > > > taken 5mgs of prednisone everyday until 4 weeks ago. I see Dr. Sentef > and > > > > since he's nearly impossible > > > to get in to see, I decided I felt so good (and > > > > my numbers were normal (sed rate) and very close to normal > (c-reactive > > > > protein) last time I saw him six months ago) I wanted to stop the > pred > > > and > > > > see how it went. Well, I was good for about two and a half weeks. > Then > > > my > > > > left knee started swelling up huge. It swells up and then goes down > and > > > > then back up. My other joints feel okay--not as good as on > prednisone, > > > but > > > > not as bad as they felt a year ago either. > > > > Would you guys recommend I go back on the pred or try to push through > it? > > > > Obviously, I am one of those people that if AP is going to help, > it's > > > going > > > > to take a > > while. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Beth, A tapering off factor is how long a person has been on Prednisone. Persons who have been on 5 mg of Prednisone per day for only a couple of weeks should be able to stop immediately. People who have been on 5 mg of Prednisone per day for many months should taper off at the rate of 1 mg per month. This is what two doctors have prescribed for me. Example: 5 mg per day in September, 4 mg per day in October, 3 mg per day in November, 2 mg per day in December, and 1 mg per day in January. This is a very conservative tapering off rate, which reflects the fact that Prednisone helps a lot of arthritis sufferers. The adrenal glands of the human body secrete about 20 milligrams per day of the of a natural corticosteroid hormone named Cortisol, which has many of the same effects as Prednisone. Prednisone is 4-5 times more potent than Cortisol. Hence, 4-5 milligrams of Prednisone is equivalent to how much Cortisol is produced by the body per day. Sincerely, Harald At 10:41 AM 10/11/2010, Beth Fletcher wrote: > >Dr. Sentef says that 5 mg is such a low dose, >that I could go on and off as I wanted. Is this >not the case? I have not started back on it and >won't if I can find some other form of relief. > > > >From: Uté <<mailto:nowyoga%40earthlink.net>nowyoga@...> >Subject: Re: rheumatic prednisone--need your guidance again ><mailto:rheumatic%40>rheumatic >Date: Monday, October 11, 2010, 11:50 AM > > Beth, >My understanding is that you are supposed to wean off prednison rather >than go off it cold turkey. Perhaps members of this group who have >experience with this drug can comment more specific. >take care, >Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Harald, Thank you for being so specific in your answer. Your information is very helpful. On Wed, Oct 13, 2010 at 11:09 AM, Harald Weiss, Technical Marketing Group < hweiss@...> wrote: > > > Beth, > > A tapering off factor is how long a person has > been on Prednisone. Persons who have been on 5 mg > of Prednisone per day for only a couple of weeks > should be able to stop immediately. People who > have been on 5 mg of Prednisone per day for many > months should taper off at the rate of 1 mg per > month. This is what two doctors have prescribed for me. > > Example: 5 mg per day in September, 4 mg per day > in October, 3 mg per day in November, 2 mg per > day in December, and 1 mg per day in January. > This is a very conservative tapering off rate, > which reflects the fact that Prednisone helps a lot of arthritis sufferers. > > The adrenal glands of the human body secrete > about 20 milligrams per day of the of a natural > corticosteroid hormone named Cortisol, which has > many of the same effects as Prednisone. > Prednisone is 4-5 times more potent than > Cortisol. Hence, 4-5 milligrams of Prednisone is > equivalent to how much Cortisol is produced by the body per day. > > Sincerely, Harald > > At 10:41 AM 10/11/2010, Beth Fletcher wrote: > > > >Dr. Sentef says that 5 mg is such a low dose, > >that I could go on and off as I wanted. Is this > >not the case? I have not started back on it and > >won't if I can find some other form of relief. > > > > > > > >From: Uté <<mailto:nowyoga%40earthlink.net <nowyoga%2540earthlink.net>> > nowyoga@... <nowyoga%40earthlink.net>> > >Subject: Re: rheumatic prednisone--need your guidance again > ><mailto:rheumatic%40 <rheumatic%2540>> > rheumatic <rheumatic%40> > >Date: Monday, October 11, 2010, 11:50 AM > > > > Beth, > >My understanding is that you are supposed to wean off prednison rather > >than go off it cold turkey. Perhaps members of this group who have > >experience with this drug can comment more specific. > >take care, > >Ute > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Hello Harald, I have been on pred. 4 years (last yr to 2, on 5mg. over last 2 months I am now at 2mg. Should I also do the 1mg per month reduction? I feel pretty bad, but also want to stop this drug! Thank you, Sally Re: rheumatic prednisone--need your guidance again ><mailto:rheumatic%40 <rheumatic%2540>> rheumatic <rheumatic%40> >Date: Monday, October 11, 2010, 11:50 AM > > Beth, >My understanding is that you are supposed to wean off prednison rather >than go off it cold turkey. Perhaps members of this group who have >experience with this drug can comment more specific. >take care, >Ute Non-text portions of this message have been removed] ------------------------------------ To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links Individual Email | Traditional = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 > > > > Hi Harald, > > Thanks for this information. I have been on 10mg of Prednisone for a month > but I am > on 5mg of Prednisone now. Prednisone really helps but I have throat > infections. > > I contacted my Chinese naturopath and he told me that he cannot mention the > names > of the herbs for the Chinese tea because this tea is specifically designed for > my body. > The tea is very powerful! My Chinese naturopath recommends to make an > appointment > with a Chinese naturopath in you area. > > Best, > Antje > > Beth, > > A tapering off factor is how long a person has > been on Prednisone. Persons who have been on 5 mg > of Prednisone per day for only a couple of weeks > should be able to stop immediately. People who > have been on 5 mg of Prednisone per day for many > months should taper off at the rate of 1 mg per > month. This is what two doctors have prescribed for me. > > Example: 5 mg per day in September, 4 mg per day > in October, 3 mg per day in November, 2 mg per > day in December, and 1 mg per day in January. > This is a very conservative tapering off rate, > which reflects the fact that Prednisone helps a lot of arthritis sufferers. > > The adrenal glands of the human body secrete > about 20 milligrams per day of the of a natural > corticosteroid hormone named Cortisol, which has > many of the same effects as Prednisone. > Prednisone is 4-5 times more potent than > Cortisol. Hence, 4-5 milligrams of Prednisone is > equivalent to how much Cortisol is produced by the body per day. > > Sincerely, Harald > > At 10:41 AM 10/11/2010, Beth Fletcher wrote: >> > >> >Dr. Sentef says that 5 mg is such a low dose, >> >that I could go on and off as I wanted. Is this >> >not the case? I have not started back on it and >> >won't if I can find some other form of relief. >> > >> > >> > >> >From: Uté <<mailto:nowyoga%40earthlink.net>nowyoga@... >> <mailto:nowyoga%40earthlink.net> > >> >Subject: Re: rheumatic prednisone--need your guidance again >> ><mailto:rheumatic%40>rheumatic >> <mailto:rheumatic%40> >> >Date: Monday, October 11, 2010, 11:50 AM >> > >> > Beth, >> >My understanding is that you are supposed to wean off prednison rather >> >than go off it cold turkey. Perhaps members of this group who have >> >experience with this drug can comment more specific. >> >take care, >> >Ute > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Sally, You could drop the daily dosage from 2 mg to 1 mg and then 1/2 mg of Prednisone per month -- or drop the daily dosage down by 1/2 mg every month. If you terminate any arthritis drug too quickly, you may get an arthritic flare. The above tapering off will assure that there is no such flare. By the way, I am currently also on 2 mg of Prednisone per month, dropping to 1 mg in November. Sincerely, Harald At 01:12 PM 10/13/2010, you wrote: > >Hello Harald, >I have been on pred. 4 years (last yr to 2, on 5mg. over last 2 >months I am now at 2mg. Should I also do the 1mg per month >reduction? I feel pretty bad, but also want to stop this drug! Thank you, Sally > > Re: rheumatic prednisone--need your guidance again > >Harald, >hank you for being so specific in your answer. >our information is very helpful. > >n Wed, Oct 13, 2010 at 11:09 AM, Harald Weiss, Technical Marketing Group < ><mailto:weiss%40tmgp.com>weiss@...> wrote: > > > >Beth, > >A tapering off factor is how long a person has >been on Prednisone. Persons who have been on 5 mg >of Prednisone per day for only a couple of weeks >should be able to stop immediately. People who >have been on 5 mg of Prednisone per day for many >months should taper off at the rate of 1 mg per >month. This is what two doctors have prescribed for me. > >Example: 5 mg per day in September, 4 mg per day >in October, 3 mg per day in November, 2 mg per >day in December, and 1 mg per day in January. >This is a very conservative tapering off rate, >which reflects the fact that Prednisone helps a lot of arthritis sufferers. > >The adrenal glands of the human body secrete >about 20 milligrams per day of the of a natural >corticosteroid hormone named Cortisol, which has >many of the same effects as Prednisone. >Prednisone is 4-5 times more potent than >Cortisol. Hence, 4-5 milligrams of Prednisone is >equivalent to how much Cortisol is produced by the body per day. > >Sincerely, Harald > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 thank you Harald! Have you been on pred. for a long time? Are you in remission? I guess I just want to know if you " have a real life " . I pray you do and feel it is time for us all to have a real/abundant life! sally Re: rheumatic prednisone--need your guidance again > >Harald, >hank you for being so specific in your answer. >our information is very helpful. > >n Wed, Oct 13, 2010 at 11:09 AM, Harald Weiss, Technical Marketing Group < ><mailto:weiss%40tmgp.com>;weiss@...> wrote: > > > >Beth, > >A tapering off factor is how long a person has >been on Prednisone. Persons who have been on 5 mg >of Prednisone per day for only a couple of weeks >should be able to stop immediately. People who >have been on 5 mg of Prednisone per day for many >months should taper off at the rate of 1 mg per >month. This is what two doctors have prescribed for me. > >Example: 5 mg per day in September, 4 mg per day >in October, 3 mg per day in November, 2 mg per >day in December, and 1 mg per day in January. >This is a very conservative tapering off rate, >which reflects the fact that Prednisone helps a lot of arthritis sufferers. > >The adrenal glands of the human body secrete >about 20 milligrams per day of the of a natural >corticosteroid hormone named Cortisol, which has >many of the same effects as Prednisone. >Prednisone is 4-5 times more potent than >Cortisol. Hence, 4-5 milligrams of Prednisone is >equivalent to how much Cortisol is produced by the body per day. > >Sincerely, Harald > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 I wanted to say a BIG thank you to everyone who replied to my post. I was (surprisingly) able to cry my way into an appt with Dr. Sentef next Friday. It's like pulling teeth to get seen by him! Anyways, I will discuss my situation with him then. I will say that I am feeling MUCH better than when I posted this and now I am sure that AP is in fact working for me...praise the Lord! I want to seek his opinion though on my actually starting back up on the prednisone at a lower (maybe 3 mg) dose to see if that is enough to keep the swelling in my knees minimal to allow the antibiotic to reach those areas and work more. You guys are such an awesome support and a wealth of knowledge! Beth > > > >Beth, > >A tapering off factor is how long a person has >been on Prednisone. Persons who have been on 5 mg >of Prednisone per day for only a couple of weeks >should be able to stop immediately. People who >have been on 5 mg of Prednisone per day for many >months should taper off at the rate of 1 mg per >month. This is what two doctors have prescribed for me. > >Example: 5 mg per day in September, 4 mg per day >in October, 3 mg per day in November, 2 mg per >day in December, and 1 mg per day in January. >This is a very conservative tapering off rate, >which reflects the fact that Prednisone helps a lot of arthritis sufferers. > >The adrenal glands of the human body secrete >about 20 milligrams per day of the of a natural >corticosteroid hormone named Cortisol, which has >many of the same effects as Prednisone. >Prednisone is 4-5 times more potent than >Cortisol. Hence, 4-5 milligrams of Prednisone is >equivalent to how much Cortisol is produced by the body per day. > >Sincerely, Harald > ------------------------------------ To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links Quote Link to comment Share on other sites More sharing options...
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