Re: Question about myco testing

June 9, 2010

A nasal swab? Hmmm....I was tested years ago, when first sick...and it was

blood, lab tests...My local lab pulled them and sent them to a special lab...I

think Ethel knows this lab...I am sorry I cannot remember the name of it...but

they do the PCR testing....Ethel....can you post the lab...I remember there was

a woman there that worked with Dr. Brown or did testing for him...something...

But my test was definitely a blood draw not a swab...have things improved that

much that they are now able to do swabs?

Debbie in Cincinnati

rheumatic Question about myco testing

Has anyone had mycoplasma testing done? What specifically did you have

done and where did you have it done?

I asked my DO to give me a script for mycoplasma testing, which he did.

I went to the Immediate Care place I usually have bloodwork drawn, and

they had no clue what to do and suggested I go to a hospital. So

yesterday I did. After a lot of calling around, they were able to

figure out what to do.....a nasal swab. If I'd known they were doing a

nasal swab, I wouldn't have taken benadryl yesterday!!!

The order looked like it asked for a mycoplasma pneumon PCR test. I

don't think that's what I wanted. I was hoping for, at minimum, a

broader test for mycoplasma, but was really wanting more specific

testing of m. fermentans, etc.

So, I'm wondering how to go about getting the specific tests? What do I

ask a script for? And where can I have it done?

--Celia <><

June 9, 2010

Debbie,

my allergist ordered a mycoplasma test on me and my grandson and it was

definitly a blood test. I went to Labcorp and he went to Quest (just different

insurances) both of them come back possitive..

Eva

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: Re: rheumatic Question about myco testing

rheumatic

Date: Wednesday, June 9, 2010, 8:05 AM

Â

A nasal swab? Hmmm....I was tested years ago, when first sick...and it was

blood, lab tests...My local lab pulled them and sent them to a special lab...I

think Ethel knows this lab...I am sorry I cannot remember the name of it...but

they do the PCR testing....Ethel....can you post the lab...I remember there was

a woman there that worked with Dr. Brown or did testing for him...something...

But my test was definitely a blood draw not a swab...have things improved that

much that they are now able to do swabs?

Debbie in Cincinnati

rheumatic Question about myco testing

Has anyone had mycoplasma testing done? What specifically did you have

done and where did you have it done?

I asked my DO to give me a script for mycoplasma testing, which he did.

I went to the Immediate Care place I usually have bloodwork drawn, and

they had no clue what to do and suggested I go to a hospital. So

yesterday I did. After a lot of calling around, they were able to

figure out what to do.....a nasal swab. If I'd known they were doing a

nasal swab, I wouldn't have taken benadryl yesterday!!!

The order looked like it asked for a mycoplasma pneumon PCR test. I

don't think that's what I wanted. I was hoping for, at minimum, a

broader test for mycoplasma, but was really wanting more specific

testing of m. fermentans, etc.

So, I'm wondering how to go about getting the specific tests? What do I

ask a script for? And where can I have it done?

--Celia <><

June 9, 2010

Debbie, in answer to your question, Dr. Millicent Coker-Vann was the

director of Dr. Brown's Arthritis Institute at the time of his death. Later

she established her own lab -

Arthritis Research Center

504 E. Diamond Ave.

Gaithersburg, MD 20877

Phone: 301-216-1231

Hospital laboratories or local labs like Lab Corp, Quest, etc. can only test

for mycoplasma pneumoniae - thus testing for all other forms of mycoplasma

that affect these diseases must be done at a special lab.

Ethel

rheumatic Question about myco testing

>

> Has anyone had mycoplasma testing done? What specifically did you have

> done and where did you have it done?

>

> I asked my DO to give me a script for mycoplasma testing, which he did.

> I went to the Immediate Care place I usually have bloodwork drawn, and

> they had no clue what to do and suggested I go to a hospital. So

> yesterday I did. After a lot of calling around, they were able to

> figure out what to do.....a nasal swab. If I'd known they were doing a

> nasal swab, I wouldn't have taken benadryl yesterday!!!

>

> The order looked like it asked for a mycoplasma pneumon PCR test. I

> don't think that's what I wanted. I was hoping for, at minimum, a

> broader test for mycoplasma, but was really wanting more specific

> testing of m. fermentans, etc.

>

> So, I'm wondering how to go about getting the specific tests? What do I

> ask a script for? And where can I have it done?

>

> --Celia <><

>

June 9, 2010

Thanks Ethel...I knew you would know....have you ever heard of just swab testing

for myco?

My blood was sent to her lab in MD when I was tested..

Thanks again,

Debbie

rheumatic Question about myco testing

>

> Has anyone had mycoplasma testing done? What specifically did you have

> done and where did you have it done?

>

> I asked my DO to give me a script for mycoplasma testing, which he did.

> I went to the Immediate Care place I usually have bloodwork drawn, and

> they had no clue what to do and suggested I go to a hospital. So

> yesterday I did. After a lot of calling around, they were able to

> figure out what to do.....a nasal swab. If I'd known they were doing a

> nasal swab, I wouldn't have taken benadryl yesterday!!!

>

> The order looked like it asked for a mycoplasma pneumon PCR test. I

> don't think that's what I wanted. I was hoping for, at minimum, a

> broader test for mycoplasma, but was really wanting more specific

> testing of m. fermentans, etc.

>

> So, I'm wondering how to go about getting the specific tests? What do I

> ask a script for? And where can I have it done?

>

> --Celia <><

>

June 9, 2010

hi Celia,Â I went to Dr. Trentham and had my myco test done by a blood draw,

not a nasal swab.Â I don't think the place you went to knows what you wanted or

maybe the doc didn't write down the correct test.Â Mine came back positive for

Mycoplasma Pneumonae and it was definitely a blood draw.Â I think they measured

the antibodies.Â Dr.Franco in Riverside, California does all that teating.Â

Maybe you can ask your doc to call him and get the details from Dr. Franco.Â

Dolores & Mike.

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: Re: rheumatic Question about myco testing

rheumatic

Date: Wednesday, June 9, 2010, 8:05 AM

Â

A nasal swab? Hmmm....I was tested years ago, when first sick...and it was

blood, lab tests...My local lab pulled them and sent them to a special lab...I

think Ethel knows this lab...I am sorry I cannot remember the name of it...but

they do the PCR testing....Ethel....can you post the lab...I remember there was

a woman there that worked with Dr. Brown or did testing for him...something...

But my test was definitely a blood draw not a swab...have things improved that

much that they are now able to do swabs?

Debbie in Cincinnati

rheumatic Question about myco testing

Has anyone had mycoplasma testing done? What specifically did you have

done and where did you have it done?

I asked my DO to give me a script for mycoplasma testing, which he did.

I went to the Immediate Care place I usually have bloodwork drawn, and

they had no clue what to do and suggested I go to a hospital. So

yesterday I did. After a lot of calling around, they were able to

figure out what to do.....a nasal swab. If I'd known they were doing a

nasal swab, I wouldn't have taken benadryl yesterday!!!

The order looked like it asked for a mycoplasma pneumon PCR test. I

don't think that's what I wanted. I was hoping for, at minimum, a

broader test for mycoplasma, but was really wanting more specific

testing of m. fermentans, etc.

So, I'm wondering how to go about getting the specific tests? What do I

ask a script for? And where can I have it done?

--Celia <><

June 9, 2010

I would like to have the mycoplasma test done as well..curious to know how a

positive test can alter treatment?

On Wed, Jun 9, 2010 at 12:06 PM, mike rosner <martysfolks2004@...>wrote:

>

> hi Celia, I went to Dr. Trentham and had my myco test done by a blood

> draw, not a nasal swab. I don't think the place you went to knows what you

> wanted or maybe the doc didn't write down the correct test. Mine came back

> positive for Mycoplasma Pneumonae and it was definitely a blood draw. I

> think they measured the antibodies. Dr.Franco in Riverside, California does

> all that teating. Maybe you can ask your doc to call him and get the

> details from Dr. Franco. Dolores & Mike.

>

> From: DEBBIE GIBSON <Debbullwinkle@... <Debbullwinkle%40fuse.net>>

> Subject: Re: rheumatic Question about myco testing

> rheumatic <rheumatic%40>

> Date: Wednesday, June 9, 2010, 8:05 AM

>

> A nasal swab? Hmmm....I was tested years ago, when first sick...and it was

> blood, lab tests...My local lab pulled them and sent them to a special

> lab...I think Ethel knows this lab...I am sorry I cannot remember the name

> of it...but they do the PCR testing....Ethel....can you post the lab...I

> remember there was a woman there that worked with Dr. Brown or did testing

> for him...something...

> But my test was definitely a blood draw not a swab...have things improved

> that much that they are now able to do swabs?

> Debbie in Cincinnati

> rheumatic Question about myco testing

>

> Has anyone had mycoplasma testing done? What specifically did you have

> done and where did you have it done?

>

> I asked my DO to give me a script for mycoplasma testing, which he did.

> I went to the Immediate Care place I usually have bloodwork drawn, and

> they had no clue what to do and suggested I go to a hospital. So

> yesterday I did. After a lot of calling around, they were able to

> figure out what to do.....a nasal swab. If I'd known they were doing a

> nasal swab, I wouldn't have taken benadryl yesterday!!!

>

> The order looked like it asked for a mycoplasma pneumon PCR test. I

> don't think that's what I wanted. I was hoping for, at minimum, a

> broader test for mycoplasma, but was really wanting more specific

> testing of m. fermentans, etc.

>

> So, I'm wondering how to go about getting the specific tests? What do I

> ask a script for? And where can I have it done?

>

> --Celia <><

>

June 9, 2010

The sample required depends on whether testing is done to determine the presence

of antibody or to detect the microorganism itself and on the health status of

the patient.

Antibody testing requires a blood sample, obtained by inserting a needle into a

vein in the arm.

Direct detection of mycoplasma may be done on a variety of samples. For a

respiratory infection, samples may include sputum, a washing of the bronchi in

the lungs, or throat swab. If a systemic infection is being diagnosed, blood,

joint fluid, body fluids, or tissues samples may be cultured. Some samples may

require a special procedure to collect them.

Personally I had bloods drawn, but having said that we expected I would come

back positive for mycoplasma it was just a confirmation thing.

> >

> > From: DEBBIE GIBSON <Debbullwinkle@... <Debbullwinkle%40fuse.net>>

> > Subject: Re: rheumatic Question about myco testing

> > rheumatic <rheumatic%40>

> > Date: Wednesday, June 9, 2010, 8:05 AM

> >

> > A nasal swab? Hmmm....I was tested years ago, when first sick...and it was

> > blood, lab tests...My local lab pulled them and sent them to a special

> > lab...I think Ethel knows this lab...I am sorry I cannot remember the name

> > of it...but they do the PCR testing....Ethel....can you post the lab...I

> > remember there was a woman there that worked with Dr. Brown or did testing

> > for him...something...

> > But my test was definitely a blood draw not a swab...have things improved

> > that much that they are now able to do swabs?

> > Debbie in Cincinnati

> > rheumatic Question about myco testing

> >

> > Has anyone had mycoplasma testing done? What specifically did you have

> > done and where did you have it done?

> >

> > I asked my DO to give me a script for mycoplasma testing, which he did.

> > I went to the Immediate Care place I usually have bloodwork drawn, and

> > they had no clue what to do and suggested I go to a hospital. So

> > yesterday I did. After a lot of calling around, they were able to

> > figure out what to do.....a nasal swab. If I'd known they were doing a

> > nasal swab, I wouldn't have taken benadryl yesterday!!!

> >

> > The order looked like it asked for a mycoplasma pneumon PCR test. I

> > don't think that's what I wanted. I was hoping for, at minimum, a

> > broader test for mycoplasma, but was really wanting more specific

> > testing of m. fermentans, etc.

> >

> > So, I'm wondering how to go about getting the specific tests? What do I

> > ask a script for? And where can I have it done?

> >

> > --Celia <><

> >

June 9, 2010

Dear Group,

Two hours after receiving the email below, I saw Dr. Franco in Riverside.

To test for mycoplasma, Dr. Franco sends a blood sample to a lab,

which then tests for Immunoglobulin G (IgG), antibody molecules which

reflects a past infection, and for Immunoglobulin M (IgM), antibody

molecules which reflect a current infection. My mycoplasma tests were

done by Quest Diagnostics, Inc., which has locations in most US

states. I believe that mycoplasma testing is done by the Nichols

Institute, which is now part of Quest. Lots of other tests were also done.

According to Dr. Franco, commercial labs only test for one mycoplasma

type, namely Mycoplasma Pneumonae -- and there are 13 other

mycoplasma types for which there is no affordable commercial test. So

it is very likely that an arthritis sufferer has a mycoplasma

infection and no test results to prove it.

To treat a mycoplasma infection, Dr. Franco prescribes antibiotics

(Minocin, Doxycycline, Zithromax, possibly others) plus a probiotic

and lots of food supplements designed to boost the immune system.

Purchasing all of the prescribed food supplements from Dr. Franco's

company, the Arthrits Center of Riverside, would cost close to $400

(US) per month. I have purchased most of these supplements because I

am desperate; however, I will try to find other sources for next month.

I have now seen Dr. Franco twice, and am very impressed with him.

Never before has a doctor done such a thorough evaluation and taken

so much time to explain things. Dr. Franco also has a sense of humor.

He grew up in Peru, but speaks with French accent because his parents

are French.

Sincerely, Harald

At 09:06 AM 6/9/2010, mike rosner wrote:

>

>hi Celia, I went to Dr. Trentham and had my myco test done by a

>blood draw, not a nasal swab. I don't think the place you went to

>knows what you wanted or maybe the doc didn't write down the correct

>test. Mine came back positive for Mycoplasma Pneumonae, and it was

>definitely a blood draw. I think they measured the

>antibodies. Dr.Franco in Riverside, California does all that

>teating. Maybe you can ask your doc to call him and get the details

>from Dr. Franco. Dolores & Mike.

>

June 10, 2010

Thank you Harald for that detailed description of how Dr. Franco does the myno

testing.Â It clearedÂ up a lot of my thoughts and I now have a better picture

of what goes re: myco testing.Â Dolores & Mike

>

>hi Celia, I went to Dr. Trentham and had my myco test done by a

>blood draw, not a nasal swab. I don't think the place you went to

>knows what you wanted or maybe the doc didn't write down the correct

>test. Mine came back positive for Mycoplasma Pneumonae, and it was

>definitely a blood draw. I think they measured the

>antibodies. Dr.Franco in Riverside, California does all that

>teating. Maybe you can ask your doc to call him and get the details

>from Dr. Franco. Dolores & Mike.

>

June 10, 2010

Hello Harald,

would you share with us the name of the supplements that dr Franco suggested?

thanks,

rheumatic

From: hweiss@...

Date: Wed, 9 Jun 2010 22:12:36 -0700