Chest Pain

[Guest guest]

In a message dated 1/14/99 5:07:38 PM,

A1M1BISHOP@... wrote

>Subject: chest pain/babesia

>Question, did any of you that have taken mepron and zithromax find that you

>had chest pain as a side effect?? I had some before my first round of the

>meds, then it increased terribly while on the meds, went off for a couple of

>weeks, felt great and then started it again and the pains came back in full

>force.

>>

Amy,

This could well be a Herx. Chest pain is a common Lyme symptoms. The coming

and going may be flare-ups and it may mean that the medicine in working.

I hope you have mentioned the pain to your doctor and that he has had you see

a cardiologist to check out your heart for possible problems. Remember Lyme

can also cause heart damage. Don't ignore this pain until you've had it

checked.

Carolyn C.

[Guest guest]

Carolyn, my lyme doc doesn't seem to be doing anything for me now a days. I

guess he's gotten to busy to return phone calls so he has hired a NP who is

new to lyme, and everdently hasn't done her homework to talk to people like

me. He hasn't even dictated a letter to my own PA who flew with me to meet

him on my first visit. She put me on a heart monitor and determined that I

was having PVA's or something like that. Basically its an irregular heart

beat which goes very rapid and then back to normal. I would love to find a

doctor closer to Maine instead of going to NY. I say my lyme doc for the

first time NOV 2 of this year and haven' been able to talk to him since. Its

very frustrating treating long distance. He assured me that this wouldn't be

a problem, but I guess I should have asked him to put my money where his mouth

was. The unfortunate part is that I believe he is a good doc. Maybe there is

just so much of this around that lldr cant keep up with us. I know he is

seeing patients from all over the country.

Take Care and let me know what your thoughts are

Amy

[Guest guest]

At 11:06 PM 3/15/00 -0000, you wrote:

> From: " " <>

>

> Margot, I've also had the sternum affected. I now have a lump there,

> but on the whole very little pain (except during flares). The ribs

> are fine, but trouble with the spine from time to time.

> Mo, You mentioned you had twins. How did the extra weight of carrying

> twins affect the joints compared to carrying the one child??

> , I wish you the very best for your coming appointments. My

> thoughts are with you.

> That's it for now!

>

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

susan ...the twins are now 13 and were born while i was a p pt. but before

pa dx. they weighed almost 15 lbs. and were full term so no matter what i

think it would have been a reason for my sciatica and low back pain, plus a

physical job though part time...mo

[Guest guest]

I am 28 and just recently was diagnosed at the University of Washington with

PA and ASpondylitis. My initial sign was my sterum joint seperated and I

had this huge portrution coming out of my chest...along with my steral

cartilages being enormously inflamed.

I am now on Vioxx, Prednisone, and Calcium supplements. You are the first

person who has similar symptoms as myself. I wonder what else we have in

common to have this rare inflammation area. Are you extremely active? I

teach Physical Education, Health Ed, and coach so they attribute my sternal

condition to my high activity level in my upper body.

I'd love to hear more from you!

Sincerely,

Mikki

[ ] CHEST PAIN

From: " betty littrell " <zeezer49@...>

I have psoriatic arthritis and anklyosis spondylitis.I would like to

know if anyone has had chest pain with this,it feels like my chest

bone is so sore,I had to put a heating pad on it,and it was really

tender to touch.I know you can have pain from arthrits in chest but I

guess I didnt realize it would hurt as bad as it does.I for one am

tired of having all this pain,this is myt first time posting here,I

read the post all the time.I am on disability now,I am 48,I worked

for years for a major Insurance co,now it kills me to type a lot

now.almost ready for back surgery,go to dr next friday and find out

then I have put it off for a long time,so the time has come.

thanks

bj

------------------------------------------------------------------------

GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

1/937/2/_/494167/_/954172452/

------------------------------------------------------------------------

Please visit our new web page at:

http://www.wpunj.edu/icip/pa

and attend our weekly chat on Dr Koop at

7 PM EST on Monday evenings!!

Go to the www.Dr.Koop.com website ahead of time and register as a user that

way you can come right in on Monday nights. Hope to see you there

at the chat!!!

[Guest guest]

I also have a combo of PA and AS, and I too have the chest pain

intermittingly. It seems to get better if I remember to take deep breaths

throughout the day (on days when I can). Also, my rheumy suggested (and I

agree) to watch my posture. It seems to get worse when I slump over. I use

a heating pad or lie on my side holding a pillow to my chest when it gets too

awful.

Good luck with your back surgery.

MELISSA

[Guest guest]

Oh my gosh! I have the same thing....Its gone away now, but it hurt to

breathe, turn over in bed, sit up...you name it, it hurt. I went to a

chiropractor and she just said that I probably have it in my breastbone,

which I cried after hearing that. I'm not on any medications and I've been

dealing with this since I was 21...I'm 29 now. I've just been living on

Ibuprofren to the extremes...but I know that soon I'll have to get on some

real drugs. I know the pain that you've felt. It hurt incredibly bad. I

hope that your surgery (if that's what you will need) goes well, and I'll be

praying for you! The PA has manifested itself in my hands, both knees and

wrists and toes. I'm a wreck....but I'm still working....depression has

been my problem lately, but I'm coming out of that slowly now too. This is

such a hard disease to understand!!!

>From: " betty littrell " <zeezer49@...>

>Reply- onelist

> onelist

>Subject: [ ] CHEST PAIN

>Date: Sun, 26 Mar 2000 04:27:57 -0000

>

>I have psoriatic arthritis and anklyosis spondylitis.I would like to

>know if anyone has had chest pain with this,it feels like my chest

>bone is so sore,I had to put a heating pad on it,and it was really

>tender to touch.I know you can have pain from arthrits in chest but I

>guess I didnt realize it would hurt as bad as it does.I for one am

>tired of having all this pain,this is myt first time posting here,I

>read the post all the time.I am on disability now,I am 48,I worked

>for years for a major Insurance co,now it kills me to type a lot

>now.almost ready for back surgery,go to dr next friday and find out

>then I have put it off for a long time,so the time has come.

>

>thanks

>bj

>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

Yes, I too have experienced chest pain. In fact, it was chest pain which

first brought me to serious attention about my arthritis about 5 years ago.

I have only had one chest flare since - thank goodness because it was

painful! I try to be very careful about lifting things (with two children

that is tough).

Ada

demlow@...

[Guest guest]

I get this and a popping of the joint there as well.

_Adriel

> From: judy malone <judy_malone@...>

> Reply- egroups

> Date: Sun, 27 Aug 2000 14:47:48 -0700 (PDT)

> " egroups " <psoriatic arthritisegroups>

> Subject: [ ] Chest Pain

>

> Hi I was ust wondering if any of you experience chest

> pain. My Dr said it is probably costochondritas (

> which is a muscle and ligament problem). It has been

> so painful and my motrin really doesnt effect it. It

> is a really deep pain and does increase in pain with

> movement but hurts a lot while I am just sitting or

> laying down. It is kinda a scary pain.

>

> Judy

>

> Moderator Note: I have experienced costachondritis - one of those " itis-es "

> that comes and goes for me. The best pain relief I've found is by placing an

> ice pack on my sternum and laying down. The first time I experienced it I was

> also experiencing an overall tendonitis flare, so my PCP and I decided we'd

> try a new NSAID. I think the new NSAID has helped some, but I still have

> twinges now and again. Patty PHDRWD@...

>

>

> __________________________________________________

>

[Guest guest]

My husband has the arthritis in his sternum, but it was never given a name,

as far as I know. I know that I got concerned when he was complaining of

chest pain though!! The prednisone (10 mg each day) seems to have really

helped the arthritis pain.

Laurie

[ ] Chest Pain

>Hi I was ust wondering if any of you experience chest

>pain. My Dr said it is probably costochondritas (

>which is a muscle and ligament problem). It has been

>so painful and my motrin really doesnt effect it. It

>is a really deep pain and does increase in pain with

>movement but hurts a lot while I am just sitting or

>laying down. It is kinda a scary pain.

>

>Judy

>

>Moderator Note: I have experienced costachondritis - one of those

" itis-es " that comes and goes for me. The best pain relief I've found is by

placing an ice pack on my sternum and laying down. The first time I

experienced it I was also experiencing an overall tendonitis flare, so my

PCP and I decided we'd try a new NSAID. I think the new NSAID has helped

some, but I still have twinges now and again. Patty PHDRWD@...

>

>

>__________________________________________________

>

[Guest guest]

At 02:16 PM 10/1/00 -0700, you wrote:

judy, hi...i get the chest pain and

sometimes burning.....it is worse with movement and when i take a deep

breath...that would be atypical for cardiogenic pain .mine is not

constant, it's part of the roving pain i get...i have been free of it for

quite some time and that's all right by me! i had a burning in my stomach

for a few days and decided to give it a break from the 150 mg of daily

indocin sr. what really scared me is the miserable aches , pain and

stiffness i felt in areas i never knew hurt. question is...am i masking

progression...the pain /stiffness is much relieved since resuming the

indocin.......mo

__________________________________________________

[Guest guest]

Hi Judy,

A few years ago my PA presented it self in my ribs - particularly in the

sternum (?spelling). I had shortness of breath and a terrible pain in the

centre of my chest. Luckily it was short lived and didn't cause too much of

a problem.

Kate

Moderator note: My costochrondritis comes and goes, usually making brief

appearances, a few hours at most. Lately it's presented on the sides my of

chest, rather than in the sternum. Very wierd. Patty PHDRWD@...

[ ] Chest Pain

> Hi all, Does anyone every get a crushing pain in the

> middle of their chest? It seems to increase with

> movement. My dr said it is probably something called

> costalchondritas (sp?) It is really scary cause it

> makes me worry if it is cardiac pain? Is this a common

> PA problem with anyone?

>

> As always, glad you are all there:-)

>

> Judy in CA

>

> __________________________________________________

>

[Guest guest]

i know this is a late reply, however, i've been really busy and am just now checking all my mail - apparently i missed the original letter re; chest pain...it catches my attn; since my husband had quite a bit of it in the beginning of his pa...even to the point where his physical therapist sent him to the hospital because of it and his blood pressure...what was the thought behind what causes the chest pain?

Thanks, Carol

" B. Schroeder" <lschroe3@...> wrote:

Want to thank all of you who were so kind about answering my questions about breathing difficulty and chest pain.

I used to have a lot of trigger point pain when I was diagnosed with FM many years ago, but this was different. It was a deep pain that was centered directly below the breastbone. My massage therapist described it as feeling like silly putty when she was working on me.

Anyway, as for doing yoga....I am doing Tai Chi and have been for almost a year. So that should help with the gently stretching.

I am on celebrex, and it has not stopped the pain. It has eased off on it's own since yesterday and I have no idea why or what I could have done to help it go away. To sleep I took Tylenol PM as I was waking up all night not being able to deep breathe otherwise.

Anyway, I have an appointment with my rheumie on April 17th and will go over all this with him. If it had not eased off, I would have called him Monday as it was getting too debilitating to put up with.

I looked up costochondritis, and it definately looks like that is what it is. Have seen references to tsetse syndrome and that seems to be just another name for this costochondritis.

Thank you all again! in Poulsbo, WA.

[Guest guest]

Gordon,

I have this big time. My doc said it is

Costalchondritas (SP?) It is a frustrating pain. I

have had all the heart things also but I still freak

out. Heating pads work great as well as two aleves

twice a day. Email me off line if you want to chat

more about it.

Judy

--- Gordon Eliott <geliott@...> wrote:

> I am experiencing a bad, bad day with severe chest

> pain - its been checked for a heart condition and

> that is all clear. I know it is due to PA but what

> can be done for it besides painkillers? After nearly

> 24 years of PA, leaving me severely disabled, I

> thought it had thrown everything it could at me, but

> now this..........!

> Regards, Gordon in Australia

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

__________________________________________________

[Guest guest]

In a message dated 30/10/01 18:03:59 GMT Standard Time,

geliott@... writes:

> I am experiencing a bad, bad day with severe chest pain - its been checked

> for a heart condition and that is all clear.

Hi Gordon,

I don't want to 'scare' you, but please keep pestering

the Medics!! Like you, I was given the 'all clear',

several times, the Doctors putting it down to my

condition. When they finally woke up, and put me

on the machine, they found that I was having a

Heart Attack (my 7th that month!!)......have now

had the quadruple by-pass, and feel great !!!

Mike from the UK

[Guest guest]

At 03:47 PM 10/30/01 +1000, you wrote:

>I am experiencing a bad, bad day with severe chest pain - its been checked

>for a heart condition and that is all clear. I know it is due to PA but

>what can be done for it besides painkillers? After nearly 24 years of PA,

>leaving me severely disabled, I thought it had thrown everything it could

>at me, but now this..........!

>Regards, Gordon in Australia

>

>have you tried a heating pad? it has worked for me in the past......mo

>

[Guest guest]

In a message dated 10/30/01 12:03:51 PM Central Standard Time,

geliott@... writes:

> severe chest pain - its been checked for a heart condition and that is all

> clear.

chances are the lining between the ribs and lungs is swollen. been there and

it is a terrific pain. the several times i experienced it i went to the

hospital just to rule out other problems then i would take an

anti-inflammatory (actually preduisone because that is the only one i can

take because i'm on blood thinners). normally that would work and if it

didn't it only(!?!?!?) lasted 3 days before being normal again. hope your

doc can give you something to get through it.

chicagoland sharon

[Guest guest]

Sorry Rita,

Not me............maybe Connie in Michigan......

ConnieK nwnj

Leave no stone unturned.......and ask questions!

[Guest guest]

cile... i was told to take the plaquinel 2 times a day, morning and night... all

the time1

rae

[ ] Chest Pain

Do any of you Lupus Patients suffer from chest pains similiar to

those in Plurisy? I have just recovered from Plurisy (or thought I

had) and then the chest pains start again. I had quit taking my

Plaquenil, which normally stopped the pains, but I started back on it

and within a day and a half, the pains were gone. Someone stated that

Plaquenil should be taken all the time, but I only take mine when the

chest thing starts. I will be seeing my dr soon and plan to ask,

meanwhile, I intend to stay on them. Anyone else take Plaquenil for

Lupus pains??? Would love to hear from you.

Cile

[Guest guest]

HELLO< I see several of you mentioning the chest pain, years ago I could

not stand the weird pains and went to doc, really felt like I was having heart

attacks, he said it was anxiety and I knew it was not, I was NOT a bit

anxious I am calm person and had no extra stress at the time etc. and it would

happen when I was just sitting relaxed etc..... the anxiety pills did nothing

to

change anything..... over the years it became more of a pressure pain and

at night I could not lay on my back or side as it felt like my heart was 100

lbs and was crushing my insides or getting crushed.... I would get painful

racing and palpitations that hurt, since being on meds all year this no longer

happens so I believe it was from the lymes. C in vt

[Guest guest]

I've been lurking awhile and haven't seen anyone c/o of this. I

recently spent a very uncomfortable nite in the Emergency room with

severe chest and shoulder pain. Fortunately test did not indicate

anything wrong with the heart, however muscle enzyme ck was very

elevated. Previous to this episode I had stopped taking Humira

because I supposedly had accute broncihits, for which I sought help at

the internist--because of the bad chest pains. I'm still having the

pain--no idea why from Dr.s Just gave me a few Dorvocet to get thru

the next day or so. Anyone else have a simular experience?

May everyone be painfree.

Dawn

[Guest guest]

Yes Dawn,

I do every so often. The first time nearly scared me to death, too. I was

sure I was having a heart attack. Now I know it is only the PA, so I don't

panic. I also have a problem with my shoulder and elbow on the left side, but

I finally figured out what was behind part of that. It was the way I was

sitting in my chair in the family room while watching tv. I manage to twist

myself around, trying to get comfortable, and prop my elbow up on the arm in

such a way that I put my back, shoulder and arm in a strange position. No

wonder my fingers tingle and go to sleep. Sometimes we do such things

unconsiously because another body part hurts and we subconsiously try to ease

it by

making other parts pay the price. So I've learned to watch my posture so I

don't agravate what doesn't hurt yet! Lord love us!! Did that make sense?

Janet in Ca

[Guest guest]

Dawn...a little chest pain for me but no discovery as to a casue

yet. I don't rule out stress even though I don't FEEl terribly

stressed...everyone thinks I SHOULD be. I tell them that I'll let

them know when I'm stressed. I hope you get an answer and get some

relief from this soon. I'll keep you in my prayers and thought... -

Betz

>

> I've been lurking awhile and haven't seen anyone c/o of this. I

> recently spent a very uncomfortable nite in the Emergency room

with

> severe chest and shoulder pain. Fortunately test did not

indicate

> anything wrong with the heart, however muscle enzyme ck was very

> elevated. Previous to this episode I had stopped taking Humira

> because I supposedly had accute broncihits, for which I sought

help at

> the internist--because of the bad chest pains. I'm still having

the

> pain--no idea why from Dr.s Just gave me a few Dorvocet to get

thru

> the next day or so. Anyone else have a simular experience?

> May everyone be painfree.

>

> Dawn

>

[Guest guest]

Hi!

I am new to the group so maybe someone has brought this up before.

If so, I apologize. I have had the severe chest pain and thought I

was having a heart attack or pneumonia. There was crushing pain all

around the heart and chest muscles. I was daignosed with

costrochondritis, pardon the spelling. It is another manifestation

of arthritis. It is an inflammation of the chest cavity and tho the

pain is unbearable, it is not as serious as it feels. When I have

one of these attacks I cannot even sit up from the pain. I wrap

myself in an electirc blanket and ride it out with pain meds. If

you must sit or go somewhere, I find that getting the little self-

heat pads that hunters use to slip in their gloves or shoes for the

heat work miracles slipped into your clothes. I even put them in my

bra all around the bands and it keeps that ribcage heated.

Hope this helps. Oh, you can find the heat pads in the sports good

section of Target, Walmart, Academy, etc.

> >

> > I've been lurking awhile and haven't seen anyone c/o of this. I

> > recently spent a very uncomfortable nite in the Emergency room

> with

> > severe chest and shoulder pain. Fortunately test did not

> indicate

> > anything wrong with the heart, however muscle enzyme ck was very

> > elevated. Previous to this episode I had stopped taking Humira

> > because I supposedly had accute broncihits, for which I sought

> help at

> > the internist--because of the bad chest pains. I'm still

having

> the

> > pain--no idea why from Dr.s Just gave me a few Dorvocet to get

> thru

> > the next day or so. Anyone else have a simular experience?

> > May everyone be painfree.

> >

> > Dawn

> >

>

[Guest guest]

Dawn,

I don't know if this will help much but it is always

worth looking into. I don't take anything for PA,but I

had chest pains and ended up in the hospital and sent

to my PCP who did a stress test on my heart to find

out that I had gastric reflux disease. Have been on

priolsec ever since and the chest and shoulder pains

from that are gone. Just something simple that gets

overlooked so thought I would add my 2 cents. I wish

you pain free and wonderful days ahead.

Sharon

__________________________________________________

[Guest guest]

Hi Louise....thanks for the information and the advise. I'm so

sorry you've had to endure that. It must have scared the beejeebers

out of you. But glad to know it is not life threatening. Good idea

about those little hand warmers. You are resourceful and we could

use more of that around here. I'm glad that you are here but sorry

that you have to be. Welcome to the group. This group has a tendency

to change your life....for the better. So heads up on that! -Betz---

In , " Louise " <lulubellew50@...>

wrote:

>

> Hi!

> I am new to the group so maybe someone has brought this up

before.

> If so, I apologize. I have had the severe chest pain and thought

I

> was having a heart attack or pneumonia. There was crushing pain

all

> around the heart and chest muscles. I was daignosed with

> costrochondritis, pardon the spelling. It is another

manifestation

> of arthritis. It is an inflammation of the chest cavity and tho

the

> pain is unbearable, it is not as serious as it feels. When I have

> one of these attacks I cannot even sit up from the pain. I wrap

> myself in an electirc blanket and ride it out with pain meds. If

> you must sit or go somewhere, I find that getting the little self-

> heat pads that hunters use to slip in their gloves or shoes for

the

> heat work miracles slipped into your clothes. I even put them in

my

> bra all around the bands and it keeps that ribcage heated.

> Hope this helps. Oh, you can find the heat pads in the sports

good

> section of Target, Walmart, Academy, etc.

> > >

> > > I've been lurking awhile and haven't seen anyone c/o of this.

I

> > > recently spent a very uncomfortable nite in the Emergency room

> > with

> > > severe chest and shoulder pain. Fortunately test did not

> > indicate

> > > anything wrong with the heart, however muscle enzyme ck was

very

> > > elevated. Previous to this episode I had stopped taking

Humira

> > > because I supposedly had accute broncihits, for which I sought

> > help at

> > > the internist--because of the bad chest pains. I'm still

> having

> > the

> > > pain--no idea why from Dr.s Just gave me a few Dorvocet to get

> > thru

> > > the next day or so. Anyone else have a simular experience?

> > > May everyone be painfree.

> > >

> > > Dawn

> > >

> >

>