Re: New Member Intro-rx absorbtion

[Guest guest]

Thanks, I have spoken with multiple pharmacists and was even sent to a

pharmacological expert. and I basically only drink water (some coffee & V8-but

not with the meds as I am aware of those issues)

There is definitely something off when I tried to do B12 oral supplements they

had no effect & only injections worked, it is very frustrating and most people

do not understand as there is no real outward visible issues

Pamela Arnow

847-774-6474

create1126@...

Treasurer

Antioch Fine Arts Foundation

983 Main Street

Antioch, IL 60002

1-847-838-2274

www.antiochfinearts.org

rheumatic Re: New Member Intro

Not that I have much experience with anything else I do however have some

experience where medications just simply become less affective than they were as

well as others that simply don't get absorbed as they should. It is to say the

least a pain! May I gingerly suggest (not wanting to appear to be some sort of

expert because I definitely am not) that you ask your pharmacist (or doctor)

about your medications, for instance:

It has been found that grapefruit and other common fruit juices, including

orange and apple, can substantially decreasing the absorption of certain

medications, potentially wiping out their beneficial effects, or for instance

some people take their meds with with a glass of milk not knowing that

calcium/dairy negates the effectiveness of the antibiotics.

It is all a learning curve,

[Guest guest]

No problem --- just wanted to let you know in case you weren't aware.  I hope

you weren't upset by my post.

________________________________

From: Pamela Arnow <create1126@...>

rheumatic

Sent: Thu, 3 June, 2010 1:08:29 PM

Subject: Re: rheumatic Re: New Member Intro-rx absorbtion

 

Thanks, I have spoken with multiple pharmacists and was even sent to a

pharmacological expert. and I basically only drink water (some coffee & V8-but

not with the meds as I am aware of those issues)

There is definitely something off when I tried to do B12 oral supplements they

had no effect & only injections worked, it is very frustrating and most people

do not understand as there is no real outward visible issues

Pamela Arnow

847-774-6474

create1126@...

Treasurer

Antioch Fine Arts Foundation

983 Main Street

Antioch, IL 60002

1-847-838-2274

www.antiochfinearts.org

rheumatic Re: New Member Intro

Not that I have much experience with anything else I do however have some

experience where medications just simply become less affective than they were as

well as others that simply don't get absorbed as they should. It is to say the

least a pain! May I gingerly suggest (not wanting to appear to be some sort of

expert because I definitely am not) that you ask your pharmacist (or doctor)

about your medications, for instance:

It has been found that grapefruit and other common fruit juices, including

orange and apple, can substantially decreasing the absorption of certain

medications, potentially wiping out their beneficial effects, or for instance

some people take their meds with with a glass of milk not knowing that

calcium/dairy negates the effectiveness of the antibiotics.

It is all a learning curve,

[Guest guest]

No not at all, alot of people would not know all of that and your info can be

helpfull. I just have been through so much already and I tend to research

everything to its fullest. Interestingly it was the Pharmacological specialist

that said to me when I walked into his office " You have some kind of autoimmune

- not Fibro-I would bet on it " - He was absolutely correct. We had not really

run many tests since my original diagnosis 18 yrs ago. And AS (HLB27) is

usually in men so they do not routinely test women for it But my symptoms

changed also around a year and a half ago as well.

What are you dealing with?

Pamela Arnow

847-774-6474

create1126@...

Treasurer

Antioch Fine Arts Foundation

983 Main Street

Antioch, IL 60002

1-847-838-2274

www.antiochfinearts.org

rheumatic Re: New Member Intro

Not that I have much experience with anything else I do however have some

experience where medications just simply become less affective than they were as

well as others that simply don't get absorbed as they should. It is to say the

least a pain! May I gingerly suggest (not wanting to appear to be some sort of

expert because I definitely am not) that you ask your pharmacist (or doctor)

about your medications, for instance:

It has been found that grapefruit and other common fruit juices, including

orange and apple, can substantially decreasing the absorption of certain

medications, potentially wiping out their beneficial effects, or for instance

some people take their meds with with a glass of milk not knowing that

calcium/dairy negates the effectiveness of the antibiotics.

It is all a learning curve,

[Guest guest]

I've heard of this before. I don't understand it but there are some who

seem to feel a big difference from injecting b-12. I am using

sublingual methyl form, and that seems to be going OK. If you are

having trouble with b-12, there may be other nutrients that are also

issues.

Amy

Pamela Arnow wrote:

>

>

>

> Thanks, I have spoken with multiple pharmacists and was even sent to a

> pharmacological expert. and I basically only drink water (some coffee

> & V8-but not with the meds as I am aware of those issues)

> There is definitely something off when I tried to do B12 oral

> supplements they had no effect & only injections worked, it is very

> frustrating and most people do not understand as there is no real

> outward visible issues

>

> Pamela Arnow

> 847-774-6474

> create1126@... <mailto:create1126%40aol.com>

>

> Treasurer

> Antioch Fine Arts Foundation

> 983 Main Street

> Antioch, IL 60002

> 1-847-838-2274

> www.antiochfinearts.org

>

[Guest guest]

the last time I took the b-12 shots I had a reaction to it, not funny when you

look like you are drunk.

Eva

>

>

>

> Thanks, I have spoken with multiple pharmacists and was even sent to a

> pharmacological expert. and I basically only drink water (some coffee

> & V8-but not with the meds as I am aware of those issues)

> There is definitely something off when I tried to do B12 oral

> supplements they had no effect & only injections worked, it is very

> frustrating and most people do not understand as there is no real

> outward visible issues

>

> Pamela Arnow

> 847-774-6474

> create1126@... <mailto:create1126%40aol.com>

>

> Treasurer

> Antioch Fine Arts Foundation

> 983 Main Street

> Antioch, IL 60002

> 1-847-838-2274

> www.antiochfinearts.org

>

[Guest guest]

Hi Pam,

It seems you & I are on the same page, meaning we do our own research &

have no problem approaching our Dr's/medical teams for their input .. I

have a rare disease & both my pharmacist & regular Dr were interested

enough to do their own research on it (as they hadn't heard of it

before) so we have some good discussions about it, my chosen method of

treatment & progress.

I have a definite diagnosis of PS, (palindromic syndrome or palindromic

arthritis) & a little bit of maybe? RA & Fibro thrown in with a dash of

Australian Lyme (not to be confused with the dreaded USA lyme). (I

don't have anywhere near enough symptoms to definitely diagnose RA or

Fibro, but do have the dreaded bacteria in my system of Lyme thanks to a

tick bite some 31 yrs ago). PS is a very strange disease, a flare may

or may not include inflammation, can be & usually is excruciatingly

painful & moves from one part of the body to another it doesn't

necessarily attack the joints but can present itself as attacking the

muscles & soft tissue. The usual pain meds & anti-inflams don't work.

When I approached an AP Dr to ask about treatment she didn't know if AP

would work for PS but after lengthy discussion (which included her

consulting colleagues in USA & Germany for their opinion) agreed to at

least try & use me as a sort of guinea pig .. It took a while to get

the right mix/strengths of abx but finally sorted that out in Sep last

year & I have been asymptomatic since late Dec last year.

The really amazing statements during my journey was from both the

Rheumies I saw in the beginning, they both said I should be on the usual

meds, being plaq & mtx to start with ,, when I asked them why they said

it would stop me getting RA ... WT ?? I asked them if I had RA, they

both said no, I had no symptoms of RA whatsoever, I then asked them if I

don't have RA why would I take RA meds?a reasonable question I thought,

they replied that it was a preventative measure .. again WT ? it was

after that statement I then said 'if plaq & mtx is a preventative

measure for RA why aren't you taking it?' as expected they were non too

impressed by me challenging them...lol That's why I spent 4 mths

researching everything I could about my disease & more importantly any

treatment path I could find.

I hope you find a solution to your absorbtion problem soon,

Maz

>

>

> No not at all, alot of people would not know all of that and your info

can be helpfull. I just have been through so much already and I tend to

research everything to its fullest. Interestingly it was the

Pharmacological specialist that said to me when I walked into his office

" You have some kind of autoimmune - not Fibro-I would bet on it " - He

was absolutely correct. We had not really run many tests since my

original diagnosis 18 yrs ago. And AS (HLB27) is usually in men so they

do not routinely test women for it But my symptoms changed also around a

year and a half ago as well.

> What are you dealing with?

>

> Pamela Arnow

> 847-774-6474

> create1126@...

>

> Treasurer

> Antioch Fine Arts Foundation

> 983 Main Street

> Antioch, IL 60002

> 1-847-838-2274

> www.antiochfinearts.org

>

>

>

>

> rheumatic Re: New Member Intro

>

> Not that I have much experience with anything else I do however have

some experience where medications just simply become less affective than

they were as well as others that simply don't get absorbed as they

should. It is to say the least a pain! May I gingerly suggest (not

wanting to appear to be some sort of expert because I definitely am not)

that you ask your pharmacist (or doctor) about your medications, for

instance:

>

> It has been found that grapefruit and other common fruit juices,

including orange and apple, can substantially decreasing the absorption

of certain medications, potentially wiping out their beneficial effects,

or for instance some people take their meds with with a glass of milk

not knowing that calcium/dairy negates the effectiveness of the

antibiotics.

>

> It is all a learning curve,

>

>

[Guest guest]

So what do you do now? Are you able to b-12 at all? Any idea what your

reaction is attributable to?

Amy

Eva Holloway wrote:

>

>

> the last time I took the b-12 shots I had a reaction to it, not funny

> when you look like you are drunk.

> Eva

>

>

> >

> >

> >

> > Thanks, I have spoken with multiple pharmacists and was even sent to a

> > pharmacological expert. and I basically only drink water (some coffee

> > & V8-but not with the meds as I am aware of those issues)

> > There is definitely something off when I tried to do B12 oral

> > supplements they had no effect & only injections worked, it is very

> > frustrating and most people do not understand as there is no real

> > outward visible issues

> >

> > Pamela Arnow

> > 847-774-6474

> > create1126@... <mailto:create1126%40aol.com>

> <mailto:create1126%40aol.com>

> >

> > Treasurer

> > Antioch Fine Arts Foundation

> > 983 Main Street

> > Antioch, IL 60002

> > 1-847-838-2274

> > www.antiochfinearts.org

> >

>

>

[Guest guest]

I can take the sublingual every other day and do okay. Whatever they used in the

shot I have no idea.I actually had to be taken back to the doctor and he gave me

another shot to  act against the B-12 shot. I was picked up by the police for

drunk walking, bouncing of walls etc. I told them I had nothing to drink but I

just had a shot at the doctors office, so they called and took me back.

Eva

> >

> >

> >

> > Thanks, I have spoken with multiple pharmacists and was even sent to a

> > pharmacological expert. and I basically only drink water (some coffee

> > & V8-but not with the meds as I am aware of those issues)

> > There is definitely something off when I tried to do B12 oral

> > supplements they had no effect & only injections worked, it is very

> > frustrating and most people do not understand as there is no real

> > outward visible issues

> >

> > Pamela Arnow

> > 847-774-6474

> > create1126@... <mailto:create1126%40aol.com>

> <mailto:create1126%40aol.com>

> >

> > Treasurer

> > Antioch Fine Arts Foundation

> > 983 Main Street

> > Antioch, IL 60002

> > 1-847-838-2274

> > www.antiochfinearts.org

> >

>

>

[Guest guest]

I had a similar response to injected b12 but it was more like an

analeptic shock

The sublingual are fine though

s.

On 4 Jun 2010, at 11:52, Evanesce wrote:

>

> >

> > I can take the sublingual every other day and do okay. Whatever they

> > used in the shot I have no idea.I actually had to be taken back

> to the

> > doctor and he gave me another shot to act against the B-12 shot. I

> > was picked up by the police for drunk walking, bouncing of walls

> etc.

> > I told them I had nothing to drink but I just had a shot at the

> > doctors office, so they called and took me back.

> > Eva

[Guest guest]

Wow.

If you can tolerate sublingual, but not the shot, then perhaps it was

one of the preservatives that tend to be in those b-12 bottles. At

least you tolerate sublingual.

If you ever wanted to, you could always get b-12 without preservatives

from a compounding pharmacy. But sounds like you don't need that, and

have a workable solution.

Do you need to take the methyl version, or do you take regular b-12.

I've been taking both. But when I've depleted my supply of the regular,

I think I " ll stick with methyl, based on some articles I've read. The

last article I read said that the regular b-12 is synthetic, and it is

believed that the body treats it just like natural. The methyl form is

not synthetic.

Amy

Eva Holloway wrote:

>

>

> I can take the sublingual every other day and do okay. Whatever they

> used in the shot I have no idea.I actually had to be taken back to the

> doctor and he gave me another shot to act against the B-12 shot. I

> was picked up by the police for drunk walking, bouncing of walls etc.

> I told them I had nothing to drink but I just had a shot at the

> doctors office, so they called and took me back.

> Eva

>

> > >

> > >

> > >

> > > Thanks, I have spoken with multiple pharmacists and was even sent to a

> > > pharmacological expert. and I basically only drink water (some coffee

> > > & V8-but not with the meds as I am aware of those issues)

> > > There is definitely something off when I tried to do B12 oral

> > > supplements they had no effect & only injections worked, it is very

> > > frustrating and most people do not understand as there is no real

> > > outward visible issues

> > >

> > > Pamela Arnow

> > > 847-774-6474

> > > create1126@... <mailto:create1126%40aol.com>

> <mailto:create1126%40aol.com>

> > <mailto:create1126%40aol.com>

> > >

> > > Treasurer

> > > Antioch Fine Arts Foundation

> > > 983 Main Street

> > > Antioch, IL 60002

> > > 1-847-838-2274

> > > www.antiochfinearts.org

> > >

> >

> >

[Guest guest]

Hi Pam,

You are welcome, sometimes I wonder whether I should get so involved in my

answers but then I remember when I started researching I was always looking for

posts that spelled it out so I could take what applied & leave the rest.

Hope you get to Oz sometime .. don't forget we are a big country so if it's a

once only trip try to give 6 wks of your time to get round most of it.

Cheers,

Maz

> >

> >

> > No not at all, alot of people would not know all of that and your info

> can be helpfull. I just have been through so much already and I tend to

> research everything to its fullest. Interestingly it was the

> Pharmacological specialist that said to me when I walked into his office

> " You have some kind of autoimmune - not Fibro-I would bet on it " - He

> was absolutely correct. We had not really run many tests since my

> original diagnosis 18 yrs ago. And AS (HLB27) is usually in men so they

> do not routinely test women for it But my symptoms changed also around a

> year and a half ago as well.

> > What are you dealing with?

> >

> > Pamela Arnow

> > 847-774-6474

> > create1126@

> >

> > Treasurer

> > Antioch Fine Arts Foundation

> > 983 Main Street

> > Antioch, IL 60002

> > 1-847-838-2274

> > www.antiochfinearts.org

> >

> >

> >

> >

> > rheumatic Re: New Member Intro

> >

> > Not that I have much experience with anything else I do however have

> some experience where medications just simply become less affective than

> they were as well as others that simply don't get absorbed as they

> should. It is to say the least a pain! May I gingerly suggest (not

> wanting to appear to be some sort of expert because I definitely am not)

> that you ask your pharmacist (or doctor) about your medications, for

> instance:

> >

> > It has been found that grapefruit and other common fruit juices,

> including orange and apple, can substantially decreasing the absorption

> of certain medications, potentially wiping out their beneficial effects,

> or for instance some people take their meds with with a glass of milk

> not knowing that calcium/dairy negates the effectiveness of the

> antibiotics.

> >

> > It is all a learning curve,

> >

> >

[Guest guest]

Hi Pam,

Just found this

>

>

> Thanks, I have spoken with multiple pharmacists and was even sent to a

pharmacological expert. and I basically only drink water (some coffee & V8-but

not with the meds as I am aware of those issues)

> There is definitely something off when I tried to do B12 oral supplements they

had no effect & only injections worked, it is very frustrating and most people

do not understand as there is no real outward visible issues

>

>

>

> Pamela Arnow

> 847-774-6474

> create1126@...

>

> Treasurer

> Antioch Fine Arts Foundation

> 983 Main Street

> Antioch, IL 60002

> 1-847-838-2274

> www.antiochfinearts.org

>

>

>

>

> rheumatic Re: New Member Intro

>

>

>

>

>

>

>

> Not that I have much experience with anything else I do however have some

experience where medications just simply become less affective than they were as

well as others that simply don't get absorbed as they should. It is to say the

least a pain! May I gingerly suggest (not wanting to appear to be some sort of

expert because I definitely am not) that you ask your pharmacist (or doctor)

about your medications, for instance:

>

> It has been found that grapefruit and other common fruit juices, including

orange and apple, can substantially decreasing the absorption of certain

medications, potentially wiping out their beneficial effects, or for instance

some people take their meds with with a glass of milk not knowing that

calcium/dairy negates the effectiveness of the antibiotics.

>

> It is all a learning curve,

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi,

Near the beginning of my diagnosis and before AP, my local GP gave me B12

injections. I had to travel a half hour each time so he informed me that I could

get the injectable B12 at the pharmacy and some 1cc insulin needles and inject

myself but he also told me to take a Vitamin B complex at the same time and if

the injectable form did not include folic acid to take an extra tablet/capsule

of that at the same time as the shot.

Apparently when taking any extra B vitamins you should also take a B complex at

the same time so that the B's stay relatively balanced.

carol_DM