Re: Had to stop my AP therapy -sorry - another long post

[Guest guest]

I wonder if this would work with a fatty cyst

Sent on the Sprint® Now Network from my BlackBerry®

rheumatic Re: Had to stop my AP therapy -sorry - another long post

Hi,

To avoid having to get a boil lanced put raw honey all over the boil and cover

with gauze and it will come to a head all by itself and burst open and then

drain.

Got this tip many years ago from a honey producer whose son used to bet boils on

his neck whenever he got too much sun.

hth,

Carol_DM

[Guest guest]

Don't know, If you have one, use the honey and let us know how it works. 

Dolores

From: rollercoaster120@... <rollercoaster120@...>

Subject: Re: rheumatic Re: Had to stop my AP therapy -sorry - another long

post

rheumatic

Date: Wednesday, September 8, 2010, 10:52 PM

I wonder if this would work with a fatty cyst 

Sent on the Sprint® Now Network from my BlackBerry®

rheumatic Re: Had to stop my AP therapy -sorry - another long post

Hi,

To avoid having to get a boil lanced put raw honey all over the boil and cover

with gauze and it will come to a head all by itself and burst open and then

drain.

Got this tip many years ago from a honey producer whose son used to bet boils on

his neck whenever he got too much sun.

hth,

Carol_DM

[Guest guest]

Hi, Sally. Don't know if you got my reply to you...but right now I am so glad to

not have to travel or visit a doc...what with limited funds and the pain and

stress.

But when you get better (another 4 months?) and can travel better we could meet

up and celebrate our good fortune in finding AP therapy. My neighbor just got

back from the hospital after a fall...he lost all muscle strength and

coordination...docs cld find nothing...I suspect a rheumatic disease

(polymyositis) but he could not open his mind to information from someone " not a

doctor " .

We are the lucky ones.

O

> > > > >

> > > > > > Hi all. I am sorry this will be so long. I know you are most

> > > > > > patient, though. I have been one of the 'quiet ones' out there. I

> > > > > > have learned so much and benefitted even more from you all. You

> > > > > > continue to give me hope which may be the greatest of all gifts.

> > > > > > This disease steals that away again and again.

> > > > > > Well, I was diagnosed with RA 3 years ago next month. I had a

> > > > > > sudden and severe onset...went from normal person with a minor knee

> > > > > > issue to almost completely disabled..each touch or movement causing

> > > > > > that searing hot pain. I slept maybe 2 hours at a time. The pain of

> > > > > > the sheet was so intense and my body ached in all but one sleeping

> > > > > > position.

> > > > > > I went from dr. to dr. (my tests show diagnosis - RA negative and

> > > > > > the only out of bounds blood test, except high white cells, was an

> > > > > > off the charts sed rate - measure of inflammation). I was offered

> > > > > > temporary meds (prednisone)...cruel in that you feel good for a

> > > > > > week then back to the pain and Plaquenil. The Rheumatologist (one

> > > > > > practice of only three in town - I am in the Kansas City area - 2.5

> > > > > > million metro pop) was very blunt and told me I could expect to

> > > > > > die, that my life expectancy was reduced by about 16 years on

> > > > > > average, and that most die of lung problems, specifically

> > > > > > suffocation. Well, thanks for the encouragement! He offered only

> > > > > > methotrexate after the plaquenil proved useless (unless you are

> > > > > > going to visit the jungle).

> > > > > > When I mentioned that I was thinking about Antibiotic Therapy and

> > > > > > UV Blood irradiation therapy he would only recommend Methotrexate

> > > > > > as the next step. I have always refused to believe that it can be a

> > > > > > good thing to destroy one of the healthy (immune) systems your body

> > > > > > needs to 'benefit' another. Bottomline, the dr. 'fired' me with a

> > > > > > letter saying he would not be my doctor anymore.

> > > > > > I started reading the posts on this site. I took UVI. I finally

> > > > > > found a a dr. (OBGYN) to help me with a prescription for nongeneric

> > > > > > Minocine (minocycline).

> > > > > > At this point it was 7 months down the road. I had stopped the

> > > > > > pred. but started again when I had to fly to Houston for the UVI

> > > > > > treatments and knew I could not otherwise fly or drive a car the

> > > > > > several hours required for the treatments. As it was I remember

> > > > > > crying because I wanted to be clean for the appointment and I had

> > > > > > so much pain getting into a shower.

> > > > > > If anyone wants to know, the UVI helps (from a 10 pain level to an

> > > > > > 8) but is very temporary. Not worth it, esp. given the expense.

> > > > > > I started the Mino and by November of '08 6 months after starting

> > > > > > the AP and almost a year into the illness that wreaked havoc with

> > > > > > my body, my savings, and my life...I started to get well. I have

> > > > > > blessed that time and those who helped, especially Dolores, Eva,

> > > > > > Debbie and many others. In those two years of progress I became

> > > > > > able to do many things again that I thought I'd never do. I

> > > > > > actually like to rake leaves now!

> > > > > >

> > > > > > OK. And this is especially for Debbie G...you may have saved my

> > > > > > life with your info...I started to have breathing difficulties

> > > > > > around the first of this year...just some breathlessness. But this

> > > > > > has worsened. After reading your posts re: the Brochiolitis

> > > > > > Obliterans, I sadly stopped the Mino. I tried alternating with

> > > > > > Doxycycline but the burning (inflammation) in my lungs returned. So

> > > > > > no antibiotics for me. My breathing is about the same now...that is

> > > > > > wheezing and shortness, but not so much burning. I am already

> > > > > > starting to deteriorate again in my hips and shoulders though, from

> > > > > > the RA and lack of Mino (3 weeks now).

> > > > > > Debbie, I am without health insurance and in the midwest. I know

> > > > > > you see Dr. Whitman in NJ. Should I call and get an appointment?

> > > > > > What does he charge? Does he do photopheresis there? Is there

> > > > > > someone in the KC area? What is the cost of photopheresis? And

> > > > > > should I try to schedule that ASAP? I know you take LDN. Is that

> > > > > > difficult to have a dr. prescribe? Is it expensive (like Mino)?

> > > > > > Does anyone know a clinic or dr in this area?

> > > > > > This is a scary disease. I live alone and have a college age

> > > > > > daughter who worries for me...I hate that. I have always been the

> > > > > > one watching over her (esp. since her dad died when she was very

> > > > > > young). I am truly happy for Dolores and those who get well. It

> > > > > > gives us hope. My heart goes out for Eva and Debbie and many more

> > > > > > that post regularly (and many that don't)...you represent and speak

> > > > > > for and give hope to those of us that have more struggle yet to

> > > > > > endure.

> > > > > > Thanks for listening.

> > > > > > O

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >