Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Lee, Her symptoms sound a lot like my daughter's friend who had lyme. Is she tired most of the time and lacking energy to do her normal routine? Dee _____ From: rheumatic [mailto:rheumatic ] On Behalf Of power2thefaint Sent: Tuesday, April 01, 2008 6:51 PM rheumatic Subject: rheumatic Fatigued muscles from RA or Lyme's? Hi all, So far the obvious symptoms of my daughters RA-like condition have been pain and inflammation of the knuckles on her right hand and in the corresponding foot knuckles/toes. She's very athletic -- loves to work out and play soccer. Usually, she does her sit-ups on a decline (head lower than feet, making them much harder) and does several sets of 30 sit-ups. The last couple days, however, she can't even do three sit-ups on a flat surface. She doesn't have any pain in her abdominal muscles, but she just can't do them. It's as though the muscles won't work. My wife and I are concerned, to say the least, as we are not aware of this specific symptom being part of RA. Does this sound familiar to anyone? In the symptom descriptions I've found thus far I _do_ see fatigue listed. Can it be to this degree while limited to just the few joints? As always, thank you all for any and all help and advice. God bless Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Lee, You said your daughter is having trouble with muscle weakness? Has her Dr. checked her for Scleroderma/Polymyositis? I only ask because muscle weakness is a part of both of these autoimmune diseases. Your torso, thighs, and upper arms can all become weak. I have RA, Scleroderma and Dermatomysitis.....they are so closely connected that they cross over each other. If you have any questions I would be happy to answer. Jen power2thefaint <power2thefaint@...> wrote: Hi all, So far the obvious symptoms of my daughters RA-like condition have been pain and inflammation of the knuckles on her right hand and in the corresponding foot knuckles/toes. She's very athletic -- loves to work out and play soccer. Usually, she does her sit-ups on a decline (head lower than feet, making them much harder) and does several sets of 30 sit-ups. The last couple days, however, she can't even do three sit-ups on a flat surface. She doesn't have any pain in her abdominal muscles, but she just can't do them. It's as though the muscles won't work. My wife and I are concerned, to say the least, as we are not aware of this specific symptom being part of RA. Does this sound familiar to anyone? In the symptom descriptions I've found thus far I _do_ see fatigue listed. Can it be to this degree while limited to just the few joints? As always, thank you all for any and all help and advice. God bless Lee --------------------------------- You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Lee, This sounds definitely like Dermatomyositis. I have this besides RA and yes your upper torso gets very weak. Since I have started the Antibiotics I have gotten a lot better. I am walking again sometimes four miles a day and that only since middle of January this year. Please find a AP doctor soon so your daughter gets back on her feet soon, the sooner the better. Take care, Eva Kris Wormold <jennyrada2002@...> wrote: Lee, You said your daughter is having trouble with muscle weakness? Has her Dr. checked her for Scleroderma/Polymyositis? I only ask because muscle weakness is a part of both of these autoimmune diseases. Your torso, thighs, and upper arms can all become weak. I have RA, Scleroderma and Dermatomysitis.....they are so closely connected that they cross over each other. If you have any questions I would be happy to answer. Jen power2thefaint <power2thefaint@...> wrote: Hi all, So far the obvious symptoms of my daughters RA-like condition have been pain and inflammation of the knuckles on her right hand and in the corresponding foot knuckles/toes. She's very athletic -- loves to work out and play soccer. Usually, she does her sit-ups on a decline (head lower than feet, making them much harder) and does several sets of 30 sit-ups. The last couple days, however, she can't even do three sit-ups on a flat surface. She doesn't have any pain in her abdominal muscles, but she just can't do them. It's as though the muscles won't work. My wife and I are concerned, to say the least, as we are not aware of this specific symptom being part of RA. Does this sound familiar to anyone? In the symptom descriptions I've found thus far I _do_ see fatigue listed. Can it be to this degree while limited to just the few joints? As always, thank you all for any and all help and advice. God bless Lee --------------------------------- You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Lee, According to your inputs, your daughter was strong and athletic until two days ago. Most rheumatic diseases have a slow buildup with many warnings, so it is unlikely that your daughter has such a disease. Since your daughter is also an outdoor type, I would suspect a spider bite or other insect bite. Many spiders inject a neurotoxin, which causes temporary muscle weakness. http://ohioline.osu.edu/hyg-Fact/2000/2061A.html " The bite of a black widow spider initially may go unnoticed ... Pain soon begins and usually progresses from the bite site to finally localize in the abdomen and back. Severe cramping or rigidity may occur in the abdominal muscles... " http://www.mayoclinic.com/health/first-aid-spider-bites/FA00048 " The bite feels like a pinprick. You may not even know you've been bitten. At first you may notice only slight swelling and faint red marks. Within a few hours, though, intense pain and stiffness begin. Other signs and symptoms of a black widow spider bite include: chills, fever, nausea, severe abdominal pain. " Please understand that all this is just based on some Google research. Sincerely, Harald At 03:51 PM 4/1/2008, you wrote: >Hi all, > >So far the obvious symptoms of my daughters RA-like condition have >been pain and >inflammation of the knuckles on her right hand and in the corresponding foot >knuckles/toes. > >She's very athletic -- loves to work out and play soccer. > >Usually, she does her sit-ups on a decline (head lower than feet, >making them much >harder) and does several sets of 30 sit-ups. > >The last couple days, however, she can't even do three sit-ups on a >flat surface. She >doesn't have any pain in her abdominal muscles, but she just can't >do them. It's as though >the muscles won't work. > >My wife and I are concerned, to say the least, as we are not aware >of this specific symptom >being part of RA. > >Does this sound familiar to anyone? In the symptom descriptions I've >found thus far I _do_ >see fatigue listed. Can it be to this degree while limited to just >the few joints? > >As always, thank you all for any and all help and advice. > >God bless > >Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Off subject, but AP stands for antibiotic protocol. **************Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi Jen, Your post is concerning me. I did a quick check on Scleroderma and found it is often accompanied by Raynaud's syndrome -- a discoloration of the hands and feet when exposed to cold. Just a couple weeks ago, after practicing in the cold, my daughter and I were looking at her hands and could not believe how whitish/yellow they were. I would be so appreciative of any and all input you or anyone else could provide. Thank you and God bless you Lee Hi all, > > So far the obvious symptoms of my daughters RA-like condition have been pain and > inflammation of the knuckles on her right hand and in the corresponding foot > knuckles/toes. > > She's very athletic -- loves to work out and play soccer. > > Usually, she does her sit-ups on a decline (head lower than feet, making them much > harder) and does several sets of 30 sit-ups. > > The last couple days, however, she can't even do three sit-ups on a flat surface. She > doesn't have any pain in her abdominal muscles, but she just can't do them. It's as though > the muscles won't work. > > My wife and I are concerned, to say the least, as we are not aware of this specific symptom > being part of RA. > > Does this sound familiar to anyone? In the symptom descriptions I've found thus far I _do_ > see fatigue listed. Can it be to this degree while limited to just the few joints? > > As always, thank you all for any and all help and advice. > > God bless > > Lee > > > > > > > --------------------------------- > You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi Eva, I'm not even sure what an AP doctor is? We contacted Dr. Burton in Philly who uses the Brown approach, but he cannot see us until June. The Pediatric rheumatologist will see my daughter on the 16th of this month. The first rheumatologist who diagnosed her was very cool to the idea of antibiotics when I brought it up earlier today to her... dismissing the idea of an infection. Thanks for your input God bless Lee Hi all, > > So far the obvious symptoms of my daughters RA-like condition have been pain and > inflammation of the knuckles on her right hand and in the corresponding foot > knuckles/toes. > > She's very athletic -- loves to work out and play soccer. > > Usually, she does her sit-ups on a decline (head lower than feet, making them much > harder) and does several sets of 30 sit-ups. > > The last couple days, however, she can't even do three sit-ups on a flat surface. She > doesn't have any pain in her abdominal muscles, but she just can't do them. It's as though > the muscles won't work. > > My wife and I are concerned, to say the least, as we are not aware of this specific symptom > being part of RA. > > Does this sound familiar to anyone? In the symptom descriptions I've found thus far I _do_ > see fatigue listed. Can it be to this degree while limited to just the few joints? > > As always, thank you all for any and all help and advice. > > God bless > > Lee > > --------------------------------- > You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. > > Quote Link to comment Share on other sites More sharing options...
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