newbie

September 23, 2009

Hi, my son was 6mm off. He has been in the helmet for 8 weeks now and will get

his first scan tomorrow. He probably has another 2 - 4 weeks to go. I felt very

uneasy about banding my son, but am glad that i did it. The hard part is only

the first week. After that u dont even remember that they are wearing it. U get

so used to it. Feel better, I hope this helps u.

I dont have any decorating ideas, my son is wearing a tornado style starband so

no decoration is needed.

Good Luck

Miriam

Mom to ely 7 months old, 8 weeks in starband

>

> My 4 month old daughter needs a helmet for plagiocephaly. I need some

decorating ideas for the helmet....it's the only thing making feel better about

the whole thing right now. Any suggestions. Also, curious to know how long

other people's kids had to wear the helmet for. She 8mm off.

>

September 24, 2009

WELCOME!

Look thru pics to see how others have decorated and shee what you like.

Our band came in pink so we just did cute flower sticker. Vellum stickers work best. The paper ones don't stay on as well.

Also, there are tips in the deco file.

HTH!

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

Newbie

My 4 month old daughter needs a helmet for plagiocephaly. I need some decorating ideas for the helmet....it's the only thing making feel better about the whole thing right now. Any suggestions. Also, curious to know how long other people's kids had to wear the helmet for. She 8mm off.

September 24, 2009

Hi!

I would also like to add that scrap

booking stickers work very well. I apply a layer of clear nail polish over the

stickers as well to add a little extra protection. I have found great selections

for the stickers @ s and Target.

Have fun!

BrouseUnderwriting AssistantU.S. Specialty Insurance CompanyA subsidiary of HCC Insurance Holdings, Inc.mailto:rbrouse@...Tel: (972) 381-4803

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of JenandLuli@...

Sent: Thursday, September 24, 2009

1:03 AM

Plagiocephaly

Subject: Re: Newbie

WELCOME!

Look thru pics to see how others have decorated and shee what you like.

Our band came in pink so we just did cute flower sticker. Vellum stickers

work best. The paper ones don't stay on as well.

Also, there are tips in the deco file.

HTH!

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

-----Original

Message-----

From: mantevy <mantevy >

Plagiocephaly

Sent: Wed, Sep 23, 2009 11:23 am

Subject: Newbie

My 4 month old daughter

needs a helmet for plagiocephaly. I need some decorating ideas for the

helmet....it's the only thing making feel better about the whole thing

right now. Any suggestions. Also, curious to know how long other people's kids

had to wear the helmet for. She 8mm off.

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September 24, 2009

>

> My 4 month old daughter needs a helmet for plagiocephaly. I need some

decorating ideas for the helmet....it's the only thing making feel better about

the whole thing right now. Any suggestions. Also, curious to know how long

other people's kids had to wear the helmet for. She 8mm off.

>

My son is 6 months and just started wearing the STAR band last week. Yesterday

was his first day at 23 hours. I took his to get it airbrushed. We are in

Houston and did it at Airbrish Brothers at I-10 and Silber. They did an

excellent job. I will post pictures today. I have heard you can put stickers

and stuff but I was not impressed on how they looked and they can come off. I

paid $35. and it will last the entire time that he has to wear it. You can get

pictures off the internet of what you want and take it to them to work from.

Hope this helps some.

October 1, 2009

Dr. Cutler knows. He will tell you to chelate yourself and your children. You

need to get the mercury out. See my other reply.

And yes, babies get our mercury. Mine got some from my amalgam fillings, and the

rest from his vaccines and environment.

I got rid of my anxiety and depression by getting mercury out. So I've no doubt

this can help you.

Everything your telling me about your kids....mercury. Get the hair tests for

them, and possibly yourself. Read about Andy Cutler low dose chelation,

antifungals for yeast, vitamin supplements for chelation. Getting on Flax seed

or cod liver oil might help you also, it will help them.

There is treatment for this. Andy Cutler chelation.

>

> I was hopitalized in 1990 for Mercury Poisoning and in ICU for a week. My

blood oxygen level was in the 30's when I was admitted. NOW.......I cannot find

anyone that knows anything about my future health.

>

> I have 2 children aged 9 & 11 and they have ADD/ASD/OCD. I do not medicate, but

am learning that Mercury could be the cause.

>

> Did I transfer mercury to my children? I assume that the Mercury is till in

my body. I have anxiety. I have never been diagnosed with anything but

anxiety/depression. I have mood swings and Effexor seems to be the only thing

that helps me.

>

> I am more concerned about my children and would like to know what your

opinions are. I just read about the hair test and was wondering if I should

even bother for myself, since I know I was poisoned by Mercury.

>

> I joined the GFCF group and am researching to go that route with the diet.

Also, I believe that we are dealing with Yeast Overgrowth as well. My son has

severe allergies and was tested very young. He responded to all the molds. He

was observed during a short time in private school by the public school ASD

psychiatrist. We were told he had traits of autism. But never went beyond

that.

>

> I thought my daughter was fine. But, she does have a problem with attention

and now we are learning about the OCD behaviour. Had colic when she was a baby

and always screamed and cried alot. I just thought this was tummy issues. Did

not even let her grandparents hold her until she was over 2 years old.

>

> Thank you all very much,

> Sharon

>

October 1, 2009

>

> I was hopitalized in 1990 for Mercury Poisoning and in ICU for a week. My

blood oxygen level was in the 30's when I was admitted. NOW.......I cannot find

anyone that knows anything about my future health.

>

The mercury needs to be chelated out in the proper way. It is good that you

found this group because the chelation method developed by Cutler, PhD is

best. He has posted in this group since it started.

> I have 2 children aged 9 & 11 and they have ADD/ASD/OCD. I do not medicate, but

am learning that Mercury could be the cause.

>

> Did I transfer mercury to my children?

That is possible. They were also exposed to mercury in the standard childhood

vaccines and possibly dental amalgam.

> I assume that the Mercury is till in my body.

Yes. Once toxicity reaches a certain level it interferes with the bodies

ability to remove it. Clearance from the brain is very slow.

So, chelation is needed to remove it. ALA is the only chelator that will remove

it from the brain and internal organs. It must be used in small doses, every 3

h, day and night for some days on and some days off. See the FAQ of this group

and H Cutler's 2 books www.noamalgam.com

All amalgam fillings must be safely removed before chelation.

Chelation is actually very simple once you know how to do it. You likely will

be able to chelate yourself and your children easily without a physician. You

can ask your physician for help if needed.

> I have anxiety. I have never been diagnosed with anything but

anxiety/depression. I have mood swings and Effexor seems to be the only thing

that helps me.

>

The basic supplements to support chelation plus some extras will help with

symptoms during chelation.

See Andy Cutler's " depression " post:

frequent-dose-chelation/message/15287

frequent-dose-chelation/message/28048

> I am more concerned about my children and would like to know what your

opinions are. I just read about the hair test and was wondering if I should

even bother for myself, since I know I was poisoned by Mercury.

>

It is important to take care of yourself first. You need to start with

chelation in order to get better and stay well in the long term. You will need

your health in order to chelate your children. It is best for all of you.

It would be good to have hair tests for all 3 of you. There are other things

that show up on the tests that may help you when making treatment decisions.

> I joined the GFCF group and am researching to go that route with the diet.

Different people respond to different diets. See Andy Cutler's file " Diet-How

to pick the right one for your kid " in the files section.

> Also, I believe that we are dealing with Yeast Overgrowth as well.

See the file " Neutrophils.html " by Andy Cutler in the files section, and many

posts from Andy in archives.

> My son has severe allergies and was tested very young. He responded to all

the molds. He was observed during a short time in private school by the public

school ASD psychiatrist. We were told he had traits of autism. But never went

beyond that.

>

> I thought my daughter was fine. But, she does have a problem with attention

and now we are learning about the OCD behaviour. Had colic when she was a baby

and always screamed and cried alot. I just thought this was tummy issues. Did

not even let her grandparents hold her until she was over 2 years old.

>

They will both improve with proper chelation. Be careful not to use methods

other that Andy's. There are many chelation protocols out there, promoted by

companies out for profit and well meaning medical professionals who don't

understand chelation, that will make everyone worse because the metals are moved

around without eliminating them.

There is another group focused primary on adult chelation with Andy Cutler's

protocol. It is the frequent-dose-chelation group. We have collected

many of Andy's posts (links section of that group) that are most helpful to

read. Also see Moria's pages (linked to from the loveletters link on the autism

mercury home page and in the links section of the chelation groups).

J

> Thank you all very much,

> Sharon

>

October 4, 2009

try blingyourband.com thats where i ordered the decals form y daughters helmet.

They do custom so pretty much anything you want.

> >

> > My 4 month old daughter needs a helmet for plagiocephaly. I need some

decorating ideas for the helmet....it's the only thing making feel better about

the whole thing right now. Any suggestions. Also, curious to know how long

other people's kids had to wear the helmet for. She 8mm off.

> >

> My son is 6 months and just started wearing the STAR band last week.

Yesterday was his first day at 23 hours. I took his to get it airbrushed. We

are in Houston and did it at Airbrish Brothers at I-10 and Silber. They did an

excellent job. I will post pictures today. I have heard you can put stickers

and stuff but I was not impressed on how they looked and they can come off. I

paid $35. and it will last the entire time that he has to wear it. You can get

pictures off the internet of what you want and take it to them to work from.

> Hope this helps some.

>

January 20, 2010

Jen - You are by far not alone -- and I'll tell you what - as far as the schooling goes -- aspies can do well in the younger grades .. my son is in third grade -- he is in public school and he is managing though we are now looking at special ed privates because I know that as the work gets harder and more complicated -- it will be increasingly difficult for him to keep up.. not to mention the social game is very difficult as the kids get older, too -- I think social skills classes are the most important things for these kids ... they really need to be told over and over again how to read people, how to react, how to play ... They also need strong behavior supports and a therapist can help you with that both at home and at school. My son is great with order, structure and relies heavily on these -- use this trait of aspies to your advantage..

Once we put something into place -- my son will be the first one to remind me to give him his pill after breakfast -- or that he needs to brush his teeth before bedtime. The routine becomes a comfort.Also -- consider looking into integrated schools where special ed and mainstream kids share a classroom -- My son was in one for K & 1 and it was wonderful for him. From: H <jenuhferr@...>Subject: ( ) Newbie Date: Wednesday, January 20, 2010, 9:55 AM

Hi, I am a SAHM to my daughter Em who just turned 5 two days ago (ack).

My husband, Em and I live in Upstate NY in the capital region.

Em was diagnosed on the spectrum at exactly 2 yrs old (PDDNOS, sensory

processing disorder, speech delay, fine motor delay) although I knew

something wasn't right before then and she has had services at home and

then in special preschools since then. Her current diagnosis is

Asperger's and she gets speech at her preschool (reg teacher and sped

teacher) along with seeing the social worker. Academically she is doing

very well... the ABCs were her soothing splinter skill at 3 years old.

She will probably be approved to continue the preschool through the

summer and then the "plan" right now is to get her into regular

kindergarten in the fall...

However, I've always done a lot of research.... on my own medical issues

and of course hers since she was diagnosed... heck I researched her

birth! I put a lot of weight into people's experiences along with my

research. What I'm hearing about Aspie's in school is not good. I'm

basically trying not to be terrified at the idea of her going into

public school and trying not to be terrified at homeschooling. ..

I have no idea what to do. I have materials to read about different

types of homeschooling but it's just so MUCH! And you know what? I'm NOT

smarter than a 5th grader!! I have a bachelor's degree in

biology/psychology but I couldn't tell u my butt from my elbow at this

point! How am I going to teach my incredibly intelligent daughter

anything??? I can't get her to sit and write her letters... I have no

idea how they manage to do that in school. I'm not a trained sped

teacher... Plus, if she goes to public school then I could work and help

us out of our financial hole but that is less important than what is

best for Em.

I have so much reading and research to do and I'm not well myself. Some

days are a real struggle. Em's main issues are her emotional regulation

and ability to socially interact appropriately. One tiny example.. she

can't do something so she just throws herself on the floor in another

room and I hear her complaining that she needs help. If I ignore her

hoping she will 'get it' and come to me and ask for help, it never

happens. I have to tell her to come and talk to me.

She's already been called a "retard" at the pool and pushed around my

"mean kids" as she calls them at public play places. She has a target on

her head because she loves everyone and it so insanely friendly and

outgoing!! She doesn't get it when the kids want her to GO AWAY. She is

very affected by these episodes and we end up discussing them and how to

act appropriately and talk about feelings about them, etc... She tells

random adults we meet that she loves them! We've just finally gotten her

to not talk to people unless Mommy or Daddy are talking to them

(stranger idea just doesn't work). Now we're trying to explain other

ways she can say she likes someone she meets (nice meeting you) and that

'i love you' is only for family. Saying close friends would just be too

confusing... . ack!

Well, that's a lot! I'll stop now! LOL!

Jen

-----Inline Attachment Follows-----No virus found in this outgoing message.Checked by AVG - www.avg.com Version: 8.5.432 / Virus Database: 271.1.1/2634 - Release Date: 01/20/10 09:12:00

January 20, 2010

HI there,

My grandson is almost five and has the

same diagnosis….I can relate to everything you are saying. He is also starting

mainstream kindergarten in the fall

It has taken almost a year and a half for

figure out that most of his problems are sensory.

Try these two books to see if her face is

on so many of the pages just like DGS’s was

The sensory sensitive child /

& Gouze

Sensory Processing Disorder - Answer

Book / Tara Delany

We have changed the way we are doing some

things per the books and have his starting OT with a therapist specializing in

Sensory processing next week.

So far he is responding in a very positive

way

Good luck

Teri

From: [mailto: ] On Behalf Of

Sent: Wednesday, January 20, 2010

7:38 AM

Cc: jenuhferr@...

Subject: Re: ( )

Newbie

Jen -

You are by far not alone -- and I'll tell you what - as far as the schooling

goes -- aspies can do well in the younger grades .. my son is in third grade

-- he is in public school and he is managing though we are now looking at

special ed privates because I know that as the work gets harder and more

complicated -- it will be increasingly difficult for him to keep up.. not to

mention the social game is very difficult as the kids get older, too --

I think social skills classes are the most important things for these kids

.... they really need to be told over and over again how to read people, how

to react, how to play ... They also need strong behavior supports and a

therapist can help you with that both at home and at school. My son is

great with order, structure and relies heavily on these -- use this trait of

aspies to your advantage.. Once we put something into place -- my son will be

the first one to remind me to give him his pill after breakfast -- or that he

needs to brush his teeth before bedtime. The routine becomes a

comfort.

Also -- consider looking into integrated schools where special ed and

mainstream kids share a classroom -- My son was in one for K & 1 and it

was wonderful for him.

From: H <jenuhferrnycap (DOT) rr.com>

Subject: ( ) Newbie

Date: Wednesday, January 20, 2010, 9:55 AM

Hi, I

am a SAHM to my daughter Em who just turned 5 two days ago (ack).