Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Welcome to the group! First off, I didn't catch your name, I don't think you signed with it. My son was banded at 5 1/2 mths, he wore a Starband and was scanned. While it wasn't the molding process, it was still hard to have to hold him still for the scan. Just remember, it's not hurting them, they're just scared because it's different, sort of the same feeling you have if you were to get an MRI. Same thing i fyou were to cast your head....you wouldn't like it, but you'd get thru it. You can't feel guilty about all of this, you did the best you could and knew how to do. None of us wish this for our child, but we are VERY fortunate to have the ability to fix it. You are starting at a great age so you should see tons of correction. do you know what type of helmet you are getting? It does get better, we're all scared at first, but reality is better than what we think it is....most babies don't even care about the helmets, and the time goes by so quickly, really it does. Good Luck in your journey and please keep us updated Mother to , 10 mths, Starbanded 1/11/07-5/23/07 "In the depths of winter, I finally found there was in me an invincible summer." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Thanks for the replies so far. I am so glad I found this group. Yes i had forgottento metion my name. My name is Jodi, and my daughter's name is Alaynah. No at this point I am not sure which helmet they use. They just have called it an orth plago helmet wrap.I'll keep you all posted, and tell you what i find out on Wed. > > Welcome to the group! > > First off, I didn't catch your name, I don't think you signed with it. > > My son was banded at 5 1/2 mths, he wore a Starband and was scanned. While it wasn't the molding process, it was still hard to have to hold him still for the scan. Just remember, it's not hurting them, they're just scared because it's different, sort of the same feeling you have if you were to get an MRI. Same thing i fyou were to cast your head....you wouldn't like it, but you'd get thru it. > > You can't feel guilty about all of this, you did the best you could and knew how to do. None of us wish this for our child, but we are VERY fortunate to have the ability to fix it. You are starting at a great age so you should see tons of correction. do you know what type of helmet you are getting? > > It does get better, we're all scared at first, but reality is better than what we think it is....most babies don't even care about the helmets, and the time goes by so quickly, really it does. > > Good Luck in your journey and please keep us updated > > Mother to , 10 mths, Starbanded 1/11/07-5/23/07 > > > > > " In the depths of winter, I finally found there was in me an invincible summer. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 All I can say is that it is really not as bad as you are thinking. Not her head but the banding process. She will get the band and have it off before you know it. Chances are she won't have much of a problem adjusting to the band. Even kids that do have trouble at first get used to it. My daughter never had a problem with it from the second she had it placed on her head. Nothing has changed the way we do things, eat, snuggle, play ect.. No one has ever said anything to me about the band if anything they comment on how cute the stickers are. The best part is you will be able to stop worrying about her head and the way she sleeps, sits ect. Don't be scared, you will be so surprised how easy it as after you finally get the band. Good Luck! Mom to /8 Months/DOC band for 10 weeks now > > Hi everyone. > I am new here, and am scared and feel so guilty. > I have a beautiful 5 month old baby that will be going for her first > scan next wed. to see if she needs banding. I am sure she will be > though. she has such a flat back head. I feel so guilty about it. > I feel there had to be something that i could have done to prevent > this from happening. I have a 4 year old son that is fine. I tried > to reposition her on the repositioner,and have her sleep more on her > sides but she was so stuborn! She HAS to be flat on her back, and > have her hands behind her head to fall asleep. And if I tried > reposition her after I knew she was asleep she would just wake up > and fight me with it.I also have a 1inch thick peice of memory foam > under her sheets of her bed to see if that would help, but i can not > see a differance as of yet.She is on her back for 10 to 12 hours at > night, and then of course she takes 2 to 3 naps a day. When she is > up she is either in my arms, in a bumbo or exersaucer. The only time > I do have her on her back persay is in her car seat. I don't know > what else I can do. I feel so scared as well with the unknowns and > how will she feel about it, and how people will see it. Like I > neglected her and allowed her to just lay around which is not true. > I have seen some pics of your beautiful babies being casted and it > looks so much worse then getting shots. I don't know as a mother > how will i handle her having to go threw that. > I have head this is a great group, and I know I can feel better > knowing there are other parents out there that are going threw the > same things. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Jodi, I am the mother of three children. I had never heard of plagiocephaly until a few weeks ago when my now 5 month old was diagnosed at his routine 4 month pediatric check up. I promise I completely understand how you feel. I have been so afraid that everyone would think that I neglect my son and leave him laying around to much on his back. I knew about tummy time and tried to do it as best I could. He hates his tummy time and of course like your daughter loves sleeping and playing on his back. I guess I knew that my son's head was flat but didn't realize the extent until the pediatrician and neurosurgeon actually verified that he had plagiocephaly/brach and needed helmet therapy. You are a step ahead of me because you are researching and will be prepared when and if you have to do casting and get ready for treatment. Everything happened for me in one day and I was overwhelmed to say the least. I have been struggling with what type helmet we are going to be using and am I providing the very best for my son or should I try another company BUT with the help of the parents on this support group I have had a huge load lifted off of me and am dealing with what is in front of me. We will go and pick up our helmet on June 12th. I think I am going to still be overwhelmed with seeing him in the helmet and dealing with the public BUT as my husband says we are going to do whatever we have to do to make his life easiest and the best. Good Luck with your daughter and I know everything will be fine. Casting was alittle scarey and you should probably take someone with you. It goes by fast and everything really will be okay! Arkansas 5 month / (Becker) > > > > Welcome to the group! > > > > First off, I didn't catch your name, I don't think you signed > with it. > > > > My son was banded at 5 1/2 mths, he wore a Starband and was > scanned. While it wasn't the molding process, it was still hard to > have to hold him still for the scan. Just remember, it's not > hurting them, they're just scared because it's different, sort of > the same feeling you have if you were to get an MRI. Same thing i > fyou were to cast your head....you wouldn't like it, but you'd get > thru it. > > > > You can't feel guilty about all of this, you did the best you > could and knew how to do. None of us wish this for our child, but > we are VERY fortunate to have the ability to fix it. You are > starting at a great age so you should see tons of correction. do > you know what type of helmet you are getting? > > > > It does get better, we're all scared at first, but reality is > better than what we think it is....most babies don't even care about > the helmets, and the time goes by so quickly, really it does. > > > > Good Luck in your journey and please keep us updated > > > > Mother to , 10 mths, Starbanded 1/11/07-5/23/07 > > > > > > > > > > " In the depths of winter, I finally found there was in > me an invincible summer. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 HI - I felt the same way and you are not alone - my baby screamed and screamed at tummy time - it was HORRID and she has tort so her flat spot is on the side. Get the helmet - my baby has improved in diagnal diff. by 6 mm in only one month. Also get her check for torticollis too just to be sure. You are a good mom. I have 3 grown kids too and thought I knew how to be a mom - well surprise - I had never heard of this and the drs scare you to death about back to sleep - when my first kids were babies - side sleeping with rotation was the way to go and if I could do it over again I would do that from day one - then they are used to it. My first 3 rolled over sooner etc because they were used to it. PLEASE don't blame yourself - I did and it does no good - just insist on the helmet asap to get the growth and use it and eval for pt. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 WELCOME TO THE GROUP!!!! For fantastic AUTISM awareness gear go here! http://www.cafepress.com/autismawarenes Got pets? Go here for great items! http://www.cafepress.com/petloversrus and Ribbons of Hope.. breast cancer,support our troops etc http://www.cafepress.com/ribbonsofhope GO Veggie!!! Great vegitarian gear here! http://www.cafepress.com/vegetarianrus For Fun attitude gear look here! http://www.cafepress.com/stronggear For more attitude! Go HERE! http://www.cafepress.com/alteredattitude -- ( ) newbie Hi Everyone, I'm new to the list. I have no kids (unless you call pets "kids" because I have plenty of those). My reason for joining the list is to keep an ear to the wall as to what's going on in the world of AS as well as offering my experiences as a School Psychologist for anyone who might be having a hard time cutting through the BS written up in Psycho-Educational Evaluations or IQ testing scores/subtests. I also ran ABA programs for year s at the preschool level. Now I teach psychology at the college level and I work with a very interesting partner in providing group Social Skills training privately. I couldn't stand working in the schools anymore as a School Psychologist for a variety of reasons. I did design and implement a program for children with Asperger's at the school before I left. The school happened to have a lot of children with poor social skills and other Autism Spectrum tendencies yet there were no ser vices for them. I approached the Principal and he told me to set something up. It was effective while I was there but I'm not sure what happened after I left because I was actually in the classrooms doing the work with the kids along with the curriculum specialist (who was about the best teacher on earth) and the Speech/Language Pathologist who understood these kids' needs perfectly. I'm not the biggest expert in the world but I sure know Psychological and Educational Assessments. I thought I could give back to the list by deciphering if anyone had any questions about the reports. School Psychologists are usually told to be as vague as possible-and they go with that! lol ~Val~ Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio Show Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma (listen to the replay right now!) ******************************************************************** "If you're not happy without it, you'll never be happy with it." ~ Candy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 Val, It's nice of you to want to join us and offer some help. I can only imagine the list of reasons you left the school atmosphere. Some of us have a bad taste in our mouths from school issues so I sure hope that at least I don't hurt your feelings. Glad you joined. mom to Preston with Ice, Service dog ( ) newbie Hi Everyone, I'm new to the list. I have no kids (unless you call pets "kids" because I have plenty of those). My reason for joining the list is to keep an ear to the wall as to what's going on in the world of AS as well as offering my experiences as a School Psychologist for anyone who might be having a hard time cutting through the BS written up in Psycho-Educational Evaluations or IQ testing scores/subtests. I also ran ABA programs for years at the preschool level. Now I teach psychology at the college level and I work with a very interesting partner in providing group Social Skills training privately. I couldn't stand working in the schools anymore as a School Psychologist for a variety of reasons. I did design and implement a program for children with Asperger's at the school before I left. The school happened to have a lot of children with poor social skills and other Autism Spectrum tendencies yet there were no services for them. I approached the Principal and he told me to set something up. It was effective while I was there but I'm not sure what happened after I left because I was actually in the classrooms doing the work with the kids along with the curriculum specialist (who was about the best teacher on earth) and the Speech/Language Pathologist who understood these kids' needs perfectly. I'm not the biggest expert in the world but I sure know Psychological and Educational Assessments. I thought I could give back to the list by deciphering if anyone had any questions about the reports. School Psychologists are usually told to be as vague as possible-and they go with that! lol ~Val~ Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio Show Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma (listen to the replay right now!) ******************************************************************** "If you're not happy without it, you'll never be happy with it." ~ Candy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 Glad to have you here Val! I don't think i Have voiced my dissatisfaction with my school system on this board yet; so I THINK I can safely say that I hope I haven't offended you! I can completely see the truth in your last statement about the school psychologists being vague! It's so aggravating to hear stuff like " He's so smart, he'll figure it out " , or He's so smart, he doesn't need to be treated like that... this was in regard of some issues I was having with working memory!! I did not have the PROOF the school system needed to label my child with AS at the last IEP. I had been verbally told by the Doctor, but did not have the written report!! I was also told by the school system that services would be based on what exactly was in that report... that if there wasn't anything specifically geared at education then he would only get gifted services!!! Ticked me off!!!! I've got my report and I've already notified the school that I want an emergency IEP once the school session as re started! As for FBA... can't get that completed. They keep stopping it saying they don't need it anymore because he's improved or he's better... well OF COURSE HE " S BETTER... He's taking 2 different meds!!!!! OH... sorry for the rant... I forgot the real reason to send this email! LOL I just wanted to let you know that it will be nice to know that you are here in the group and can help answer some of the questions in regards to services that some of might have! THANK YOU! Jackie On Jun 16, 2007, at 7:10 AM, Professor Val wrote: > Hi Everyone, I'm new to the list. I have no kids (unless you > call pets " kids " because I have plenty of those). My reason for > joining the list is to keep an ear to the wall as to what's going on > in the world of AS as well as offering my experiences as a School > Psychologist for anyone who might be having a hard time cutting > through the BS written up in Psycho-Educational Evaluations or IQ > testing scores/subtests.  I also ran ABA programs for years at the > preschool level. Now I teach psychology at the college level and I > work with a very interesting partner in providing group Social Skills > training privately. I couldn't stand working in the schools anymore > as a School Psychologist for a variety of reasons. I did design and > implement a program for children with Asperger's at the school before > I left. The school happened to have a lot of children with poor > social skills and other Autism Spectrum tendencies yet there were no > services for them. I approached the Principal and he told me to set > something up. It was effective while I was there but I'm not sure > what happened after I left because I was actually in the classrooms > doing the work with the kids along with the curriculum specialist (who > was about the best teacher on earth) and the Speech/Language > Pathologist who understood these kids' needs perfectly. >  > I'm not the biggest expert in the world but I sure know Psychological > and Educational Assessments. I thought I could give back to the list > by deciphering if anyone had any questions about the reports. School > Psychologists are usually told to be as vague as possible-and they go > with that! lol >  > ~Val~  >  > Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio > Show > Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma >  (listen to the replay right now!) > ******************************************************************** >  > <unknown.gif>   " If you're not happy without it, you'll never be happy > with it. "  ~ Candy >  >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 Oh please feel free to vent about schools and school psychologists all you want. I actually had my internship supervisor (public school) tell me to keep my mouth shut when a 12 year old girl couldn't button her pants by herself (fine motor issues) and her classmates had to button them for her... I told him she needed an OT evaluation and he told me not to suggest it because then they'd have to pay for it. I called the mother up from home and told her to go to her pediatrician and get a prescription for OT and present it to the committee on special Ed. I told her she never got the call from me-it was like working as an informant... No way was I going to let that go on any longer... After that I worked at a residential school for ED kids. That had it's own issues but the kids did get serviced when needed. I have seen a lot of craziness... Thank you for all the warm welcomes! ~Val~ Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio Show Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma (listen to the replay right now!) ******************************************************************** "If you're not happy without it, you'll never be happy with it." ~ Candy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark@...> wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 In a message dated 7/1/2007 7:36:21 PM Eastern Daylight Time, yasonark@... writes: we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. You know, I'm so glad to realize that I'm not the only one who was given that line of crap, and that it's just not my district that lies about this. I was really beginning to doubt myself, and to feel guilty for asking for something that I was told by the powers that be that I wasn't entitled to. Barbara "We learned more from a three minute record baby than we ever learned in school" Bruce Springsteen, No Surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Tenex/Abilify has worked fairly well for us for this.....Plus behavior therapy...... I share your pain Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/883 - Release Date: 7/1/2007 12:19 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 , I would love to talk to you off group at length as this sounds similar to what we have lived with..... dlbalke@... Debbie Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/883 - Release Date: 7/1/2007 12:19 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 ,Does he take Benadryl with the Haldol? My son took Haldol briefly, until he got a dystonic reaction, and we had to call 911 and get him carted off to the hospital in an ambulance. The dystonic reaction was so severe that it dislocated his jaw. The third emergency room doctor we saw (who actually seemed to know something) said that Haldol is often given with Benedryl to prevent dystonic reactions.LizOn Jul 2, 2007, at 1:59 AM, Gratton wrote:Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? < /div>thanks brandi from illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 That's the kind of thing I worry about. How your son was arrested for talking about beating up the principle. That's something my son would say and wouldn't even mean. I try to explain how he can't say certain things like that but it doesn't get through very well to him. Like at the airport he said the word "bomb" just becasue I told him not to say anything like that. I explained why but apparently he didn't get it.yasonark <yasonark@...> wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 > > we have been trying to get school authorities to > > understand for years that just because he tests high on intelligence > > tests and vocabulary does NOT mean he doesn't have a problem. > > > You know, I'm so glad to realize that I'm not the only one who was given that > line of crap, and that it's just not my district that lies about this. I was > really beginning to doubt myself, and to feel guilty for asking for something > that I was told by the powers that be that I wasn't entitled to. > Same story here! Believe me, you aren't alone in hearing that " line of crap " (Ohio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 It is usually easier to prevent the problem that causes meltdowns than to "fix" a meltdown. At school, I would request a functional behavior assessment and a behavior plan, if he does not already have this. If he does have one, make sure that someone on his team has expertise in autism so that the behavior plan is tailored to suit the needs of a child with hfa/as. Many times, the ways one deals with kids who have behavior problems due to other reasons besides autism will not work on kids with autism. And sometimes, the methods used can work but have to be taught to the child first in small steps so that they learn to wait, delay gratification, etc. For instance, you can't say, "You have to be good all week or you can't get your candy on Friday" to a child who can't wait two minutes for anything! This is going to cause a meltdown on day one and no desire to behave until Friday. So I would make sure that the plan at school is working and is appropriate to his needs - i.e. achievable! At home, we have a 10 yo with the same kind of situation - he doesn't like to do things we ask him to do and when he is asked, he has similar complaints of life not being fair, I'm mean. In fact, this week he has started yelling that I am "abusing" him. It might be humorous if I wasn't so tired of hearing it! I just keep reminding him that we are a family and we all have to do our share. Plus, I get more cooperation when he wants to do something - so I use that to my advantage. i.e. If he wants to buy an ice cream from the ice cream truck, he needs to have his chores done first. As long as I tell him in plenty of time for him to adjust, he usually does ok. But it's always a process with him. RoxannaAutism Happens Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 When is a good time to talk to your child after the meltdown occurs? My son has never had one so bad. My mom picked him up at camp yesterday and took him swimming at my house. Then he didn't want to get changed to go to her house and he started playing his gameboy instead. She gave him a few chances and nothing was happening so she took his gameboy from him. He totally freaked out. He's normally really good for her and loves her to death. He's never been so mean to her. My mom got frustrated and told him she was going to flush it down the toilet if he didn't get dressed. Boy did he ever freak out. Said he was going to kick her in the shins, bite her, punch her, yelled at her to get out of his house. Then he ran outside right into the road. She ran after him, grabbed him, he claims she hurt him. Yells he's going to call 911. My poor mom, I'm sure all the neighbors heard. He called me totally crying and sounding like he's having an asthma attack. I started driving home but it takes like 40 minutes from work. I was so scared my whole drive home. He was a wreck, my mom was a wreck. He climbed up on the fridge, yelled at her not to hurt the cats. I finally told her to just leave and I'd stay on the phone with him until I got home. She went outside and waited for me to get home. He somewhat calmed down once she was out of the house. It was awful. In the Asperger books it says to wait till later to try to reason with them about what happened so when I got home I just hugged him. He was so greatful that I was home and we talked about camp, which he had a blast at. Thinking maybe something happened at camp that threw his day off, I asked him if he wanted to go to camp the next day and he said, "Of course I do, why would't I?" Later that night I did talk to him just about the safety issues of running into the road and threatening to call 911. He said he ran into the road hoping Nana would get hit. Lovely huh? I started to talk about what happened but his eyes got big and he stared strait ahead and I knew I would't be able to get through to him. So then this morning I thought he was ok and I'd be able to talk to him. Boy was I wrong. Didn't get anywhere other than now he's scared of me too and he was scared to go to camp because there were adults there and he now thinks all adults are going to try to throw away his gameboy. I think it's because I told him that he just needed to listen and do what Nana asked him to and she never would have said that. I think because of his Aspergers and how he interpritts things he took that to mean that if he doesn't do what anyone tells him to do, they are going to throw away his gameboy. I tried to tell him that no one will do that but he accused me of white lying. Another issue he can seem to understand the concept of. So when do I know he's ok to talk about Nana? Her feelings are hurt, I tried to talk to him about that but that didn't go well. He's never ever felt like this about his Nana before.Roxanna <madideas@...> wrote: It is usually easier to prevent the problem that causes meltdowns than to "fix" a meltdown. At school, I would request a functional behavior assessment and a behavior plan, if he does not already have this. If he does have one, make sure that someone on his team has expertise in autism so that the behavior plan is tailored to suit the needs of a child with hfa/as. Many times, the ways one deals with kids who have behavior problems due to other reasons besides autism will not work on kids with autism. And sometimes, the methods used can work but have to be taught to the child first in small steps so that they learn to wait, delay gratification, etc. For instance, you can't say, "You have to be good all week or you can't get your candy on Friday" to a child who can't wait two minutes for anything! This is going to cause a meltdown on day one and no desire to behave until Friday. So I would make sure that the plan at school is working and is appropriate to his needs - i.e. achievable! At home, we have a 10 yo with the same kind of situation - he doesn't like to do things we ask him to do and when he is asked, he has similar complaints of life not being fair, I'm mean. In fact, this week he has started yelling that I am "abusing" him. It might be humorous if I wasn't so tired of hearing it! I just keep reminding him that we are a family and we all have to do our share. Plus, I get more cooperation when he wants to do something - so I use that to my advantage. i.e. If he wants to buy an ice cream from the ice cream truck, he needs to have his chores done first. As long as I tell him in plenty of time for him to adjust, he usually does ok. But it's always a process with him. RoxannaAutism Happens Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 You know what? Your mom did not do a good job of dealing with your son. In my view, she took his behavior and totally blew it up. So if I was talking to him, I would say, I know you were very upset that Grandma made that threat about your gameboy. I would tell him that all people make mistakes. I would also reiterate that he needs to listen to her, it was not right that he did these things. But I also think, given that that is how she relates to him, I would not leave him with her alone anymore. She clearly doesn't get how to deal with him and the way she escalated his problem could really lead to a serious situation. Just my take on it. Kaye --- Essenfeld <lessen@...> wrote: > When is a good time to talk to your child after the > meltdown occurs? My son has never had one so bad. My > mom picked him up at camp yesterday and took him > swimming at my house. Then he didn't want to get > changed to go to her house and he started playing > his gameboy instead. She gave him a few chances and > nothing was happening so she took his gameboy from > him. He totally freaked out. He's normally really > good for her and loves her to death. He's never been > so mean to her. My mom got frustrated and told him > she was going to flush it down the toilet if he > didn't get dressed. Boy did he ever freak out. Said > he was going to kick her in the shins, bite her, > punch her, yelled at her to get out of his house. > Then he ran outside right into the road. She ran > after him, grabbed him, he claims she hurt him. > Yells he's going to call 911. My poor mom, I'm sure > all the neighbors heard. He called me totally crying > and sounding like he's having an asthma attack. I > started driving home but it > takes like 40 minutes from work. I was so scared my > whole drive home. He was a wreck, my mom was a > wreck. He climbed up on the fridge, yelled at her > not to hurt the cats. I finally told her to just > leave and I'd stay on the phone with him until I got > home. She went outside and waited for me to get > home. He somewhat calmed down once she was out of > the house. It was awful. In the Asperger books it > says to wait till later to try to reason with them > about what happened so when I got home I just hugged > him. He was so greatful that I was home and we > talked about camp, which he had a blast at. Thinking > maybe something happened at camp that threw his day > off, I asked him if he wanted to go to camp the next > day and he said, " Of course I do, why would't I? " > Later that night I did talk to him just about the > safety issues of running into the road and > threatening to call 911. He said he ran into the > road hoping Nana would get hit. Lovely huh? I > started to talk about what happened but > his eyes got big and he stared strait ahead and I > knew I would't be able to get through to him. So > then this morning I thought he was ok and I'd be > able to talk to him. Boy was I wrong. Didn't get > anywhere other than now he's scared of me too and he > was scared to go to camp because there were adults > there and he now thinks all adults are going to try > to throw away his gameboy. I think it's because I > told him that he just needed to listen and do what > Nana asked him to and she never would have said > that. I think because of his Aspergers and how he > interpritts things he took that to mean that if he > doesn't do what anyone tells him to do, they are > going to throw away his gameboy. I tried to tell him > that no one will do that but he accused me of white > lying. Another issue he can seem to understand the > concept of. So when do I know he's ok to talk about > Nana? Her feelings are hurt, I tried to talk to him > about that but that didn't go well. He's never ever > felt like this about > his Nana before. > > Roxanna <madideas@...> wrote: > It is usually easier to prevent the problem that > causes meltdowns than to " fix " a meltdown. At > school, I would request a functional behavior > assessment and a behavior plan, if he does not > already have this. If he does have one, make sure > that someone on his team has expertise in autism so > that the behavior plan is tailored to suit the needs > of a child with hfa/as. Many times, the ways one > deals with kids who have behavior problems due to > other reasons besides autism will not work on kids > with autism. And sometimes, the methods used can > work but have to be taught to the child first in > small steps so that they learn to wait, delay > gratification, etc. For instance, you can't say, > " You have to be good all week or you can't get your > candy on Friday " to a child who can't wait two > minutes for anything! This is going to cause a > meltdown on day one and no desire to behave until > Friday. So I would make sure that the plan at > school is working and is appropriate to his needs - > i.e. achievable! > > At home, we have a 10 yo with the same kind of > situation - he doesn't like to do things we ask him > to do and when he is asked, he has similar > complaints of life not being fair, I'm mean. In > fact, this week he has started yelling that I am > " abusing " him. It might be humorous if I wasn't so > tired of hearing it! I just keep reminding him that > we are a family and we all have to do our share. > Plus, I get more cooperation when he wants to do > something - so I use that to my advantage. i.e. If > he wants to buy an ice cream from the ice cream > truck, he needs to have his chores done first. As > long as I tell him in plenty of time for him to > adjust, he usually does ok. But it's always a > process with him. > > > > Roxanna > Autism Happens > Re: ( ) newbie > > > Hi > > My son is 9 and he was finally diagnoised when we > was 5. He is thing know is pokemon and Ben 10. My > son is going to be in 4th grade and he is very > violent, and very overweight , which i am extremely > worried about, all thinks about is what his next > meal is going to be and of course his fixation. He > does not too bad as long as you don't ask him to do > anything but just as soon as we do , no matter what > it is it is always a big deal and then it leads to a > major meltdown. He says all the time things like > " that's not fair " and " i'm going to regret doing > that " when we ask him to do something he doesn't > want to do. It is even worse at school , which he > is at a behavior school now, when he has a meltdown > at school he kicks, hits, bites, spits , calls > names. He is on haladol now but it doesn't work > real well for the behavior. Any suggestions on > anything that has worked for you? > > thanks brandi from illinois > > yasonark <yasonark@...> wrote: > I can't tell youn what a relief it is to find > a group where I can > talk about my son's problem with people who " get > it " . My son is in high > school now and we have been trying to get school > authorities to > understand for years that just because he tests high > on intelligence > tests and vocabulary does NOT mean he doesn't have a > problem. > Last year he was overheard asking a fellow student > if they would like > to help him beat up the principle of the vocational > school. He was > arrested and spent 2 weeks in juvenile detention. It > was a nightmare! > He used to be fixated on dinosaurs but for the last > 2 or 3 years it > has been video games. Since my husband used to play > Dungeons and > Dragons he is starting to get interested in that. > > > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - > their life, your story. > Play Sims Stories at Games. > > > > > ________________________________________________________________________________\ ____ Choose the right car based on your needs. Check out Autos new Car Finder tool. http://autos./carfinder/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 Could you try writing it down for him or typing it on Word or as an email for him? I'm just thinking of Ian,,,,,and if he would respond to "words"........... I'm so sorry for you and your mom...and son. Ian is like that too about his games. I've said before that we should just get rid of them. I still pay for that. If things get bad and he loses the computer (Runescape) for a while or whatever,,,,,he says, "You're not gonna sell it (them) are you?". I wish-to-God I'd never said it. I think it just means SOOO much to them,,,,,,,for Ian, it honestly calms him. It's comforting. So,,,,,to say you're gonna take it or sell it or throw it in the toilet,,,,,,,is devastating to them. ***** Anyway,,,,,,,let me know how it goes.....and what you do. *** I also just remembered once Ian freaked out while my mom was here. She'd never seen an actual "freakout"........ Anyway,,,,he took it out on her, too. Later,,,,,,,,she came over for whatever and we sat down and I cried a bit asking him what I should do when he gets so upset. My mom cried saying that she loved him so much and that if he had an idea as to what to do to help him,,,she'd do it. He really "GOT" our sadness. He said he was sorry and said that he just needed to be alone sometimes. So,,,we told him that we'd try........when we saw that he just wasnt' responding the way we wanted,,,,,,,,to take it like he "couldn't" do it instead of that he "wouldn't" do it. Kind of give him the benefit of the doubt.... BUT,,,,,,,this would give him some extra time,,,,like a 1/2 hour or whatever. It wasn't a license to just get "off the hook". Anyway,,,,good luck.Robin Essenfeld <lessen@...> wrote: When is a good time to talk to your child after the meltdown occurs? My son has never had one so bad. My mom picked him up at camp yesterday and took him swimming at my house. Then he didn't want to get changed to go to her house and he started playing his gameboy instead. She gave him a few chances and nothing was happening so she took his gameboy from him. He totally freaked out. He's normally really good for her and loves her to death. He's never been so mean to her. My mom got frustrated and told him she was going to flush it down the toilet if he didn't get dressed. Boy did he ever freak out. Said he was going to kick her in the shins, bite her, punch her, yelled at her to get out of his house. Then he ran outside right into the road. She ran after him, grabbed him, he claims she hurt him. Yells he's going to call 911. My poor mom, I'm sure all the neighbors heard. He called me totally crying and sounding like he's having an asthma attack. I started driving home but it takes like 40 minutes from work. I was so scared my whole drive home. He was a wreck, my mom was a wreck. He climbed up on the fridge, yelled at her not to hurt the cats. I finally told her to just leave and I'd stay on the phone with him until I got home. She went outside and waited for me to get home. He somewhat calmed down once she was out of the house. It was awful. In the Asperger books it says to wait till later to try to reason with them about what happened so when I got home I just hugged him. He was so greatful that I was home and we talked about camp, which he had a blast at. Thinking maybe something happened at camp that threw his day off, I asked him if he wanted to go to camp the next day and he said, "Of course I do, why would't I?" Later that night I did talk to him just about the safety issues of running into the road and threatening to call 911. He said he ran into the road hoping Nana would get hit. Lovely huh? I started to talk about what happened but his eyes got big and he stared strait ahead and I knew I would't be able to get through to him. So then this morning I thought he was ok and I'd be able to talk to him. Boy was I wrong. Didn't get anywhere other than now he's scared of me too and he was scared to go to camp because there were adults there and he now thinks all adults are going to try to throw away his gameboy. I think it's because I told him that he just needed to listen and do what Nana asked him to and she never would have said that. I think because of his Aspergers and how he interpritts things he took that to mean that if he doesn't do what anyone tells him to do, they are going to throw away his gameboy. I tried to tell him that no one will do that but he accused me of white lying. Another issue he can seem to understand the concept of. So when do I know he's ok to talk about Nana? Her feelings are hurt, I tried to talk to him about that but that didn't go well. He's never ever felt like this about his Nana before.Roxanna <madideaszoominternet (DOT) net> wrote: It is usually easier to prevent the problem that causes meltdowns than to "fix" a meltdown. At school, I would request a functional behavior assessment and a behavior plan, if he does not already have this. If he does have one, make sure that someone on his team has expertise in autism so that the behavior plan is tailored to suit the needs of a child with hfa/as. Many times, the ways one deals with kids who have behavior problems due to other reasons besides autism will not work on kids with autism. And sometimes, the methods used can work but have to be taught to the child first in small steps so that they learn to wait, delay gratification, etc. For instance, you can't say, "You have to be good all week or you can't get your candy on Friday" to a child who can't wait two minutes for anything! This is going to cause a meltdown on day one and no desire to behave until Friday. So I would make sure that the plan at school is working and is appropriate to his needs - i.e. achievable! At home, we have a 10 yo with the same kind of situation - he doesn't like to do things we ask him to do and when he is asked, he has similar complaints of life not being fair, I'm mean. In fact, this week he has started yelling that I am "abusing" him. It might be humorous if I wasn't so tired of hearing it! I just keep reminding him that we are a family and we all have to do our share. Plus, I get more cooperation when he wants to do something - so I use that to my advantage. i.e. If he wants to buy an ice cream from the ice cream truck, he needs to have his chores done first. As long as I tell him in plenty of time for him to adjust, he usually does ok. But it's always a process with him. RoxannaAutism Happens Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 My daughter first had meltdowns with my mother when she was around 5 also...it was awful. She tried to hit and bite my mother on several occasions. Usually it had to do with time to leave, or some other transition. My daughter always felt remorsful later, though and we could talk about it. I think your Mom triggered him with that comment and he just went on overload. It could be because he was wiped out from camp too and needed to decompress. Maybe the three of you should sit down and discuss what happened and how to handle future issues. Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2007 Report Share Posted July 4, 2007 When I was 12 years old our family took a trip to Miami Beach. My grandfather had passed away about 6 months before, so we took my grandmother with us. My parents were attending meetings for our church and MawMaw was our babysitter. My sisters were 7 and 3. My 7yo sister was a firecracker. We were supposed to put on our swimsuits and take a nap or read or color quietly until my parents returned from their meeting. My sister would not lay down so MawMaw bopped her on the head with one of our little blow-up inner tubes. My sister promptly bopped MawMaw in the head with one, too. Then MawMaw lost it and started yelling and trying to punish her. So, my sister locked herself in the other room - we had two adjoining rooms. She refused to come out until my parents returned. Just goes to show that grandparents sometimes have more issues than the kids. Before we got my stepson's diagnosis of Aspergers, but Mother said he was just bad. She never said it in front of him and she always treated him well, but she told me that on the phone. Donna Re: ( ) newbie> > > Hi> > My son is 9 and he was finally diagnoised when we> was 5. He is thing know is pokemon and Ben 10. My> son is going to be in 4th grade and he is very> violent, and very overweight , which i am extremely> worried about, all thinks about is what his next> meal is going to be and of course his fixation. He> does not too bad as long as you don't ask him to do> anything but just as soon as we do , no matter what> it is it is always a big deal and then it leads to a> major meltdown. He says all the time things like> "that's not fair" and "i'm going to regret doing> that" when we ask him to do something he doesn't> want to do. It is even worse at school , which he> is at a behavior school now, when he has a meltdown> at school he kicks, hits, bites, spits , calls> names. He is on haladol now but it doesn't work> real well for the behavior. Any suggestions on> anything that has worked for you?> > thanks brandi from illinois> > yasonark <yasonark > wrote:> I can't tell youn what a relief it is to find> a group where I can > talk about my son's problem with people who "get> it". My son is in high > school now and we have been trying to get school> authorities to > understand for years that just because he tests high> on intelligence > tests and vocabulary does NOT mean he doesn't have a> problem. > Last year he was overheard asking a fellow student> if they would like > to help him beat up the principle of the vocational> school. He was > arrested and spent 2 weeks in juvenile detention. It> was a nightmare!> He used to be fixated on dinosaurs but for the last> 2 or 3 years it > has been video games. Since my husband used to play> Dungeons and > Dragons he is starting to get interested in that.> > > > > > ---------------------------------> Moody friends. Drama queens. Your life? Nope! -> their life, your story.> Play Sims Stories at Games. > > > > > __________________________________________________________Choose the right car based on your needs. Check out Autos new Car Finder tool.http://autos./carfinder/ No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/885 - Release Date: 7/3/2007 10:02 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 yikes. The game boy obsession. My one ds was so into gameboy and nintendo. That is why our one and only babysitter never came back. She suggested he let his sister play and apparently he flipped out on her. I've told people - don't mess with the nintendo, just leave it alone and let me handle it. Funny thing was, the school banned gameboys because kids were losing them and stuff like that. But not my kid - they wanted him to bring his gameboy because when he was melting down, they could use it to redirect him. It was the only thing that worked. I hated letting them do that because I was afraid it might get used as punishment and then he would flip out on them. But luckily, they never did. It might be easier to set limits on when he can play the gameboy altogether. Before camp and after dinner, for instance. Ban it during the day or when he is with grandma. When they first banned gameboys at school, my ds understood and was ok with leaving it at home. It was just the rules. I wouldn't let him have it when he is being watched by anyone who can't manage him completely. Talking can sometimes not work, especially when it's a touchy subject. I would definitely let him know that what he did was wrong. You might have to write it down or you may want to write simple social stories to show how he should behave in those kinds of situations. RoxannaAutism Happens Re: ( ) newbie Hi My son is 9 and he was finally diagnoised when we was 5. He is thing know is pokemon and Ben 10. My son is going to be in 4th grade and he is very violent, and very overweight , which i am extremely worried about, all thinks about is what his next meal is going to be and of course his fixation. He does not too bad as long as you don't ask him to do anything but just as soon as we do , no matter what it is it is always a big deal and then it leads to a major meltdown. He says all the time things like "that's not fair" and "i'm going to regret doing that" when we ask him to do something he doesn't want to do. It is even worse at school , which he is at a behavior school now, when he has a meltdown at school he kicks, hits, bites, spits , calls names. He is on haladol now but it doesn't work real well for the behavior. Any suggestions on anything that has worked for you? thanks brandi from illinoisyasonark <yasonark > wrote: I can't tell youn what a relief it is to find a group where I can talk about my son's problem with people who "get it". My son is in high school now and we have been trying to get school authorities to understand for years that just because he tests high on intelligence tests and vocabulary does NOT mean he doesn't have a problem. Last year he was overheard asking a fellow student if they would like to help him beat up the principle of the vocational school. He was arrested and spent 2 weeks in juvenile detention. It was a nightmare!He used to be fixated on dinosaurs but for the last 2 or 3 years it has been video games. Since my husband used to play Dungeons and Dragons he is starting to get interested in that. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi , welcome to the group. I get so frustrated hearing how many people were told " don't worry, it will round out " . It is crazy that so many doctors say this - I hope all the moms at least go back with the kid and say " hey, look doc, you were wrong! " . My ped told us not to worry at the 2 mo appt, but luckily she gave us a referral at 4 mo. We could have used repo tips at 2 mo (we didn't get any), but I'm really glad my daughter was able to get good correction from a band. There is also an older plagio group on if your interested. It isn't as active as this group, but I believe most of the members have kids with untreated plagio. Hopefully your son's hair will cover his head shape well, but it is too bad you have to rely on this. I hope the word about plagio is getting out little by little and that more doctors will start to take it seriously. take care. -christine sydney 20 mo starband grad > > Hi, > I am new to this group. I have researched this alot but never thought > to look for a support group! How did you get treatment?! I've had at > least 3 or 4 opinions with " don't worry " outcomes and " no one is > perfect " . Well now my son is in speech therapy and sometimes his eyes > cross for a brief second which both can be caused by plagiocephaly. > It makes me sad to think what if they would have let him try a band or > helmet. We know it is due to his position in utero as he is a twin. > He is 23 months now and we still haven't received the care I feel we > need. My husband has accepted this but I just fear the rude comments > kids can make when he gets older. We've been told his hair will cover > it and it does a good job but boy does it stand out when it's wet. > Just looking for some support as I'm aware it's too late to correct it > with a helmet. I would have gone on my own sooner but we couldn't > afford it. > Thanks for listening > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Welcome! THis is a great group of moms - UNfortunatley your story is very common! So many people are told it will round out - and when it doesn't and it's brought up again - it's usually too late for banding. It's best to band beofre 12 mo. and some are banded starting at 18 mo. - But by 2 years old the sutures have fused and the only skull growth is thickness so remolding is very difficult. There is another group of older kids who have plagio and were not banded - Look here - OlderPlag/ HTH! Jen and Luli - 21 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ newbie Hi, I am new to this group. I have researched this alot but never thought to look for a support group! How did you get treatment?! I've had at least 3 or 4 opinions with "don't worry" outcomes and "no one is perfect". Well now my son is in speech therapy and sometimes his eyes cross for a brief second which both can be caused by plagiocephaly. It makes me sad to think what if they would have let him try a band or helmet. We know it is due to his position in utero as he is a twin. He is 23 months now and we still haven't received the care I feel we need. My husband has accepted this but I just fear the rude comments kids can make when he gets older. We've been told his hair will cover it and it does a good job but boy does it stand out when it's wet. Just looking for some support as I'm aware it's too late to correct it with a helmet. I would have gone on my own sooner but we couldn't afford it. Thanks for listening Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
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