RE: Antibiotic Protocol works and I have the labs to prove it

[Guest guest]

Great news!!

Sue

---- marlaprendergast <kws11@...> wrote:

> First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

that AP is a long slow process, yet I am amazed at what I learned this week.

First, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

had any autoimmune diseases. I responded that I knew I had an elevated ANA with

the anti-Centromere pattern. He asked what the number was and I told him that it

was 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

I did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

yes, I most likely have CREST scleroderma, and that there was nothing I could do

to get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

dosage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

I had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

be with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

>

>

>

[Guest guest]

Great news, hope all your tests come back normal. I am on the way too, my lab

tests are close to normal. I have RA and Dermatomyositis.

Eva

> First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

that AP is a long slow process, yet I am amazed at what I learned this week.

First, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

had any autoimmune diseases. I responded that I knew I had an elevated ANA with

the anti-Centromere pattern. He asked what the number was and I told him that it

was 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

I did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

yes, I most likely have CREST scleroderma, and that there was nothing I could do

to get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

dosage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

I had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

be with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

>

>

>

[Guest guest]

Excellent news!! I began AP in Sept. 2009 for Dermatomyositis... by May 2010 (8

mts. later) my blood work was perfect! I look and feel my old self again! You

are on the right track! Keep us posted with your progress.

Jen K.

rheumatic

From: holloway-eva@...

Date: Mon, 10 Jan 2011 08:27:32 -0800

Subject: Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Great news, hope all your tests come back normal. I am on the way too, my

lab tests are close to normal. I have RA and Dermatomyositis.

Eva

> First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

that AP is a long slow process, yet I am amazed at what I learned this week.

First, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

had any autoimmune diseases. I responded that I knew I had an elevated ANA with

the anti-Centromere pattern. He asked what the number was and I told him that it

was 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

I did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

yes, I most likely have CREST scleroderma, and that there was nothing I could do

to get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

dosage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

I had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

be with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

>

>

>

[Guest guest]

Hi, Jen. What dose and variety did you use? Best and congrats, June

On Jan 10, 2011, at 12:19 PM, Krieger wrote:

>

> Excellent news!! I began AP in Sept. 2009 for Dermatomyositis... by

> May 2010 (8 mts. later) my blood work was perfect! I look and feel

> my old self again! You are on the right track! Keep us posted with

> your progress.

> Jen K.

>

>

>

>

>

> rheumatic

> From: holloway-eva@...

> Date: Mon, 10 Jan 2011 08:27:32 -0800

> Subject: Re: rheumatic Antibiotic Protocol works and I have the

> labs to prove it

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Great news, hope all your tests come back normal. I am on the

> way too, my lab tests are close to normal. I have RA and

> Dermatomyositis.

>

> Eva

>

>

>

>

>

>

>

>> First let me apologize to everyone who is going to read this same

>> message ad nauseam on all the different scleroderma boards but when

>> you have good news you kinda want to take out a billboard ad.

>

>

>

>>

>

>

>

>> Never did I expect results like this so quickly. Everything I have

>> heard is that AP is a long slow process, yet I am amazed at what I

>> learned this week. First, a bit of background.

>

>

>

>>

>

>

>

>> Since the mid 1990s I have been told that I had or was likely to

>> develop an autoimmune disease, most likely the CREST variant of

>> scleroderma waiting in the wings ready to pounce. This was told to

>> me after it was discovered that I had a positive ANA of 1:160.

>> Aside from a mild case of Raynauds, I had no other symptoms, but

>> the doctor who advised me of this was rather ominous about the

>> future. Over the years I watched steadily as my ANA has gone up and

>> up. First to 1:320, then 1:640. But again, in the absence of

>> troubling symptoms, there really was nothing to be done, or so I

>> thought.

>

>

>

>>

>

>

>

>> In 2007, after a bout of iritis, my ophthalmologist inquired as to

>> whether I had any autoimmune diseases. I responded that I knew I

>> had an elevated ANA with the anti-Centromere pattern. He asked what

>> the number was and I told him that it was 1:640. " That's off the

>> charts, " he said. " You better see a rheumatologist. " I did, and my

>> ANA was retested. This time it was 1:1280. The rheumy told me, yes,

>> I most likely have CREST scleroderma, and that there was nothing I

>> could do to get rid of it. Around this time I started getting

>> tested for pulmonary hypertension, which the doctor said was the

>> main thing to be concerned about, and sure enough, my pressures

>> were going up. Despite the fact that I have no trouble breathing,

>> my most recent number was squarely in the range of moderate

>> pulmonary hypertension, and had gone up quite significantly from

>> the last reading. This scared me enough to do some research which

>> led me to AP.

>

>

>

>>

>

>

>

>> With an ANA still situated at 1:1280, I started AP on August 3,

>> 2010.. My dosage was 100 mg of brand-name Minocin, twice a day,

>> every other day. Last week I had my labs re-tested. My level is now

>> 1:160. My level has not been 1:160 for FIFTEEN YEARS. My doctor has

>> reduced my Minocin dosage to once daily now. Could this just be a

>> lab glitch? I suppose. But then why has my Rheumatoid factor, once

>> mildly elevated at 14.9, also dropped to 12.8 and now within the

>> normal range?

>

>

>

>>

>

>

>

>> Has AP reversed my condition? I feel it has. The true test in my

>> opinion will be with my upcoming echocardiogram in March. If my

>> echo shows that my pulmonary pressures are normal, I will consider

>> AP to be a complete victory over my scleroderma and its

>> accompanying manifestations. If not, I will still consider myself

>> to be well on my way.

>

>

>

>>

>

>

>

>>

>

>

>

>>

>

>

>

>

[Guest guest]

Absolutely.........share this with everyone. Your story, and good news, is

thrilling for us......that we too, are on the path to remission. I would love

to see all of us respond to AP so quickly, but that doesn't seem to be the case

so far. Congratulations!! Sally

rheumatic Antibiotic Protocol works and I have the labs to prove it

First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

Never did I expect results like this so quickly. Everything I have heard is that

AP is a long slow process, yet I am amazed at what I learned this week. First, a

bit of background.

Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I had

any autoimmune diseases. I responded that I knew I had an elevated ANA with the

anti-Centromere pattern. He asked what the number was and I told him that it was

1:640. " That's off the charts, " he said. " You better see a rheumatologist. " I

did, and my ANA was retested. This time it was 1:1280. The rheumy told me, yes,

I most likely have CREST scleroderma, and that there was nothing I could do to

get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My dosage

was 100 mg of brand-name Minocin, twice a day, every other day. Last week I had

my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

Has AP reversed my condition? I feel it has. The true test in my opinion will be

with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

[Guest guest]

YEA Eva!!!! and I'm right behind you...........Sally

Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Great news, hope all your tests come back normal. I am on the way too, my lab

tests are close to normal. I have RA and Dermatomyositis.

Eva

> First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

that AP is a long slow process, yet I am amazed at what I learned this week.

First, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

had any autoimmune diseases. I responded that I knew I had an elevated ANA with

the anti-Centromere pattern. He asked what the number was and I told him that it

was 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

I did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

yes, I most likely have CREST scleroderma, and that there was nothing I could do

to get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

dosage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

I had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

be with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

>

>

>

[Guest guest]

WOW WOW....another one with life back (I'm sure a more new and exciting joyful

life than before)! I'm ready!! sally

RE: rheumatic Antibiotic Protocol works and I have the labs to prove

it

xcellent news!! I began AP in Sept. 2009 for Dermatomyositis... by May 2010 (8

ts. later) my blood work was perfect! I look and feel my old self again! You

re on the right track! Keep us posted with your progress.

en K.

rheumatic

rom: holloway-eva@...

ate: Mon, 10 Jan 2011 08:27:32 -0800

ubject: Re: rheumatic Antibiotic Protocol works and I have the labs to prove

t

Great news, hope all your tests come back normal. I am on the way too, my

ab tests are close to normal. I have RA and Dermatomyositis.

Eva

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

june,

I am using Minocin. I began 100mg 2x daily for about 3 mts. I then cut back to

100mg 2x M,W,F for a few more months...then down to 100mg M,W,F. This is the

dosage I am currently taking. This Sept. I am hoping to wean off entirely... we

will see how I am feeling and what my Dr. recommends.

I am so thankful for AP, not a day goes by that I am not grateful for Dr. Browns

work and for the members of this group who took the time to encourage me with

their success stories!

Good luck!

jen

rheumatic

From: j.avignone@...

Date: Mon, 10 Jan 2011 13:23:01 -0500

Subject: Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Hi, Jen. What dose and variety did you use? Best and congrats, June

On Jan 10, 2011, at 12:19 PM, Krieger wrote:

>

> Excellent news!! I began AP in Sept. 2009 for Dermatomyositis... by

> May 2010 (8 mts. later) my blood work was perfect! I look and feel

> my old self again! You are on the right track! Keep us posted with

> your progress.

> Jen K.

>

>

>

>

>

> rheumatic

> From: holloway-eva@...

> Date: Mon, 10 Jan 2011 08:27:32 -0800

> Subject: Re: rheumatic Antibiotic Protocol works and I have the

> labs to prove it

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Great news, hope all your tests come back normal. I am on the

> way too, my lab tests are close to normal. I have RA and

> Dermatomyositis.

>

> Eva

>

>

>

>

>

>

>

>> First let me apologize to everyone who is going to read this same

>> message ad nauseam on all the different scleroderma boards but when

>> you have good news you kinda want to take out a billboard ad.

>

>

>

>>

>

>

>

>> Never did I expect results like this so quickly. Everything I have

>> heard is that AP is a long slow process, yet I am amazed at what I

>> learned this week. First, a bit of background.

>

>

>

>>

>

>

>

>> Since the mid 1990s I have been told that I had or was likely to

>> develop an autoimmune disease, most likely the CREST variant of

>> scleroderma waiting in the wings ready to pounce. This was told to

>> me after it was discovered that I had a positive ANA of 1:160.

>> Aside from a mild case of Raynauds, I had no other symptoms, but

>> the doctor who advised me of this was rather ominous about the

>> future. Over the years I watched steadily as my ANA has gone up and

>> up. First to 1:320, then 1:640. But again, in the absence of

>> troubling symptoms, there really was nothing to be done, or so I

>> thought.

>

>

>

>>

>

>

>

>> In 2007, after a bout of iritis, my ophthalmologist inquired as to

>> whether I had any autoimmune diseases. I responded that I knew I

>> had an elevated ANA with the anti-Centromere pattern. He asked what

>> the number was and I told him that it was 1:640. " That's off the

>> charts, " he said. " You better see a rheumatologist. " I did, and my

>> ANA was retested. This time it was 1:1280. The rheumy told me, yes,

>> I most likely have CREST scleroderma, and that there was nothing I

>> could do to get rid of it. Around this time I started getting

>> tested for pulmonary hypertension, which the doctor said was the

>> main thing to be concerned about, and sure enough, my pressures

>> were going up. Despite the fact that I have no trouble breathing,

>> my most recent number was squarely in the range of moderate

>> pulmonary hypertension, and had gone up quite significantly from

>> the last reading. This scared me enough to do some research which

>> led me to AP.

>

>

>

>>

>

>

>

>> With an ANA still situated at 1:1280, I started AP on August 3,

>> 2010.. My dosage was 100 mg of brand-name Minocin, twice a day,

>> every other day. Last week I had my labs re-tested. My level is now

>> 1:160. My level has not been 1:160 for FIFTEEN YEARS. My doctor has

>> reduced my Minocin dosage to once daily now. Could this just be a

>> lab glitch? I suppose. But then why has my Rheumatoid factor, once

>> mildly elevated at 14.9, also dropped to 12.8 and now within the

>> normal range?

>

>

>

>>

>

>

>

>> Has AP reversed my condition? I feel it has. The true test in my

>> opinion will be with my upcoming echocardiogram in March. If my

>> echo shows that my pulmonary pressures are normal, I will consider

>> AP to be a complete victory over my scleroderma and its

>> accompanying manifestations. If not, I will still consider myself

>> to be well on my way.

>

>

>

>>

>

>

>

>>

>

>

>

>>

>

>

>

>

[Guest guest]

Congratulations Jen.  Another successful ending.  Love it.  Join all of us who

are in remission.  We should start a " Remission Club "   just to see how many

members have had success with the antibiotic therapy and help those along who

are having some difficulty with it.  " Call it the " Helping Hands Club " from

Remission not So Impossible!~~~. 

>

>

>

>> First let me apologize to everyone who is going to read this same 

>> message ad nauseam on all the different scleroderma boards but when 

>> you have good news you kinda want to take out a billboard ad.

>

>

>

>>

>

>

>

>> Never did I expect results like this so quickly. Everything I have 

>> heard is that AP is a long slow process, yet I am amazed at what I 

>> learned this week. First, a bit of background.

>

>

>

>>

>

>

>

>> Since the mid 1990s I have been told that I had or was likely to 

>> develop an autoimmune disease, most likely the CREST variant of 

>> scleroderma waiting in the wings ready to pounce. This was told to 

>> me after it was discovered that I had a positive ANA of 1:160. 

>> Aside from a mild case of Raynauds, I had no other symptoms, but 

>> the doctor who advised me of this was rather ominous about the 

>> future. Over the years I watched steadily as my ANA has gone up and 

>> up. First to 1:320, then 1:640. But again, in the absence of 

>> troubling symptoms, there really was nothing to be done, or so I 

>> thought.

>

>

>

>>

>

>

>

>> In 2007, after a bout of iritis, my ophthalmologist inquired as to 

>> whether I had any autoimmune diseases. I responded that I knew I 

>> had an elevated ANA with the anti-Centromere pattern. He asked what 

>> the number was and I told him that it was 1:640. " That's off the 

>> charts, " he said.  " You better see a rheumatologist. " I did, and my 

>> ANA was retested. This time it was 1:1280. The rheumy told me, yes, 

>> I most likely have CREST scleroderma, and that there was nothing I 

>> could do to get rid of it. Around this time I started getting 

>> tested for pulmonary hypertension, which the doctor said was the 

>> main thing to be concerned about, and sure enough, my pressures 

>> were going up. Despite the fact that I have no trouble breathing, 

>> my most recent number was squarely in the range of moderate 

>> pulmonary hypertension, and had gone up quite significantly from 

>> the last reading. This scared me enough to do some research which 

>> led me to AP.

>

>

>

>>

>

>

>

>> With an ANA still situated at 1:1280, I started AP on August 3, 

>> 2010.. My dosage was 100 mg of brand-name Minocin, twice a day, 

>> every other day. Last week I had my labs re-tested. My level is now 

>> 1:160. My level has not been 1:160 for FIFTEEN YEARS. My doctor has 

>> reduced my Minocin dosage to once daily now. Could this just be a 

>> lab glitch? I suppose. But then why has my Rheumatoid factor, once 

>> mildly elevated at 14.9, also dropped to 12.8 and now within the 

>> normal range?

>

>

>

>>

>

>

>

>> Has AP reversed my condition? I feel it has.  The true test in my 

>> opinion will be with my upcoming echocardiogram in March. If my 

>> echo shows that my pulmonary pressures are normal, I will consider 

>> AP to be a complete victory over my scleroderma and its 

>> accompanying manifestations. If not, I will still consider myself 

>> to be well on my way.

>

>

>

>>

>

>

>

>>

>

>

>

>>

>

>

>

>

[Guest guest]

Marla Pendergast, join the club.  You will soon be in full remission.  I

believe that (Brand name only Minocin) is the one that works so well and so

fast.  I am in remission too.  But mine took a bit longer because I also

developed Pulmonary Fibrosis, along the way. Congratulations!  Dolores &

Mike  

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

Congratulations Eva!  what a way to start the new year!  Hope Washington is

listening and doing something about changing the toxic protocols to the

antibiotic protocols.. 

> First let me apologize to everyone who is going to read this same message ad

nauseam on all the different scleroderma boards but when you have good news you

kinda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

that AP is a long slow process, yet I am amazed at what I learned this week.

First, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

autoimmune disease, most likely the CREST variant of scleroderma waiting in the

wings ready to pounce. This was told to me after it was discovered that I had a

positive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

symptoms, but the doctor who advised me of this was rather ominous about the

future. Over the years I watched steadily as my ANA has gone up and up. First to

1:320, then 1:640. But again, in the absence of troubling symptoms, there really

was nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

had any autoimmune diseases. I responded that I knew I had an elevated ANA with

the anti-Centromere pattern. He asked what the number was and I told him that it

was 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

I did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

yes, I most likely have CREST scleroderma, and that there was nothing I could do

to get rid of it. Around this time I started getting tested for pulmonary

hypertension, which the doctor said was the main thing to be concerned about,

and sure enough, my pressures were going up. Despite the fact that I have no

trouble breathing, my most recent number was squarely in the range of moderate

pulmonary hypertension, and had gone up quite significantly from the last

reading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

dosage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

I had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

FIFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

this just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

once mildly elevated at 14.9, also dropped to 12.8 and now within the normal

range?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

be with my upcoming echocardiogram in March. If my echo shows that my pulmonary

pressures are normal, I will consider AP to be a complete victory over my

scleroderma and its accompanying manifestations. If not, I will still consider

myself to be well on my way.

>

>

>

[Guest guest]

Not sure if I congratulated Jen or June!  If you are both in recovery, my

wholehearted congratulations to both os you,  Dolores & Mike 

>

>

>

>> First let me apologize to everyone who is going to read this same

>> message ad nauseam on all the different scleroderma boards but when

>> you have good news you kinda want to take out a billboard ad.

>

>

>

>>

>

>

>

>> Never did I expect results like this so quickly. Everything I have

>> heard is that AP is a long slow process, yet I am amazed at what I

>> learned this week. First, a bit of background.

>

>

>

>>

>

>

>

>> Since the mid 1990s I have been told that I had or was likely to

>> develop an autoimmune disease, most likely the CREST variant of

>> scleroderma waiting in the wings ready to pounce. This was told to

>> me after it was discovered that I had a positive ANA of 1:160.

>> Aside from a mild case of Raynauds, I had no other symptoms, but

>> the doctor who advised me of this was rather ominous about the

>> future. Over the years I watched steadily as my ANA has gone up and

>> up. First to 1:320, then 1:640. But again, in the absence of

>> troubling symptoms, there really was nothing to be done, or so I

>> thought.

>

>

>

>>

>

>

>

>> In 2007, after a bout of iritis, my ophthalmologist inquired as to

>> whether I had any autoimmune diseases. I responded that I knew I

>> had an elevated ANA with the anti-Centromere pattern. He asked what

>> the number was and I told him that it was 1:640. " That's off the

>> charts, " he said. " You better see a rheumatologist. " I did, and my

>> ANA was retested. This time it was 1:1280. The rheumy told me, yes,

>> I most likely have CREST scleroderma, and that there was nothing I

>> could do to get rid of it. Around this time I started getting

>> tested for pulmonary hypertension, which the doctor said was the

>> main thing to be concerned about, and sure enough, my pressures

>> were going up. Despite the fact that I have no trouble breathing,

>> my most recent number was squarely in the range of moderate

>> pulmonary hypertension, and had gone up quite significantly from

>> the last reading. This scared me enough to do some research which

>> led me to AP.

>

>

>

>>

>

>

>

>> With an ANA still situated at 1:1280, I started AP on August 3,

>> 2010.. My dosage was 100 mg of brand-name Minocin, twice a day,

>> every other day. Last week I had my labs re-tested. My level is now

>> 1:160. My level has not been 1:160 for FIFTEEN YEARS. My doctor has

>> reduced my Minocin dosage to once daily now. Could this just be a

>> lab glitch? I suppose. But then why has my Rheumatoid factor, once

>> mildly elevated at 14.9, also dropped to 12.8 and now within the

>> normal range?

>

>

>

>>

>

>

>

>> Has AP reversed my condition? I feel it has. The true test in my

>> opinion will be with my upcoming echocardiogram in March. If my

>> echo shows that my pulmonary pressures are normal, I will consider

>> AP to be a complete victory over my scleroderma and its

>> accompanying manifestations. If not, I will still consider myself

>> to be well on my way.

>

>

>

>>

>

>

>

>>

>

>

>

>>

>

>

>

>

[Guest guest]

Hi Dolores,

How do I get brand name Minocin? Seems to me like it was WAY expensive. I did

ask Doc Sinnott about different brands, and he said he didn't think it mattered.

I'm on Medicare only. Sally

Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Marla Pendergast, join the club. You will soon be in full remission. I believe

that (Brand name only Minocin) is the one that works so well and so fast. I am

in remission too. But mine took a bit longer because I also developed Pulmonary

Fibrosis, along the way. Congratulations! Dolores & Mike

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

Sally.

I am on Medicare and order my Minocin from Canada. 100 pills with shipping 165

Dollars. Since I only take 1 on MWF they last my a longer time than 3 months.

Eva

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

The same for me. 100 minocin for around that amt. Savings of big $$$ from

Canada.

In a message dated 1/11/2011 3:22:20 P.M. Eastern Standard Time,

holloway-eva@... writes:

Sally.

I am on Medicare and order my Minocin from Canada. 100 pills with shipping

165 Dollars. Since I only take 1 on MWF they last my a longer time than 3

months.

Eva

> First let me apologize to everyone who is going to read this same

message ad

auseam on all the different scleroderma boards but when you have good news

you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard

is

hat AP is a long slow process, yet I am amazed at what I learned this

week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop

an

utoimmune disease, most likely the CREST variant of scleroderma waiting in

the

ings ready to pounce. This was told to me after it was discovered that I

had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about

the

uture. Over the years I watched steadily as my ANA has gone up and up.

First to

:320, then 1:640. But again, in the absence of troubling symptoms, there

really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to

whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA

with

he anti-Centromere pattern. He asked what the number was and I told him

that it

as 1:640. " That's off the charts, " he said. " You better see a

rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I

could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned

about,

nd sure enough, my pressures were going up. Despite the fact that I have

no

rouble breathing, my most recent number was squarely in the range of

moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010..

My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last

week

had my labs re-tested. My level is now 1:160. My level has not been 1:160

for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now.

Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid

factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the

normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion

will

e with my upcoming echocardiogram in March. If my echo shows that my

pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still

consider

yself to be well on my way.

>

>

>

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[Guest guest]

Thanks Eva,

I also take 100mg once on MWF (26 weeks now) and feel crappy. Wonder if I

should take twice day on MWF?

Also, to anyone......how does someone new join the group? Sally

Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Sally.

I am on Medicare and order my Minocin from Canada. 100 pills with shipping 165

Dollars. Since I only take 1 on MWF they last my a longer time than 3 months.

Eva

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

Another thing....even if you're on Medicare, and you order from

Canada...........is that your expense? Sally

Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Sally.

I am on Medicare and order my Minocin from Canada. 100 pills with shipping 165

Dollars. Since I only take 1 on MWF they last my a longer time than 3 months.

Eva

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

From: rheumatic [mailto:rheumatic ] On Behalf Of

mannasal@...

Another thing....even if you're on Medicare, and you order from

Canada...........is that your expense? Sally

Oh Yes!! J))

-----

[Guest guest]

Sally,

Please see my web page http://www.tmgp.com/minocin.htm

Sincerely, Harald

At 10:43 AM 1/11/2011, you wrote:

>

>Hi Dolores,

>How do I get brand name Minocin? Seems to me like it was WAY

>expensive. I did ask Doc Sinnott about different brands, and he said

>he didn't think it mattered. I'm on Medicare only.

>Sally

>

[Guest guest]

yes, you pay for it yourself. Medicare does not let you have brand name meds f

generic is available.

Eva

> First let me apologize to everyone who is going to read this same message ad

auseam on all the different scleroderma boards but when you have good news you

inda want to take out a billboard ad.

>

> Never did I expect results like this so quickly. Everything I have heard is

hat AP is a long slow process, yet I am amazed at what I learned this week.

irst, a bit of background.

>

> Since the mid 1990s I have been told that I had or was likely to develop an

utoimmune disease, most likely the CREST variant of scleroderma waiting in the

ings ready to pounce. This was told to me after it was discovered that I had a

ositive ANA of 1:160. Aside from a mild case of Raynauds, I had no other

ymptoms, but the doctor who advised me of this was rather ominous about the

uture. Over the years I watched steadily as my ANA has gone up and up. First to

:320, then 1:640. But again, in the absence of troubling symptoms, there really

as nothing to be done, or so I thought.

>

> In 2007, after a bout of iritis, my ophthalmologist inquired as to whether I

ad any autoimmune diseases. I responded that I knew I had an elevated ANA with

he anti-Centromere pattern. He asked what the number was and I told him that it

as 1:640. " That's off the charts, " he said. " You better see a rheumatologist. "

did, and my ANA was retested. This time it was 1:1280. The rheumy told me,

es, I most likely have CREST scleroderma, and that there was nothing I could do

o get rid of it. Around this time I started getting tested for pulmonary

ypertension, which the doctor said was the main thing to be concerned about,

nd sure enough, my pressures were going up. Despite the fact that I have no

rouble breathing, my most recent number was squarely in the range of moderate

ulmonary hypertension, and had gone up quite significantly from the last

eading. This scared me enough to do some research which led me to AP.

>

> With an ANA still situated at 1:1280, I started AP on August 3, 2010.. My

osage was 100 mg of brand-name Minocin, twice a day, every other day. Last week

had my labs re-tested. My level is now 1:160. My level has not been 1:160 for

IFTEEN YEARS. My doctor has reduced my Minocin dosage to once daily now. Could

his just be a lab glitch? I suppose. But then why has my Rheumatoid factor,

nce mildly elevated at 14.9, also dropped to 12.8 and now within the normal

ange?

>

> Has AP reversed my condition? I feel it has. The true test in my opinion will

e with my upcoming echocardiogram in March. If my echo shows that my pulmonary

ressures are normal, I will consider AP to be a complete victory over my

cleroderma and its accompanying manifestations. If not, I will still consider

yself to be well on my way.

>

>

>

[Guest guest]

Eva,

I'm also pretty sure that Medicare does not pay for meds you get from

out of the country, brand or generic

Some things are just worth paying for rather than being at the mercy of

insurers

I'm getting Minocin from Canada, too.

Take care,

Ute

On 1/11/2011 9:43 PM, Eva Holloway wrote:

>

> yes, you pay for it yourself. Medicare does not let you have brand

> name meds f generic is available.

> Eva

>

[Guest guest]

Hi all.  I now live in Puerto Rico and still am on Medicare but recently

added  a supplemental health insurance which costs me nothing.  Apparently

medicare sends the funds to the secondary insurance.  It is called MAPFREE and

covers the entire U.S.  One of the reasons we joined is because I can get brand

name medications if the doctor writes, Brand name only " . or no substitutions! 

I, too had to switch to a generic minocycline and got very sick from it over the

holidays.  Right now, I am off Mino completely because I wasn't able to get it

under my old plan.  Tomorrow, I have an appointment with my docs and will take

my scripts to Walmart pharmacy.  I will have to pay a bit extra for the brand

only, but I think it is only between $15.00 & $20.00.  Since 2005, I have been

on Brand name only and it has worked so well.  I will gladly pay the extra just

to have it back.  Some people do well with generic.  I guess I am one who

didn't. Will let

you know the outcome and the cost.  Dolores & Mike     

>

> yes, you pay for it yourself. Medicare does not let you have brand

> name meds f generic is available.

> Eva

>

[Guest guest]

Hello Dolores,

I'm on Medicare only. Where can I learn more about MAPFREE? Thanks, Sally

Re: rheumatic Antibiotic Protocol works and I have the labs to prove

it

Hi all. I now live in Puerto Rico and still am on Medicare but recently added

a supplemental health insurance which costs me nothing. Apparently medicare

sends the funds to the secondary insurance. It is called MAPFREE and covers the

entire U.S. One of the reasons we joined is because I can get brand name

medications if the doctor writes, Brand name only " . or no substitutions! I, too

had to switch to a generic minocycline and got very sick from it over the

holidays. Right now, I am off Mino completely because I wasn't able to get it

under my old plan. Tomorrow, I have an appointment with my docs and will take

my scripts to Walmart pharmacy. I will have to pay a bit extra for the brand

only, but I think it is only between $15.00 & $20.00. Since 2005, I have been

on Brand name only and it has worked so well. I will gladly pay the extra just

to have it back. Some people do well with generic. I guess I am one who

didn't. Will let

you know the outcome and the cost. Dolores & Mike

>

> yes, you pay for it yourself. Medicare does not let you have brand

> name meds f generic is available.

> Eva

>

[Guest guest]

Hi all,  It seems like the Big Pharm people have been able to sell more of the

generic minocycline because the price of brand only was so prohibitive that now

they are not manufacturing Brand Minocin like they used to, making it scarce and

more expensive for people like me who insist on it.  I was promise by my

insurance company that they would pay for the drug with a co-pay of S45.00/month

from me,but first it must be approved by the pharmacy dept of the comany.  So,

Monday I must bring proof (and Thank god I saved every scrap of paper showing

that all my docs have ordered the brand only for the past 5 years).  I will

also be faxing them a copy of the Faq sheet on the Antibiotic Protocol to

them so they know why I am on Minocin for such an extended period of time.  I

have also handed both my cardiologist and gastroenterologist a copy of the Faq

sheets, so they can get in on this infrormation.  I was given authority to

pick up a 30 day

supply..  For that, we had to call about 12 pharmacies.  Finally found that

it could be available through CVS.  Would you all believe that there is not

one single Minocin pill on the entire Island of Puerto Rico nor (I was told by

the pharmacist that she called every CVS pharmacy in Florida and they had none

either)  She is working on getting it direct from any supplier in the USA. 

So, I still do not have the minocin, but have started myself back on oral

Clindamycin and Azythromycin.on odd days. I have been off my minocin since

November and my latested blood work shows that my ANA & RF #'s are rising

again.  Slowly, but surely, my remission seems to be disappearing and I can't

do a thing about it until I get my Minocin back.  I am hoping that by this

coming week, they will find a supplier in the U.S.who will ship it to Puerto

Rico.  So far, none of my symprtoms have returned, but I am starting to feel

cooler in the morning and evenings.

I noticed that even in 72 degree weather, that I still have to put a sweater

on.  I have not had any other symptoms, but am aware that they can come back

and am hoping for the best as soon as possible.  I ask all of you to put me on

your prayer lists that a company will be found who will mail me the Minocin

every 90 days.  That is what the Insurance and my pharmacy are working on

now. I have come such a long way and have been in remission almost two years. 

I do not want to go backwards, but it looks like I will be on full dose again at

least until all blood work is back down to normal.  Thank you all for the

prayers and wishes.  Will stay in touch. My best to all, Dolores &

Mike    

>

> yes, you pay for it yourself. Medicare does not let you have brand

> name meds f generic is available.

> Eva

>

[Guest guest]

Dolores,

Can't you order it from Canada? Much cheaper there!