Re: does anyone has the same flare?To Lynne

[Guest guest]

Hi Lynne

Thank you for the reply. I did read all the informtion

you have sent to me. I read from internet a lot too.

There is many contradictons that has made me confused.

I don't know which is correct.

I will see my Doctor in two weeks. The last blood test

I did should show the ratio of D25 and D1-25.I will

find about it in two weeks.

I have heard fasting is god for gut but I am already

underweight.it will make me more skinny.

I probably do a gut cleasing in summer when I have

more time.

My problem is every time I get a flu all the

improvements disappear and I get sicker than ever. I

was not that sick before starting the AP. Now I am

sick. My stomack is better since two days ago after

stopping Metronidzole and ketokenazole.

I am going to take fish twice a week to get some

proteins.

Dolores was so ill and after 18 months she is doing

very well. I am wondering what is wrong with me.

have a good week end

soheila

--- Lynne and Santos <lynneandsantos@...>

wrote:

> Hi Soheila;

> I did not find that the clindamycin I.V

> s worked any better

> than oral clindamycin but have to admit it was

> really hard on the gut.It

> seemed to only start working somewhere between 9-12

> months.You have to

> be very,very careful when taking more than one

> antibiotic.Just about all

> of us with these diseases have leaky gut just due to

> the disease

> itself.Did you real all the info I sent to you about

> it?It is due to

> this that you have mal absorbtion and iron

> defeciency and taking

> supplements won't help much as they are not being

> absorbed.For a quick

> review google " Dr. Leo Gallant and leaky gut " You

> say your vit D is

> low....which vit D the D25 can be very low and the D

> 1,25 can be

> high,you have to get them into sinc.Even if it

> tastes horrible,get some

> aloe gell and take it a few times a day.It is very

> soothing.One thing I

> found most interesting was when I had to have my

> yearly colonoscopy.I

> had to go without eating for 24 hours and believe it

> or not I felt just

> great after the first few hours of not eating and

> decided to keep at it

> a couple of days longer but only took juices

> then.This process was like

> resetting my clock.I felt great for a few weeks and

> think I will do it

> again.My doctor says that we absolutely must have

> meat protein,beef can

> be a problem so stick to the others.She also says

> that MSM is important

> to be able to rebuild yourself as it is needed in

> cell regeneration.Hope

> you feel better soon.

> Sorry I have not been aroun lately,we have an

> other orchid show this

> weekend in Toronto and I have ben soooooo busy.By

> the time I sit down I

> just fall asleep and hubby has to wake me up to go

> to bed. XXXXX Lynne

>

>

>

>

> > I am taking Medrol two mg a day only 4 days a

> week.

> > Friday, saturday and sunday I don't take it. I

> know it

> > is cortisone.

> > My Dr is AP doctor. but he is not fimilar with IV

> > therapy. Actually he prescribed Clindomycine

> orally

> > along with minocin. I took it for 3 months ,

> didn't

> > see any improvement. so I stopped it. My Dr says

> pain

> > in my feet can be related to vit D deficincy. He

> asked

> > me to take vit D but I didn't because of what I

> read

> > in marshal protocol that vit D is feeding

> macroplasma.

> > My stomack is little better since yesterday after

> I

> > stopped taking Metronidazole and ketokenazole.

> >

> > any way thank you for your help and kind words.

> > soheila

> >

> > --- C Stonkey <cookee1comcast (DOT) net

> <mailto:cookee1%40comcast.net>> wrote:

> >

> > > I don't know if you know that Medrol is

> prednisone

> > > or cortisone. You cannot

> > > just stop taking it when you feel like it. If

> you

> > > stop suddenly you could

> > > have a cortisone crisis. Your body could

> actually

> > > shut down depending on the

> > > amount you take. Besides that you will have a

> LOT

> > > more pain. If you want to

> > > go off it you may have a problem and need to do

> it

> > > VERY GRADUALLY. You need

> > > to read the info on rheumatic.org about doing

> it. I

> > > would stay on it for

> > > now. How much do you take?

> > >

> > >

> > >

> > > Just taking acidophilis does not necessarily

> mean

> > > you won't have yeast

> > > infections. You are taking a great deal of

> > > antibiotics, prednisone and

> > > Metronidzole which is another antibiotic and

> these

> > > are all fungus or yeast

> > > producing drugs. A small amount of acidophilis

> is

> > > not going to do much with

> > > all that to fight. At some point when your gut

> is

> > > healthier you probably

> > > should take a course of diflucan.

> > >

> > >

> > >

> > > I do hope you follow some of the other

> suggestions.

> > > I am making them from

> > > experience, the people on this site and I am a

> nurse

> > > so they are not

> > > something I just thought up. You should also

> google

> > > leaky gut.

> > >

> > >

> > >

> > > As for your diet..you need iron. But get tested

> > > first. They can give it to

> > > you IV so it gets absorbed and does not get

> eaten up

> > > by the stomach enzymes.

> > >

> > >

> > >

> > > Go to rheumatic/histories and read all the

> stories

> > > about SD and how they got

> > > their lives back. It will make you feel like you

> > > have something to look

> > > forward to.

> > >

> > >

> > >

> > > How positive is your doctor about prescribing

> AP? If

> > > he is good with it

> > > maybe ask for Clindamycin IV's. That is one of

> the

> > > things Doc Brown gave to

> > > his SD patients. If you do get the IV's please

> use

> > > diflucan for the yeast

> > > and all the other things suggested for leaky

> gut. I

> > > did the IV's for RA.

> > >

> > >

> > >

> > > Please cut the Minocin down to 100mgm a day M

> and W

> > > for at least 2 weeks. If

> > > your pain and other problems get better then

> stay

> > > there for a while and add

> > > more Minocin gradually to reach 100mgm 2 times a

> day

> > > MWF. I can send you

> > > info on why you should not do the Minocin daily

> but

> > > the biggest reason is

> > > that it is the best way to kill of the mycos

> :-))))

> > > and that is what we want

> > > to do.

> > >

> > >

> > >

> > > Sohelia, I have great empathy for you because I

> have

> > > been there. I have more

> > > sympathy for you because your disease is worse

> than

> > > mine. You can beat this.

> > > You can get your life back!!!

> > >

> > >

> > >

> > > Write to me anytime. I will be here for you and

> I

> > > know all the others will

> > > be here for you too.

> > >

> > >

> > >

> > > Soft hug.

>

=== message truncated ===

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Hi Soheila;

The way you are describing your situation sounds like a really bad

herx to me.Stop the antibiotics for 3-4 days and then tell me how you

are feeling.If the pain is still as bad it is not a herx.Flu symptoms

are part of herxing.I know it is really hard to tell disease progression

from it.

I am having some really bad ones also and have been working so hard

physically for the last few weeks that I thought I would die last

night.Every muscle,tendon and inch of skin was burning so badly that

even the weight of my body on the bed set it off even more.I did not

take antibiotics for 2 days and feel much better today and I wont take

my evening dose today either.I am giving myself a break for the

weekend.It is nice to know when it is a herx or is not so that you can

get some sort of control in your life.I can now plan to go places and

feel good.

Until you know about your D situation avoid the fish as it has a

lot,eat chicken that has not been fed antibiotics if you can find

it.Fasting for one day and juicing for an other won't make much

difference in your weight and just might give your gut that much needed

break.I hope you are using digestive enzymes all the time.Speaking of

enzymes,did I tell you about my cat ,Velvet? She has mega colon which

means her stools are wider than her little anus and she gets blocked up

and I have to run to the vet to get her cleanrd out.Anyway,after a

couple of years of this she started to have moderately severe colitis

and had the reverse problemand was very very sick.She would start

vomiting and stopped eating for 4 days.I started pureing fish or

chicken,added enzymes and psyllium and bottle fed her a few days.No more

vomiting and she started eating on her own.Today she is back to

normal,no colitis,no mega colon,nothing!If I forget her supplements for

even 2 days she starts having problems again.Let me tell you that vets

are wayyyyyyy ahead of a lot of our doctors. Lynne xxxxx

> Hi Lynne

>

> Thank you for the reply. I did read all the informtion

> you have sent to me. I read from internet a lot too.

> There is many contradictons that has made me confused.

> I don't know which is correct.

> I will see my Doctor in two weeks. The last blood test

> I did should show the ratio of D25 and D1-25.I will

> find about it in two weeks.

> I have heard fasting is god for gut but I am already

> underweight. it will make me more skinny.

> I probably do a gut cleasing in summer when I have

> more time.

> My problem is every time I get a flu all the

> improvements disappear and I get sicker than ever. I

> was not that sick before starting the AP. Now I am

> sick. My stomack is better since two days ago after

> stopping Metronidzole and ketokenazole.

> I am going to take fish twice a week to get some

> proteins.

> Dolores was so ill and after 18 months she is doing

> very well. I am wondering what is wrong with me.

>

> have a good week end

> soheila

>

> --- Lynne and Santos <lynneandsantos@ citenet.net

> <mailto:lynneandsantos%40citenet.net>>

> wrote:

>

> > Hi Soheila;

> > I did not find that the clindamycin I.V

> > s worked any better

> > than oral clindamycin but have to admit it was

> > really hard on the gut.It

> > seemed to only start working somewhere between 9-12

> > months.You have to

> > be very,very careful when taking more than one

> > antibiotic.Just about all

> > of us with these diseases have leaky gut just due to

> > the disease

> > itself.Did you real all the info I sent to you about

> > it?It is due to

> > this that you have mal absorbtion and iron

> > defeciency and taking

> > supplements won't help much as they are not being

> > absorbed.For a quick

> > review google " Dr. Leo Gallant and leaky gut " You

> > say your vit D is

> > low....which vit D the D25 can be very low and the D

> > 1,25 can be

> > high,you have to get them into sinc.Even if it

> > tastes horrible,get some

> > aloe gell and take it a few times a day.It is very

> > soothing.One thing I

> > found most interesting was when I had to have my

> > yearly colonoscopy. I

> > had to go without eating for 24 hours and believe it

> > or not I felt just

> > great after the first few hours of not eating and

> > decided to keep at it

> > a couple of days longer but only took juices

> > then.This process was like

> > resetting my clock.I felt great for a few weeks and

> > think I will do it

> > again.My doctor says that we absolutely must have

> > meat protein,beef can

> > be a problem so stick to the others.She also says

> > that MSM is important

> > to be able to rebuild yourself as it is needed in

> > cell regeneration. Hope

> > you feel better soon.

> > Sorry I have not been aroun lately,we have an

> > other orchid show this

> > weekend in Toronto and I have ben soooooo busy.By

> > the time I sit down I

> > just fall asleep and hubby has to wake me up to go

> > to bed. XXXXX Lynne

> >

> >

> >

> >

> > > I am taking Medrol two mg a day only 4 days a

> > week.

> > > Friday, saturday and sunday I don't take it. I

> > know it

> > > is cortisone.

> > > My Dr is AP doctor. but he is not fimilar with IV

> > > therapy. Actually he prescribed Clindomycine

> > orally

> > > along with minocin. I took it for 3 months ,

> > didn't

> > > see any improvement. so I stopped it. My Dr says

> > pain

> > > in my feet can be related to vit D deficincy. He

> > asked

> > > me to take vit D but I didn't because of what I

> > read

> > > in marshal protocol that vit D is feeding

> > macroplasma.

> > > My stomack is little better since yesterday after

> > I

> > > stopped taking Metronidazole and ketokenazole.

> > >

> > > any way thank you for your help and kind words.

> > > soheila

> > >

> > > --- C Stonkey <cookee1comcast (DOT) net

> > <mailto:cookee1% 40comcast. net>> wrote:

> > >

> > > > I don't know if you know that Medrol is

> > prednisone

> > > > or cortisone. You cannot

> > > > just stop taking it when you feel like it. If

> > you

> > > > stop suddenly you could

> > > > have a cortisone crisis. Your body could

> > actually

> > > > shut down depending on the

> > > > amount you take. Besides that you will have a

> > LOT

> > > > more pain. If you want to

> > > > go off it you may have a problem and need to do

> > it

> > > > VERY GRADUALLY. You need

> > > > to read the info on rheumatic.org about doing

> > it. I

> > > > would stay on it for

> > > > now. How much do you take?

> > > >

> > > >

> > > >

> > > > Just taking acidophilis does not necessarily

> > mean

> > > > you won't have yeast

> > > > infections. You are taking a great deal of

> > > > antibiotics, prednisone and

> > > > Metronidzole which is another antibiotic and

> > these

> > > > are all fungus or yeast

> > > > producing drugs. A small amount of acidophilis

> > is

> > > > not going to do much with

> > > > all that to fight. At some point when your gut

> > is

> > > > healthier you probably

> > > > should take a course of diflucan.

> > > >

> > > >

> > > >

> > > > I do hope you follow some of the other

> > suggestions.

> > > > I am making them from

> > > > experience, the people on this site and I am a

> > nurse

> > > > so they are not

> > > > something I just thought up. You should also

> > google

> > > > leaky gut.

> > > >

> > > >

> > > >

> > > > As for your diet..you need iron. But get tested

> > > > first. They can give it to

> > > > you IV so it gets absorbed and does not get

> > eaten up

> > > > by the stomach enzymes.

> > > >

> > > >

> > > >

> > > > Go to rheumatic/histories and read all the

> > stories

> > > > about SD and how they got

> > > > their lives back. It will make you feel like you

> > > > have something to look

> > > > forward to.

> > > >

> > > >

> > > >

> > > > How positive is your doctor about prescribing

> > AP? If

> > > > he is good with it

> > > > maybe ask for Clindamycin IV's. That is one of

> > the

> > > > things Doc Brown gave to

> > > > his SD patients. If you do get the IV's please

> > use

> > > > diflucan for the yeast

> > > > and all the other things suggested for leaky

> > gut. I

> > > > did the IV's for RA.

> > > >

> > > >

> > > >

> > > > Please cut the Minocin down to 100mgm a day M

> > and W

> > > > for at least 2 weeks. If

> > > > your pain and other problems get better then

> > stay

> > > > there for a while and add

> > > > more Minocin gradually to reach 100mgm 2 times a

> > day

> > > > MWF. I can send you

> > > > info on why you should not do the Minocin daily

> > but

> > > > the biggest reason is

> > > > that it is the best way to kill of the mycos

> > :-))))

> > > > and that is what we want

> > > > to do.

> > > >

> > > >

> > > >

> > > > Sohelia, I have great empathy for you because I

> > have

> > > > been there. I have more

> > > > sympathy for you because your disease is worse

> > than

> > > > mine. You can beat this.

> > > > You can get your life back!!!

> > > >

> > > >

> > > >

> > > > Write to me anytime. I will be here for you and

> > I

> > > > know all the others will

> > > > be here for you too.

> > > >

> > > >

> > > >

> > > > Soft hug.

> >

> === message truncated ===

>

> ____________ _________ _________ _________ _________ _________ _

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://mobile. /

> ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ>

>

>

[Guest guest]

Poor little Velvet. Do you know which supplement helps Velvet the

most? Interesting that you could bottle feed her.

I just adore animals to pieces... but I am allergic to them! We have a

neighborhood cat named Floyd. He waits in the parking lot for people to

come home runs up to every one hoping for attention and a rub. I sit

with Floyd, talk to him. Then I go inside & wash everyplace he's

touched me.

I always had sluggish bowels. I've read that my low thyroid is a

factor. Cooked cabbage & beans help me the most. lol

Amy

Lynne and Santos wrote:

>

> .Speaking of

> enzymes,did I tell you about my cat ,Velvet? She has mega colon which

> means her stools are wider than her little anus and she gets blocked up

> and I have to run to the vet to get her cleanrd out.Anyway,after a

> couple of years of this she started to have moderately severe colitis

> and had the reverse problemand was very very sick.She would start

> vomiting and stopped eating for 4 days.I started pureing fish or

> chicken,added enzymes and psyllium and bottle fed her a few days.No more

> vomiting and she started eating on her own.Today she is back to

> normal,no colitis,no mega colon,nothing!If I forget her supplements for

> even 2 days she starts having problems again.Let me tell you that vets

> are wayyyyyyy ahead of a lot of our doctors. Lynne xxxxx

>

> >

>

[Guest guest]

Hi Amy,I just gave her what I take.Psyllium and digestive exzymes but in

a much lesser dose.I had leaky gut and doc told me to use them.When

Velvet started to have problems the vet told me to use the same things

for her.They work wonders for both of us.As to pets,I have 14 stray cats

that have adopted me and as soon as the snow is gone the muskray and

skunks will be sitting on the front porch waiting for me.One crazy goose

that finally found a girl friend and left for the winter,bet he will be

back come springtime also.A few rabbits and racoons round things out

nicely.Everyone gets along just fine except for the rabbits

Bowel problems are often part of our diseases .Read up on it when you

google " Dr.Leo Gallant and leaky gut " . Lynne

> Poor little Velvet. Do you know which supplement helps Velvet the

> most? Interesting that you could bottle feed her.

>

> I just adore animals to pieces... but I am allergic to them! We have a

> neighborhood cat named Floyd. He waits in the parking lot for people to

> come home runs up to every one hoping for attention and a rub. I sit

> with Floyd, talk to him. Then I go inside & wash everyplace he's

> touched me.

>

> I always had sluggish bowels. I've read that my low thyroid is a

> factor. Cooked cabbage & beans help me the most. lol

>

> Amy

>

> Lynne and Santos wrote:

> >

> > .Speaking of

> > enzymes,did I tell you about my cat ,Velvet? She has mega colon which

> > means her stools are wider than her little anus and she gets blocked up

> > and I have to run to the vet to get her cleanrd out.Anyway,after a

> > couple of years of this she started to have moderately severe colitis

> > and had the reverse problemand was very very sick.She would start

> > vomiting and stopped eating for 4 days.I started pureing fish or

> > chicken,added enzymes and psyllium and bottle fed her a few days.No more

> > vomiting and she started eating on her own.Today she is back to

> > normal,no colitis,no mega colon,nothing! If I forget her supplements for

> > even 2 days she starts having problems again.Let me tell you that vets

> > are wayyyyyyy ahead of a lot of our doctors. Lynne xxxxx

> >

> > >

> >

>

>

[Guest guest]

Wow... a peacable kingdom! :-) That sounds fabulous. Maybe the goose

& girlfriend will bring back a brood. haha. The rabbits don't get

along? I thought they would be the nicest & the cats would harass

them. Don't invite fox to that party. haha.

I must say that I think I was BORN with bowel problems. I remember

having to sit on the pot when I was very young & my mother handing me

prune juice. I don't recall my diet back then, but I just remember

those 'fun' times. lol. I don't have those problems any more. The

fiber and leaky gut is a whole nother topic though. I have been feeling

that the soluble fibers help me more than insoluble... but I

periodically kick the jury out for more debate! lol.

Amy

Lynne and Santos wrote:

>

> Hi Amy,I just gave her what I take.Psyllium and digestive exzymes but in

> a much lesser dose.I had leaky gut and doc told me to use them.When

> Velvet started to have problems the vet told me to use the same things

> for her.They work wonders for both of us.As to pets,I have 14 stray cats

> that have adopted me and as soon as the snow is gone the muskray and

> skunks will be sitting on the front porch waiting for me.One crazy goose

> that finally found a girl friend and left for the winter,bet he will be

> back come springtime also.A few rabbits and racoons round things out

> nicely.Everyone gets along just fine except for the rabbits

> Bowel problems are often part of our diseases .Read up on it when you

> google " Dr.Leo Gallant and leaky gut " . Lynne

>

> > Poor little Velvet. Do you know which supplement helps Velvet the

> > most? Interesting that you could bottle feed her.

> >

> > I just adore animals to pieces... but I am allergic to them! We have a

> > neighborhood cat named Floyd. He waits in the parking lot for people to

> > come home runs up to every one hoping for attention and a rub. I sit

> > with Floyd, talk to him. Then I go inside & wash everyplace he's

> > touched me.

> >

> > I always had sluggish bowels. I've read that my low thyroid is a

> > factor. Cooked cabbage & beans help me the most. lol

> >

> > Amy

> >

> > Lynne and Santos wrote:

> > >

> > > .Speaking of

> > > enzymes,did I tell you about my cat ,Velvet? She has mega colon which

> > > means her stools are wider than her little anus and she gets

> blocked up

> > > and I have to run to the vet to get her cleanrd out.Anyway,after a

> > > couple of years of this she started to have moderately severe colitis

> > > and had the reverse problemand was very very sick.She would start

> > > vomiting and stopped eating for 4 days.I started pureing fish or

> > > chicken,added enzymes and psyllium and bottle fed her a few

> days.No more

> > > vomiting and she started eating on her own.Today she is back to

> > > normal,no colitis,no mega colon,nothing! If I forget her

> supplements for

> > > even 2 days she starts having problems again.Let me tell you that vets

> > > are wayyyyyyy ahead of a lot of our doctors. Lynne xxxxx

> > >

> > > >

> > >

> >

> >

[Guest guest]

it seems many who have rheumatic disease started out with bowel

problems. i remember being rushed to hospital in my early teens with

what they thought was appendicitis and turned out to be severe

constipation. also in early 20s i would get such bad intestinal cramps -

often incapacitating - only relieved by find a bathroom FAST!! boy that

created some situation. i remember being in thailand in a van with a

bunch of ppl i barely knew and getting an attack. i asked them to stop

at a bathroom and they couldn't find one. by the time they did i was

sweating and almost screaming with pain. i wish i knew then the

importance of bowel health. maybe i could have avoided this?

monique

Wow... a peacable kingdom! :-) That sounds fabulous. Maybe the goose

& girlfriend will bring back a brood. haha. The rabbits don't get

along? I thought they would be the nicest & the cats would harass

them. Don't invite fox to that party. haha.

I must say that I think I was BORN with bowel problems. I remember

having to sit on the pot when I was very young & my mother handing me

prune juice. I don't recall my diet back then, but I just remember

those 'fun' times. lol. I don't have those problems any more. The

fiber and leaky gut is a whole nother topic though. I have been feeling

that the soluble fibers help me more than insoluble... but I

periodically kick the jury out for more debate! lol.