MS

[Guest guest]

Pot may have long-term benefit for MS

Study suggests cannabis could help relieve symptoms

Updated: 1:42 p.m. ET Sept. 10, 2004EXETER, England - Cannabis-based

treatments may have longer-term benefits for multiple sclerosis

patients, scientists said on Friday.

advertisement

The findings of a short, 15-week trial of MS patients published last

year were inconclusive because although patients reported relief in

muscle stiffness, rigidity and mobility, the findings could not be

confirmed by physiotherapists.

But Dr. Zajicek, of the Peninsula Medical School at the

Universities of Exeter and Plymouth in southwestern England who

headed the study, told a conference there seemed to be further

benefits for patients who continued treatment for a year.

" In the short term-study there was some evidence of cannabinoids

alleviating symptoms of multiple sclerosis; in the longer term there

is a suggestion of a more useful beneficial effect, which was not

clear at the initial stage, " he said.

Q & A Multiple sclerosis

• What is multiple sclerosis?

• What are the symptoms?

• Who's most at risk?

• How is it diagnosed?

• How is it treated?

Multiple sclerosis is a chronic disease that affects the central

nervous system by destroying the tissue surrounding nerves in the

brain, spinal cord and eyes. This tissue, known as myelin, normally

protects nerve fibers and allows them to conduct electrical impulses.

MS damages the myelin and replaces it with scars of hardened tissue.

The nerves are then unable to send electrical impulses to and from

the brain, resulting in various neurological symptoms.

Symptoms of MS vary from person to person and can change over time.

Abnormal fatigue, vision problems, slurred speech, tremors, stiffness

and bladder problems are common. Difficulty walking, loss of balance

and poor muscle coordination are also found in patients diagnosed

with the condition. Because of the unpredictable nature of the

disease, symptoms may disappear completely or suddenly worsen.

Approximately 300,000 Americans currently have MS and every week

about 200 more people are diagnosed. Anyone can develop MS, but

researchers have identified some patterns. The disease affects twice

as many women as men and most people are diagnosed between the ages

of 20 and 50. Worldwide, the disease occurs with much greater

frequency in higher latitudes than in lower latitudes. MS is more

common among people with northern European ancestry and is almost

unheard of in some populations, such as the Inuit. Studies indicate

that genetic factors make certain individuals more susceptible than

others, but there is no evidence that MS is directly inherited.

No single test is available to identify MS. Instead, a range of

information is needed to reach a diagnosis. Physicians begin by

looking at an overall view of a patient's health, including symptoms

and when they began. Tests of reflexes, balance, coordination,

vision, and checks for areas of numbness are conducted. An MRI scan

also is used to provide a detailed view of the brain, as is a spinal

tap, which check for signs of the disease in the spinal fluid. In

general, a patient must have signs of the disease in various parts of

the nervous system and a history of at least two separate flare-ups

for a diagnosis of MS.

MS is not considered a fatal disease, although in rare cases it can

lead to death. There is no cure, but medications are available that

can modify or slow down the progression of the disease. These drugs

help to lessen the frequency and severity of attacks and reduce the

spread of lesions in the brain. In addition, there are many

treatments available for symptoms such as pain, tremors, bladder

problems, fatigue and cognitive problems. Most people with MS have a

normal or near-normal life expectancy.

Source: National Multiple Sclerosis Society • Print this

Cannabis contains more than 60 different cannabinoids. The most

active is thought to be tetrahydrocannabinol (THC).

The 667 patients in the original study, which was reported in The

Lancet medical journal, were given a cannabis extract or capsules

with a synthetic version of THC or a placebo for 15 weeks.

About 80 percent of patients opted to continue the treatments for up

to a year.

More research needed

" We have generated interesting results which suggest there may be

long-term benefits, " Zajicek told a news conference at the annual

meeting of the British Association for the Advancement of Science.

But he added that more research is needed to confirm the findings,

which will be published later this year.

MS, which affects about one million people worldwide, is a disease in

which immune system cells destroy the myelin sheath that protects the

nerve cells in the brain and spinal cord.

Although cannabinoids have been used in medicine for thousands of

years, until recently there has been little scientific evidence of

any therapeutic values.

Last year, the Netherlands became the world's first country to make

cannabis available as a prescription drug for cancer, HIV and MS. In

the United States it is used to treat weight loss in AIDS patients

and nausea and vomiting in cancer sufferers.

[Guest guest]

I posted a bunch of stuff this morning and I wanted to make a few

comments.

" Relapsing MS " ? New to me, sounds like Lymes. To many similarities

to ignore. In Colorado MS is more prevelent then anywhere in the

United States, yet " Lymmes Disease is not found in this state. " They

blame it on the " altitude " . They don't even get it. The high altitude

makes for extremly LOW oxygen exchange, perfect for the Lymes to

flourish unattended. Meanwhile, MS patients are being treated with

steroids, which, it is my understanding, is a total no no in Lymes.

No wonder some patients are getting sicker.

In regards to the pot and MS article. I read somewhere recently about

a study on pot and neuro-lyme. Was it here? Any info on this would be

greatly appreciated. I know someone who went through cancer and used

pot, (THC pills) they said it worked better then vicodin.

Thanks.

Love and Magic

Barbwire

[Guest guest]

IHi, my name is Billie and need a dr willing to write a ldn srcipt in nc or closer. I have ms on copaxone.

low dose naltrexone From: claremagee@...Date: Wed, 9 Jan 2008 12:23:05 +0000Subject: [low dose naltrexone] ms

Hi Group

I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams.

I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help?

Clare, Cork City Ireland.

Watch “Cause Effect,” a show about real people making a real difference. Learn more

[Guest guest]

Hi Clare,

With the tired legs I suspect you've laid out the reason in your second

sentence - sounds like you've possibly just overdone things with all the

visiting and late nights. How about food over the last few weeks?

Eaten more unhealthy foods than usual?

Clare Magee wrote:

> Hi Group

> I am on ldn now five months.I have had a good sence of

> well being that I didnt have.Since yesterday I have felt very tired,

> my legs dnt want to move as quickly as they used to also alot of dreams.

> I know the xmas is just over and I had a great one alot of

> visiting and late nights f9or which I am grateful. So this latest

> episode I have no answer for can ye help?

> Clare, Cork City Ireland.

>

--

Every day I beat my own previous record for the number of consecutive days I've

stayed alive.

.

,-._|\ C

/ Oz \

\_,--.x/

v

[Guest guest]

Hi ,This site will tell you how to obtain LDN:http://tinyurl.com/2dfbvdThis site has important information about treating MS witn LDN, and it also discusses other potentially helpful options:http://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: Wharton

Sent: Wednesday, January 9, 2008 9:32 AM

low dose naltrexone

Subject: RE: [low dose naltrexone] ms

IHi, my name is Billie and need a dr willing to write a ldn srcipt in nc or closer. I have ms on copaxone.

low dose naltrexone From: claremagee@...Date: Wed, 9 Jan 2008 12:23:05 +0000Subject: [low dose naltrexone] ms

Hi Group

I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams.

I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help?

Clare, Cork City Ireland.

Watch �Cause Effect,� a show about real people making a real difference. Learn more

[Guest guest]

Help. My neurologist in Sharon, PA is leavinig his medical practice effective Jan. 31, 2008 and I am trying to find a way to stay on LDN. My primary care doc does not want to touch it, calling it a specialty drug and most of the internist I called are not wanting to touch MS. I will not make an appointment with the three other neuro groups in my area because of past experiences I had with them. Any ideas? Thanks Dudley Delany <DudleyDelany@...> wrote: Hi ,This site will tell you how to obtain LDN:http://tinyurl.com/2dfbvdThis site has important information about treating MS witn LDN, and it also discusses other potentially helpful options:http://tinyurl.com/grpm9With best wishes,Dudley Delany dudley_delany From: WhartonSent: Wednesday, January 9, 2008 9:32 AMlow dose naltrexone Subject: RE: [low dose naltrexone] ms IHi, my name is Billie and need a dr willing to write a ldn srcipt in nc or closer. I have ms on copaxone. To:

low dose naltrexone From: claremageeimagine (DOT) ieDate: Wed, 9 Jan 2008 12:23:05 +0000Subject: [low dose naltrexone] ms Hi Group I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams. I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help? Clare, Cork City Ireland. Watch �Cause Effect,� a show about real people making a real difference. Learn more

Never miss a thing. Make your homepage.

[Guest guest]

Hi ,I suggest you make your own LDN. For more information, visithttp://tinyurl.com/2dfbvdBest regards,Dudley Delany

dudley_delanyFrom: Hawthorne

Sent: Wednesday, January 9, 2008 10:07 AM

low dose naltrexone

Subject: RE: [low dose naltrexone] ms

Help. My neurologist in Sharon, PA is leavinig his medical practice effective Jan. 31, 2008 and I am trying to find a way to stay on LDN. My primary care doc does not want to touch it, calling it a specialty drug and most of the internist I called are not wanting to touch MS. I will not make an appointment with the three other neuro groups in my area because of past experiences I had with them. Any ideas? Thanks Dudley Delany <DudleyDelany@...> wrote: Hi ,This site will tell you how to obtain LDN:http://tinyurl.com/2dfbvdThis site has important information about treating MS witn LDN, and it also discusses other potentially helpful options:http://tinyurl.com/grpm9With best wishes,Dudley Delany dudley_delany From: WhartonSent: Wednesday, January 9, 2008 9:32 AMlow dose naltrexone Subject: RE: [low dose naltrexone] ms IHi, my name is Billie and need a dr willing to write a ldn srcipt in nc or closer. I have ms on copaxone. To:

low dose naltrexone From: claremageeimagine (DOT) ieDate: Wed, 9 Jan 2008 12:23:05 +0000Subject: [low dose naltrexone] ms Hi Group I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams. I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help? Clare, Cork City Ireland. Watch ?Cause Effect,? a show about real people making a real difference. Learn more

Never miss a thing. Make your homepage.

[Guest guest]

It seems odd that you primary doctor wouldn't prescribe LDN for you if you've been on it before with good results. I think I'd do a phone consultation if I was you and skip all the running around and frustration of going to other doctors in your area. I'm sure you can get the doctors name and numbers who do phone consultations off the list that Crystal keeps. If you've already been on LDN with good results, it should be a no brainer to keep prescribing to you, in my humble opinion. Chrisie

[low dose naltrexone] ms

Hi Group

I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams.

I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help?

Clare, Cork City Ireland.

Watch �Cause Effect,� a show about real people making a real difference. Learn more

Never miss a thing. Make your homepage.

[Guest guest]

I haven't had the problems with the dreams, but since I've been on LDN for the past year and three months, I know I have problems from time to time with weak legs. In fact I think I'm in one of those phases right now, just not as bad as other "episodes" that I've had before. For me a lot of seems to be based on the weather (cold is worse for me) and my activity level or fatigue level. I know Ireland is A LOT colder and damper than Southern California (you are probably laughing right now) but the colder, damper weather does a number on my coordination, and just how my legs "feel." Stress also plays a huge factor on how my legs function. Also, if I'm fighting off any sort of infection or illness my legs are done in until my body is on the mend again. If I were you, I'd try to get more rest in the next couple days and improve your diet. I think those two things

should help you get back on track again. Chrisie

[low dose naltrexone] ms

Hi Group

I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams.

I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help?

Clare, Cork City Ireland.

[Guest guest]

Hi ,

I've had good luck using an alternative MD for " controversial " medications

like T3 for hypothyroidism, and I'm confident mine will get on board with

the LDN as well. Many of these MDs trained under Weil. Most are not

covered by insurance, though my Blue Cross paid a portion of the fees.

best wishes,

B.

________________________________

From: low dose naltrexone

[mailto:low dose naltrexone ] On Behalf Of Chrisie Lim

Sent: Wednesday, January 09, 2008 10:28 AM

low dose naltrexone

Subject: Re: [low dose naltrexone] ms

It seems odd that you primary doctor wouldn't prescribe LDN for you if

you've been on it before with good results. I think I'd do a phone

consultation if I was you and skip all the running around and frustration of

going to other doctors in your area. I'm sure you can get the doctors name

and numbers who do phone consultations off the list that Crystal keeps. If

you've already been on LDN with good results, it should be a no brainer to

keep prescribing to you, in my humble opinion.

Chrisie

RE: [low dose naltrexone] ms

Help. My neurologist in Sharon, PA is leavinig his medical practice

effective Jan. 31, 2008 and I am trying to find a way to stay on LDN. My

primary care doc does not want to touch it, calling it a specialty drug and

most of the internist I called are not wanting to touch MS. I will not make

an appointment with the three other neuro groups in my area because of past

experiences I had with them. Any ideas?

Thanks

[Guest guest]

Hi

Many thanks for reply. I think you are right,My diet has been a healthy one but not these past few weeks.Maybe when I'm back in routine things will improve. Many thanks for advice.

Clare.

Re: [low dose naltrexone] ms

Hi Clare,With the tired legs I suspect you've laid out the reason in your second sentence - sounds like you've possibly just overdone things with all the visiting and late nights. How about food over the last few weeks? Eaten more unhealthy foods than usual?Clare Magee wrote:> Hi Group> I am on ldn now five months.I have had a good sence of > well being that I didnt have.Since yesterday I have felt very tired, > my legs dnt want to move as quickly as they used to also alot of dreams.> I know the xmas is just over and I had a great one alot of > visiting and late nights f9or which I am grateful. So this latest > episode I have no answer for can ye help?> Clare, Cork City Ireland.> -- Every day I beat my own previous record for the number of consecutive days I've stayed alive..,-._|\ C / Oz \ \_,--.x/ v

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.0/1216 - Release Date: 09/01/2008 10:16

[Guest guest]

Many thanks for that advice I think you are so right about diet and rest, I appreciate your reply.For the record, it is raining so heavy here now and so many floods.It is also very cold black ice on roads in the morning.Typical Irish weather.

Clare.

[low dose naltrexone] ms

Hi Group

I am on ldn now five months.I have had a good sence of well being that I didnt have.Since yesterday I have felt very tired, my legs dnt want to move as quickly as they used to also alot of dreams.

I know the xmas is just over and I had a great one alot of visiting and late nights f9or which I am grateful. So this latest episode I have no answer for can ye help?

Clare, Cork City Ireland.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.0/1216 - Release Date: 09/01/2008 10:16

[Guest guest]

I would contact Dr. Ayre:

http://contemporarymedicine.net/index.php?md=18

or this doctor:

Dr. Sullivan

1001 S. Market St.

Ste. B

Mechanicsburg, PA 17055

(717) 697-5050

Both do telephone consults.

Art

--

>

> Help. My neurologist in Sharon, PA is leavinig his medical practice

effective Jan. 31, 2008 and I am trying to find a way to stay on

LDN. My primary care doc does not want to touch it, calling it a

specialty drug and most of the internist I called are not wanting to

touch MS. I will not make an appointment with the three other neuro

groups in my area because of past experiences I had with them. Any

ideas?

>

> Thanks

>

[Guest guest]

Thank You much!

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

You can if you dissolve it in 50ml of distilled water first.

Follow these directions:

Liquid LDN (Easiest): Acquire some ml measuring equipment from the

baby section of a Drug Store and a small bottle with a screw-on cap.

Put 50ml of water (distilled is best) and one 50mg " ReVia " Naltrexone

tablet in the small bottle and let it dissolve with a little time and

shaking. Now each ml of water in that small bottle contains 1 mg of

Naltrexone. At bedtime shake the bottle, take a desired dose (no more

than 4.5ml), chase it down with some water and store the small bottle

in the refrigerator. Some people have reported splitting the tablet

in half and dissolving it in 25ml of water to assure freshness every

week.

http://goodshape.net/HomemadeLDN.html

>

> I would like to know if i can use 50mg of naltrexone

>

[Guest guest]

Hi pinkmatsy,You can use 50 mg Naltrexone tablets to make LDN according to the instructions near the bottom of this website:http://tinyurl.com/2dfbvdTo learn more about LDN, visithttp://tinyurl.com/2boot2Best regards,Dudley Delany

dudley_delanyFrom: pinkmatsy

Sent: Wednesday, February 6, 2008 6:49 PM

low dose naltrexone

Subject: [low dose naltrexone] ms

I would like to know if i can use 50mg of naltrexone

[Guest guest]

Yes.

>

> I take 100mcg of levothyroxin is it ok to take ldn

>

[Guest guest]

Hi Clare,

I have the same "problem" myself. I still have vivid dreams, I often wake up and stay awake

for maybe 15 minutes or a little more each time, and can't get rid of the dreams. They are

so lively and "real", and I continue to try to find solutions and making good and happy ends ;-)

Now, when this is mentioned, I have always dreamed long and lively dreams, and they are

often quite surrealistic and dramatic, but mostly with a touch of humor, and now while on

LDN, the dreams are even stronger, longer and funnier. So; LDN has given me a lot of energy

even while sleeping. ;-)

I have to admit that I have not been taking LDN as regularly as possible, the time has altered

within a couple of hours, and I do think that this could be the cause of some of my increased

nightly energy. (Waking up too often)..I am going to try to take them earlier in the night, maybe

at 9.00 p.m and then keep a better regularity ever after. Hope this could be of any help.

The very best fromIngrid

[low dose naltrexone] ms

Hi Group

I have a greater sence of well-being since I started L.D.N six months ago and am so happy to have found L.D.N.However I still have bizarre nightmares, can anyone throw some light on this.I do not have problem with sleep.I must say also before L.D.N I was getting muscle spasms weekly I have'nt had any now for five weeks.

Regards,

Clare(Cork City Ireland)

Never miss a thing. Make your homepage.

[Guest guest]

Google (or other search engine) is your friend. Just type " Lyme

disease " (with the quotes) into www.google.com and you'll find plenty of

reading eg. http://en.wikipedia.org/wiki/Lyme_disease or

http://www.lymediseaseassociation.org/

PS Why put the subject as MS and then ask about Lyme? As has been

stated a number of times on here, Lyme mimics many different conditions.

Clare Magee wrote:

> Hi Everybody.

> Excuse my ignorance, but I read alot on this site

> about Lime Disease, what is it please.

> Clare.

[Guest guest]

>

> Hi Everybody.

>

Excuse my ignorance, but

I read alot on this site

about Lime Disease, what

is it please.

>

Clare.

>

============

go to

http://www.google.com

and type in What is Lyme

Disease?

[Guest guest]

> websites: > www.ilads.org > www.lymetruth.org > www.lymediseaseassociation.org > www.lyme.org > www.actionlyme.com > www.lymenet.org > www.wildernetwork.org/index.html > www.lymesucks.org

[low dose naltrexone] ms

Hi Everybody.

Excuse my ignorance, but I read alot on this site about Lime Disease, what is it please.

Clare.

Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.11.19/956 - Release Date: 8/16/2007 9:48 AM

[Guest guest]

Well I am new to the site so didnt hear of Lime disease before , thankyou for the information anyway. Clare.

Re: [low dose naltrexone] ms

Google (or other search engine) is your friend. Just type "Lyme disease" (with the quotes) into www.google.com and you'll find plenty of reading eg. http://en.wikipedia.org/wiki/Lyme_disease or http://www.lymediseaseassociation.org/PS Why put the subject as MS and then ask about Lyme? As has been stated a number of times on here, Lyme mimics many different conditions.Clare Magee wrote:> Hi Everybody.> Excuse my ignorance, but I read alot on this site > about Lime Disease, what is it please.> Clare.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1295 - Release Date: 23/02/2008 21:35

[Guest guest]

Hi Mills5

Sorry about your husband - mine too has MS and has been on LDN for

nearly four years now - doing really well with no disease progression.

I`m sure others will point you in the right direction to either find

a doctor who`ll prescribe LDN or a pharmacy where you can buy some

without a script and make your own.

You dont actually need to see a doctor at all to monitor the

progress on LDN. only sees his neuro once a year usually and

we know more about LDN that he does. He has blood tests anyway each

year and nothing untoward has ever shown up - it`s not in the least

bit toxic at such a tiny dose.

I`ve just been diagnosed with hashimotos thyroiditis and possibly RA

and if I cant get a script from my doctor, I`ll just get some

Naltrexone online and make my own.

I think LDN helps Parkinsons - I think theres someone in this group

who either takes it or has a family member that does - I`m sure

they`ll speak up!

Good luck.

Bev in San Francisco

>

> My husband has MS and has tried about everything out there. They

even

> had him do some Chemo to try to slow the progress down. I feel it

has

> not done one anything for him.

> Would like to go to CA for the meeting on this drug. We live in

> Minnesota and there is no where to get this drug in our state. If

a

> person starts this drug, how often do you need to get checked and

meet

> with your doctor.

> Can some one tell me what the price is and how long a fill last?

>

> I also have a dad that has parkinson. Will this help any?

>

> Thanks for all you help...

>

> mills5_98_99

>

[Guest guest]

Oh I forgot....we pay about $65 for a three month supply. That is

for a dose of 4.5mg and it arrives in the mail from Skips Pharmacy in

Florida. We fax the script to the pharmacy and it arrives a few days

later - couldnt be easier!

- In low dose naltrexone , " mills5_98_99 " <sandbay@...>

wrote:

>

> My husband has MS and has tried about everything out there. They

even

> had him do some Chemo to try to slow the progress down. I feel it

has

> not done one anything for him.

> Would like to go to CA for the meeting on this drug. We live in

> Minnesota and there is no where to get this drug in our state. If

a

> person starts this drug, how often do you need to get checked and

meet

> with your doctor.

> Can some one tell me what the price is and how long a fill last?

>

> I also have a dad that has parkinson. Will this help any?

>

> Thanks for all you help...

>

> mills5_98_99

>

[Guest guest]

Just my two cents. If you get a script, IMHO it is better to have it filled at a comounding pharmacy than try to make it yourself. Eliminates most possibilities of error, and if there are unusual side effects, you can discuss with the pharmacist. Better to have consistant contols on dosages and fillers / mixtures if you have the option.>> My husband has MS and has tried about everything out there. They even > had him do some Chemo to try to slow the progress down. I feel it has > not done one anything for him.> Would like to go to CA for the meeting on this drug. We live in > Minnesota and there is no where to get this drug in our state. If a > person starts this drug, how often do you need to get checked and meet > with your doctor. > Can some one tell me what the price is and how long a

fill last?> > I also have a dad that has parkinson. Will this help any?> > Thanks for all you help...> > mills5_98_99>