Re: to sally

May 8, 2001

Hi Sally,

And welcome! I have a seven year old daughter who has been in treatment for

OCD (therapy and meds) for nearly three years now. What a difference this

has made in all of our lives.

We, too, dealt with sensory problems from birth. I'll never forget the

summer my daughter was 2 1/2 and out of diapers. She insisted upon wearing

one of the same five sundresses and one pair of sandals every day, no matter

what the activity. As Kathy H. mentioned, our daughter's sensory problems

have improved along with her OCD. IMO, healing the OCD symptoms contributes

to much less overall anxiety which contributes to making the sensory stuff

more bearable.

You asked why your daughter can hold it together at school (and presumably,

not at home.) This is so very common with OCD kids who do not want to

appear different in front of their peers. My daughter's teachers rarely saw

a problem at school, but before she was diagnosed she used to just

completely fall apart as soon as she got home. She still saves her very

worst behavior for home as that is where she feels most safe and

comfortable.

Kathy H. has also given you some very valuable advice about m.h.

professionals. I think the five-visit rule is the absolute gold standard.

We also wasted lots and lots of money on inappropriate treatment and

struggled to find the right docs for our daughter. Even now her treatment

is not fully covered and plenty of $$ still come out of our pocket. But it

is worth every penny when you get good treatment and see your child start to

make progress and heal from the symptoms of OCD.

Best wishes to you and feel free to write with any questions you may have.

Take care,

Lesli (San Francisco Bay)

December 30, 2003

> Hi Sally..I was wondering which other list you and Dr. Mulick were

> both on, where the discussion had been about flu mist? Also, do

you

> know which group/site he was referring to about biomedical

> treatments that are " bad " ? Thanks--

December 30, 2003

HI ,

I think I posted it once, but in case I forgot,(sometimes I think senility is setting in:) here it is again:) www.autism-biomed.com

It's a site rather than a list...;0) Take care, Sally

July 28, 2010

Hi from me too,

Just thought I would let you know I have a couple of friends who started on 50mg

a day of Mino .. then built the dose up over time, to keep the herxing to a

minimum.

If you are herxing too much drink at least 3 litres of water a day to flush the

toxins out of your system and/or try the whole lemon drink to detox.

Good luck,

Maz

>

> Sally, if you are having more pain or in different areasâ€¦you can drop back

on the dosage. This protocol should not make you more miserable. I started out

full 200mgms MWF and I herxed like crazy. I did not know â€¦and this group

wasnâ€™t very active at the timeâ€¦I should have taken less minocin and would

probably have felt better faster.

>

> Cooky

>

> AP1997

>

> From: rheumatic [mailto:rheumatic ] On Behalf

Of mannasal@...

> Sent: Wednesday, July 28, 2010 3:42 PM

> rheumatic

> Subject: RE: rheumatic Introduction pretty long

>

> Hi Carol,

> I'm a " newbee " here. Have RA for 4 years.....and have been homebound most of

the time. Did drugs for awhile, felt better, but didn't want to add more, side

effects, etc...so jumped off that roller coaster and spent a few thousand $ on

alternative, raw diet, etc...Been on AP for 4 weeks. It's frightening because I

am back to bed more, crying more, wondering if I'm going to make it....or even

if I want to! So, I guess you can say AP is working. Thanks so much to the

encouragement of people of this site, who have been through this and

encouragement to keep moving forward and that it is working! So, now with my

little experience, I now can tell you to keep moving forward with AP and join us

for recovery, remission, and an incredible new abundant live waiting us! Sally

>

July 29, 2010

Hi Maz,

how do you fix the whole lemon drink for detoxing?

thanks,

Ana

________________________________

From: maz.aust <maz.aust@...>

rheumatic

Sent: Wed, July 28, 2010 6:13:28 PM

Subject: rheumatic Re: to Sally

Â

Hi from me too,

Just thought I would let you know I have a couple of friends who started on 50mg

a day of Mino .. then built the dose up over time, to keep the herxing to a

minimum.

If you are herxing too much drink at least 3 litres of water a day to flush the

toxins out of your system and/or try the whole lemon drink to detox.

Good luck,

Maz

>

> Sally, if you are having more pain or in different areasÃ¢â‚¬Â¦you can drop

back on

>the dosage. This protocol should not make you more miserable. I started out

full

>200mgms MWF and I herxed like crazy. I did not know Ã¢â‚¬Â¦and this group

wasnÃ¢â‚¬â„¢t

>very active at the timeÃ¢â‚¬Â¦I should have taken less minocin and would

probably

>have felt better faster.

>

> Cooky

>

> AP1997

>

> From: rheumatic [mailto:rheumatic ] On Behalf

Of

>mannasal@...

> Sent: Wednesday, July 28, 2010 3:42 PM

> rheumatic

> Subject: RE: rheumatic Introduction pretty long

>

> Hi Carol,

> I'm a " newbee " here. Have RA for 4 years.....and have been homebound most of

>the time. Did drugs for awhile, felt better, but didn't want to add more, side

>effects, etc...so jumped off that roller coaster and spent a few thousand $ on

>alternative, raw diet, etc...Been on AP for 4 weeks. It's frightening because I

>am back to bed more, crying more, wondering if I'm going to make it....or even

>if I want to! So, I guess you can say AP is working. Thanks so much to the

>encouragement of people of this site, who have been through this and

>encouragement to keep moving forward and that it is working! So, now with my

>little experience, I now can tell you to keep moving forward with AP and join

us

>for recovery, remission, and an incredible new abundant live waiting us! Sally

>

January 11, 2011

Sally, i was on MWF (100mgs of Minocicline) and did not see much improvement.

Only after i started taking 100mgs every day and now MWF (200mgs) a day I

started to feel a difference. So, maybe you should try to increase the dose and

see how you feel. After i increased the dose, I was herxing big time, but to me

it was a good sign that something is working and my immune system is shaking..

I am a " doctor " for myself, I just get a prescription from the doctor, but twick

the dosage myself as I am the only one who knows how i feel. Also, i have

noticed the big difference in different generic names of Minocicline. I have

never had a Brand Minocin, i always had generic names, but some work better than

other ones i believe, so maybe you should try a different brand /generic Minocin

and see if it will make a difference for you???

January 12, 2011

Hi,

to avoid a huge herx when upping your dosage , only up one more day a week, then

two, etc. gradually adding instead of adding all at once keeps the herx more

manageable. Do the same if you are increasing to two doses a day instead of one.

Slow makes the herx bearable.

hope this makes sense.

carol_DM

March 24, 2011

Well, since RA, my achiness/pain is all the time AM and PM. I take my ibuprofen

in the AM and stay in bed until 10 or 11am to let it work, so I can then get up

(with great difficulty)

Just this morning, I lay in bed and didn't feel as much need to take

ibuprofen....so I didn't, and I got up! This has been a first for me! My hip

does give me much pain, so about an hour ago I took ibuprofen. This is a very

positive sign for me. Seems like, for me....when I get frustrated and question

if anything is working.....then the Universe gives me sometimes a small sign,

saying " yes " .

Sally

Cooky....reading your email on how much you love/loved to shop made me want to

go back to bed!! I've never liked shopping (even in good body) so got a good

chuckle from hearing what energizes you! For me right now, (and now winter

over) I like getting out to my front porch, sitting and watching and listening

to nature and just being quiet. Come to think of it, that is what I liked

before RA! How different (and the same) we all are. My focus/wish for some

years, is to be happy/content doing whatever I am doing (or not doing) in the

moment. Must say, now with RA.......my being happy/content is MUCH bigger

challenge.......with much bigger rewards. And on line shopping is fun!

rheumatic to sally

Sally, I just read an old article about rheumatoid and AP. It said the first

sign of it working is less achiness in the AM. Just FYI

cooky

March 24, 2011

Sallyâ€¦That is a really positive sign! Wow! Hopefully you will have more

mornings of just getting up without ibuprofen.

As for shoppingâ€¦I love finding stuff, buying it and either giving it to

someone I knew it would like it or using it in my own home. I loved to buy

something for my daughter and see her get excited when she saw it. I really love

getting something for my granddaughter. Her look of amazement is the best thing

next to ice cream! My grandbaby will be here this evening from Ohio and I will

have her for about 5 days without mom. She is 6 Â½ and just the smartest little

girl I have ever seen. She is also quite manipulative! I am really excited about

being with her. I have gotten out of bed and got ready for her all this week.

I actually used to even like grocery shoppingâ€¦but now that I have to restrict

my eating itâ€™s not so much fun.

Internet shopping is great but I really resent having to pay shipping and

handling. The excitement there for me is finding a free shipping coupon or a %

off coupon.

Soon it will be nice outside and you can be content on your porch again and

hopefully without too much pain.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

mannasal@...

Well, since RA, my achiness/pain is all the time AM and PM. I take my ibuprofen

in the AM and stay in bed until 10 or 11am to let it work, so I can then get up

(with great difficulty)

Just this morning, I lay in bed and didn't feel as much need to take

ibuprofen....so I didn't, and I got up! This has been a first for me! My hip

does give me much pain, so about an hour ago I took ibuprofen. This is a very

positive sign for me. Seems like, for me....when I get frustrated and question

if anything is working.....then the Universe gives me sometimes a small sign,

saying " yes " .

Sally

Cooky....reading your email on how much you love/loved to shop made me want to

go back to bed!! I've never liked shopping (even in good body) so got a good

chuckle from hearing what energizes you! For me right now, (and now winter over)

I like getting out to my front porch, sitting and watching and listening to

nature and just being quiet. Come to think of it, that is what I liked before

RA! How different (and the same) we all are. My focus/wish for some years, is to

be happy/content doing whatever I am doing (or not doing) in the moment. Must

say, now with RA.......my being happy/content is MUCH bigger

challenge.......with much bigger rewards. And on line shopping is fun!

-----

March 24, 2011

Sally,

glad you feeling some better, that means the AP is working

and Cooky,

I am with you, I love to go shopping during the week when the stores are not so

crowded. I take my little 3-wheel rollator and just walk through the big stores.

Just to get some exercise. Indoor is better. Texas gets to hot.

Eva

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic to sally

rheumatic

Date: Thursday, March 24, 2011, 2:28 PM