Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi, Deb: I also have AS, but have been symptom-free for almost ten years, after finding out about Professor Ebringer's work--he found that AS was caused first by Klebsiella pneumoniae in genetically susceptible individuals, then those who do not get the disease he concedes they probably do not have LGS (leaky gut syndrome)--AS is a result of this and also causes more of it. The mechanism of AS is well documented, despite what the doctors and certain pharmaceutical companies want us to believe: Molecular mimicry to the outer surface protein HLA B27. I developed my own AP, and it took many months to get it right, but it is very effective. Depending upon how long you have had symptoms, the same AP used for RA will not work very well. You may have already found the food connection--but " Food is Everything " and the food we need to avoid is STARCH as opposed to meats in gout and RA. That was hard to swallow for a vegetarian (but I'm not,. anymore). AS cannot be overcome except by incorporating diet. The book to purchase is Carol Sinclair's " The New IBS Low-Starch Diet " with foreword by Professor Ebringer but available in UK (amazon-UK carries it) only. The best website is hppt://www.kickas.org but not the (trainwreck) main forum--the NSD Forum. There are also many technical papers to read and even download, explaining the TRUE cause of AS. Yeah, my ESR was over 100 but recently clocked in at 9! I have FULL CONTROL and can make it over 100 again whenever I wish--and I NEVER wish to do this because I'm so against getting costochondritis and iritis again and it is just not worth allowing myself to be so uncareful about my diet: Eat to live instead of live to Eat! bon appetit, From: deb gilford <debbiejean6@...> Subject: rheumatic HLBA 27 positive " rheumatic " <rheumatic > Date: Thursday, June 19, 2008, 8:28 AM Hello, I am a second time poster. I have been quiet reading all the advice given and want to thank everyone who is offering me hope. I had never heard of AP but am interested. I have ankylosing spondylitis, as did my dad. I was told this is a genetic illness and don't understand how a microbe caused illness could have genetic tendencies. Can anyone help me understand this? I had made the decision several years ago to stop all the toxic meds recommended by my specialist. I fought taking the immunosuppresive drugs for years but eventually, with hope on the horizon, I tried methotrexate after trying all other meds recommended: being a nurse I understood the side effects. I followed all the suggested protocols and did find some relief, but my SED rates were still off the charts, never coming down. I then got sick with a simple infection while on methotrexate and nearly died, took me a year to recover. I was raising a young son and had a sick husband and was terrified. I said never again. I've had to give up my career as a nurse and have somewhat withdrawn from anything but a simple life. I am careful with diet, do warm water range of motion, try to avoid stress and it has helped tremendously. But, I have to admit, I got burned out following such a strict routine and became depressed and seem to feel hopeless. I have a referral to another specialist that I am going to see if he will approach my treatment with the AP. I had mentioned to my Dr. for years that when I am on antibiotics for what ever infection my arthritis seems to improve. She said that's simply because they have immunosupressive qualities (didn't understand that). Is that true? Thank you all for your encouraging information and all the time you've willing to share. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi , Thank you for your advice. I appreciate your input and your time. I am surely going to investigate this further. We all need to be our own advocate and not rely only on what the Dr. says. Sharing your experience is giving me hope. Thank you and I wish you continued health. Deb From: deb gilford <debbiejean6> Subject: rheumatic HLBA 27 positive " rheumatic " <rheumatic@grou ps.com> Date: Thursday, June 19, 2008, 8:28 AM Hello, I am a second time poster. I have been quiet reading all the advice given and want to thank everyone who is offering me hope. I had never heard of AP but am interested. I have ankylosing spondylitis, as did my dad. I was told this is a genetic illness and don't understand how a microbe caused illness could have genetic tendencies. Can anyone help me understand this? I had made the decision several years ago to stop all the toxic meds recommended by my specialist. I fought taking the immunosuppresive drugs for years but eventually, with hope on the horizon, I tried methotrexate after trying all other meds recommended: being a nurse I understood the side effects. I followed all the suggested protocols and did find some relief, but my SED rates were still off the charts, never coming down. I then got sick with a simple infection while on methotrexate and nearly died, took me a year to recover. I was raising a young son and had a sick husband and was terrified. I said never again. I've had to give up my career as a nurse and have somewhat withdrawn from anything but a simple life. I am careful with diet, do warm water range of motion, try to avoid stress and it has helped tremendously. But, I have to admit, I got burned out following such a strict routine and became depressed and seem to feel hopeless. I have a referral to another specialist that I am going to see if he will approach my treatment with the AP. I had mentioned to my Dr. for years that when I am on antibiotics for what ever infection my arthritis seems to improve. She said that's simply because they have immunosupressive qualities (didn't understand that). Is that true? Thank you all for your encouraging information and all the time you've willing to share. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi Deb, Answer to genetic and microbes. Well some people have the right genetics that cause the microbes to respond in a way that causes an illness. Other people do not have the genes for this process and the do not end up getting our sicknesses even tho they were exposed to the same microbes. You do not need to see a specialist to get antibiotics. As a matter of fact. specialists will be the last people to give them.after all you do not need to be a specialist to give out antibiotics and their jobs with the BIG paychecks will be gone. So just find a good doctor. just a regular open minded doctor. Call the office and ask if the doctor is open minded.the office staff will know. Or ask if he ever gave antibiotics for a auto immune diseases. Or ask to talk to the doctor and explain that you would like to try this and would he help you. Depression is part of the disease process. Minocin has anti inflammatory properties but not immunesuppressive qualities and I do not think any other antibiotic does either. Start today. Call doctors offices and get an appointment. START now!!!! Hugs and prayers. Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of deb gilford Sent: Thursday, June 19, 2008 11:29 AM rheumatic Subject: rheumatic HLBA 27 positive Hello, I am a second time poster. I have been quiet reading all the advice given and want to thank everyone who is offering me hope. I had never heard of AP but am interested. I have ankylosing spondylitis, as did my dad. I was told this is a genetic illness and don't understand how a microbe caused illness could have genetic tendencies. Can anyone help me understand this? I had made the decision several years ago to stop all the toxic meds recommended by my specialist. I fought taking the immunosuppresive drugs for years but eventually, with hope on the horizon, I tried methotrexate after trying all other meds recommended: being a nurse I understood the side effects. I followed all the suggested protocols and did find some relief, but my SED rates were still off the charts, never coming down. I then got sick with a simple infection while on methotrexate and nearly died, took me a year to recover. I was raising a young son and had a sick husband and was terrified. I said never again. I've had to give up my career as a nurse and have somewhat withdrawn from anything but a simple life. I am careful with diet, do warm water range of motion, try to avoid stress and it has helped tremendously. But, I have to admit, I got burned out following such a strict routine and became depressed and seem to feel hopeless. I have a referral to another specialist that I am going to see if he will approach my treatment with the AP. I had mentioned to my Dr. for years that when I am on antibiotics for what ever infection my arthritis seems to improve. She said that's simply because they have immunosupressive qualities (didn't understand that). Is that true? Thank you all for your encouraging information and all the time you've willing to share. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 > > Hi, gang, I have been told, by Dr. Whitman (who many people on this list go to) that Minocin is, among other things, an immuno-suppressant. What is wrong with that? I have also seen it listed that way on a web site about " autoimmune " diseases, on a list with others that we know to be far more problematic. I find that my seronegative arthritis is much more under control (though not yet in remission), after a year on Minocin and some Zithromax. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Innuno suppressant means that suppress the immune system. If minocin did that I would not take it. Anti inflammatory(this means brings down inflammation) is what they say about Minocin and that is why they try to tell us it works on arthritis Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Beckman Sent: Thursday, June 19, 2008 8:02 PM rheumatic Subject: Re: rheumatic HLBA 27 positive > > Hi, gang, I have been told, by Dr. Whitman (who many people on this list go to) that Minocin is, among other things, an immuno-suppressant. What is wrong with that? I have also seen it listed that way on a web site about " autoimmune " diseases, on a list with others that we know to be far more problematic. I find that my seronegative arthritis is much more under control (though not yet in remission), after a year on Minocin and some Zithromax. > > _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi ; Minocin at high doses such as 200mg a day is immuno-suppressant but still kils some micoplasma.When you used it only every other day it is not and your immune system can kill off the bugs also.That is why a lot of people do much better on pulsed antibiotics.If you are considering adding Zithromax,you only need to take it once evry 10 to 14 days as it stays active in your body for 2 weeks.Lynne/ SD > > > > Hi, gang, > > I have been told, by Dr. Whitman (who many people on this list go to) > that Minocin is, among other things, an immuno-suppressant. What is > wrong with that? > I have also seen it listed that way on a web site about " autoimmune " > diseases, on a list with others that we know to be far more > problematic. I find that my seronegative arthritis is much more under > control (though not yet in remission), after a year on Minocin and > some Zithromax. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Lynne, Are you saying that if took it every other day it would kill off the bugs faster? Dr. Whitman wanted me to take doxycycline at night so that I'd only be taking 100 mg. a day, but my neck hurt so much at night that I couldn't sleep. I told him on the phone that I was going back to 200 mg. of minocin a day (except for Wed. and Fri. when I take zithro at night), and he said OK. Maybe I should try to put up with the night pain if I would get better faster. What do you think? On Jun 19, 2008, at 9:05 PM, Lynne and Santos wrote: > Hi ; > Minocin at high doses such as 200mg a day is immuno-suppressant but > still kils some micoplasma.When you used it only every other day it is > not and your immune system can kill off the bugs also.That is why a > lot > of people do much better on pulsed antibiotics.If you are considering > adding Zithromax,you only need to take it once evry 10 to 14 days as > it > stays active in your body for 2 weeks.Lynne/ SD > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many people on this list go > to) > > that Minocin is, among other things, an immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web site about " autoimmune " > > diseases, on a list with others that we know to be far more > > problematic. I find that my seronegative arthritis is much more > under > > control (though not yet in remission), after a year on Minocin and > > some Zithromax. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I doubt that someone as knowledgable as Dr Whitman would say that Minocin is an immunosuppressant. It is not. It is an antibiotic of the tetracycline family and taken at 100mg twice a day (large dose) it acts as an antiinflammatory. I believe you misheard Dr. Whitman. If you want to reconfirm that, ask him again to verify for yourself and the rest of us just to clear it up for once and for all. Dolores C Stonkey <cookee1@...> wrote: Innuno suppressant means that suppress the immune system. If minocin did that I would not take it. Anti inflammatory(this means brings down inflammation) is what they say about Minocin and that is why they try to tell us it works on arthritis Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Beckman Sent: Thursday, June 19, 2008 8:02 PM rheumatic Subject: Re: rheumatic HLBA 27 positive > > Hi, gang, I have been told, by Dr. Whitman (who many people on this list go to) that Minocin is, among other things, an immuno-suppressant. What is wrong with that? I have also seen it listed that way on a web site about " autoimmune " diseases, on a list with others that we know to be far more problematic. I find that my seronegative arthritis is much more under control (though not yet in remission), after a year on Minocin and some Zithromax. > > _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I will ask him again when I see him in July. What I understood was that it was an immuno-suppressant (among other things) and so would tone down the over-response of my immune system, which was reacting to the mycoplasma in a way that was causing trouble. On Jun 20, 2008, at 3:05 PM, mike rosner wrote: > I doubt that someone as knowledgable as Dr Whitman would say that > Minocin is an immunosuppressant. It is not. It is an antibiotic of > the tetracycline family and taken at 100mg twice a day (large dose) > it acts as an antiinflammatory. I believe you misheard Dr. Whitman. > If you want to reconfirm that, ask him again to verify for yourself > and the rest of us just to clear it up for once and for all. Dolores > > C Stonkey <cookee1@...> wrote: Innuno suppressant means that > suppress the immune system. If minocin did > that I would not take it. > > Anti inflammatory(this means brings down inflammation) is what they > say > about Minocin and that is why they try to tell us it works on > arthritis > > Cooky > > _____ > > From: rheumatic [mailto:rheumatic ] > On Behalf > Of Beckman > Sent: Thursday, June 19, 2008 8:02 PM > rheumatic > Subject: Re: rheumatic HLBA 27 positive > > > > > Hi, gang, > > I have been told, by Dr. Whitman (who many people on this list go to) > that Minocin is, among other things, an immuno-suppressant. What is > wrong with that? > I have also seen it listed that way on a web site about " autoimmune " > diseases, on a list with others that we know to be far more > problematic. I find that my seronegative arthritis is much more under > control (though not yet in remission), after a year on Minocin and > some Zithromax. > > > > > > > _._,___ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 DR. W told me once that minocin was an immune " modifier " .....hope this helps.. Debbie in Cincinnati Re: rheumatic HLBA 27 positive > > > > > Hi, gang, > > I have been told, by Dr. Whitman (who many people on this list go to) > that Minocin is, among other things, an immuno-suppressant. What is > wrong with that? > I have also seen it listed that way on a web site about " autoimmune " > diseases, on a list with others that we know to be far more > problematic. I find that my seronegative arthritis is much more under > control (though not yet in remission), after a year on Minocin and > some Zithromax. > > > > > > > _._,___ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I heard from Dr. whitmann that minocin is immune modifier. soheila --- DEBBIE GIBSON <Debbullwinkle@...> wrote: > DR. W told me once that minocin was an immune > " modifier " .....hope this helps.. > Debbie in Cincinnati > Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 So what is an immune modifier? I think its something that is made up to cover them using it. cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of soheila A Sent: Friday, June 20, 2008 3:59 PM rheumatic Subject: Re: rheumatic HLBA 27 positive I heard from Dr. whitmann that minocin is immune modifier. soheila --- DEBBIE GIBSON <Debbullwinkle@ <mailto:Debbullwinkle%40fuse.net> fuse.net> wrote: > DR. W told me once that minocin was an immune > " modifier " .....hope this helps.. > Debbie in Cincinnati > Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Soheila Oh good...that is what he told me...good to know...my memory is still intact...thanks for confirming that. D Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi, i am newly on minocyline for my psoriatic arthritis. I am 28 years old. I have been taking it for almost 4 weeks now. I am on 50 mg 3 times a week. THere has been a worsening of my symptoms which i have read is common. Does anyone have experience with this and can anyone tell me how long the antiboitics started working for them? I used to be on methotrexate and wanted to try something else but i am so scared that this won't work. Thanks, Betsy On Fri, Jun 20, 2008 at 4:03 PM, DEBBIE GIBSON <Debbullwinkle@...> wrote: > Soheila > Oh good...that is what he told me...good to know...my memory is still > intact...thanks for confirming that. > D > > Re: rheumatic HLBA 27 positive > > > > > > > > > > > Hi, gang, > > > > > > I have been told, by Dr. Whitman (who many > > people on this list go to) > > > that Minocin is, among other things, an > > immuno-suppressant. What is > > > wrong with that? > > > I have also seen it listed that way on a web > > site about " autoimmune " > > > diseases, on a list with others that we know to > > be far more > > > problematic. I find that my seronegative > > arthritis is much more under > > > control (though not yet in remission), after a > > year on Minocin and > > > some Zithromax. > > > > > > > > > > > > > > > > > _._,___ > > > > > > [Non-text portions of this message have been > > removed] > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi Cooky, From what I understood from DR W....it does not suppress or enhance the immune system...it modifies it...somehow changes it and thereby modifies the disease process...minocin sure worked for me. Debb Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Yes it worked for me too. I still think he made that up. LOL _____ From: rheumatic [mailto:rheumatic ] On Behalf Of DEBBIE GIBSON Sent: Friday, June 20, 2008 4:08 PM rheumatic Subject: Re: rheumatic HLBA 27 positive Hi Cooky, From what I understood from DR W....it does not suppress or enhance the immune system...it modifies it...somehow changes it and thereby modifies the disease process...minocin sure worked for me. Debb Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 LOL maybe, but it does sound good. :>)) Re: rheumatic HLBA 27 positive > > > > > > > > Hi, gang, > > > > I have been told, by Dr. Whitman (who many > people on this list go to) > > that Minocin is, among other things, an > immuno-suppressant. What is > > wrong with that? > > I have also seen it listed that way on a web > site about " autoimmune " > > diseases, on a list with others that we know to > be far more > > problematic. I find that my seronegative > arthritis is much more under > > control (though not yet in remission), after a > year on Minocin and > > some Zithromax. > > > > > > > > > > > > _._,___ > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Yes it does _____ From: rheumatic [mailto:rheumatic ] On Behalf Of DEBBIE GIBSON Sent: Friday, June 20, 2008 4:24 PM rheumatic Subject: Re: rheumatic HLBA 27 positive LOL maybe, but it does sound good. :>)) RE: rheumatic HLBA 27 positive Yes it worked for me too. I still think he made that up. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi Betsy, I think it is different for everyone. Some people notice improvement right away and for some people it takes many months or longer. Have you read the stories on the rheumatic site? You will find stories that give you an idea of how long it took for some people to feel better. It will also give you some incentitive to keep up with it. I am so glad you decided to get off that evil methotrexate :-) but you may need something to help with the inflammation till the Minocin kicks in. How did you learn about antibiotics? Is your doc OK with this or did you have to beg :-)? Where are you from? Stay on this site to help read about other people's problems and how they solved them. Also to help if you get questions. This is a great group. I myself have been on antibiotics for 10 years and an doing great. I never intend to go back to where I was so I keep taking the antibiotics. I have of course lowered the dose. So welcome and hope you see improvements soon. Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Betsy Sent: Friday, June 20, 2008 4:07 PM rheumatic Subject: Re: rheumatic HLBA 27 positive Hi, i am newly on minocyline for my psoriatic arthritis. I am 28 years old. I have been taking it for almost 4 weeks now. I am on 50 mg 3 times a week. THere has been a worsening of my symptoms which i have read is common. Does anyone have experience with this and can anyone tell me how long the antiboitics started working for them? I used to be on methotrexate and wanted to try something else but i am so scared that this won't work. Thanks, Betsy On Fri, Jun 20, 2008 at 4:03 PM, DEBBIE GIBSON <Debbullwinkle@ <mailto:Debbullwinkle%40fuse.net> fuse.net> wrote: > Soheila > Oh good...that is what he told me...good to know...my memory is still > intact...thanks for confirming that. > D > > Re: rheumatic HLBA 27 positive > > > > > > > > > > > Hi, gang, > > > > > > I have been told, by Dr. Whitman (who many > > people on this list go to) > > > that Minocin is, among other things, an > > immuno-suppressant. What is > > > wrong with that? > > > I have also seen it listed that way on a web > > site about " autoimmune " > > > diseases, on a list with others that we know to > > be far more > > > problematic. I find that my seronegative > > arthritis is much more under > > > control (though not yet in remission), after a > > year on Minocin and > > > some Zithromax. > > > > > > > > > > > > > > > > > _._,___ > > > > > > [Non-text portions of this message have been > > removed] > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 /*I'm sure everyone already knows this - that Methotrexate, Humira, Enbrel, and the like are also called modifiers. (DMARD = Disease-modifying, anti-rheumatic drugs) http://arthritis.about.com/cs/dmards/a/diseasemodifier.htm I don't mean to say that minocin is the same kind of modifier. I wouldn't think so, but I also don't know. Amy */ DEBBIE GIBSON wrote: > > Hi Cooky, > >From what I understood from DR W....it does not suppress or enhance > the immune system...it modifies it...somehow changes it and thereby > modifies the disease process...minocin sure worked for me. > Debb > Quote Link to comment Share on other sites More sharing options...
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